PCOS Awareness Association

What PCOS Awareness Association does

PCOS Awareness Association (PCOSAA) is a 501(c)(3) nonprofit organization founded in 2012 by Megan M Stewart and headquartered in Fredericksburg, Virginia, with 11 employees and EIN #46-1182190. Its stated mission is to increase global awareness of Polycystic Ovarian Syndrome and support individuals diagnosed with the condition, addressing diagnostic delays, provider scarcity, and patient isolation in a population it cites as 1-in-10 people with ovaries and over 7 million affected in the U.S. The organization operates a portfolio of programs and digital tools, including PCOS CON (annual conference), Shades of Teal (online peer community at shadesofteal.org), PCOS Directory (provider database at pcosdirectory.org), PCOS State Advocacy Letter Generator, Teal Talk (blog and podcast), Teal Impact Corps (tiered volunteer leadership program), and audience-specific programs (Man of Teal, Partners in Teal, Teens of Teal, Global PCOS, PCOS Resources Hub).

The underlying technology is a set of digital advocacy and community platforms rather than a unified software product: a content management website (pcosaa.org on Squarespace CDN), subdomain-hosted community and directory tools, an interactive advocacy letter generator producing downloadable PDFs and email output, and social/content distribution via Instagram, email newsletters, and a podcast. Two named medical advisors (Dr. Basma S. Faris, MD, CCMS, and Dr. Megan Peppenelli) provide clinical guidance, and PCOSAA funds PCOS research at the Cornell University Ovary Lab.

The business model is non-commercial and donation-dependent: tax-deductible individual donations processed through givebutter.com (including a monthly giving program with PCOSAA swag incentives), strategic partnerships and sponsorships with healthcare brands, femtech, pharma, and employers (program and event sponsorship), and merchandise sales through the Teal shop on Inksoft. Customer segments span affected individuals (primary), supporters/allies, and B2B healthcare brands and employers seeking authentic engagement with the PCOS community. Distribution is global in claim but operationally US-centric, delivered primarily through self-serve digital channels and one annual in-person event.

Name

PCOS Awareness Association

Legal name

PCOS Awareness Association

Website

https://pcosaa.org

Company type

Private

Founded year

2012

Operating status

Operating

Headcount range

11–50 employees

Short description

PCOS Awareness Association (PCOSAA) is a 501(c)(3) nonprofit founded in 2012 that raises awareness of Polycystic Ovarian Syndrome and supports affected individuals, allies, and healthcare brand partners through digital tools, peer community, an annual conference, advocacy campaigns, and volunteer leadership programs.

Ownership category

akta.pro rank

Product category

Patient Advocacy Nonprofit Services

NAICS

Social Advocacy Organizations (8133), Civic and Social Organizations (8134), Business Associations (813910)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

Association & Society Conference Management (Nonprofit, Professional Bodies) (THAHACAA)

akta.pro secondary industries

Conference Communications, Marketing & Community Engagement (THAHACAN), Sponsorship, Exhibitor & Partnership Management Services (THAHACAK)

Keywords

• Patient advocacy services
• Health awareness education
• Community support programs
• Nonprofit health support
• PCOS awareness resources

Headquarters

HQ city

Fredericksburg

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations and Contributions: The organization operates as a 501(c)(3) nonprofit accepting tax-deductible donations from individuals. Monthly giving program available. Donor rewards include PCOSAA swag for supporters.
2. Partnerships and Sponsorships: Strategic collaborations with brands, healthcare organizations, innovators, and employers including program sponsorship, event sponsorship, and custom partnership arrangements.
3. Merchandise Sales: PCOSAA operates a Teal shop selling merchandise including the 'Man of Teal' program merchandise and PCOS CON event apparel.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels6 records

Core offering

PCOS Awareness Association is a 501(c)(3) nonprofit that delivers PCOS awareness, education, advocacy, and community support through digital tools, peer community platforms, an annual conference, and a network of volunteer-led programs. Its portfolio includes PCOS CON, Shades of Teal community, PCOS Directory, an advocacy letter generator, and the Teal Impact Corps volunteer leadership program, all funded by donations, sponsorships, and merchandise sales.

