What KidneyCAN does

KidneyCAN is a Philadelphia-based 501(c)(3) nonprofit founded in 2016 to advance kidney cancer research and patient advocacy. It serves patients, caregivers, researchers, clinicians, patient advocates, and US military veterans through an online Patient Resource Center, a Clinical Trial Navigator, town halls, Advocacy Days, the annual Kidney Cancer Research Summit, research grants and awards, and community fundraising. KidneyCAN reports that its advocacy helped generate $285 million in kidney cancer research funding from 2016 to 2022.

The organization has no disclosed proprietary technology, app, API, or SDK; its digital capabilities consist mainly of distributing educational content and providing a web-based Clinical Trial Navigator, which is powered in partnership with Almara. Its services are free to patients, caregivers, and advocates, and its stated operating model is based on grassroots donations and fundraising campaigns; revenue, donor mix, and pricing are not publicly disclosed. The organization has a small team of three employees supplemented by volunteers and operates from a Philadelphia office.

Name

KidneyCAN

Legal name

The Kidney Cancer Coalition, Inc.

Website

https://kidneycan.org

Company type

Private

Founded year

2016

Operating status

Operating

Headcount range

1–10 employees

Short description

KidneyCAN is a Philadelphia-based 501(c)(3) nonprofit providing kidney cancer education, clinical-trial navigation, research programs, and advocacy to patients, caregivers, clinicians, researchers, and veterans. Its events, summit, resources, and grassroots donor model support this work.

Ownership category

akta.pro rank

Headquarters

HQ city

Philadelphia, Pennsylvania

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Individual Donations and Grassroots Fundraising: KidneyCAN is funded entirely through grassroots donations from the kidney cancer community. Individual donors contribute through various channels including the website donate page. The organization notes that their work is funded by people touched by kidney cancer.
2. Fundraising Campaigns: The organization runs fundraising campaigns including the Reed on 3! campaign that raised over $53,000, Rock the Run 5K events, and other community fundraising initiatives. Donors can set up fundraisers to celebrate milestones or honor loved ones.

Go-to-market motion2 records

Distribution channels5 records

Marketing channels10 records

Core offering

KidneyCAN is a 501(c)(3) nonprofit patient advocacy organization that accelerates cures for kidney cancer by advocating for increased federal research funding (CDMRP/KCRP), educating patients through an online Patient Resource Center, matching patients to clinical trials via a Clinical Trial Navigator (built with partner Almara), and convening the global research community through the annual Kidney Cancer Research Summit (KCRS) and bi-annual Advocacy Days in Washington D.C. Its offerings are free to patients, caregivers, and advocates, and are funded entirely through grassroots donations and community fundraising.

Product overview

KidneyCAN is a nonprofit organization (501(c)(3)) focused on accelerating cures for kidney cancer through patient advocacy and research funding support. The organization operates a Patient Resource Center providing education and support for patients and caregivers, a Clinical Trial Navigator tool to help find clinical trials, and organizes annual events including the Kidney Cancer Research Summit (KCRS) and Advocacy Days. Additional offerings include Town Hall educational webinars, the Rock the Run fundraising event, and direct research funding through grants and awards programs.

Differentiator

Problem solved

Functional benefit

Products and services

• Patient Resource Center
• Clinical Trial Navigator
• Advocacy Days
• Kidney Cancer Research Summit (KCRS)
• Town Hall Events
• Rock the Run
• Research Grants and Awards

Quantifiable outcome

• Generated $285 million in kidney cancer research funding through advocacy from 2016-2022
• +2 more outcomes

Named customers4 records

Segments5 records

Ideal customer profiles6 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

14 partnerships are on record, tiered core and supporting.

