ALS United Greater New York

ALS Patient Care and Support Servicesals-ny.org

Company typePrivate
Founded1990
HeadquartersNew York, United States
Headcount11–50
GTM typeB2C
OfferingServices

ALS United Greater New York firmographics

Firmographics

Name: ALS United Greater New York
Legal name: ALS United Greater New York, Inc.
Website: https://als-ny.org
Company type: Private
Founded year: 1990
Operating status: Operating
Headcount range: 11–50 employees
Ownership category
akta.pro rank

ALS United Greater New York industry classification

Industry

Product category: ALS Patient Care and Support Services
NAICS: Services for the Elderly and Persons with Disabilities (624120)
SIC: Services-Misc Health & Allied Services, Nec (8090)
akta.pro primary industry: Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

Keywords

ALS patient care services
Medical equipment loans
ALS research funding
Caregiver support programs
ALS advocacy services

Where ALS United Greater New York is headquartered

Location

Headquarters

HQ city: New York
HQ country: United States
HQ region: North America

Offices1 record

Markets served

ALS United Greater New York business model

Business model

GTM type: B2C
Offering type: Services
Cost components: Personnel, Operations, Marketing or Sales, Others, Infrastructure

Revenue model

Donations and Fundraising: The organization raises funds through individual donations, major gifts, planned giving, event fundraising (walks, galas, golf tournaments, endurance events), and corporate sponsorships. Services to patients and families are provided free of charge.
Event-Based Revenue: Major annual events including WALK ALS (six locations, $1.3M raised in 2025), Lou Gehrig Legacy Gala ($1M raised in 2025), Iron Horse Golf Classic ($150K raised in 2025), and Team ALS endurance events ($640K+ raised in 2025).
Government and Foundation Grants: The organization receives funding from government sources including state allocations (NJ $325K, NY $250K in 2025-2026), federal funding for ALS research programs, and foundation grants for research initiatives.

Go-to-market motion1 record

Distribution channels3 records

Marketing channels11 records

ALS United Greater New York product offering

Product offering

Core offering

ALS United Greater New York provides free, comprehensive care services and support programs for individuals and families affected by ALS in the Greater New York area. Core offerings include care coordination by professional Care Service Coordinators, short- and long-term loans of durable medical equipment and assistive technology, free transportation to ALS clinic appointments, patient financial grants, mental health and wellness services, caregiver and bereavement support, educational programming, and state/federal advocacy. The organization also funds ALS research through grants, fellowships, and partnerships with research institutions.

Product overview

ALS United Greater New York is a nonprofit organization providing comprehensive care services and support programs for individuals and families affected by ALS in the Greater New York area. The organization operates a portfolio of integrated service programs including care coordination, equipment loans, transportation assistance, patient grants, mental health services, educational programs, and advocacy initiatives. Their service delivery model centers on multidisciplinary clinic partnerships, support groups, and educational events. The organization also funds ALS research through grants and fellowships and conducts advocacy at the state and federal levels.

Differentiator

Problem solved

Functional benefit

Products and services

Care Services Program Comprehensive care coordination and support services for individuals and families affected by ALS, including support groups, caregiver support, and care coordination provided free of charge by professional Care Service Coordinators through phone, email, and in-person support.
Equipment Loan Program Short-term and extended loans of durable medical equipment and assistive technology to individuals with ALS, including wheelchairs, patient lifts, communication devices, and environmental control systems, provided at no cost.
Harold and Ruth Lopatin Transportation Program

Quantifiable outcome

More than 75% of Milton Safenowitz Postdoctoral Fellowship awardees continue in ALS research
+3 more outcomes

Companies that use ALS United Greater New York

Customer profile

Named customers3 records

Segments4 records

Ideal customer profiles5 records

ALS United Greater New York technology and API

Technology

Technology focussed No

API detail

Has API: No
API docs
API detail

Core technology

AI maturity

App detail

ALS United Greater New York partnerships and signals

Strategic signal

Partnerships

24 partnerships are on record, tiered core, strategic and minor.

