What axeALS Foundation does

axeALS Foundation is a registered 501c3 nonprofit organization (Tax ID 86-1208491) founded in 2019 by Eric and Amanda Stevens after Eric's ALS diagnosis at age 29. Eric Stevens is a former NFL fullback for the St. Louis Rams and a Los Angeles firefighter; Amanda Stevens co-leads operations. The foundation operates from two addresses in Southern California — 31328 Floweridge Drive, Rancho Palos Verdes, CA 90275, and 3702 S Anchovy Ave, San Pedro, CA 90732 — and has expanded its fundraising footprint into Georgia through celebrity golf tournaments.

The foundation's programmatic offerings fall into three buckets: (1) direct financial grants to ALS patients for treatments, medical equipment, home modifications, and experimental therapies (named grantees include Johnny Rodriguez, Mario Di Bella, Justin Upchurch, and Mark Griffin); (2) research funding, notably a $486,000 three-year commitment to an Expanded Access Protocol (EAP) at University of California, Irvine in partnership with the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital, and a $100,000 gift to launch the Champions Insight Program — a nationwide study enrolling up to 500 athletes, military members, and first responders, co-funded by a $200,000 Muscular Dystrophy Association grant and led by ALS Therapy Development Institute with OnPoint Scientific; and (3) policy advocacy, highlighted by Eric Stevens' role in the passage of the ACT for ALS legislation on December 23, 2021, which created a national Expanded Access grant program.

Revenue is generated through tax-deductible individual donations via a qgiv.com portal, corporate sponsorships at celebrity golf tournaments and the annual axeALS Beach Fest, merchandise sales through a Shopify storefront, and adventure-event fundraising (e.g., Reno Tahoe Odyssey). The foundation's go-to-market is community- and event-driven, leveraging Eric Stevens' personal story, celebrity athlete engagement, and earned media coverage (Forbes, KTLA). The organization does not sell products or services; pricing is not applicable. Technology is limited to standard nonprofit infrastructure (donation portal, Shopify storefront, social channels on Facebook, Instagram, and Twitter/X).

Name

axeALS Foundation

Legal name

axeALS Foundation

Website

https://axeals.org

Company type

Private

Founded year

2019

Operating status

Operating

Short description

axeALS Foundation is a 501c3 nonprofit founded in 2019 by Eric and Amanda Stevens that funds ALS patient financial grants, Expanded Access research programs (including a $486,000 UCI EAP and the Champions Insight Program), and advocacy, serving ALS patients, athletes, military veterans, and first responders across the United States.

Ownership category

akta.pro rank

Product category

Nonprofit Disease Advocacy

NAICS

Voluntary Health Organizations (813212)

SIC

Services-Social Services (8300)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

Keywords

• ALS patient support
• ALS research funding
• Nonprofit foundation
• Charitable grants
• ALS awareness advocacy

Headquarters

HQ city

San Pedro

HQ country

United States

HQ region

North America

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Operations, Marketing or Sales, Personnel, Others

Revenue model

1. Donations and Charitable Contributions: The foundation operates primarily through tax-deductible donations from individual donors, corporate sponsors, and event participants. Registered 501c3 organization with Tax ID Number: 86-1208491.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels8 records

Core offering

axeALS Foundation is a 501c3 nonprofit organization that supports people affected by ALS (amyotrophic lateral sclerosis) through direct financial grants to patients, funding for ALS research and expanded access programs, advocacy for treatment access legislation, and community fundraising events. The foundation provides patient grants for treatments, equipment, and home modifications, and funds research initiatives such as the Expanded Access Protocol at UCI and the Champions Insight Program investigating elevated ALS rates in high-performance populations.

Product overview

axeALS Foundation is a 501c3 nonprofit organization that operates as a single unified mission rather than a platform-plus-modules architecture. The foundation's core offerings consist of funding ALS research programs (Expanded Access Program at UCI, Champions Insight Program), providing financial assistance grants to ALS patients, and organizing fundraising events (golf tournaments, Beach Fest, Reno Tahoe Odyssey). These programs work together to advance the foundation's goal of accelerating ALS treatment access and ultimately finding a cure.

Differentiator

Problem solved

Functional benefit

Products and services

• Patient Financial Assistance Grants

Quantifiable outcome

• Enrolled up to 500 participants in nationwide study investigating ALS risk in high-performance populations
• +3 more outcomes

Named customers4 records

Segments3 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Seven partnerships are on record, tiered core and minor.

