Psoriasispatiënten Nederland

What Psoriasispatiënten Nederland does

Psoriasispatiënten Nederland is a Dutch national non-profit patient association for individuals living with psoriasis and/or psoriatic arthritis, operating continuously since 1975 and headquartered at Beurtschipper 9b in Nijkerk. The organization functions primarily through volunteers, with approximately five people involved in operations including at least one paid staff information officer (Petra Vermeulen) who provides free telephone counselling. It is the most established patient association specifically focused on psoriasis and psoriatic arthritis in the Netherlands, with formal affiliations to Patiëntenfederatie Nederland and Ieder(in) dating back to its founding year.

The association's core offering is a digital community platform built on Joomla, comprising a public website, an online forum with both public and member-only sections, the Psoripanel patient research instrument, digital newsletter distribution, and active presences on Facebook, X, Instagram, LinkedIn, and YouTube. Productized services include the quarterly printed and digital magazine Psoriasis, brochures on topical and systemic treatments (including biologics and biosimilars), the E-consult digital consultation channel, the Zelfscan Leefstijl lifestyle self-scan (co-developed with Huid Nederland), the Leefstijlroer lifestyle tool, the Gespreksstarter conversation aid, six annual online webinars, awareness campaigns (Zie Mij, Begrijp Mij), a documentary trilogy produced for the 50th anniversary in 2025, and an annual photoshoot calendar. The association also participates as a patient partner in academic research, notably the NGID (Next Generation Immuno Dermatology) project at Radboudumc with the Skinergy trial and BioZ study.

The business model is membership-driven: individuals pay €32.50 per year to receive four issues of the magazine, access to member-only forum content and digital magazine downloads, and free consultations with the information officer; new members can request a free trial copy of the magazine, and several Dutch health insurers reimburse the membership fee through supplemental insurance policies. Customer segments are primarily people diagnosed with any form of psoriasis, secondarily those with psoriatic arthritis, and additionally family members and caregivers. Go-to-market is community-led, combining direct website enrolment, healthcare professional referrals (dermatologists and pharmacists), health insurer reimbursement pathways, public awareness campaigns, and participation in events such as World Psoriasis Day and the annual national meeting (landelijke bijeenkomst). Revenue is non-profit and primarily dues-based with no disclosed membership totals, sponsorship revenue, or external funding.

Name

Psoriasispatiënten Nederland

Legal name

Psoriasispatiënten Nederland

Website

https://psoriasispatientennederland.nl

Company type

Private

Founded year

1975

Operating status

Operating

Headcount range

1–10 employees

Short description

Psoriasispatiënten Nederland is a Dutch non-profit patient association, founded 1975, that supports people with psoriasis and psoriatic arthritis through a quarterly magazine, online forum, information officer, awareness campaigns, and academic research partnerships, funded by €32.50 annual membership dues.

Ownership category

akta.pro rank

Product category

Patient Association Services

NAICS

Individual and Family Services (6241), Other Individual and Family Services (624190)

SIC

Services-Social Services (8300), Services-Membership Organizations (8600), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industries

Psoriasis & Eczema Specialty Care (HLAKACAL), Nail Disorders (Onychology) (HLAKACAJ)

Keywords

• Patient association
• Psoriasis support
• Peer support
• Patient advocacy
• Psoriatic arthritis

Headquarters

HQ city

Nijkerk

HQ country

Netherlands

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Membership dues: Annual membership fees of €32.50 per year, providing four issues of the magazine Psoriasis per year. New members receive a free trial copy of the magazine. The membership fee is partially reimbursable through supplemental health insurance plans from select Dutch insurers.

Pricing tiers

Go-to-market motion1 record

Distribution channels3 records

Marketing channels10 records

Core offering

Psoriasispatiënten Nederland is a Dutch non-profit patient association that provides objective information about psoriasis and psoriatic arthritis, facilitates peer support through an online member forum, publishes a quarterly Magazine Psoriasis, advocates for medication accessibility and improved healthcare policy, and engages members in research through its Psoripanel. It also produces lifestyle tools (Zelfscan Leefstijl, Leefstijlroer), brochures, awareness campaigns (Zie Mij, Begrijp Mij), and an annual documentary/photoshoot project to reduce stigma around the condition.

Product overview

Psoriasispatiënten Nederland is a patient association organization offering a comprehensive suite of services for people with psoriasis and/or psoriatic arthritis. The core offerings include a quarterly Magazine Psoriasis, an online Forum for peer support, and the organization's main Website platform. The portfolio also includes educational materials such as brochures on treatments, digital tools including E-consult, a Psoripanel for patient research input, and lifestyle tools like the Zelfscan Leefstijl and Leefstijlroer. Additional services include online webinars, awareness campaigns (Zie Mij, Begrijp Mij), a documentary series, and an annual photoshoot calendar project. The organization facilitates patient participation in research and provides a consultation starter tool for healthcare conversations.

Differentiator

Problem solved

Functional benefit

Brands

• Psoripanel: Patient panel for research participation and surveys
• Magazine Psoriasis

Products and services

• Annual Membership

Named customers1 record

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eleven partnerships are on record, tiered core and minor.

