SOS hépatites Alsace-Lorraine

What SOS hépatites Alsace-Lorraine does

SOS hépatites Alsace-Lorraine is a French non-profit patient association (association de droit local, loi 1908) founded on December 18, 2006, in Strasbourg by patients and their families affected by viral hepatitis and liver diseases. Originally established as SOS hépatites Alsace, it expanded its territorial scope in October 2016 to become SOS hépatites Alsace-Lorraine and now operates across the Grand Est region with headquarters in Strasbourg (23 rue de la 1ère Armée) and a regional office in Nancy (57 rue Raymond Poincaré). The association is led by founder-president Frédéric Chaffraix, governed by a 9-member board, supported by 3 paid staff, and supplemented by approximately a dozen volunteers.

The organization's core service line is rapid diagnostic testing (TROD — Tests Rapides d'Orientation Diagnostique) for Hepatitis B, Hepatitis C, HIV, and syphilis, conducted free of charge via finger-prick blood samples with 20-minute results. It complements screening with a Qualiopi-certified professional training program for healthcare and social-service workers, a Patient Therapeutic Education (ETP) program delivered jointly with SELHVA at Strasbourg's Nouvel Hôpital Civil, downloadable educational documentation, and community outreach across schools, universities, and social-service partners. The association also holds official accreditations enabling it to represent patient interests in regional hospital and public-health bodies and to intervene in public schools.

SOS hépatites Alsace-Lorraine is funded through a mix of annual memberships (€17 simple, €30 with donation), tax-deductible donations via the HelloAsso platform, and institutional grants from ARS Grand Est, Assurance Maladie, and partner municipalities (Strasbourg, Mulhouse, Nancy). It is an independent member of the national Fédération SOS Hépatites and holds representation within France Assos Santé, giving it both regional operational reach and national policy influence in hepatitis and liver-disease advocacy.

Name

SOS hépatites Alsace-Lorraine

Legal name

SOS Hépatites Alsace-Lorraine

Website

https://alsace.lorraine.soshepatites.fr

Company type

Private

Founded year

2006

Operating status

Operating

Headcount range

1–10 employees

Short description

SOS hépatites Alsace-Lorraine is a French regional non-profit patient association providing free rapid hepatitis B, C, and HIV screening, professional training, therapeutic education, and patient advocacy across the Grand Est region.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Disease Screening Services

NAICS

Medical Laboratories (621511)

SIC

Services-Medical Laboratories (8071)

akta.pro primary industry

Hepatology & Liver Disease (HLAKAEAB)

akta.pro secondary industry

Hepatology (Viral Hepatitis) (HLAKAGAC)

Keywords

• Patient association services
• Hepatitis screening services
• Rapid diagnostic testing
• Health prevention outreach
• Professional health training

Headquarters

HQ city

Strasbourg, Grand Est

HQ country

France

HQ region

Europe

Offices3 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Infrastructure, Marketing or Sales, Others

Revenue model

1. Membership fees: Annual membership fees: 17€ simple membership, 30€ membership with donation. Membership allows individuals to support the association and participate in its mission.
2. Donations: Tax-deductible donations (66% tax deduction up to 20% of taxable income). One-time or recurring donations from individuals and organizations.
3. Institutional funding: Grants and funding from government bodies including ARS Grand Est, municipalities (Strasbourg, Mulhouse, Nancy), and health insurance funds (Assurance Maladie)

Pricing tiers

Go-to-market motion3 records

Distribution channels3 records

Marketing channels9 records

Core offering

SOS hépatites Alsace-Lorraine is a non-profit patient association delivering free rapid diagnostic screening (TROD) for Hepatitis B, Hepatitis C, HIV, and Syphilis using finger-prick blood tests with 20-minute results, alongside Qualiopi-certified training for healthcare professionals and Patient Therapeutic Education (ETP) workshops delivered in partnership with Strasbourg University Hospital. The association also provides downloadable regional documentation on liver disease and conducts community-based information and prevention actions across Alsace-Lorraine.

Product overview

SOS Hépatites Alsace-Lorraine is a regional patient association (association de patients) providing support, information, and healthcare services for people affected by hepatitis and liver diseases. The organization operates several interconnected services: TROD (rapid diagnostic test) screening services for Hepatitis B, C, and HIV offered at their Strasbourg and Nancy locations; a Qualiopi-certified training program for healthcare professionals on TROD utilization; a Patient Therapeutic Education (ETP) program conducted with SELHVA at Strasbourg University Hospital; and regional educational documentation covering liver health, transmission modes, and prevention. The association also conducts outreach and prevention activities across Alsace and Lorraine territories, providing community education and support services.

Differentiator

Problem solved

Functional benefit

Products and services

• TROD Testing Services (Tests Rapides d'Orientation Diagnostique) Rapid diagnostic testing service for Hepatitis C (VHC), Hepatitis B (VHB), HIV (VIH 1 and 2), and Syphilis using finger-prick blood samples, providing confidential results in 20 minutes with risk-reduction counseling. Provided free of charge to individuals and at community partner locations across Alsace-Lorraine.
• TROD Training Program Qualiopi-certified training program for healthcare professionals on the use of rapid diagnostic tests (TROD) for Hepatitis C, Hepatitis B, Syphilis, and HIV, compliant with the arrêté du 13 mai 2024 and processes certified by Cofrac. The program has trained 133 healthcare professionals since 2017 with a 98% success rate.
• Patient Therapeutic Education (ETP) Program Therapeutic education program for patients with chronic hepatitis or liver diseases, conducted in partnership with SELHVA at Nouvel Hôpital Civil in Strasbourg. Includes individual workshops covering various liver health topics, designed for patients navigating diagnosis and treatment journeys.
• Regional Documentation and Educational Materials Downloadable PDF resources including liver disease information, transmission mode tables, screening and vaccination guides for Alsace and Lorraine regions, tattoo and piercing safety guides, and TROD presentation materials. Targeted at patients, the general public, and partner professionals.
• Information and Prevention Actions Public awareness and prevention activities delivered in schools, healthcare facilities, and community settings, including educational presentations, interactive tools, and information stands on hepatitis and liver diseases. Includes dedicated programs in partnership with CROUS Nancy-Metz for student health and with Secours Populaire de Nancy for vulnerable populations.

