Polish Sarcoma and Melanoma Patients Association

What Polish Sarcoma and Melanoma Patients Association does

The Polish Sarcoma and Melanoma Patients Association (Stowarzyszenie Pomocy Chorym na Mięsaki i Czerniaki Sarcoma), founded in 2007 and headquartered in Warsaw, is a non-profit patient advocacy organization (stowarzyszenie) registered as a public benefit organization (OPP) under KRS 0000290920. It serves Polish patients diagnosed with sarcomas (soft tissue and bone cancers) and melanomas (skin cancer), including both adults and children, providing direct financial assistance for medications, prosthetics, transportation to specialized treatment centers, rehabilitation, and psychological support. Over 15 years, the organization has supported more than 320 patients and their families.

The organization's core programs include Onkobieg, an annual charity run held since 2008 that has raised a cumulative 1,150,000 PLN (with the 2023 edition alone generating 587,000 PLN from 2,500 participants); the #FuraZdrowia mobile dermatology unit, which provides free dermatoscopy screenings in underserved municipalities; a comprehensive Polish-language knowledge base and publication library; clinical trial navigation support including non-commercial trials (REGBONE, BUTTERFLY, EFTISARC-NEO, ANNA-SARC); and psycho-oncology training programs (#5dla...) for nurses, psychologists, and volunteers.

Revenue derives entirely from donations, 1.5% personal income tax designations, and corporate sponsorships from pharmaceutical companies including Bristol-Myers Squibb, Roche, MSD, Sanofi-Aventis, Novartis, and Amgen. The organization operates with 6 employees and is a member of the international Sarcoma Patient Advocacy Global Network (SPAGN). It maintains honorary patronage relationships with the Polish Ministry of Health, Ministry of Sport and Tourism, and the Patient Rights Ombudsman, and works in close clinical partnership with the National Oncology Institute (NIO-PIB) and the Mother and Child Institute (IMID).

Name

Polish Sarcoma and Melanoma Patients Association

Legal name

Stowarzyszenie Pomocy Chorym na Mięsaki i Czerniaki Sarcoma

Website

https://sarcoma.pl

Company type

Private

Founded year

2007

Operating status

Operating

Headcount range

1–10 employees

Short description

The Polish Sarcoma and Melanoma Patients Association, founded in 2007, is a Warsaw-based non-profit that provides financial aid, mobile dermatology screenings, clinical trial navigation, and psycho-oncology support to sarcoma and melanoma patients across Poland, primarily through its annual Onkobieg charity run and partnerships with leading oncology centers.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Cancer Support Services

NAICS

Other Individual and Family Services (624190)

SIC

Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Medical Oncology (HLAKAFAB)

akta.pro secondary industry

General & Medical Dermatology (HLAKACAA)

Keywords

• Patient advocacy services
• Cancer patient support
• Sarcoma awareness
• Melanoma education
• Psychosocial oncology

Headquarters

HQ city

Warsaw

HQ country

Poland

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales

Revenue model

1. Donations and 1.5% Tax Contribution: The association receives donations from individuals and collects 1.5% of income tax contributions from supporters (KRS 0000290920). This is a primary funding source for patient support activities.

Distribution channels3 records

Marketing channels6 records

Core offering

The association provides direct support services to sarcoma and melanoma patients in Poland, including financial assistance for medications, prosthetics, transportation, and rehabilitation; psychological and psycho-oncological counseling; guidance on accessing clinical trials; and educational publications. It also runs the annual Onkobieg charity run (since 2008) and the #FuraZdrowia mobile dermatology screening unit for early-detection outreach in underserved areas.

Product overview

Polish Sarcoma and Melanoma Patients Association (Stowarzyszenie Pomocy Chorym na Mięsaki i Czerniaki Sarcoma) is a public benefit organization (OPP) that operates as a patient advocacy and support organization rather than a commercial product company. Its portfolio consists of patient support programs and public health initiatives: Onkobieg – Razem po zdrowie! is the flagship annual charity run (since 2008); #FuraZdrowia is a mobile dermatology unit providing free skin examinations; Konsultacje i wsparcie finansowe chorych provides direct financial aid for prosthetics, transport, and rehabilitation; Badania kliniczne offers clinical trial support including projects REGBONE and Projekt Butterfly; Wydawnictwa publishes educational guides; Psychoonkologia provides psychological support; Szkolenia (#5dla...) delivers training for nurses and volunteers; and Baza wiedzy serves as an online knowledge base of publications and reviews. These programs collectively support sarcoma and melanoma patients through financial assistance, education, prevention campaigns, and clinical trial access.

Differentiator

Problem solved

Functional benefit

Brands

• Onkobieg: Annual running event held since 2008 to show solidarity with oncology patients, raise funds, and promote cancer prevention awareness.
• #FuraZdrowia
• #5dla...

