Novo Nordisk Haemophilia Foundation

What Novo Nordisk Haemophilia Foundation does

Novo Nordisk Haemophilia Foundation (NNHF) is a Swiss non-profit foundation established in Zurich in 2005 (with founding dates also reported as 2000) by Prof Ulla Hedner and a Council of experts, with primary funding from the Novo Nordisk Foundation. The foundation operates a grant-making model that funds country-led programmes to improve diagnosis, treatment, and integrated care for haemophilia and (since 2025) haemoglobinopathies including sickle cell disease and thalassaemia, primarily in low- and middle-income countries. Its beneficiaries are reached indirectly through a coalition of local patient organisations, hospitals, universities, and healthcare professional networks — NNHF does not operate clinics, train clinicians directly, or deliver medical services. The foundation has supported 334 programmes across 87 countries and committed 37m CHF cumulatively, with 47 active projects in 51 countries in 2025 reaching 64,049 beneficiaries, training 2,868 healthcare professionals, and supporting 159 treatment centres.

Name

Novo Nordisk Haemophilia Foundation

Legal name

Novo Nordisk Haemophilia & Haemoglobinopathies Foundation

Website

https://nnhf.org

Company type

Private

Founded year

2000

Operating status

Operating

Headcount range

1–10 employees

Short description

NNHF is a Swiss non-profit foundation that funds country-led programmes to improve haemophilia and haemoglobinopathies care in low- and middle-income countries, awarding grants to local patient organisations, hospitals, and healthcare partners across 87 countries.

Ownership category

akta.pro rank

Product category

Non-profit Healthcare Foundation

NAICS

Grantmaking and Giving Services (81321), Voluntary Health Organizations (813212), Community Food and Housing, and Emergency and Other Relief Services (6242)

SIC

Services-Misc Health & Allied Services, Nec (8090), Services-Social Services (8300), Services-Membership Organizations (8600)

akta.pro primary industry

Health Workforce Development & Capacity-Building (HLAJAKAM)

akta.pro secondary industries

Global Health Research, Evidence & Technical Assistance Organizations (HLAJAKAN), International & Global Public Health Aid Administration (Government Donors) (HLAJALAO)

Keywords

• Haemophilia care programmes
• Grant-making foundation
• Bleeding disorders advocacy
• Haemoglobinopathies treatment access
• Healthcare capacity building

Headquarters

HQ city

Zurich

HQ country

Switzerland

HQ region

Europe

Offices4 records

Markets served

GTM type

B2B

Offering type

Services

Cost components

Others, Personnel, Operations, Marketing or Sales, Infrastructure

Revenue model

1. Philanthropic grants and donations: NNHF is funded primarily through grants from the Novo Nordisk Foundation (NNF) and donations. A new 5-year agreement with NNF (effective until 2030) will see NNHF projects quadruple the annual number of beneficiaries by 2030. The foundation also accepts public donations through its website, processed via Stripe.

Go-to-market motion1 record

Distribution channels1 record

Marketing channels7 records

Core offering

NNHF is a non-profit foundation that awards grants to local implementing partners in low- and middle-income countries to improve diagnosis, treatment, and care for people with haemophilia and haemoglobinopathies (sickle cell disease and thalassaemia). Its offering comprises Grassroots Programmes (country-led training, centre strengthening, diagnostics, advocacy), NNF-Supported Projects (multi-country co-funded integrated care initiatives), an annual Awards Programme, and educational resources. The foundation funds patient organisations, hospitals, and universities to build sustainable local capacity rather than delivering clinical services directly.

Product overview

NNHF operates as a charitable foundation, not a technology product company. Its offering consists of grant-funded programmes supporting haemophilia and haemoglobinopathies care: Grassroots Programmes fund country-led initiatives (healthcare training, centre strengthening, diagnostics, advocacy); NNF-Supported Projects are larger multi-country co-funded initiatives; Awards Programme recognises outstanding contributions; and Resources provide educational materials. Together, these programmes aim to build sustainable care systems rather than deliver a unified software product.

