Psoriasis And Psoriatic Arthritis Alliance

What Psoriasis And Psoriatic Arthritis Alliance does

The Psoriasis and Psoriatic Arthritis Alliance (PAPAA) is a UK registered charity (no. 1118192), founded in 1993 and headquartered in Stevenage, that operates a digital-first information and support platform for people affected by psoriasis and psoriatic arthritis. It functions as a niche disease-specific nonprofit, serving three primary user groups: diagnosed patients, healthcare professionals, and carers or family members, with researchers as a secondary audience.

Its core product surface is a web-based content library organized into the Knowledge Bank and a set of structured self-help programmes. These include eTIPs, a CBT-based cognitive behavioural therapy intervention developed with the University of Manchester and published in the British Journal of Dermatology; iPhysio, an interactive physiotherapy and exercise course for psoriatic arthritis; and the My Child Has Psoriasis training programme covering over 20 educational sections. The charity also publishes the biannual Skin 'n' Bones Connection journal, operates PAPAA TV for video content, runs moderated community forums and engagement groups, and offers symptom-checker tools (Symptom Checker and DermDiag) along with CPD modules for clinicians. There is no public app and no external API; the technology stack is a web platform with light e-learning and diagnostic front-ends.

The revenue model mixes donations (collected through JustGiving), a recurring annual journal subscription priced at £15 in year one and £8 thereafter, and modest shop sales of leaflets and courses available from £0 with optional donations of £2, £5, or £10. Distribution is website-led and UK-domestic, complemented by direct distribution of free resources to healthcare providers and awareness campaigns around World Psoriasis Day and World Arthritis Day. Funded primarily through donations, fees, and shop sales rather than disclosed industry or grant inflows, PAPAA operates with a 1-10 person team and no parent organization, venture investment, or acquisitions.

Name

Psoriasis And Psoriatic Arthritis Alliance

Legal name

The Psoriasis and Psoriatic Arthritis Alliance

Website

https://papaa.org

Company type

Private

Founded year

1993

Operating status

Operating

Headcount range

1–10 employees

Short description

PAPAA is a UK registered charity that provides evidence-based information, structured self-help programmes (including the eTIPs CBT course), community forums, a biannual journal, and CPD resources to patients, carers, and healthcare professionals affected by psoriasis and psoriatic arthritis.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Health Charity Services

NAICS

Individual and Family Services (6241)

SIC

Services-Social Services (8300)

akta.pro primary industry

Family & Parenting Support Services (BPAGAEAC)

Keywords

• Psoriatic disease support
• Patient education resources
• Chronic disease charity
• Healthcare professional training
• Autoimmune condition advocacy

Headquarters

HQ city

Stevenage

HQ country

United Kingdom

HQ region

Europe

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Others

Revenue model

1. Donations and Charitable Contributions: The organization accepts donations through JustGiving platform and encourages voluntary contributions to support their charitable work.
2. Membership Subscriptions: Annual journal subscription: £15 first year, £8 subsequent years. Professional membership provides access to training courses and resources.
3. Shop Sales: Sales of educational materials, training courses, and resources. Many resources are provided free with optional donations.

Pricing tiers

Go-to-market motion1 record

Distribution channels2 records

Marketing channels7 records

Core offering

PAPAA is a UK registered charity that provides evidence-based information, educational programmes, self-help tools, and peer support for people affected by psoriasis and psoriatic arthritis. Its core products include the eTIPs CBT-based digital programme, iPhysio interactive physiotherapy course, My Child Has Psoriasis training programme, the Skin 'n' Bones Connection biannual journal, online CPD modules for healthcare professionals, and a moderated patient community forum.

Product overview

PAPAA offers a comprehensive suite of digital health resources and educational programmes for people affected by psoriasis and psoriatic arthritis. The core digital products include eTIPs (a CBT-based psychological intervention), iPhysio (interactive physiotherapy exercises), and the My Child Has Psoriasis training programme. Additional offerings encompass PAPAA TV (video content), a Knowledge Bank, community forums, and the biannual Skin 'n' Bones Connection journal. The organisation also provides diagnostic tools like the Symptom Checker and DermDiag tool, along with professional CPD learning for healthcare providers. All resources are available free or at low cost through the PAPAA shop, supporting patients, carers, and healthcare professionals in managing psoriatic disease.

Differentiator

Problem solved

Functional benefit

Brands

• eTIPs: Electronic Targeted Intervention for Psoriasis - a web-based cognitive behavioural therapy (CBT) programme developed by the University of Manchester with research grant from PAPAA
• iPhysio
• Skin 'n' Bones Connection
• PSO PSCIENCE

Products and services

• eTIPs (Electronic Targeted Intervention for Psoriasis)

Segments4 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Scale indicators2 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• Psoriasis Association: UK-based charity dedicated specifically to psoriasis, providing patient information, support, and research funding. The most directly comparable UK peer to PAPAA, with a near-identical mission and operating model focused on psoriasis patient advocacy.
• LUPUS UK: UK charity for lupus patients with a comparable small-team, community-led operating model delivering patient education, support groups, and research funding for a chronic autoimmune condition.
• Allergy UK: UK charity supporting people with allergies and related skin conditions. Uses a comparable patient education, helpline, and resource-distribution operating model in a different chronic condition vertical.
• National Psoriasis Foundation: US-based nonprofit serving people with psoriasis and psoriatic arthritis through education, advocacy, and research funding. Functions as the US direct equivalent of PAPAA, with comparable patient education, community, and research-funding activities.
• National Eczema Society: UK charity providing information and support for people with eczema. Operates a comparable chronic skin-condition patient education and support model in an adjacent dermatology niche, making it a strong operational analog even though the disease focus differs.

Broad incumbents

• Arthritis Foundation: US-based arthritis charity whose portfolio includes psoriatic arthritis. Mirrors the educational, support, and advocacy operating model that PAPAA uses for the arthritis half of its mandate, at substantially larger scale.
• British Skin Foundation: UK charity funding research into all forms of skin disease including psoriasis. Overlaps with PAPAA on research funding and patient information, but operates with a broader dermatology mandate and substantially larger scale.
• Versus Arthritis: Major UK arthritis charity whose mandate includes psoriatic arthritis among many arthritis conditions. Overlaps with PAPAA on psoriatic arthritis patient education and support, and competes for the same HCP and donor mindshare in the UK arthritis space.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights6 records

Customer concentration

• Xx.com/PsoriasisInfo
• YouTubeyoutube.com/channel/UCMpQZpTvZiUMKcsVGe596uQ/videos?view_as=public
• Facebookfacebook.com/papaa.org
• LinkedInlinkedin.com/company/papaa
• Instagraminstagram.com/the_papaa_eye
• Pinterestpinterest.co.uk/psoriasisuk
• TikToktiktok.com/@papaa_uk

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Psoriasis And Psoriatic Arthritis Alliance