• Answer ALScoreStrategic or Co-development Partner · 4 February 2026Collaboration led by Answer ALS and Augie's Quest to Cure ALS on the Champion Insights Program investigating why elite athletes, military veterans, and first responders face elevated ALS rates. Steve Gleason, founder of Answer ALS and Team Gleason, enrolled as Participant #1.
• Augie's Quest to Cure ALScoreStrategic or Co-development Partner · 4 February 2026Collaboration led by Answer ALS and Augie's Quest to Cure ALS on the Champion Insights Program. This initiative seeks to uncover genetic, biological, and environmental factors behind elevated ALS risk in high-performance populations.
• ALS Therapy Development InstitutecoreStrategic or Co-development Partner · 4 February 2026Research leadership partner for the Champion Insights Program. Conducts the nationwide study enrolling up to 500 participants through in-home blood collection and online clinical surveys.
• OnPoint ScientificcoreTechnology or Integration · 4 February 2026Research partner in the Champion Insights Program contributing to the investigation of elevated ALS rates in high-performance athletes, military members, and first responders.
• Sean M. Healey & AMG Center for ALS at Massachusetts General HospitalcoreStrategic or Co-development Partner · 27 March 2023axeALS Foundation partnered with the Healey & AMG Center to launch an Expanded Access Protocol (EAP) program at UCI. This groundbreaking initiative offers individuals living with ALS who do not qualify for traditional clinical trials the opportunity to access investigational ALS treatments. Dr. Merit Cudkowicz, Director of the Healey & AMG Center, expressed support for the UCI expansion.
• University of California, Irvine (UCI)coreStrategic or Co-development Partner · 1 January 2023UCI Health ALS Services hosts the EAP program led by Dr. Namita Goyal, Director of UCI Health ALS Services and professor at UCI School of Medicine. The program commits $486,000 over three years to enroll up to 30 participants who cannot access clinical trials.
• Lief CareminorStrategic or Co-development Partner · 11 January 2022Partnership to support ALS patients' nutritional needs. Lief Care provides nutritional support services to the ALS community through this collaboration with axeALS Foundation.

Scale indicators4 records

Expansion highlights5 records

Direct peers

• Live Like Lou Foundation: ALS nonprofit named after baseball player Lou Gehrig that funds research and patient family support. Comparable to axeALS as a similarly-sized, donor-funded, cause-marketing-driven ALS foundation.
• Project ALS: Research-focused nonprofit funding ALS therapeutic development at leading academic centers. Comparable to axeALS in focusing donor dollars on accelerating investigational treatments rather than direct service delivery.
• Augie's Quest to Cure ALS: Fitness-industry-founded ALS research nonprofit co-leading Champions Insight. Compares to axeALS as a donor-funded ALS research catalyst with celebrity/athlete-driven fundraising events.
• ALS Therapy Development Institute (ALS TDI): ALS research nonprofit that leads the Champions Insight Program for axeALS. Directly comparable because both are donor-funded 501c3s focused on accelerating ALS treatments, with ALS TDI operating as research executor and axeALS as funder/community-builder.
• Team Gleason / Answer ALS: Founded by Steve Gleason (former NFL player with ALS), this nonprofit combines patient assistance, advocacy, and Answer ALS research. Highly comparable to axeALS given shared athlete-founder narrative and joint leadership of the Champions Insight Program.

Broad incumbents

• Muscular Dystrophy Association (MDA): Large disease-focused nonprofit that funds ALS research and provides patient support. MDA provides grant funding to axeALS ($200K for Champions Insight) and competes for the same ALS-donor dollars at a much larger scale.
• ALS Association: The largest ALS-focused nonprofit in the US, funding research, care services, and advocacy. Directly comparable to axeALS as a 501c3 raising donations to fund ALS research and patient support, but operating at vastly greater scale across all 50 states.

Emerging players

• I Am ALS: Patient-led ALS advocacy and community-building nonprofit. Comparable to axeALS in emphasizing community/advocacy rather than research execution, with similar grassroots policy advocacy footprint.

Others

• Robert Packard Center for ALS Research at Johns Hopkins: Major ALS research center funding collaborative drug discovery. Comparable to axeALS as an institutional ALS research ecosystem participant that receives philanthropic funding from disease-focused donors.
• Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital: Academic medical research center that axeALS partners with on the UCI EAP. Included as an institutional peer because it is a core operational partner and a major hub of federally-funded ALS expanded access work.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xtwitter.com/stevens_nation
• Facebookfacebook.com/groups/teamstevensnation
• Instagraminstagram.com/teamstevensnation

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about axeALS Foundation