Quantifiable outcome

• 1,368 TROD tests performed in 2019
• +3 more outcomes

Named customers3 records

Segments5 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature4 records

Partnerships

Ten partnerships are on record, tiered major, core and minor.

• CROUS Nancy-MetzmajorStrategic or Co-development Partner · 1 December 2025Partnership signed end 2025 to sensitize students on hepatitis and provide TROD screening at student residences. Actions organized at multiple residences including Saurupt, Médreville, Boudonville, Monbois, Charmois, Placieux, Provençal, Notre-Dame-de-Lourdes, Batelière.
• SELHVA (Service Expert de Lutte contre les Hépatites Virales d'Alsace)coreStrategic or Co-development Partner · 20 October 2016Long-standing collaboration with CHRU Strasbourg's expert hepatitis service for patient education programs (ETP), professional training, and awareness campaigns. Joint programs for hepatitis screening and patient support.
• ALMAF (Association de Lutte contre les Maladies du Foie)coreStrategic or Co-development Partner · 20 October 2016Collaboration on TROD training programs and liver disease awareness initiatives. Joint certification training for healthcare professionals.
• Secours Populaire de NancymajorStrategic or Co-development PartnerAnnual hepatitis screening campaign at their facilities. 9 sessions organized in November 2025, including 5 sessions for student beneficiaries. Tested 32 people for hepatitis B, C, and HIV.
• ARS Grand Est (Agence Régionale de Santé)coreGTM or Marketing PartnerRegional health agency providing institutional funding and collaboration on public health initiatives including vaccination committees and healthcare surveillance.
• Ville de StrasbourgmajorGTM or Marketing PartnerMunicipal partner providing funding support and collaboration on city health initiatives including the Strasbourg zero hepatitis C program.
• Fédération SOS HépatitescoreStrategic or Co-development PartnerNational federation founded in 1998, providing network of regional associations, training resources, and the Hépatante platform. SOS Hépatites Alsace-Lorraine is an affiliated member.
• France Assos Santé (UNASS)majorStrategic or Co-development PartnerNational union of health user associations. Carmen Hadey serves as administrator since 2017. Provides access to advocacy resources and national health policy discussions.
• Centre Communal d'Action Sociale de MulhouseminorGTM or Marketing PartnerPartner for women's health day events, providing venue and collaboration for hepatitis awareness at municipal events.
• Mta SantéminorGTM or Marketing PartnerPartner for women's health day events organized for International Women's Rights Day.

Scale indicators9 records

Recent moves11 records

Expansion highlights5 records

Direct peers

• Sida Info Service: National HIV/STI information and support service. Adjacent peer given the association's HIV TROD offering and shared community-based screening mission for sexually transmitted infections.
• AIDES: France's leading community-based NGO on HIV and viral hepatitis, performing TROD screening, prevention campaigns, and patient support. Closest direct peer in terms of community-led screening and at-risk-population outreach model.
• Hépatites Info Service: National anonymous helpline and information service on hepatitis B and C. Operates the 0 800 845 800 line referenced by SOS Hépatites Alsace-Lorraine and shares the patient-information and prevention mandate.
• Fédération SOS Hépatites: National umbrella federation founded in 1998 to which SOS Hépatites Alsace-Lorraine is affiliated. Operates the Hépatante platform and coordinates French hepatitis patient associations with overlapping screening, training, and advocacy missions.

Others

• Coalition PLUS: International coalition of community-focused NGOs fighting HIV/AIDS and viral hepatitis. Peer in mission and community-led model, useful for cross-border advocacy and funding partnerships.
• France Assos Santé: National union of approved health-user associations (UNASS), of which SOS Hépatites Alsace-Lorraine is a member. Provides advocacy, training, and policy representation that supports the association's user-representation work.

Regional players

• CRIPS Île-de-France: Regional resource center on HIV, STIs, and hepatitis prevention in Île-de-France. Functional equivalent to SOS Hépatites Alsace-Lorraine for the Paris region, delivering documentation, training, and awareness actions.

Broad incumbents

• Médecins du Monde: Large international medical NGO running community health programs for vulnerable populations in France, including hepatitis and HIV screening. Comparable model for outreach to precarious and migrant populations, though with a broader clinical remit.
• Croix-Rouge française: National humanitarian organization with extensive volunteer-driven health prevention and screening activities, including HIV/hepatitis outreach. Comparable in volunteer-led public health delivery but in a much broader portfolio.
• Médecins Sans Frontières: International medical humanitarian organization. Operates hepatitis and HIV programs globally; relevant comparable for community-based screening in vulnerable populations but at vastly greater scale.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xtwitter.com/SOShepatitesAL
• Facebookfacebook.com/SOS.hepatites.Alsace.Lorraine
• LinkedInlinkedin.com/company/sos-hepatites-alsace-lorraine
• Instagraminstagram.com/sos.hepatites_alsace.lorraine

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles12 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about SOS hépatites Alsace-Lorraine