TRISOMIE 21 HAUTE GARONNE

What TRISOMIE 21 HAUTE GARONNE does

Trisomie 21 Haute Garonne is a French non-profit association (Loi 1901) founded in 1986 in Toulouse by parents seeking to raise their children with Trisomy 21 (Down syndrome) in inclusive, mainstream settings. The organization operates within the Haute-Garonne department and broader Midi-Pyrénées / Occitanie region, and is affiliated with the national Trisomie 21 France federation (formerly FAIT 21). Its core service portfolio comprises SESSAD, a specialized home education service for children; SAMSAH, a medico-social accompaniment service for adults; DÉFI EMPLOI and PRO DÉFI, employment access and retention programs; and a range of community activities including family welcoming, sibling and parent support groups, and inclusive events.

The association does not develop proprietary technology; its digital footprint consists of a WordPress website, a Facebook page ('T21 HG'), and PDF-format 'Petit Journal' newsletters, with no AI, API, or software product offering. During the COVID-19 lockdown in March 2020 it pivoted to online workshops via video conference and institutionalized a monthly newsletter cadence, indicating adoption of standard remote-work and digital communications tooling rather than technology productization.

Trisomie 21 Haute Garonne's revenue model is a hybrid of public institutional funding, private donations, and community fundraising. The dominant income stream is operating subsidies from ARS Midi-Pyrénées for SESSAD and SAMSAH service places, supplemented by membership fees, individual donations, and retail-driven fundraising campaigns (e.g., 'Boucles du Coeur' with Carrefour Market in 2019). Strategic partners include Unis-Cité (civic-service volunteer deployment via the 'Familles en Harmonie' program, 2015), Caisse d'Epargne Midi-Pyrénées (donation, 2015), MDPH 31, the Mairie de Toulouse, and local retailers. The association is governed by a volunteer Board of Directors composed of parents and persons with Trisomy 21; the current President is Philippe Lacaze and the Director is Stéphanie Adin (since February 2021).

Name

TRISOMIE 21 HAUTE GARONNE

Legal name

Trisomie 21 Haute Garonne

Website

https://trisomie21-haute-garonne.org

Company type

Private

Founded year

1986

Operating status

Operating

Headcount range

11–50 employees

Short description

Trisomie 21 Haute Garonne is a French non-profit association founded in 1986 in Toulouse providing SESSAD, SAMSAH, employment, and family support services to individuals with Down syndrome and their families across Haute-Garonne.

Ownership category

akta.pro rank

Headquarters

HQ city

Toulouse

HQ country

France

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Membership fees and donations: Association receives support through membership fees and voluntary donations from families, supporters, and the public.
2. Institutional funding: Public funding from regional health agencies (ARS) for operating support services including SESSAD and SAMSAH.
3. Fundraising campaigns: Partnership campaigns such as 'Boucles du Coeur' with Carrefour Market generating funds for educational materials and activities.

Go-to-market motion1 record

Distribution channels2 records

Marketing channels5 records

Core offering

TRISOMIE 21 HAUTE GARONNE is a non-profit association that delivers medico-social, educational, and employment support services to people with Down syndrome and their families in the Haute-Garonne region. Its core offerings include SESSAD (specialized home education for children), SAMSAH (medico-social support for adults), DÉFI EMPLOI and PRO DÉFI (employment access and retention programs), family and sibling support activities, and educational publications such as the Livret de scolarisation.

Product overview

TRISOMIE 21 HAUTE GARONNE is a non-profit association providing a comprehensive suite of support services for people with Down syndrome and their families in the Haute-Garonne region. The organization operates two primary support services—SESSAD (for children) and SAMSAH (for adults)—alongside employment programs (DÉFI EMPLOI and PRO DÉFI) that help individuals achieve professional integration and autonomy. The association also publishes educational resources like the Livret de scolarisation, organizes family support activities, and facilitates community integration through various associative programs. Together, these services form a holistic support ecosystem addressing the educational, social, professional, and familial needs of people with Trisomy 21.

Differentiator

Problem solved

Functional benefit

Products and services

• SESSAD (Service d'Éducation Spécialisée à Domicile) Specialized home-based education service for children with Down syndrome, supporting their development and access to education in inclusive settings through individualized accompaniment at home, school, and in the community.
• SAMSAH (Service d'Accompagnement Médico-Social pour Adultes Handicapés) Medico-social support service for adults with disabilities, helping individuals with Down syndrome achieve greater autonomy, access healthcare, and participate fully in community life.
• DÉFI EMPLOI Employment access program helping people with Down syndrome enter the workforce through supported placement, job training services, and connection with employers.
• PRO DÉFI Employment maintenance program supporting individuals with Down syndrome to retain their jobs and progress in their careers once placed.
• Activités associatives (Family and Community Support Activities) Association-wide family welcoming services, activities for children and young adults, sibling ("fratrie") support groups, parent meetings, and inclusive events for all members.