Differentiator

Problem solved

Functional benefit

Products and services

• Grassroots Programmes Country-led initiatives that train healthcare teams, strengthen haemophilia centres, improve diagnostics and patient registries, and support patient organisations in advocacy. Targeted at patient organisations, hospitals, and healthcare professionals in low- and middle-income countries.
• NNF-Supported Projects Large-scale, multi-country initiatives co-funded with the Novo Nordisk Foundation (NNF), focusing on integrated care for haemophilia and haemoglobinopathies across multiple countries under a framework agreement effective until 2030.
• Awards Programme Annual recognition including the Project of the Year Award and Community Award, honouring outstanding contributions to haemophilia and allied disorders care among NNHF project partners and volunteers.
• Resources Educational and informational materials, impact reports, and guidance documents for healthcare professionals, patient communities, and other stakeholders engaged in haemophilia and haemoglobinopathies care.

Quantifiable outcome

• 64,049 beneficiaries reached in 2025
• +8 more outcomes

Named customers4 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eleven partnerships are on record, tiered core and minor.

• Fondation Pierre Fabre (FPF)coreStrategic or Co-development Partner · 1 January 2025FPF and NNHF deepened their partnership in 2025 to strengthen haemophilia and sickle cell disease care, particularly in East Africa. The partnership leverages shared goals around improving blood disorders care in low- and middle-income countries.
• Haemophilia Foundation of Uganda (HFU)coreStrategic or Co-development Partner · 1 August 2023HFU is NNHF's implementing partner for the East Africa coalition project. The partnership supported the opening of a new haemophilia clinic at Mbarara Regional Referral Hospital in Uganda, serving Western Uganda and the Nakivale Refugee Settlement.
• International Society on Thrombosis and Haemostasis (ISTH)coreStrategic or Co-development Partner · 1 September 2021NNHF and ISTH signed a 3-year Memorandum of Understanding in September 2021 to collaborate on the ISTH Regional Training Centre (RTC) programme. NNHF provides equipment support funding for qualifying RTC centres, while ISTH delivers the training curriculum. RTCs are currently established in Brazil, India, Pakistan, Malaysia, and Thailand.
• Kenya Haemophilia Association (KHA)coreStrategic or Co-development PartnerKHA is a key NNHF project partner, leading the Kenya component of the East Africa coalition project with Tanzania, Uganda, and Rwanda. KHA also partnered with the Kenya Medical Training College to develop a haemophilia and sickle cell disease training curriculum.
• Muhimbili National Hospital, TanzaniacoreStrategic or Co-development PartnerMuhimbili National Hospital is the lead implementing partner for the Tanzania component of the Kenya-Tanzania joint project and East Africa coalition. A comprehensive haemophilia clinic was renovated and equipped at this hospital.
• World Federation of Hemophilia (WFH)minorStrategic or Co-development PartnerNNHF partners with WFH on identification and diagnosis initiatives, leveraging WFH's global network and humanitarian aid programmes for haemophilia treatment products.
• RS Universitas Airlangga (Airlangga University Hospital), IndonesiacoreStrategic or Co-development PartnerNNHF project activities since 2024 have supported the integrated haemophilia and thalassaemia clinic at this hospital. The clinic serves East Java with a multidisciplinary team, combining internal medicine and paediatric expertise. NNHF support helped establish it as a regional referral centre.
• Fundación de la Hemofilia Argentina, CórdobaminorStrategic or Co-development PartnerPartner in a Latin American project supporting haemophilia carriers. Jointly led by Maria Belén Robert (Chapter President) and Yuri Andrea Arango (psychologist from Colombia), the project developed a podcast 'La vida no vista' and a toolkit 'Once Upon a Time' across 8 countries.
• Dr Novie Chozie (Indonesia project lead)coreStrategic or Co-development PartnerLed the third NNHF Indonesia project decentralising basic haemophilia care across four provinces (East Nusa Tenggara, West Kalimantan, West Sumatra, Papua), reaching 129 people with haemophilia and training 329 healthcare professionals.
• Dr Ciprian Tomuleasa / Romanian Society of HaematologycoreStrategic or Co-development PartnerLed the Romania project (Project of the Year 2022) that transformed diagnosis and care in north Romania, trained 150 healthcare professionals, and established a national online registry for bleeding disorders with 500+ patients registered.
• Rwanda Ministry of Health / Rwanda Biomedical CentrecoreStrategic or Co-development PartnerThe Rwanda Ministry of Health and Rwanda Biomedical Centre are key government partners in the East Africa coalition. Rwanda Biomedical Centre developed and endorsed national treatment guidelines and created a national patient registry.

