What ARDS Foundation Video does

ARDS Foundation, doing business as ARDS Global, is a 501(c)(3) non-profit charitable organization founded in 1995 by ARDS survivor Eileen Rubin, JD, and headquartered at 3330 Dundee Rd, Suite C4, Northbrook, Illinois. Its mission is to educate the public and medical community about Acute Respiratory Distress Syndrome (ARDS), advocate for healthcare changes that improve outcomes, and provide support to survivors and their families during and after recovery, including through Post Intensive Care Syndrome (PICS) resources, ICU diaries, and prone positioning guidance. The organization's primary surface is the website ardsglobal.org, which hosts the ARDS Support Community forum (152,004 cumulative posts across 10,134 pages), an ARDS Survivor Registry, a COVID-19 United States Registry, supplemental-oxygen and COVID-ARDS surveys, an "Ask the Doctor" Q&A series, survivor-story galleries, podcasts, and educational webinars, supported by a Medical Advisory Board.

Commercially the foundation operates a community-led, donation-funded model with no paid core product. Revenue is generated through individual donations via mygiving.net and direct mail, small-scale fundraising events (such as the Joe Falcon Annual Softball Game and the Andrew Tod Thompson Memorial Softball Tournament), corporate sponsorships from entities including Truly Oxygen LLC and Omniox, and ancillary merchandise such as ARDS-branded masks. Go-to-market is distributed across organic social (Facebook, Twitter, Flickr), the website blog, podcasts, webinars, medical conferences (American Thoracic Society, International ARDS Conference), peer-reviewed research collaborations (Tufts Medical Center, Northwell Health, Erasmus Medical Center, Mayo Clinic), and federal engagement (DoD PRMRP consumer advocate reviewer; PCORI $50,000 research award in October 2017). There is no app, no API/SDK surface, no proprietary technology stack, and no paid customer base — the customer segments are ARDS survivors and family members, individual donors, and healthcare professionals, with survivors as the primary persona.

Name

ARDS Foundation Video

Legal name

ARDS Foundation

Website

https://ardsglobal.org

Company type

Private

Founded year

1995

Operating status

Operating

Headcount range

1–10 employees

Short description

ARDS Foundation (ARDS Global) is a 501(c)(3) nonprofit founded in 1995 by ARDS survivor Eileen Rubin that educates the public and medical community about Acute Respiratory Distress Syndrome, advocates for improved ARDS care, and supports survivors, families, and clinicians through its website, online forums, survivor registries, and fundraising events.

Ownership category

akta.pro rank

Headquarters

HQ city

Northbrook

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales

Revenue model

1. Donations and Fundraising: ARDS Foundation generates revenue through donations from individuals, fundraising events (softball games, spaghetti dinners), and charitable contributions. The organization is a tax-exempt 501(c)(3) entity.

Go-to-market motion1 record

Distribution channels1 record

Marketing channels8 records

Core offering

ARDS Foundation (also doing business as ARDS Global) is a nonprofit 501(c)(3) patient advocacy organization that educates the public and medical community about Acute Respiratory Distress Syndrome (ARDS), connects survivors and families through online forums and patient registries, advocates for healthcare improvements, and supports post-ICU recovery including Post Intensive Care Syndrome (PICS). It also raises funds through the sale of branded merchandise such as ARDS Foundation masks.

Product overview

ARDS Foundation (ARDS Global) is a non-profit organization focused on Acute Respiratory Distress Syndrome education, awareness, advocacy, and patient/family support. The organization operates primarily through its website as a central hub offering educational resources, community forums, patient registries, surveys for research, and a podcast series. The core platform provides access to survivor stories, an 'Ask the Doctor' medical Q&A feature, and connects survivors through online forums. Supporting initiatives include the Survivor Registry, COVID-19 Registry, Supplemental Oxygen Survey, Voices of ARDS testimonials, ICU Diary resources, and the 'Hold Your Breath' awareness campaign. The organization also offers ARDS Foundation Masks as a product offering.

Differentiator

Problem solved

Functional benefit

Products and services

• ARDS Foundation Website (ardsglobal.org) Central online resource hub for the ARDS community providing educational content, advocacy information, and access to support programs for ARDS survivors, families, and healthcare professionals.
• ARDS Support Community Forums Free moderated online community forums where ARDS survivors, families, and caregivers can share experiences, ask questions, and provide mutual support.
• ARDS Survivor Registry Free patient registry program that collects survivor experiences to support awareness, research, and community building for ARDS survivors.
• COVID-19 United States Registry Specialized COVID-19 patient registry that captures experiences relevant to respiratory distress and ARDS outcomes in support of broader research.
• Ask the Doctor Public Q&A program allowing the ARDS community to submit medical questions that are answered by participating physicians and clinicians.
• Trapped-In-My-Body-As-An-ARDS-Survivor Podcast Survivor-story podcast featuring personal accounts and educational commentary on living with and recovering from ARDS.
• Voices of ARDS Storytelling initiative that collects and shares ARDS survivor narratives to raise awareness and provide hope to those affected.
• ICU Diary Diary-based resource that supports post-ICU recovery and addresses Post Intensive Care Syndrome (PICS) for ARDS survivors and families.
• ARDS Foundation Branded Masks Physical ARDS Foundation branded masks sold to support the foundation's mission and fund advocacy work.

