Lorenzo's House

What Lorenzo's House does

Lorenzo's House is a Chicago-based virtual nonprofit organization founded in 2021 by Diana Shulla Cose after her husband was diagnosed with younger-onset Alzheimer's. The organization provides free peer-support programs, advocacy, and education for families, and especially children and young adults, affected by younger-onset dementia (YOD), serving 2,200+ family members across 48 US states and 15 countries as of 2024.

The core platform comprises six interconnected programs delivered virtually: MATCH provides one-to-one carer-to-carer connections (1,000+ cumulative pairings); CLUBS offers age-specific virtual support groups including grief support; SUMMIT is the annual global youth-led event (300+ participants expected at 2026 edition); NEXTGEN is the advocacy movement with monthly gatherings and international roundtables; YOD Academy (YODA) is a tiered subscription learning platform with freemium access for families and paid tiers for professionals and healthcare institutions; and Lighthouse is a network of 14+ trained volunteer leaders with lived experience who serve as the first point of contact. The technology stack is conventional community-platform infrastructure (HubSpot for forms, Zoom for sessions, Webflow-hosted site, YouTube for content distribution) rather than proprietary AI or matching algorithms.

The business model is nonprofit with diversified revenue streams: individual donations through online and offline channels, a planned-giving program, corporate event sponsorships ('We Bring Light' events), and nascent subscription revenue from YOD Academy's Champion and Partner Organization tiers. Core family-support programs remain free, with paid tiers funding operations. The organization is governed by a board including honorary chairs Arne Duncan and George Vrandenberg, and supported by 50+ institutional partnerships with entities such as Alzheimer's Disease International, UChicago Medicine, Mayo Clinic, Northwestern Mesulam Center, Eisai, and Milken Institute.

Name

Lorenzo's House

Legal name

Lorenzo's House

Website

https://lorenzoshouse.org

Company type

Private

Founded year

2021

Operating status

Operating

Headcount range

1–10 employees

Short description

Lorenzo's House is a virtual nonprofit providing free peer support, advocacy, and education for families affected by younger-onset dementia, serving 2,200+ family members across 48 US states and 15 countries via MATCH, CLUBS, SUMMIT, NEXTGEN, YOD Academy, and Lighthouse programs.

Ownership category

akta.pro rank

Product category

Dementia Support Services

NAICS

Services for the Elderly and Persons with Disabilities (624120), Social Advocacy Organizations (8133), Voluntary Health Organizations (813212)

SIC

Services-Social Services (8300)

akta.pro primary industry

Youth Mentoring & Positive Youth Development Nonprofits (BPAGADAD)

Keywords

• Dementia peer support
• Younger-onset dementia
• Caregiver community programs
• Dementia advocacy services
• Virtual caregiver support

Headquarters

HQ city

Chicago

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations & Fundraising: Individual donations through online portal, monthly giving programs, company matching, tribute/memorial gifts, and personal fundraising pages. Mail and phone donation options also available.
2. YOD Academy Subscriptions: Monthly subscription model with three tiers: Supporter (free for families navigating YOD), Champion (subscription with speaker series and courses), and Partner Organization (custom pricing for healthcare systems and institutions)
3. Planned Giving: Bequests and planned giving arrangements for long-term sustainability
4. Event Revenue: 'We Bring Light' in-person events featuring sponsorships, ticket sales, and fundraising components

Pricing tiers

Go-to-market motion2 records

Distribution channels4 records

Marketing channels7 records

Core offering

Lorenzo's House is a virtual, global nonprofit that delivers free peer support programs (MATCH, CLUBS, SUMMIT), a global advocacy movement (NEXTGEN), and a subscription-based virtual learning platform (YOD Academy) for families and children affected by younger-onset dementia. The organization also produces events, podcasts, and a youth-designed stigma-dismantling toolkit, operating primarily through trained volunteer Lighthouse peer supporters.

Product overview

Lorenzo's House is a virtual, global non-profit organization offering a comprehensive ecosystem of programs for families affected by younger-onset dementia (YOD). The core product portfolio consists of six interconnected programs: MATCH (one-to-one peer connections), CLUBS (virtual age-specific support groups), SUMMIT (annual global youth-led event), NEXTGEN (advocacy movement), YOD Academy (virtual learning platform), and Lighthouse (trained volunteer peer supporters). These programs work together to provide healing community, drive dementia justice advocacy, and educate for a YOD-informed society, with YOD Academy offering a tiered subscription model while core support programs are free for families. Additional offerings include the EmpowermentPLUS stigma-dismantling toolkit, NEXTGEN Wisdom podcast series, and 'We Bring Light' in-person events.

