Real Fundación Victoria Eugenia

What Real Fundación Victoria Eugenia does

Real Fundación Victoria Eugenia (RFVE) is a Spanish non-profit foundation established in 1989 and headquartered in Madrid, dedicated to advancing the research and treatment of hemophilia and other congenital coagulopathies. The foundation serves two principal audiences: hematology healthcare professionals (physicians, nurses, pharmacists) who require accredited continuing education, and patients with hemophilia, von Willebrand disease, and other rare bleeding disorders (RBDs) along with their families. It operates under the leadership of President Laura Quintas Lorenzo and Scientific Committee President Ramiro Núñez Vázquez.

Its core offerings span accredited professional education, validated clinical tools, and research infrastructure. Educational products include the annual flagship XVI Curso Internacional (600 EUR, 5.9 CE credits) held in Madrid, a portfolio of online courses priced 150-300 EUR with 3-4 month access, and a seminar program with video archive (Videoteca). Clinical tools include the scientifically validated Cuestionario Torres questionnaire and the HaemoAdapt mobile application for therapeutic decision-making. Research assets comprise national registries for Rare Bleeding Disorders and women with bleeding disorders, plus research awards (Premios Duquesa de Soria, Premio Best Practices).

The foundation's business model is a hybrid typical of medical non-profits: course fees (150-600 EUR), individual donations (one-time and periodic), and—most significantly—pharmaceutical sponsorship from at least eight named partners (CSL, Pfizer, Roche, Octapharma, Takeda, Novo Nordisk, SOBI). Distribution occurs through its own e-commerce website (rfve.es), an in-person annual course in Madrid with rotating regional editions, and content syndication via international scientific societies (SETH, SEHH, WFH, ISTH, CLAHT). Scientific accreditations from SETH and SEHH and GDPR compliance via RS Servicios Jurídicos provide the regulatory and trust backbone of the operation.

Name

Real Fundación Victoria Eugenia

Legal name

REAL FUNDACION VICTORIA EUGENIA

Website

https://rfve.es

Company type

Private

Operating status

Operating

Headcount range

1–10 employees

Short description

Real Fundación Victoria Eugenia is a Madrid-based non-profit foundation, founded in 1989, dedicated to research, education, and care for hemophilia and congenital coagulopathies, serving hematology professionals through accredited courses and patients via registries and validated clinical tools.

Ownership category

akta.pro rank

Product category

Continuing Medical Education

NAICS

Professional and Management Development Training (611430)

SIC

Services-Educational Services (8200)

akta.pro industry

PRIMARYEDAGANAJ

Healthcare & Clinical Professional Development (CME/CE)

Education/Educational Publishing & Learning Content/Professional Development & Training Materials

SECONDARYEDAAAEAD

Professional & Applied Skills Noncredit Certificates (Non-licensure)

Education/Adult & Continuing Education/Continuing Education (Noncredit) & Lifelong Learning Programs

Keywords

• Hemophilia continuing education
• Coagulopathy professional training
• Medical education courses
• Bleeding disorder registries
• Hematology research awards

Headquarters

HQ city

Madrid

HQ country

Spain

HQ region

Europe

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Course fees: Revenue from in-person international courses (600 EUR standard, 510 EUR with early registration) and online courses (150-300 EUR). The foundation sells educational programs on hemophilia diagnosis, treatment, gene therapy, and related topics.
2. Donations: The foundation accepts donations from individuals and organizations, with options for periodic or one-time contributions.
3. Pharmaceutical sponsorship: Collaborative funding and sponsorship from pharmaceutical companies including CSL, Pfizer, Roche, Octapharma, Takeda, MicroHealth, Novo Nordisk, and SOBI.

Pricing tiers

Go-to-market motion1 record

Distribution channels3 records

Marketing channels9 records

Core offering

Real Fundación Victoria Eugenia (RFVE) is a Spanish non-profit foundation that delivers accredited continuing education and professional training on hemophilia and other congenital coagulopathies through online courses and in-person international courses. It also runs national patient registries for rare bleeding disorders, administers hematology research awards (Premios Duquesa de Soria, Premio Best Practices), publishes educational content via a videoteca, digital library, and quarterly newsletter, and provides the HaemoAdapt mobile app for therapeutic decision-making.