Memorial Sloan Kettering Cancer CentercoreStrategic or Co-development Partner · 4 June 2026Research partnership to fund development of carbon nanotube sensor platform combined with machine learning to detect ALS earlier and track disease progression in real time. Part of collaborative research program facilitated by ALS Network.
ALS NetworkcoreStrategic or Co-development Partner · 4 June 2026Facilitates collaborative research program to streamline infrastructure and direct resources toward high-potential research across member organizations of ALS United to accelerate progress in ALS treatment and understanding.
ALS NorthweststrategicStrategic or Co-development Partner · 4 June 2026Collaborative Research Innovation Grants partnership funding research projects with fellow ALS United member organizations. Supports cross-institutional scientific collaboration through ALS Network.
Accelerating Medicines Partnership in ALS (AMP-ALS)coreStrategic or Co-development Partner · 1 January 2024Partnership with NIH, FDA, Critical Path Institute, and other stakeholders to expedite development of effective ALS treatments. ALS United and 14 other member organizations collectively support this initiative.
Northeast ALS Consortium (NEALS)coreStrategic or Co-development Partner · 1 January 2024International consortium of ALS clinical research centers that collaboratively conducts clinical research in ALS and motor neuron disease. Organization partners with NEALS for clinical trial access.
Target ALSstrategicStrategic or Co-development Partner · 1 January 2024Supports Springboard Fellowship focused on helping senior lab fellows transition to independent academic positions in ALS research.
ALS Network Research Program / Robert Packard Center for ALS ResearchcoreStrategic or Co-development Partner · 1 January 2024Joint research funding partnership with Robert Packard Center for ALS Research alongside 14 other ALS United member organizations to fund innovation grants for novel yet scientifically rigorous ALS research.
Expanded Access | Target ALSstrategicStrategic or Co-development Partner · 1 January 2024Investigator-initiated and industry-sponsored Expanded Access Programs provide means to move promising investigational drugs from lab to clinic, advancing translational science while giving hope to ALS patients.
Eleanor and Lou Gehrig ALS Center, Columbia UniversitycoreStrategic or Co-development PartnerMultidisciplinary ALS clinic partner providing comprehensive care at 710 West 168th Street, 3rd Floor, New York, NY 10032. Well-positioned to lead Expanded Access Programs drawing on strengths in basic biology of ALS.
ALS Center at Hackensack University Medical CentercoreStrategic or Co-development PartnerALS clinic partner at 650 From Rd. #506, Paramus, NJ 07652. Contact Josette Alquitran at [email protected] or (551) 996-4139.
Christopher Pendergast ALS Center of Excellence at Stony Brook University HospitalcoreStrategic or Co-development PartnerClinic partner at 181 N. Belle Mead Rd, E. Setauket, NY 11733. Evan Rivera, NP serves as Nurse Coordinator.
Hospital for Special SurgerycoreStrategic or Co-development PartnerALS clinic partner at two locations: 525 East 71st Street, 5th Floor, New York, NY 10021 and 1133 Westchester Avenue, White Plains, NY 10605.
Mount Sinai Downtown at Union SquarecoreStrategic or Co-development PartnerClinic partner at 10 Union Square East, New York, NY 10003. Justice-Keith Little serves as Care Coordinator.
Northwell HealthcoreStrategic or Co-development PartnerALS clinic partner at 611 Northern Boulevard, Great Neck, NY 11021. Kshiti Patel, RN serves as Clinic Coordinator.
Northwell Health at Staten Island University HospitalcoreStrategic or Co-development PartnerClinic partner at 501 Seaview Avenue, Suite 104, Staten Island, NY 10305. Dr. Edward Yu serves as Medical Director.
NYU Langone HealthcoreStrategic or Co-development PartnerClinic partner at 222 East 41st Street, 10th Floor, New York, NY 10016. Chloe Holt-Reiss serves as Coordinator.
Rutgers Robert Wood Johnson Medical SchoolcoreStrategic or Co-development PartnerClinic partner at 125 Paterson Street, New Brunswick, NJ 08901. Mary Ann Mertz, RN serves as Nurse Coordinator.
James J. Peters Bronx VA Medical CentercoreStrategic or Co-development PartnerVA clinic partner at 130 W Kingsbridge Rd, Bronx, NY 10468. Ernest Acheampong, RN serves as Clinic Coordinator. Veterans are twice as likely to develop ALS.
University of California, San FranciscostrategicStrategic or Co-development PartnerDr. Faranak Fattahi's project testing glioprotective small molecule drug compounds to protect glial cells in the nervous system, with goal of slowing or preventing damage to motor neurons and muscles in ALS patients.
EverTree BiostrategicStrategic or Co-development PartnerDr. Sarah Kishinevsky collaborates on research testing glioprotective small molecule drug compounds designed to protect glial cells in the nervous system.
Milton Safenowitz Postdoctoral Fellowship ProgramcoreStrategic or Co-development PartnerProgram founded by Safenowitz family in memory of Milton Safenowitz who died of ALS in 1998. Encourages young scientists to enter ALS research field with more than 75% of fellows continuing in the field.
CitarellaminorOthersCorporate donor supporting ALS United Greater New York's mission through generous contributions.
Grain GroupminorOthersCorporate donor supporting ALS United Greater New York's mission through generous contributions.
Patrizia's (Brush)minorOthersCorporate donor supporting ALS United Greater New York's mission through generous contributions.