• AlmaracoreTechnology or IntegrationKidneyCAN partners with Almara to power the Clinical Trial Navigator tool, helping patients find relevant clinical trials for kidney cancer treatment.
• EisaisupportingGTM or Marketing PartnerPharmaceutical company sponsor providing support for Advocacy Days events
• ExelixissupportingGTM or Marketing PartnerPharmaceutical company sponsor providing support for Advocacy Days events
• MercksupportingGTM or Marketing PartnerPharmaceutical company sponsor providing support for Advocacy Days events
• PfizersupportingGTM or Marketing PartnerPharmaceutical company sponsor providing support for Advocacy Days events
• NaterasupportingGTM or Marketing PartnerMolecular diagnostics company sponsor providing support for Advocacy Days events
• BHD FoundationsupportingGTM or Marketing PartnerNon-profit foundation supporting Advocacy Days as a partnering organization
• CJF (Canfield Jensen Foundation)supportingGTM or Marketing PartnerFoundation supporting Advocacy Days as a partnering organization
• Ferrell FoundationsupportingGTM or Marketing PartnerFoundation supporting Advocacy Days as a partnering organization
• National Kidney FoundationcoreStrategic or Co-development PartnerNational advocacy organization partnering on Advocacy Days events
• Kure It Cancer ResearchsupportingGTM or Marketing PartnerCancer research foundation supporting Advocacy Days as a partnering organization
• Defense Health Research ConsortiumcoreStrategic or Co-development PartnerConsortium of organizations advocating for increased federal funding for cancer research through NIH and CDMRP; KidneyCAN meets with Congressional offices as part of this consortium
• OVAC (One Voice Against Cancer)coreStrategic or Co-development PartnerCoalition that KidneyCAN participates in for monthly meetings and Hill Days advocating for NIH and CDMRP research funding
• International Kidney Cancer Coalition (IKCC)coreStrategic or Co-development PartnerGlobal coalition working together on World Kidney Cancer Day activities and advocacy efforts

Scale indicators9 records

Recent moves5 records

Expansion highlights6 records

Direct peers

• Kidney Cancer Association: A direct peer nonprofit dedicated to kidney cancer patient education, research funding, and advocacy — overlapping closely with KidneyCAN's mission, including grants to researchers and patient support resources.
• One Voice Against Cancer (OVAC): A direct peer coalition that KidneyCAN participates in for coordinated Hill Days and monthly meetings advocating for NIH and CDMRP cancer research funding across multiple cancer types.
• International Kidney Cancer Coalition (IKCC): A direct peer global umbrella organization for kidney cancer patient advocacy groups; KidneyCAN is an active coalition partner on cross-national initiatives such as World Kidney Cancer Day.
• National Kidney Foundation: A larger peer organization focused broadly on kidney diseases including kidney cancer; co-partners with KidneyCAN on Advocacy Days and shares overlapping patient advocacy and federal funding goals.
• BHD Foundation: A direct peer patient advocacy organization (Birt-Hogg-Dubé syndrome, a hereditary kidney cancer syndrome) that partners with KidneyCAN on Advocacy Days and shares research-funding advocacy objectives.
• Defense Health Research Consortium: A direct peer advocacy consortium in which KidneyCAN is a member organization, coordinating Hill Day visits and lobbying on NIH and CDMRP appropriations.
• Kure It Cancer Research: A direct peer nonprofit that funds kidney and other cancer research through grassroots fundraising; actively partners with KidneyCAN on Advocacy Days and shares a kidney cancer research funding mission.

Broad incumbents

• American Association for Cancer Research (AACR): A broad incumbent professional society that advocates for federal cancer research funding (including NIH/NCI) and convenes researchers — overlapping with KidneyCAN's federal advocacy and research summit functions at a larger scale.
• American Cancer Society: A broad incumbent and the largest U.S. cancer advocacy nonprofit; competes for donor dollars and Congressional attention across all cancer types, including kidney cancer research funding.
• LIVESTRONG Foundation: A broad incumbent cancer survivorship and advocacy nonprofit with patient navigation services and policy advocacy; comparable in operating model (patient advocacy + federal funding influence) though much larger and broader in scope.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xtwitter.com/kidneycan
• YouTubeyoutube.com/channel/UCt12xhjGyU65kMVhRmzVBWw
• Facebookfacebook.com/KidneyCAN
• LinkedInlinkedin.com/company/kidneycan
• Instagraminstagram.com/KidneyCan

Revenue estimate

Valuation estimate

Number of profiles

Profiles4 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about KidneyCAN