Product overview

Real Fundación Victoria Eugenia operates as a non-profit foundation dedicated to research and treatment of hemophilia and other congenital coagulopathies. The organization's portfolio consists of educational and research services including online and in-person professional training courses (such as the annual XVI Curso Internacional, gene therapy courses, laboratory testing courses, and hemophilia management programs), mobile application (HaemoAdapt), award programs (Premio Best Practices and Premios Duquesa de Soria), national patient registries (RBDs and Women registries), a video library and digital publications, and a quarterly newsletter. These products and services are interconnected through the foundation's mission to advance scientific knowledge and improve care for people with bleeding disorders, with courses providing education, registries providing data, and awards stimulating research.

Differentiator

Problem solved

Functional benefit

Brands

• HaemoAdapt: Mobile application for therapeutic decision-making in hemophilia

Products and services

• HaemoAdapt Mobile App Mobile application designed to support therapeutic decision-making for healthcare professionals and people with hemophilia in treatment management.
• Online Courses (Cursos Online) Online professional training courses on hemophilia and congenital coagulation disorders, covering gene therapy, laboratory testing, musculoskeletal issues, carrier management, and hemophilia treatment. Courses are priced at 150-300 EUR with 3-4 months of access and tutor support.
• XVI Curso Internacional (XVI International Course) Annual flagship international in-person course titled 'A Broad Vision of New Therapies' covering innovative treatments, regulatory challenges, and multidisciplinary approaches to hemophilia care. Scheduled for September 24-25, 2026 in Madrid; standard fee 600 EUR (510 EUR with early registration discount), with 5.9 continuing education credits.
• In-Person Courses (Cursos Presenciales) Face-to-face professional training courses and seminars on hemophilia and congenital coagulation disorders, including the annual international course and regional 'Coagulopatías 360º' multidisciplinary sessions.
• Premio Best Practices Annual award program recognizing best practices in hemophilia care and research, with submission templates and evaluation criteria published each year.
• Premios Duquesa de Soria Research awards supporting and stimulating scientific investigation in hematology, with annual editions and published guidelines and bases.
• National Registries (Registros Nacionales) National patient registries including Rare Bleeding Disorders (RBDs), Women with bleeding disorders, and von Willebrand Disease Prophylaxis, used for epidemiological tracking and research.
• Cuestionario Torres Scientifically validated questionnaire designed specifically for people with hemophilia, made available for download from the foundation's resources.
• Newsletter (Boletín Trimestral) Quarterly newsletter compiling news, activities, and events related to hemophilia and coagulation disorders, with newsletter #15 available as of early 2026.
• Seminarios y Videoteca Seminars, recorded video library (Videoteca) of foundation events, and digital library (Biblioteca Digital) with publications on hemophilia and congenital coagulopathies.

Quantifiable outcome

• Accredited courses offering 5.1-7.7 continuing education credits for healthcare professionals
• +1 more outcomes

Named customers2 records

Segments2 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature2 records

Partnerships

15 partnerships are on record, tiered core and minor.