Quantifiable outcome

• The 'Familles en Harmonie' program provides respite for families through weekly companionship for children and young adults with disabilities
• +1 more outcomes

Named customers2 records

Segments4 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eight partnerships are on record, tiered minor and core.

• Carrefour Market (multiple Toulouse locations)minorGTM or Marketing Partner · 1 January 2019Association beneficiary of 'Boucles du Coeur' annual fundraising operation at four Toulouse Carrefour Market stores. Funds used to provide educational accompaniment for children without SESSAD placement, purchase educational materials, and organize cultural and sporting outings.
• Unis-CitécoreStrategic or Co-development Partner · 1 September 2015Partnership through the 'Familles en Harmonie' project where young volunteers in civic service (2 per group) accompany children or young adults with disabilities for 1-2 hours per week to provide family respite. Teams of 8 volunteers conduct missions including visits to isolated elderly, eco-citizen awareness, and organizing activities for youth with disabilities. Volunteers receive €570 monthly indemnity plus social coverage.
• Auchan Balma GramontminorGTM or Marketing Partner · 1 January 2014Partnership for World Trisomy 21 Day awareness stand at Auchan gallery. Association staff and individuals with T21 present information and posters sharing photos of their lives.
• Domino (theater troupe)minorStrategic or Co-development Partner · 1 January 2014Theater troupe partnership for a play about Down syndrome at Théâtre des Mazades. Troupe also organizes 'Couleurs et Mots' art workshops. Association participated in radio interviews alongside Domino representatives.
• Trisomie 21 France (FAIT 21 Federation)coreStrategic or Co-development PartnerParent federation representing associations for social insertion of people with Down syndrome across France. Provides training programs, educational resources (such as the schooling booklet), citizenship seminars, and national advocacy.
• MDPH 31 (Maison Départementale des Personnes Handicapées)coreOthersDepartmental house for disabled persons - administrative partner for disability recognition, care orientation, and rights for people with Down syndrome in Haute Garonne.
• ARS Midi-PyrénéescoreOthersRegional Health Agency providing authorization and funding for SESSAD and SAMSAH services, including launch of new service places in neighboring departments.
• Mairie de Toulouse (City of Toulouse)minorGTM or Marketing PartnerPartnership for presence at Salon AUTONOMIC Sud. Association positioned with 'Monde Pro' theme alongside the Municipality's Handicap Mission for professional integration. City provides stand space and connections to municipal services for potential internships.

Scale indicators2 records

Recent moves9 records

Expansion highlights5 records

Direct peers

• Down Syndrome International: International umbrella organization for Down syndrome associations. Trisomie 21 Haute Garonne participates in World Trisomy 21 Day (March 21) activities coordinated by DSI - a directly comparable global peer in the same Down syndrome mission space.
• Trisomie 21 Paris: Regional Trisomie 21 association serving the Paris region, offering the same lifecycle services (early intervention, adult support, employment). Direct comparable in scope and service mix within the federation.
• Trisomie 21 Aquitaine: Sister regional Trisomie 21 association in the Aquitaine area, providing parallel medico-social and family support services under the same federation model - directly comparable peer.
• Trisomie 21 Alpes Maritimes: Sister regional Trisomie 21 association on the French Riviera. Explicitly cited by President Philippe Lacaze as the model for T21 HG's organizational transformation, making it a directly comparable regional peer in service portfolio and federation model.
• Trisomie 21 France (FAIT 21 Federation): National federation of Trisomie 21 associations in France. Trisomie 21 Haute Garonne is an affiliated member; the federation provides training, advocacy, and shared resources, making it a direct umbrella peer in the same Down syndrome support mission.
• ADAPEI 31 (Haute-Garonne): Local departmental association serving people with intellectual disabilities in Haute-Garonne. Operates comparable medico-social services (similar to SESSAD/SAMSAH) in the same geographic territory, making it a direct peer for inclusive education, employment, and adult support.

Regional players

• National Down Syndrome Society (NDSS): US-based national Down syndrome advocacy and support organization. Comparable mission (advocacy, family support, community programs) but operates in a different national healthcare and funding system.

Broad incumbents

• APF France Handicap: Major French disability advocacy and service NGO. Operates nationwide medico-social services and advocacy for people with all types of disabilities - a broad incumbent with overlapping mission but wider scope.
• UNAPEI: National federation of French associations for people with intellectual disabilities. A larger, broader incumbent serving a wider disability population but with overlapping service models and policy advocacy.

Others

• Fondation Abbé Pierre: Large French non-profit focused on housing poverty and vulnerable populations. Not a disability peer directly, but a comparable large French associative actor using donations, public funding, and volunteer governance - adjacent ecosystem reference.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• Facebookfacebook.com/t21hg
• LinkedInlinkedin.com/company/trisomie-21-haute-garonne

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about TRISOMIE 21 HAUTE GARONNE