Scale indicators10 records

Recent moves7 records

Expansion highlights5 records

ALS United Greater New York competitors and assessment

Company assessment

Emerging players

I AM ALS: Patient-led ALS advocacy organization focused on federal policy, federal research funding, and community mobilization. Comparable on advocacy and awareness dimensions, with a more grassroots and national focus.

Direct peers

ALS Network (formerly ALS Association Golden West): Sister ALS United member organization that facilitates cross-organizational collaborative research programs including the Innovation Grants partnership with ALS United Greater New York. Direct peer with overlapping service and research models.
ALS Therapy Development Institute (ALS TDI): ALS-focused nonprofit conducting internal drug discovery and preclinical research. Directly comparable as a disease-specific ALS nonprofit combining research funding/conduct with patient services, though with a heavier biotech orientation.
Project ALS: ALS-focused nonprofit funding research at leading academic institutions including Columbia and Harvard. Comparable as a research-driven ALS nonprofit collaborating with the same academic medical centers in the New York region.
Les Turner ALS Foundation: Chicago-area ALS nonprofit delivering care services, research funding, and advocacy with a similar integrated model. Most comparable as a regional ALS United-affiliated organization with overlapping service portfolios.
Target ALS: ALS research nonprofit focused on collaborative drug discovery, biomarker discovery, and translational science. Directly comparable as a research-focused ALS nonprofit partnering with ALS United Greater New York on Springboard Fellowships and Expanded Access Programs.

Broad incumbents

The ALS Association: National ALS nonprofit and former parent brand of ALS United Greater New York (until September 2023 rebranding). Operates the largest network of ALS clinics and research programs in the U.S., making it the most direct counterpart for service model, fundraising, and advocacy comparisons.
Muscular Dystrophy Association (MDA): National nonprofit covering ALS along with muscular dystrophy and related neuromuscular diseases. Operates multidisciplinary care clinics and research programs that overlap with ALS-focused care delivery, making it a broader neuromuscular incumbent.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

ALS United Greater New York compliance and trust

Trust signal

Compliance3 records

ALS United Greater New York financial estimates

Financial estimate

Revenue estimate

Valuation estimate

ALS United Greater New York leadership team

Management profile

Number of profiles

Profiles1 record

ALS United Greater New York funding detail

Funding detail

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

ALS United Greater New York M&A and investment

M&A and investment

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about ALS United Greater New York

What does ALS United Greater New York do?

Is ALS United Greater New York a public or private company?

ALS United Greater New York is a private company. It is classified as nonprofit foundation owned and is currently operating.

When was ALS United Greater New York founded?

ALS United Greater New York was founded in 1990. It employs 11 to 50 people.

Where is ALS United Greater New York based?

ALS United Greater New York is headquartered in New York, United States, in the North America region.

How does ALS United Greater New York make money?

Three revenue lines are on record. Donations and Fundraising is the primary driver. The others are event-Based Revenue and government and Foundation Grants.

Who are ALS United Greater New York's main competitors?

I AM ALS is listed as an emerging player. Direct peers are ALS Network (formerly ALS Association Golden West), ALS Therapy Development Institute (ALS TDI), Project ALS, Les Turner ALS Foundation and Target ALS. Broad incumbents are The ALS Association and Muscular Dystrophy Association (MDA).

Does ALS United Greater New York have an API?

No public API is recorded for ALS United Greater New York.

What industry is ALS United Greater New York in?

ALS United Greater New York's product category is ALS Patient Care and Support Services. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS). Its NAICS code is 624120 and its SIC code is 8090.