Fédération SOS Hépatites & Maladies du foie

Name

Fédération SOS Hépatites & Maladies du foie

Legal name

SOS hépatites Fédération

Website

https://soshepatites.org

Company type

Private

Founded year

1996

Operating status

Operating

Headcount range

1–10 employees

Ownership category

akta.pro rank

Product category

Patient Advocacy and Public Health Non-Profit Services

NAICS

Individual and Family Services (6241)

SIC

Services-Health Services (8000)

akta.pro primary industry

Hepatology & Liver Disease (HLAKAEAB)

akta.pro secondary industry

Hepatology (Viral Hepatitis) (HLAKAGAC)

Keywords

• Patient advocacy services
• Hepatitis awareness campaigns
• Liver disease support
• Public health education
• Harm reduction programs

Headquarters

HQ city

Montreuil

HQ country

France

HQ region

Europe

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D

Revenue model

1. Donations and Membership: The association relies on donations (individual contributions via their website) and membership fees (adhésion) to fund its operations and advocacy activities.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels9 records

Core offering

Fédération SOS Hépatites & Maladies du foie is a French non-profit patient association (association loi 1901) founded in 1996 that delivers prevention, information, support, and advocacy services for people affected by viral hepatitis (B, C, D), NASH/MASH, and other liver diseases. It operates a national green number hotline (0 800 004 372), regional chapters across France and overseas territories (DROM-COM), an online patient platform (Hépatante), educational brochures, a medical glossary, training programs, legal/social support, monthly newsletters (MASHLETTER), and the first hepatitis C-free label for addiction treatment centers (CSAPA).

Product overview

Fédération SOS Hépatites & Maladies du foie is a patient association (association loi 1901) providing prevention, information, and support services for people affected by hepatitis and liver diseases. The organization operates primarily through a digital platform ecosystem including an online patient community platform (Plateforme Hépatante), educational resources (brochures, medical glossary), monthly newsletters (MASHLETTER), a presidential blog, and a free hotline service. The association also offers training programs, legal/social support, and certification programs for healthcare facilities. The organization focuses on viral hepatitis (B, C, D), MASH/NAFLD, and broader liver health advocacy, with regional presence across France including overseas territories.

Differentiator

Problem solved

Functional benefit

Brands

• SOS NASH: Dedicated initiative for Non-Alcoholic Steatohepatitis (NASH/fatty liver disease) patient support and advocacy, announced June 12, 2018

Products and services

• Plateforme Hépatante Online community platform where patients share their experiences living with hepatitis and liver diseases, including testimonials, treatment information, and follow-up guidance, aimed at patients and families.
• Numéro Vert SOS Hépatites (Green Number Hotline) Free national telephone hotline (0 800 004 372) providing information, guidance, and support for patients and families affected by hepatitis and liver diseases.
• Formations (Training Programs) Educational training programs and sessions for healthcare professionals, patients, and the public on hepatitis prevention, screening, and management.
• Label Mon CSAPA sans hépatite C First certification label program for French addiction treatment centers (CSAPA) committing to hepatitis C prevention, screening, and patient follow-up protocols, with a target of 400 centers nationally.
• Outils et Brochures (Educational Tools and Brochures) Educational brochures and resource tools covering liver health, hepatitis types, non-invasive fibrosis evaluation, treatments, nutrition, and legal/social information for patients and the public.
• Juridique – Social Support Legal and social support resources addressing patient rights, insurance, employment, and access to care for people with hepatitis and liver diseases.

Quantifiable outcome

• Mobilized 120,000 cured patients as campaign ambassadors
• +2 more outcomes

Named customers1 record

Segments6 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration2 records

Partnerships

16 partnerships are on record, tiered minor and core.