• CSLcoreGTM or Marketing PartnerPharmaceutical company listed as a collaborator/sponsor of the Real Fundación Victoria Eugenia. Supports foundation activities and educational programs.
• PfizercoreGTM or Marketing PartnerPharmaceutical company collaborator/sponsor. Also partnered on specific projects such as the SUPERHEMOS document and travel guide for people with coagulopathies.
• RochecoreStrategic or Co-development PartnerLaunched a pioneering program for pain management in hemophilia together with the foundation, indicating deep collaborative partnership.
• OctapharmaminorGTM or Marketing PartnerPharmaceutical company listed as collaborator/sponsor.
• TakedaminorGTM or Marketing PartnerPharmaceutical company listed as collaborator/sponsor.
• MicroHealthminorGTM or Marketing PartnerPharmaceutical company listed as collaborator/sponsor.
• Novo NordiskminorGTM or Marketing PartnerPharmaceutical company listed as collaborator/sponsor.
• SOBIminorGTM or Marketing PartnerPharmaceutical company (Swedish Orphan Biovitrum) listed as collaborator/sponsor for courses and educational activities.
• SETH (Sociedad Española de Trombosis y Hemostasia)coreStrategic or Co-development PartnerSpanish Society of Thrombosis and Haemostasis providing scientific endorsement (aval científico) for foundation courses and educational programs.
• SEHH (Sociedad Española de Hematología y Hemoterapia)coreStrategic or Co-development PartnerSpanish Society of Haematology and Haemotherapy providing scientific endorsement for foundation courses.
• FEDHEMO (Federación Española de Hemofilia)coreStrategic or Co-development PartnerSpanish Federation of Haemophilia - patient organization partner with logo displayed on foundation website.
• FEDER (Federación Española de Enfermedades Raras)minorStrategic or Co-development PartnerSpanish Federation of Rare Diseases - partner organization with logo displayed on website.
• CLAHT (Grupo Latinoamericano de Hemostasia y Trombosis)minorStrategic or Co-development PartnerLatin American Group on Hemostasis and Thrombosis - international partner with dedicated video archive section on the website.
• WFH (World Federation of Hemophilia)coreStrategic or Co-development PartnerWorld Federation of Hemophilia - international organization with dedicated congress section and highlights coverage on the foundation website.
• ISTH (International Society on Thrombosis and Haemostasis)coreStrategic or Co-development PartnerInternational Society on Thrombosis and Haemostasis - international organization with dedicated congress highlights coverage for multiple years (2021-2026).

Scale indicators3 records

Recent moves2 records

Expansion highlights6 records

Regional players

• Deutsche Hämophiliegesellschaft (DHG): German self-help organization for people with bleeding disorders, providing education, advocacy, and training programs. Direct peer to RFVE as a national German-language hemophilia foundation with overlapping programmatic scope.
• The Haemophilia Society (UK): UK-based membership charity for people affected by bleeding disorders, delivering education, advocacy, and conferences. Matches RFVE's non-profit education-and-community model in a similar regulatory and clinical context.
• Canadian Hemophilia Society: Canadian non-profit offering education, research funding, and chapter-based support for inherited bleeding disorders. Directly comparable to RFVE in scope, structure, and educational-program orientation.
• European Haemophilia Consortium (EHC): European umbrella non-profit for national hemophilia societies, running conferences, training, and youth programs across Europe. Comparable to RFVE as a regional training-and-advocacy body in the same therapeutic area.
• Haemophilia Foundation Australia: Australian non-profit providing education, peer support, and resources for people with bleeding disorders. Peer to RFVE in mission, programs, and operating model, though operating in a different geography.

Broad incumbents

• Pri-Med: Major US-based CME provider delivering live and online continuing medical education to primary care and specialty clinicians. Peer to RFVE in the CME delivery model (live courses + online modules + CME accreditation), though serving a much broader clinical audience.
• Medscape (WebMD Professional): Large-scale free CME provider for healthcare professionals across specialties including hematology. Comparable to RFVE as an accredited continuing-education channel targeting the same HCP audience, but at vastly greater scale and breadth.

Direct peers

• EAHAD (European Association for Haemophilia and Allied Disorders): European multidisciplinary association for clinicians in hemophilia and allied disorders, running annual congress and educational resources. Compares to RFVE as a scientific/educational convening body for the same specialist audience.
• National Hemophilia Foundation: US-based non-profit dedicated to hemophilia and bleeding disorders, providing education, research funding, and advocacy. Closely mirrors RFVE's mission of combining CME-style training, patient resources, and scientific awards within a single non-profit structure.

Others

• FEDER (Federación Española de Enfermedades Raras): Spanish federation for rare diseases with which RFVE already partners. Comparable to RFVE as a Spanish-based rare-disease umbrella organization offering education and community support, but with a broader therapeutic remit than hemophilia alone.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/RFVE_hemofilia
• YouTubeyoutube.com/channel/UCllJj5rzAqeP2DMdndVhWfA
• Facebookfacebook.com/61556768528338
• LinkedInlinkedin.com/company/real-fundaci-n-victoria-eugenia
• Instagraminstagram.com/rfve_hemofilia

Compliance2 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Real Fundación Victoria Eugenia