• Patiëntenfederatie NederlandcoreOthers · 1 January 1975Psoriasispatiënten Nederland is affiliated with Patiëntenfederatie Nederland, a national patients' federation that represents patient interests in Dutch healthcare policy. This affiliation enables the organization to participate in national healthcare consultations and supports membership fee reimbursement through health insurers.
• Ieder(in)coreOthers · 1 January 1975Psoriasispatiënten Nederland is affiliated with Ieder(in), a Dutch umbrella organization for disability and chronic illness patient organizations. This affiliation supports the organization's policy advocacy work at the national level.
• SWOP (Stichting Wetenschappelijk Onderzoek Psoriasis)coreStrategic or Co-development PartnerThe Stichting Wetenschappelijk Onderzoek Psoriasis (SWOP) is the Scientific Research Foundation for Psoriasis. SWOP and Psoriasispatiënten Nederland collaborate on research advocacy, with joint representations to the Dutch Ministry of Health (VWS) and a joint research agenda. SWOP's annual reports are published through the association's website. In 2018, both organizations jointly wrote to the Minister of VWS regarding Psorinovo availability.
• Huid NederlandcoreStrategic or Co-development PartnerHuid Nederland is the umbrella platform for various Dutch skin condition patient associations. Psoriasispatiënten Nederland is part of this platform and collaborates on shared initiatives, including the joint lifestyle self-scan tool developed with Huid Nederland.
• NVDV (Nederlandse Vereniging voor Dermatologie en Venereologie)coreStrategic or Co-development PartnerPsoriasispatiënten Nederland collaborated with the NVDV (Dutch Association for Dermatology and Venereology) and Radboud university medical center to develop two information brochures on telemedicine (zorg op afstand) for both healthcare professionals and psoriasis patients. The association participates as patient partners in the NGID (Next Generation Immuno Dermatology) research project coordinated by dermatologists including Dr. Marieke Seyger.
• Radboudumc (Radboud university medical center)coreStrategic or Co-development PartnerRadboudumc collaborated with Psoriasispatiënten Nederland and the NVDV on developing information materials about remote/digital care for psoriasis patients. The association participates as patient partners in the NGID (Next Generation Immuno Dermatology) research project led by dermatologists at Radboudumc.
• Huidpatiënten NederlandminorStrategic or Co-development PartnerIn October 2018, Psoriasispatiënten Nederland and Huidpatiënten Nederland jointly wrote an urgent letter to the Dutch Minister of Health (VWS) advocating for continued availability of Psorinovo (dimethylfumaraat) after a competing registered drug entered the market.
• KNMP (Koninklijke Nederlandse Maatschappij ter bevordering der Pharmacie)minorOthersThe KNMP (Royal Dutch Pharmacists Association) was copied on the joint letter from Psoriasispatiënten Nederland and Huidpatiënten Nederland to the Minister of VWS regarding Psorinovo availability, as pharmacists play a key role in dispensing the medication.
• Zorgverzekeraars NederlandminorOthersZorgverzekeraars Nederland (Association of Dutch Health Insurers) was copied on the joint advocacy letter regarding Psorinovo reimbursement. The organization continues to engage with health insurers to ensure adequate reimbursement for psoriasis medications.
• IGJ (Inspectie Gezondheidszorg en Jeugd)minorOthersPsoriasispatiënten Nederland consulted with the IGJ (Dutch Healthcare and Youth Inspectorate) regarding the regulatory situation around Psorinovo after it became an unregistered medication. IGJ informed the organization that no advertising for the unregistered medication was permitted.
• Infinity PharmaminorOthersInfinity Pharma (formerly Mierlo-Hout) is the manufacturer that continued supplying Psorinovo directly to patients after December 2018. The organization has engaged with Infinity Pharma to facilitate zorgcontracten (care contracts) with health insurers to ensure full reimbursement of Psorinovo for patients.

Scale indicators2 records

Recent moves6 records

Expansion highlights5 records

Broad incumbents

• Ieder(in): Dutch umbrella for disability and chronic-illness patient organizations; PN is affiliated, leveraging its national policy reach and collective advocacy infrastructure.
• Patiëntenfederatie Nederland: National Dutch patients' federation representing collective patient interests in healthcare policy; PN is an affiliated member, gaining formal standing in policy consultations and insurer frameworks.

Direct peers

• Stichting ReumaNederland: Dutch chronic disease nonprofit addressing inflammatory musculoskeletal conditions, with direct overlap on psoriatic arthritis; operates a similar volunteer/membership model and disease-specific research funding.
• National Psoriasis Foundation: United States-based national patient advocacy organization dedicated to psoriasis and psoriatic arthritis; the closest international comparable in mission, member-services model, and research funding scope.
• Psoriasis Association (UK): United Kingdom national charity for people with psoriasis; directly comparable member-supported, disease-specific patient advocacy organization operating on a similar funding and service model.
• Diabetesvereniging Nederland: Dutch chronic disease patient association with a mature membership, magazine, information-services, and policy-advocacy model closely comparable in structure and operations to PN.
• Stichting Huid Nederland: Dutch umbrella platform for skin condition patient associations of which PN is a member; co-developed the lifestyle self-scan tool with PN and shares patient-advocacy infrastructure.
• Lupus Nederland: Dutch disease-specific patient association for lupus; comparable small volunteer-based nonprofit model focused on a chronic autoimmune condition with overlapping advocacy and information-provision patterns.

Market position

Strengths4 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/psoriasispn
• YouTubeyoutube.com/channel/UCw9wTjFAX7Thj550SY01M6Q
• Facebookfacebook.com/psoriasispn
• LinkedInlinkedin.com/company/psoriasispatienten-nederland
• Instagraminstagram.com/psoriasispatientennederland

Revenue estimate

Valuation estimate

Number of profiles

Profiles7 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Psoriasispatiënten Nederland