• Caarud YOZ (Ardennes)minorStrategic or Co-development Partner · 24 July 2019Harm reduction center for drug users in Ardennes, partnering for outreach and screening at festivals.
• DellminorGTM or Marketing Partner · 16 May 2019Corporate partner supporting the 'Montpellier sans Hépatite C' (Montpellier Hepatitis C-Free) project initiative.
• Docteur Eric Saillard, President SOS Hépatites GuadeloupecoreOthers · 12 March 2019Regional chapter president coordinating hepatitis B awareness in Guadeloupe, part of the first States General of Hepatitis B initiative.
• CSAPA Pierre Nicole Croix-Rouge (Paris)coreStrategic or Co-development Partner · 6 June 2018First addiction treatment center to sign the 'Mon CSAPA sans hépatite C' label charter, demonstrating commitment to hepatitis elimination.
• CSAPA/UTTD CHU de MontpelliercoreStrategic or Co-development Partner · 6 June 2018Addiction treatment center at Montpellier University Hospital, first to adopt the hepatitis C-free label.
• AFEF (Association Française pour l'Etude du Foie)coreStrategic or Co-development Partner · 12 April 2018Medical society partnership for the 'France without Hepatitis C' campaign. AFEF endorsed SOS Hépatites' elimination strategy and contributed to the Barometer of Hepatitis C Eradication.
• ANGH (Association des Hépato-Gastroentérologues des Hôpitaux Généraux)coreStrategic or Co-development Partner · 12 April 2018Partnership with hospital gastroenterologists supporting the national hepatitis C elimination campaign and endorsing SOS Hépatites' screening strategy.
• Culture AngelsminorGTM or Marketing Partner · 12 April 2018Cultural accelerator that collaborated on the 'Savoir C Guérir' (Know C to Cure) campaign, using music and artistic events to promote hepatitis C awareness.
• Phil Spalding (British musician)minorOthers · 20 June 2017British musician and composer (worked with Mick Jagger, Elton John, Roger Daltrey) created campaign songs for the 'Savoir C Guérir' initiative.
• Comité Médical pour les Exilés (COMEDE)minorStrategic or Co-development PartnerCo-signatory on joint press releases regarding healthcare access for migrants and hepatitis C treatment exclusion.
• Médecins du MondeminorStrategic or Co-development PartnerPartnership on advocacy for universal access to hepatitis C treatments and healthcare for vulnerable populations.
• AIDEScoreStrategic or Co-development PartnerLong-standing partnership with AIDES on hepatitis and HIV/AIDS advocacy, joint campaigns for treatment access, and healthcare rights.
• TRT-5coreStrategic or Co-development PartnerCollaborative partner in therapeutic access advocacy for hepatitis and HIV treatments.
• CISS (Collectif Interassociatif sur la Santé)coreStrategic or Co-development PartnerSOS Hépatites participates in this health coalition, now part of France Assos Santé, advocating for patient rights and healthcare access.
• France Assos SantécoreStrategic or Co-development PartnerNational union of patient associations. SOS Hépatites maintains active representation through board members and administrators (Danièle Desclerc Dulac, Carmen Hadey, Agnes Michel).
• AFM TéléthonminorStrategic or Co-development PartnerPartnership on advocacy for innovative medicine access and healthcare policy reform.

Scale indicators5 records

Recent moves7 records

Expansion highlights5 records

Emerging players

• Hépatites Info Service: French anonymous telephone and online information service on viral hepatitis run with SIDA Info Service. Provides similar hotline-style patient information services to those of SOS Hépatites' Numéro Vert (0 800 004 372).
• AFEF (Association Française pour l'Etude du Foie): French hepatology medical society and core partner of SOS Hépatites on the "France without Hepatitis C" campaign. Physician-led rather than patient-led, but directly overlaps on liver-disease advocacy and screening policy.

Regional players

• SOS Hépatites Guadeloupe: Regional chapter of SOS Hépatites; listed separately because it operates as the federation's DROM-COM/DROM overseas-territory vehicle, relevant for understanding the federation's regional structure rather than as an external competitor.

Direct peers

• World Hepatitis Alliance: Global patient-led umbrella body representing hepatitis-affected communities. Direct peer category peer because the federation's hepatitis elimination goals align with WHA's WHO-backed 2030 elimination strategy.
• COMEDE (Comité Médical pour les Exilés): French medical-rights NGO providing healthcare access for migrants and exiles, including hepatitis screening. Co-signatory with SOS Hépatites on joint press releases; same vulnerable-population and patient-rights remit.
• British Liver Trust: UK liver-disease patient advocacy charity offering patient support, helpline, and policy advocacy across viral hepatitis and liver disease. Closest international analogue to SOS Hépatites by mission, services (hotline, education, peer support), and structure.
• AIDES: Major French patient-advocacy non-profit focused on HIV/AIDS and hepatitis. Long-standing SOS Hépatites partner; both operate community-led patient support, harm reduction, and treatment-access advocacy under French association law.
• Médecins du Monde: French and international patient-rights NGO that co-advocates with SOS Hépatites on universal HCV treatment access and migrant health. Same association loi 1901 model, parallel community-health mission targeting vulnerable populations.
• TRT-5: French inter-association collective working on therapeutic innovation and access for HIV and viral hepatitis. Listed as a strategic partner with directly overlapping treatment-access advocacy mission.
• Coalition PLUS: International coalition of community-based HIV/AIDS and hepatitis NGOs anchored in France. Operates a parallel community-led advocacy model targeting PWUD, migrants, and other high-prevalence populations served by SOS Hépatites.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/sos_hepatites
• YouTubeyoutube.com/user/soshepatitesfd
• Facebookfacebook.com/SOS.hepatites.Federation
• LinkedInlinkedin.com/company/soshepatites
• Instagraminstagram.com/soshepatites/?hl=fr

Revenue estimate

Valuation estimate

Number of profiles

Profiles10 records

Subsidiaries2 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Fédération SOS Hépatites & Maladies du foie