Scale indicators12 records

Recent moves8 records

Expansion highlights5 records

Broad incumbents

• Clinton Health Access Initiative: Large global health NGO that supports ministries of health in LMICs on access to diagnostics, treatment, and care for multiple diseases; comparable to NNHF in that it operates a country-led grant and technical-assistance model with embedded country teams, though at much greater scale.
• GAVI Alliance: Large global vaccine and health-systems funding alliance for LMICs; relevant broad peer because it operates a similar country-led grantmaking and capacity-building model that NNHF mirrors in miniature, and competes for the same pool of donor attention in global health.
• Drugs for Neglected Diseases initiative: Non-profit R&D organisation funding treatments for neglected diseases in LMICs; comparable to NNHF as a disease-focused, donor-funded foundation that combines grantmaking, capacity-building, and partnership with global research institutions, but with a stronger R&D emphasis.

Direct peers

• Cooley's Anemia Foundation: US-based patient organisation supporting research, treatment, and family services for thalassaemia; relevant peer because it focuses on the same inherited blood disorder that NNHF now funds through integrated haemoglobinopathies clinics, particularly in lower-resource settings.
• Fondation Pierre Fabre: French health-focused foundation supporting access to care, training, and research in LMICs; explicitly listed as NNHF's co-funding partner for sickle cell and haemophilia work in East Africa, making it both a peer in funding-model terms and an active collaborator.
• World Federation of Hemophilia: Global umbrella organisation for haemophilia patient associations; the most direct peer because both organisations fund national haemophilia care capacity-building, training, and humanitarian aid programmes in LMICs. NNHF explicitly partners with WFH on identification and diagnosis.
• Thalassaemia International Federation: Disease-specific global federation representing thalassaemia patients and treatment centres; directly comparable to NNHF because it funds patient-organisation capacity, healthcare professional training, and policy advocacy for a related inherited blood disorder that NNHF now also covers.
• International Society on Thrombosis and Haemostasis: Global medical-scientific society for haematology; directly comparable because NNHF co-funds ISTH's Regional Training Centres in Brazil, India, Pakistan, Malaysia, and Thailand — sharing the same workforce-development and capacity-building mission in haematology.

Regional players

• European Haemophilia Consortium: European umbrella for national haemophilia patient organisations; a regional peer that runs similar training, advocacy, and capacity-building programmes for inherited bleeding disorders, though focused on Europe rather than LMICs.
• Sickle Cell Foundation of Ghana: National sickle cell disease foundation supporting diagnosis, treatment, and patient advocacy in Ghana; relevant peer because NNHF's expanded haemoglobinopathies mandate puts it in overlapping programmatic territory, particularly in West Africa where both focus on sickle cell care capacity-building.

Market position

Competitive moat5 records

Key highlights7 records

Customer concentration

• Facebookfacebook.com/nnhaemophiliahaemoglobinopathiesfoundation
• LinkedInlinkedin.com/company/novo-nordisk-haemophilia-foundation
• Instagraminstagram.com/nnhf_foundation

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Novo Nordisk Haemophilia Foundation