Differentiator

Problem solved

Functional benefit

Brands

• CLUBS: Virtual support spaces for sons, daughters and children of those with a parent living or who has lived with younger-onset dementia (ages 4-44+) to connect, share common stories and build community.
• MATCH
• SUMMIT
• NEXTGEN
• YOD Academy (YODA)
• Lighthouse

Products and services

• MATCH One-to-one, carer-to-carer peer connection program that matches individuals with lived experience of younger-onset dementia for individualized support via phone, Zoom, text messages, or long-term friendships.
• CLUBS Virtual safe spaces providing community, understanding and connection for family members affected by younger-onset dementia, including age-specific youth groups, grief support, and carepartner groups.
• SUMMIT Annual global virtual youth-led event exclusively for sons, daughters, and children of people with younger-onset dementia, designed and led by young people with lived experience.
• NEXTGEN Global advocacy movement uniting sons, daughters, children of people with younger-onset dementia alongside allies to raise awareness, end stigma, and inform research for dementia justice.
• YOD Academy (YODA) Worldwide virtual learning hub offering courses, speaker series, webinars, and research collaboration on younger-onset dementia, delivered via tiered subscriptions (Supporter, Champion, Partner Organization).
• Lighthouse Trained volunteer peer-leader program in which Lighthouses with lived experience of younger-onset dementia welcome new family members into the community and offer first conversations and ongoing support.
• EmpowermentPLUS Community toolkit developed by young people affected by younger-onset dementia to foster confidence, connection and resilience and to dismantle dementia stigma.
• NEXTGEN Wisdom Podcast and video series released every second Friday of each month, featuring episodes on dementia-related topics such as love, stigma, and the experience of young caregivers.
• 'We Bring Light' Events Annual in-person community events held in cities including Chicago and Madison featuring short film screenings and fundraising components to raise awareness and funds for younger-onset dementia families.

Named customers4 records

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature4 records

Partnerships

34 partnerships are on record, tiered core, key and minor.

• Alzheimer's Disease International (ADI)coreStrategic or Co-development Partner · 1 April 2024ADI has elevated youth voices and advocated for dementia justice with Lorenzo's House since inception. Lorenzo's House presented as keynote at ADI Conference in Krakow, Poland (2024) and hosted NEXTGEN Roundtable at ADI Conference in Lyon, France (2025) with 75+ participants. ADI is the global federation of dementia associations.
• UChicago Medicine - The Memory CentercoreStrategic or Co-development PartnerDr. James Mastrianni, MD, PhD serves as advisor and presenter for YOD Academy. UChicago Medicine provides clinical expertise and research collaboration. Tessa Garcia McEwen from The Memory Center co-presents educational webinars.
• Northwestern University Mesulam CentercoreStrategic or Co-development PartnerDarby Morhardt, MSW serves as advisor and research collaborator. The Mesulam Center is a national leader in cognitive neurology and memory disorders research.
• Mayo CliniccoreStrategic or Co-development PartnerAngela Lunde, MA serves as advisor. Mayo Clinic collaborates on education and outreach initiatives for younger-onset dementia awareness.
• Milken InstitutekeyStrategic or Co-development PartnerLorenzo's House participated as youngest panelist at 2025 Milken Institute Future of Health Summit. 17-year-old Jaelyn took the stage representing youth voices in dementia advocacy.
• Global Brain Health InstitutekeyStrategic or Co-development PartnerWebinar collaboration in September 2025 led by global fellows and lived experience advocates. GBHI trains leaders in brain health worldwide.
• Dementia UKkeyStrategic or Co-development PartnerWebinar delivered to over 400 UK Admiral Nurses (specialized nurses in dementia care) in July 2025. Partnership focuses on education and awareness for YOD.
• AFTD (Association for Frontotemporal Degeneration)coreGTM or Marketing PartnerFunder and collaborator for SUMMIT 2026. Susan Frick serves as advisor. AFTD focuses on FTD, a common form of younger-onset dementia.
• Positive Approach to Care (Teepa Snow)keyStrategic or Co-development PartnerTeepa Snow, renowned dementia care expert, has endorsed Lorenzo's House model and provides ongoing collaboration for education initiatives.
• Dementia AdventureminorStrategic or Co-development PartnerCollaboration on education and resources for families affected by YOD. Dementia Adventure provides outdoor experiences for dementia families.
• EisaiminorGTM or Marketing PartnerPharmaceutical company partner supporting SUMMIT 2026 and organizational mission. Provides sponsorship and collaboration for YOD awareness.
• LA CareminorGTM or Marketing PartnerHealthcare plan organization partnering for education and outreach initiatives in the Los Angeles area.
• Golden Horizons (GoldenGen)minorGTM or Marketing PartnerCaregiving support organization collaborating on resources and awareness for dementia families.
• HFC (Hilarity for Charity)minorGTM or Marketing PartnerAlzheimer's and caregiving advocacy organization partnering for awareness and support initiatives.
• Alzheimer's SpeaksminorGTM or Marketing PartnerLori La Bey's platform for dementia advocacy and education, collaborating on awareness and resources.
• Young Caregiver Council of CanadaminorStrategic or Co-development PartnerOrganization focused on young caregivers, collaborating on resources and support for YOD-affected youth.
• CuraSupportminorGTM or Marketing PartnerCaregiving support organization partnering for SUMMIT 2026 and educational resources.
• Falzarano Family Caregiving LabkeyStrategic or Co-development PartnerFrancesca Falzarano serves as advisor and lead volunteer. Research collaboration on caregiving support.
• Be Light Care ConsultingkeyStrategic or Co-development PartnerAdria Thompson's consulting firm providing expertise and collaboration for SUMMIT 2026 and education initiatives.
• Age ScotlandminorGTM or Marketing PartnerNEXTGEN Roundtable partner and sponsor for youth advocacy initiatives in Scotland.
• Patt Summit FoundationminorGTM or Marketing PartnerNEXTGEN Roundtable partner supporting youth advocacy and dementia justice initiatives.
• Legacy Home and RespiteminorGTM or Marketing PartnerHome care organization partnering for resources and awareness for YOD families.
• The Caregiving ClubminorGTM or Marketing PartnerCaregiving community platform collaborating on resources and support programs.
• Bell & BracheminorGTM or Marketing PartnerProfessional services firm supporting organizational initiatives and partnerships.
• Moon Tree StudiosminorGTM or Marketing PartnerCreative studio providing content and collaboration support for mission.
• Younger People with Dementia (UK)minorStrategic or Co-development PartnerUK organization focused on younger-onset dementia, collaborating on resources and advocacy.
• YES (Youth Engaged in Sessions)minorStrategic or Co-development PartnerYouth engagement organization partnering on advocacy and support initiatives.
• AlectorminorGTM or Marketing PartnerBiotech company in Alzheimer's research partnering for awareness initiatives.
• UsAgainst Alzheimer'skeyStrategic or Co-development PartnerNational advocacy organization collaborating on research and policy initiatives for Alzheimer's and YOD.
• Virtual Brain Health CenterminorStrategic or Co-development PartnerDigital health platform for brain health education and support, collaborating on resources.
• Y CareminorGTM or Marketing PartnerDementia-specific organization partnering on education and awareness.
• The Village ChicagominorStrategic or Co-development PartnerDianne Campbell's organization for aging in community, serving as advisor to Lorenzo's House.
• Embodied LabskeyStrategic or Co-development PartnerCarrie Shaw's company (daughter of YOD) creating immersive training experiences for dementia care.
• Zambia Alzheimer's Disease & Related DementiasminorStrategic or Co-development PartnerInternational collaboration on research and education for dementia in Africa.