Products and services

• Onkobieg - Razem po zdrowie! Annual charity run event held in Warsaw to raise funds and awareness for sarcoma and melanoma patients in Poland; includes multiple race distances and a coached training program for participants.
• #FuraZdrowia Mobile Dermatology Unit Mobile dermatology screening unit that travels to underserved Polish regions to provide skin cancer (including melanoma) early-detection examinations and raise awareness.
• Patient Financial Support Program Direct financial aid to sarcoma and melanoma patients covering medications, prosthetics, transportation to treatment and rehabilitation costs.
• Clinical Trial Ambassador Program Service helping sarcoma and melanoma patients find, understand and enroll in relevant oncology clinical trials in Poland.
• Psycho-oncological Support Service Psychological and psycho-oncological counseling for sarcoma and melanoma patients and their families during diagnosis, treatment and recovery.
• Educational Publications (Wydawnictwa) Educational publications (books, guides, informational materials) on sarcoma and melanoma for patients, caregivers and the general public.
• Nurse Training Program (#5dla...) Training program for oncology nurses on the care and support of sarcoma and melanoma patients, delivered in cooperation with partner institutions.
• REGBONE Research Project Clinical research project that sarcoma and melanoma patients can participate in, supported by the association in cooperation with research partners.
• Projekt Butterfly Clinical research project supported by the association in which sarcoma and melanoma patients can participate.

Quantifiable outcome

• Over 320 patients supported with direct financial assistance over 15 years
• +2 more outcomes

Segments1 record

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

29 partnerships are on record, tiered core and minor.

• Pierre FabrecoreGTM or Marketing Partner · 5 December 2025Sponsor of IV Nurse Training Trip December 2025. Provided training on skin care during anti-cancer treatment. Partner in dermatology and oncology product distribution.
• Biochem Polska S.A.minorGTM or Marketing Partner · 5 December 2025Partner in IV Nurse Training Trip December 2025 for oncology nurses.
• Medicart healthcareminorGTM or Marketing Partner · 5 December 2025Partner in IV Nurse Training Trip December 2025 for oncology nurses.
• Lidia Zielińska (Clinical Trial Ambassador)minorStrategic or Co-development Partner · 18 September 2025Association member serving as Clinical Trial Ambassador. Represents sarcoma patients at international conferences on clinical research.
• Bristol-Myers SquibbcoreGTM or Marketing Partner · 10 September 2023Sponsor of Onkobieg 2023 event and supporter of medical facility renovations. Provided funding for renovation of three medical offices at NIO-PIB for cancer patient care.
• Roche Polska Sp. z o.o.coreGTM or Marketing Partner · 10 September 2023Sponsor of Onkobieg 2023. Partner in cancer treatment awareness and patient support initiatives.
• Roche Diagnostics Sp. z o.o.minorGTM or Marketing Partner · 10 September 2023Sponsor of Onkobieg 2023. Partner in diagnostic awareness activities.
• Sanofi-Aventis Sp. z o.o.coreGTM or Marketing Partner · 10 September 2023Sponsor of Onkobieg 2023. Partner in oncology patient support.
• MSD Polska Sp. z o.o.coreGTM or Marketing Partner · 10 September 2023Sponsor of Onkobieg 2023. Partner in oncology treatment awareness.
• Novartis Polska Sp. z o. o.minorGTM or Marketing Partner · 10 September 2023Sponsor of Onkobieg 2023.
• Amgen Biotechnologia Sp. z o.o.minorGTM or Marketing Partner · 10 September 2023Sponsor of Onkobieg 2023.
• Swedish Orphan Biovitrum Sp. z o.o.minorGTM or Marketing Partner · 10 September 2023Sponsor of Onkobieg 2023.
• Eko Cykl Organizacja Odzysku Opakowań S.A.minorGTM or Marketing Partner · 10 September 2023Sponsor of Onkobieg 2023.
• DPD Polska Sp. z o.o.minorGTM or Marketing Partner · 10 September 2023Sponsor of Onkobieg 2023.
• Narodowy Instytut Onkologii im. Marii Skłodowskiej-Curie - Państwowy Instytut Badawczy (NIO-PIB)coreStrategic or Co-development PartnerPrimary clinical partner. Home of Clinic of Soft Tissue, Bone and Melanoma Tumors. Onkobieg venue since 2008. Joint initiatives include clinical trials (REGBONE, EFTISARC-NEO, ANNA-SARC) and patient education.
• Instytut Matki i Dziecka (IMID)coreStrategic or Co-development PartnerPartner for pediatric oncology. Home of Clinic of Oncology and Oncological Surgery for Children and Youth. Joint training programs for nurses and psychologists. Clinical trial partner for BUTTERFLY and REGBONE studies.
• Polska Grupa Mięsakowa (Polish Sarcoma Group)coreStrategic or Co-development PartnerSection of Polish Society of Oncological Surgery. Sarcoma leads the group under Prof. Piotr Rutkowski. Focuses on research and treatment protocols for sarcoma patients.
• Sarcoma Patient Advocacy Global Network (SPAGN)coreStrategic or Co-development PartnerInternational network of national sarcoma patient organizations. ~60 member groups across 5 continents. Global voice for sarcoma patients.
• Polskie Towarzystwo OnkologicznecoreStrategic or Co-development PartnerHonorary patronage for Onkobieg events. Professional oncology society supporting cancer awareness initiatives.
• Polskie Towarzystwo PsychoonkologicznecoreStrategic or Co-development PartnerPartner for psycho-oncology training programs. Honorary patronage for #5 dla Wolontariusza and #5 dla Psychologa training events.
• Agencja Badań Medycznych (ABM)coreStrategic or Co-development PartnerGovernment agency funding non-commercial clinical trials. Supports REGBONE, BUTTERFLY, EFTISARC-NEO, ANNA-SARC trials involving sarcoma patients.
• Akademia CzerniakacoreStrategic or Co-development PartnerCoalition for melanoma awareness. Sarcoma co-creates melanoma education and prevention projects including Tydzień Świadomości Czerniaka (Melanoma Awareness Week).
• Polska Koalicja Pacjentów OnkologicznychcoreStrategic or Co-development PartnerCoalition of oncology patient organizations. Organizer of Forum Pacjentów Onkologicznych and Jaskółki Nadziei awards.
• Stowarzyszenie Pomocy Chorym na GISTminorStrategic or Co-development PartnerPartner GIST patient organization. Joint participation in Polish Sarcoma Group activities.
• Fundacja DKMSminorStrategic or Co-development PartnerBone marrow donor registry foundation. Present at Onkobieg for bone marrow donor registration drives.
• Instytut Hematologii i TransfuzjologiicoreStrategic or Co-development PartnerHonorary patron for Onkobieg events. Specialized hematology and transfusion institute supporting blood cancer awareness.
• Ministerstwo ZdrowiacoreGTM or Marketing PartnerHonorary patronage for Onkobieg events. Government ministry overseeing healthcare policy.
• Ministerstwo Sportu i TurystykicoreGTM or Marketing PartnerHonorary patronage for Onkobieg events. Government ministry supporting sports and tourism initiatives.
• Rzecznik Praw PacjentacoreStrategic or Co-development PartnerHonorary patronage for Onkobieg events. Patient rights advocate supporting sarcoma patient advocacy efforts.