Product overview

PCOS Awareness Association operates as a non-profit organization offering a portfolio of digital tools, community platforms, and educational programs focused on PCOS awareness, support, and advocacy. Key offerings include PCOS CON (annual conference), the Shades of Teal community platform, PCOS Directory (provider database), and the PCOS State Advocacy Letter Generator (digital tool). Additional programs include Teal Impact Corps (volunteer leadership), Teal Talk (blog/podcast), Man of Teal (ally program), Global PCOS (international awareness), Partners in Teal (partner support), and Teens of Teal (youth support). The organization provides resources organized by symptom categories covering diagnosis, fertility, mental health, and care access.

Differentiator

Problem solved

Functional benefit

Brands

• Teal Impact Corps: A structured leadership program that equips individuals with lived PCOS experience to advance education, awareness, and advocacy through measurable action and consistent support. Offers three role levels: Teal Guides (entry level), Teal Educators (trained peer leaders), and Teal Captains (leadership role).
• Man of Teal
• Global PCOS
• Teal Talk
• Partners in Teal
• Teens of Teal

Products and services

• PCOS CON Annual conference event bringing together the PCOS community, healthcare professionals, and advocates for education, connection, and evidence-based care awareness, with sponsorship and attendance pathways for individuals and partner brands.
• Shades of Teal

Named customers1 record

Segments3 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

One partnership is on record.

• Cornell University Ovary LabcoreStrategic or Co-development PartnerPCOSAA helps fund PCOS research conducted at the Ovary Lab at Cornell University, supporting scientific advancement in understanding and treating Polycystic Ovarian Syndrome.

Scale indicators3 records

Recent moves6 records

Expansion highlights6 records

Emerging players

• Maven Clinic: Virtual women's and family health clinic serving fertility, pregnancy, postpartum, and hormonal conditions including PCOS. Emerging commercial player — comparable patient population, partnership-relevant to PCOSAA's healthcare brand partnership channel.
• Allara Health: Virtual care platform specifically for PCOS providing telehealth, nutrition, and medication management. Emerging commercial player in the same PCOS treatment space — intersects with PCOSAA's PCOS Directory and provider-finding mission but operates as a venture-backed commercial telehealth business.

Direct peers

• Resolve: The National Infertility Association: National patient advocacy nonprofit supporting individuals facing infertility, which is a major comorbidity and concern for the PCOS community PCOSAA serves. Strongly comparable as a women's reproductive-health advocacy nonprofit with events, community programs, and federal advocacy efforts.
• PCOS Challenge: National PCOS advocacy nonprofit running the annual PCOS Challenge symposium, similar to PCOSAA's PCOS CON. Direct peer — operates in the same patient-advocacy niche for Polycystic Ovary Syndrome awareness, education, and community support.
• Black Women's Health Imperative: National health advocacy nonprofit focused on Black women's health equity, including PCOS-relevant issues such as reproductive and metabolic health. Comparable nonprofit advocacy structure with community-led programs, federal policy engagement, and healthcare partnerships.
• National Women's Health Network: Long-standing women's health advocacy nonprofit that influences policy and provides patient education across conditions including PCOS. Comparable mission structure, though broader in scope — operates as a broader incumbent in the same patient-advocacy category.

Broad incumbents

• American College of Obstetricians and Gynecologists (ACOG): Largest OB/GYN professional society in the US, publishing clinical guidance on PCOS diagnosis and management. Broad incumbent — comparable in mission relevance to PCOSAA but operates as a physician/professional body rather than patient-advocacy nonprofit.
• Endocrine Society: Major professional medical society covering endocrinology, including PCOS clinical guidelines and physician education. Broad incumbent — not a patient-facing advocacy nonprofit but a relevant peer for PCOSAA's research and clinical-credibility positioning through Cornell.

Regional players

• Verity (PCOS UK): UK-based PCOS charity providing information, support, and community for those affected by PCOS. Regional peer — comparable mission in the same condition area but focused on UK audiences versus PCOSAA's North American footprint.
• PCOS Society (India): Indian PCOS awareness and clinical society offering provider directories, patient resources, and events for the PCOS community in India. Regional peer serving the same patient population with overlapping program categories (awareness, provider directory, education).

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/pcosaa
• Facebookfacebook.com/pcosawareness
• Instagraminstagram.com/pcosaa
• LinkedInlinkedin.com/company/pcos-awareness-association

Revenue estimate

Valuation estimate

Number of profiles

Profiles13 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about PCOS Awareness Association