Stomavereniging

What Stomavereniging does

Stomavereniging (legal name: Nederlandse Stomavereniging) is a Dutch patient association founded in 1967 and headquartered at Mercatorlaan 1200, Domus Medica, Utrecht. The organization is registered as a vereniging (membership association) with ANBI (Algemeen Nut Beogende Instelling) public-benefit status and is governed by an unpaid volunteer board chaired by Ruben Meijer, with Daphne Albers as treasurer. It serves the approximately 40,000 people in the Netherlands living with a stoma, pouch, or neoblaas, with secondary outreach to family members and caregivers, and reports that around 3,000 individuals engage with its support services annually.

The association delivers its mission through a layered service stack. Core community offerings include 150 volunteers organized across five regional departments (Noord, Oost, Noord-West, Zuid-West, Zuid), monthly drop-in regional meetings, annual Stomadagen events with a stomamarkt vendor fair, and online coffee gatherings. Educational and support programs include the Stomacursus ("Een stoma of pouch, en nu?!"), the Sterk met Stoma coaching program, the StomaJONG youth program, and the Meldpunt Stomazorg quality-reporting tool. Digital channels comprise the Stoma App, the StoMakker children's app, the "Niet meer op de potcast" podcast, the Beweegvideos exercise video library, Facebook support groups, a monthly digital newsletter, and the printed Vooruitgang magazine. The organization maintains partnerships with seven medical device manufacturers (Hollister, Coloplast, Dansac, ConvaTec, MediReva, Marlen Healthcare, Liomed) and KWF Kankerbestrijding.

Stomavereniging is funded through individual membership fees of €37 per year (automatically renewed with a one-month cancellation notice), donations, and bequests enabled by ANBI tax treatment. It employs 23 staff on the CAO Sociaal Werk collective labor agreement. The organization does not develop proprietary technology; its apps and digital tools function as content delivery, communication, and reporting infrastructure rather than technology platforms. No revenue, M&A, funding, or headcount growth data is disclosed, and no AI/ML capabilities are present.

Name

Stomavereniging

Legal name

Nederlandse Stomavereniging

Website

https://stomavereniging.nl

Company type

Private

Operating status

Operating

Headcount range

11–50 employees

Short description

Stomavereniging is a Dutch non-profit patient association (ANBI) founded in 1967 that supports the ~40,000 people in the Netherlands living with a stoma, pouch, or neoblaas through regional volunteers, educational programs, digital tools, and advocacy.

Ownership category

akta.pro rank

Product category

Patient Advocacy Services

NAICS

Other Individual and Family Services (624190)

akta.pro primary industry

Enteral Stoma Care & Accessories (Gastrostomy/Jejunostomy Skin Care, Securement, Dressings) (HLAHALAJ)

Keywords

• Patient advocacy services
• Ostomy support programs
• Peer support communities
• Chronic illness resources
• Patient association services

Headquarters

HQ city

Utrecht

HQ country

Netherlands

HQ region

Europe

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D

Revenue model

1. Membership fees: Annual membership at €37 per year, automatically renewed. Members receive the Vooruitgang magazine and other member benefits.
2. Donations: As an ANBI (Algemeen Nut Beogende Instelling), the organization accepts donations and bequests. Donors receive tax benefits as the organization is exempt from gift tax.

Pricing tiers

Go-to-market motion1 record

Distribution channels4 records

Marketing channels9 records

Core offering

Stomavereniging is a Dutch national patient association providing lifelong information, peer support, and advocacy for people living with a stoma, pouch, or neoblaas. It delivers services through digital tools (Stoma App, StoMakker children's app, monthly newsletter, podcast), printed publications (Vooruitgang magazine), educational courses (Stomacursus, Sterk met Stoma coaching), regional in-person meetings, annual Stoma Days events, and a national reporting point (Meldpunt Stomazorg) for stoma care quality monitoring.

Product overview

Stomavereniging is a Dutch patient organization (vereniging) offering a comprehensive suite of services for people living with a stoma or pouch. The organization provides digital tools (including a Stoma App, StoMakker children's app, and Vooruitgang Magazine), educational programs (the Stomacursus and Sterk met Stoma coaching program), community support (StomaJONG youth program, peer support through Praten met iemand zoals jij, and Stomadagen regional events), and information resources (the Stoma Wegwijzer guide, 100 FAQs, and a digital newsletter). The organization also operates the Meldpunt Stomazorg for quality monitoring and advocacy.