Quantifiable outcome

• ARDS Foundation connects thousands of survivors and families through its online support community.
• +1 more outcomes

Named customers1 record

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eight partnerships are on record, tiered core and minor.

• Tufts Medical CentercoreStrategic or Co-development Partner · 4 May 2021ARDS Foundation partnered with researchers from Tufts Medical Center to help recruit COVID-19 survivors and family members/caregivers for a study on developing prediction models of COVID care. The study was conducted under the direction of David Kent, MD, MS at Tufts Medical Center in Boston, MA.
• Northwell HealthminorStrategic or Co-development Partner · 4 May 2021Northwell Health in New York partnered with Tufts Medical Center on the COVID-19 prediction models study. ARDS Foundation served as a recruitment partner for this research initiative.
• Erasmus Medical CenterminorStrategic or Co-development Partner · 4 May 2021Erasmus Medical Center in the Netherlands partnered with Tufts Medical Center on the COVID-19 prediction models study. ARDS Foundation helped with participant recruitment.
• Mayo CliniccoreStrategic or Co-development Partner · 30 October 2019Mayo Clinic and the American Thoracic Society co-sponsored an ARDS and Critical Illness Recovery Patient Education event with ARDS Foundation. This represents a collaboration between leading medical institutions and the patient advocacy organization.
• American Thoracic SocietycoreStrategic or Co-development Partner · 30 October 2019American Thoracic Society partnered with Mayo Clinic and ARDS Foundation to sponsor ARDS and Critical Illness Recovery Patient Education programming.
• Department of Defense - Congressionally Directed Medical Research ProgramscoreStrategic or Co-development Partner · 26 August 2018ARDS Foundation President Eileen Rubin participated as a consumer advocate reviewer in the Department of Defense's Peer Reviewed Medical Research Program (PRMRP) scientific peer review process, helping evaluate research applications for the $330 Million FY2018 PRMRP appropriation.
• Truly Oxygen LLCminorGTM or Marketing PartnerTruly Oxygen LLC supports the ARDS Foundation as a corporate sponsor. The company produces skin care products that deliver oxygen to the skin, developed with support from NIH and NSF.
• OmnioxminorGTM or Marketing PartnerOmniox, an IND-stage biotherapeutics company, supports the ARDS Foundation. Omniox focuses on treatments for conditions where oxygen deprivation is a factor.

Scale indicators3 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• GO2 Foundation for Lung Cancer: A patient advocacy nonprofit for lung cancer, with patient support, research funding, and policy advocacy. Comparable as a lung-focused disease-specific nonprofit with a similar mix of survivor services, research support, and donor fundraising.
• Sepsis Alliance: A patient advocacy nonprofit for sepsis, a leading cause of ARDS. It runs survivor support networks, educational content, and clinical partnerships, closely mirroring ARDS Foundation's patient advocacy and community engagement model.
• COPD Foundation: A respiratory-disease nonprofit providing patient education, support communities, and research funding for COPD. Comparable in disease-specific advocacy structure and reliance on donations and corporate sponsorships.
• Pulmonary Hypertension Association: A nonprofit dedicated to pulmonary hypertension, with patient support, advocacy, and research funding activities. Comparable as a disease-specific respiratory patient advocacy organization with a similar fundraising and community model.
• Pulmonary Fibrosis Foundation: A U.S. nonprofit focused on a specific interstitial lung disease, operating a similar model of patient education, support communities, disease registries, and research partnerships. Closely comparable in structure, mission, and fundraising approach to ARDS Foundation.

Regional players

• ICUsteps: A UK-based ICU patient support charity offering peer support, ICU diaries, and recovery resources. Highly comparable mission (post-ICU recovery including PICS) and similar volunteer-driven nonprofit model, but primarily serves the United Kingdom.

Broad incumbents

• Society of Critical Care Medicine: A professional medical society for ICU clinicians that runs patient- and family-facing resources including post-ICU recovery and ICU diary content. Comparable as an institutional partner in critical illness recovery, with overlap to ARDS Foundation's post-ICU mission.
• American Lung Association: A large, established U.S. nonprofit addressing the full spectrum of lung diseases including ARDS. Overlaps in respiratory health education, advocacy, and research funding, but operates at a much larger scale and broader scope than ARDS Foundation.
• American Thoracic Society: A professional medical society focused on pulmonary and critical care medicine. ARDS Foundation already partners with ATS on patient education events, and ATS serves as a comparable institutional stakeholder in the ARDS ecosystem.
• Cystic Fibrosis Foundation: A large, well-funded respiratory-disease nonprofit with a research-driven model and strong pharmaceutical partnerships. Comparable structurally as a respiratory patient advocacy organization, but at materially larger scale and funding capacity.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xtwitter.com/ArdsGlobal
• Facebookfacebook.com/pages/ARDS-Foundation/269664684063
• LinkedInlinkedin.com/company/ards-foundation

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about ARDS Foundation Video