Scale indicators10 records

Recent moves6 records

Expansion highlights6 records

Broad incumbents

• Alzheimer's Disease International (ADI): The global federation of national Alzheimer's associations and a strategic partner of Lorenzo's House. Operates at a much larger scale across all dementia types worldwide rather than the YOD family niche.
• National Alliance for Caregiving: US nonprofit advocacy coalition focused on caregiving research, policy, and innovation across all conditions. Operates at a broader caregiving-policy level rather than delivering direct YOD-specific family programs.
• Family Caregiver Alliance: National caregiver-support nonprofit that awarded Lorenzo's House its 2024 Innovations in Alzheimer's Caregiving Award. Operates a much broader caregiver-services portfolio across conditions and ages.
• Alzheimer's Association: The largest US Alzheimer's nonprofit, providing broad disease-wide support, research funding, and advocacy. Overlaps with Lorenzo's House through dementia family support and education but addresses a far broader population without the YOD-exclusive, family-centric focus.
• UsAgainst Alzheimer's: National Alzheimer's advocacy organization collaborating with Lorenzo's House on research and policy initiatives. Engages in policy and research advocacy at national scale rather than direct family service delivery.

Direct peers

• Hilarity for Charity (HFC): Alzheimer's and caregiving advocacy nonprofit partnering with Lorenzo's House. HFC targets young adult caregivers and family members with peer support and education — directly comparable to Lorenzo's House's youth and family focus.
• Association for Frontotemporal Degeneration (AFTD): A nonprofit dedicated to frontotemporal degeneration, a common form of younger-onset dementia. AFTD is a current Lorenzo's House partner and serves a closely overlapping population of families affected by YOD.
• Younger People with Dementia (UK): UK-based organization focused on services for people with younger-onset dementia and their families. Listed as a Lorenzo's House partner with highly comparable YOD-specific family support mission.
• Dementia Adventure: UK charity providing outdoor experiences and support specifically for people with younger-onset dementia and their families. A listed Lorenzo's House partner with overlapping YOD-focused family engagement.

Regional players

• Dementia UK: UK-based dementia charity providing specialist Admiral Nurse support and family services. Collaborated with Lorenzo's House on a 400+ attendee webinar for Admiral Nurses and shares comparable family-support programming focused on younger-onset populations.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks7 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/@lorenzoshouse
• Xx.com/lorenzos_house
• Facebookfacebook.com/lorenzoshouseofficial
• LinkedInlinkedin.com/company/lorenzos-house

Revenue estimate

Valuation estimate

Number of profiles

Profiles8 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Lorenzo's House