Differentiator

Problem solved

Functional benefit

Brands

• StoMakker: An app designed for children with a stoma
• Sterk met Stoma
• Stoma App
• Vooruitgang

Products and services

• Annual Membership Annual membership at €37 per year for individuals with a stoma, pouch, or neoblaas, providing access to the Vooruitgang magazine, regional meetings, courses, peer support, and member benefits.
• Stoma App Mobile application providing resources, information, and tools for people living with a stoma or pouch.
• StoMakker App Dedicated app for children with a stoma, designed to provide age-appropriate support and information.
• Vooruitgang Magazine Magazine publication delivered to members containing articles, experiences, and information relevant to living with a stoma.
• Stomacursus: Een stoma of pouch, en nu?! Course program helping new stoma and pouch carriers learn to live with their condition through experiential learning from experienced volunteers.
• Sterk met Stoma Coaching Program Resilience and coaching program providing support and coaching for living with a stoma or pouch.
• Meldpunt Stomazorg Official national reporting point where members can share positive or negative experiences with stoma care to monitor quality.
• Stomadagen (Stoma Days) Regional stoma days featuring workshops, a stoma market, and networking opportunities for stoma carriers and partners.
• StomaJONG Dedicated program for young people living with a stoma, providing peer support and age-appropriate resources.
• Niet meer op de potcast Podcast series discussing topics related to living with a stoma.
• Beweegvideos (Exercise Videos) Exercise videos providing step-by-step movement guidance for people with a stoma.
• Digitale Nieuwsbrief (Digital Newsletter) Monthly digital newsletter providing news, events, tips, and experiences directly to subscribers' email.

Named customers1 record

Segments2 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eight partnerships are on record, tiered minor.

• HollisterminorOthersMedical device manufacturer specializing in ostomy products. Partner displayed on the Stomavereniging website partners section.
• ColoplastminorOthersMedical device manufacturer specializing in continence and stoma care products. Partner displayed on the Stomavereniging website partners section.
• KWFminorOthersKWF Kankerbestrijding (Dutch Cancer Society). Partnership for cancer-related stoma support.
• DansacminorOthersMedical device manufacturer specializing in ostomy products. Partner displayed on the Stomavereniging website partners section.
• ConvaTecminorOthersMedical device company specializing in ostomy and wound care products. Partner displayed on the Stomavereniging website partners section.
• MediRevaminorOthersMedical supplier specialized in stoma care. Partner displayed on the Stomavereniging website partners section.
• Marlen HealthcareminorOthersMedical supplier specializing in healthcare products. Partner displayed on the Stomavereniging website partners section.
• LiomedminorOthersMedical supplier for home healthcare. Partner displayed on the Stomavereniging website partners section.

Scale indicators4 records

Recent moves5 records

Expansion highlights5 records

Direct peers

• United Ostomy Associations of America (UOAA): The leading US national ostomy patient association, providing peer support, advocacy, and educational resources to Americans living with stomas. Directly comparable as a national-level patient organization serving the same condition population with a similar membership-and-volunteer model.
• Colostomy UK: National UK charity for people with a colostomy, providing 24/7 helpline, publications, and regional visitor support. Closely analogous to Stomavereniging with a single-stoma-type focus and comparable service mix.
• Stomaatje: Dutch online community for stoma patients offering peer support, information, and an active forum. Closest Dutch peer focused specifically on the stoma community, differentiated by a digital-first delivery model.
• International Ostomy Association (IOA): Global umbrella organization coordinating national ostomy associations worldwide. Comparable as the international peer federation in the same ostomy patient advocacy space that Stomavereniging engages with.
• Ileostomy & Internal Pouch Association: UK-based charity supporting people with ileostomies and internal pouches through regional groups, publications, and patient advocacy. Operates a near-identical model to Stomavereniging in a neighboring country with overlapping disease population.

Regional players

• Nederlandse Coeliakie Vereniging: Dutch Celiac Association — a chronic GI condition patient organization with membership model, magazine, and regional activities. Comparable as a Dutch non-profit patient association with similar operational structure serving a chronic GI population.
• Maag Lever Darm Stichting (MLDS): Dutch Digestive Foundation funding research and supporting patients with GI conditions. Comparable as a Dutch GI health non-profit with overlapping disease populations and patient advocacy remit.
• KWF Kankerbestrijding: Dutch Cancer Society — large Dutch non-profit funding cancer research and patient support, including for colorectal cancer, a major cause of stoma surgery. An established partner of Stomavereniging and a regional comparable in mission and scale.
• Nederlandse Federatie van Kankerpatiëntenorganisaties (NFK): Dutch federation of cancer patient organizations coordinating advocacy and support across cancer types. Comparable as a Dutch umbrella patient organization structure operating in the same broader patient support space.
• Crohn's & Colitis NL (CCUVN): Dutch patient organization for Crohn's disease and ulcerative colitis — conditions that frequently lead to stoma surgery. Comparable as a Dutch non-profit patient association with overlapping GI disease populations and a similar advocacy mission.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights5 records

Customer concentration

• Facebookfacebook.com/stomavereniging
• Instagraminstagram.com/stomavereniging
• LinkedInlinkedin.com/company/stomavereniging

Revenue estimate

Valuation estimate

Number of profiles

Profiles6 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Stomavereniging