Scale indicators4 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Akademia Czerniaka: Polish melanoma-awareness coalition co-creator of Melanoma Awareness Week with Sarcoma. Direct domestic peer on melanoma patient education and skin-cancer prevention campaigns.
• Fundacja DKMS: Polish bone-marrow donor registry foundation; present at Onkobieg for donor registration drives. Comparable Polish cancer-related patient/donor nonprofit with similar fundraising-event model and advocacy posture.
• Sarcoma Patient Advocacy Global Network (SPAGN): Umbrella network of national sarcoma patient organizations of which Sarcoma is a member. Direct organizational peer — same mission, multi-country advocacy federation, and Sarcoma is named as a member.
• Sarcoma Foundation of America: U.S.-based patient advocacy nonprofit focused exclusively on sarcoma — directly comparable mission of patient support, research funding, and awareness. Sister-type peer within the global sarcoma advocacy community.
• Stowarzyszenie Pomocy Chorym na GIST: Polish GIST (a type of sarcoma) patient organization with joint participation in the Polish Sarcoma Group. Small specialty peer with same country, same patient community, and overlapping organizational mission.
• Melanoma Research Foundation: U.S. nonprofit dedicated to melanoma research, education, and patient advocacy. Closely comparable to the melanoma portion of Sarcoma's mission (dermatology/skin-cancer focus, patient support programs, awareness campaigns).
• Polska Koalicja Pacjentów Onkologicznych: Polish coalition of oncology patient organizations; co-organizer of the Jaskółki Nadziei awards that recognized Sarcoma's #FuraZdrowia. Operates Forum Pacjentów Onkologicznych — directly comparable Polish oncology patient-advocacy peer.

Broad incumbents

• American Cancer Society: Largest U.S. cancer patient-support and research nonprofit. Comparable in mission (financial aid, education, advocacy, research funding) but at vastly greater scale and across all cancer types rather than sarcoma/melanoma specialty.
• Cancer Research UK: Major UK cancer research and patient-information charity. Broad incumbent peer operating across oncology with patient-support and awareness functions similar to Sarcoma's portfolio.

Emerging players

• Aim at Melanoma Foundation: U.S.-based melanoma-focused patient advocacy and research foundation. Comparable in patient navigation, education content, and clinical-trial support functions, though smaller in geographic footprint.

Market position

Strengths1 record

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/watch?v=V_y3VItnuPE
• Facebookfacebook.com/onkobieg
• Instagraminstagram.com/onkobieg
• LinkedInlinkedin.com/company/sarcoma-stowarzyszenie

Revenue estimate

Valuation estimate

Number of profiles

Profiles5 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Polish Sarcoma and Melanoma Patients Association