Bleeding Disorder Foundation of Washington

What Bleeding Disorder Foundation of Washington does

The Bleeding Disorder Foundation of Washington (BDFW) is a private non-profit patient advocacy and support organization headquartered in Shoreline, Washington, serving approximately 70,000 bleeding disorder patients and their families across Washington State. Founded in the 1970s as a parent group supporting Camp I-Vy and formally named in 1999, BDFW operates nine integrated programs covering the full patient lifecycle: I-Vy Jr. (ages 0-10), Camp I-Vy (ages 7-15, with 24/7 on-site medical staff at Camp Huston in Gold Bar, WA), I-Vy Leaders (ages 14-26), a Patient Assistance Program (groceries, travel, supplies), the Keep Moving Forward Shoe Program, Medical I.D. Program, Back to School Program (including the Independent Kids Packet and 504 plan videos), Insurance Navigation, and an Advocacy Program. All programs are delivered free of charge to eligible patients.

BDFW generates no revenue from fees or product sales; its operating model is a charitable non-profit sustained by individual donations and corporate sponsorships. Named major sponsors include Genentech (Medical ID Program) and Bayer (I-Vy Leaders Program), with the Washington Center for Bleeding Disorders as both a financial co-sponsor and strategic medical partner. The foundation is tightly embedded in the regional hemophilia treatment center network through formal referral and partnership arrangements with Seattle Children's Hospital, Mary Bridge Hospital, and Sacred Heart Hospital. Distribution is direct-to-patient through in-person events (Family Camp, Camp I-Vy, summits), shipped goods (medical IDs, shoes, school supplies), and digital resources (newsletter archive 2015-2019, video content). The organization employs 1-10 staff and reports no disclosed revenue or audited financials.

Name

Bleeding Disorder Foundation of Washington

Legal name

Bleeding Disorder Foundation of Washington

Website

https://bdfwa.org

Company type

Private

Founded year

1970

Operating status

Operating

Headcount range

1–10 employees

Short description

Bleeding Disorder Foundation of Washington is a non-profit serving 70,000 bleeding disorder patients in Washington State through free education, financial assistance, camp programs, and advocacy across all age groups.

Ownership category

akta.pro rank

Product category

Nonprofit Patient Support Services

NAICS

Individual and Family Services (6241), Services for the Elderly and Persons with Disabilities (62412)

SIC

Services-Health Services (8000)

akta.pro primary industry

Disability Services & Independent Living Support (BPAGACAG)

akta.pro secondary industries

Non-Communicable Disease Prevention & Chronic Disease Programs (BPAIAJAI), Chronic Disease & Health Promotion Program Funding (HLAJALAJ)

Keywords

• Bleeding disorder support
• Patient advocacy services
• Nonprofit health programs
• Community education programs
• Patient assistance services

Headquarters

HQ city

Shoreline

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and Sponsorships: The foundation relies on donations and corporate sponsorships to fund its programs including patient assistance, camps, educational programs, and advocacy efforts. Major sponsors include Genentech, Bayer, and the Washington Center for Bleeding Disorders.

Pricing tiers

Go-to-market motion2 records

Distribution channels5 records

Marketing channels5 records

Core offering

BDFW is a nonprofit foundation that provides free, lifecycle-based support programs for bleeding disorder patients and families in Washington State. Offerings include summer camps with 24/7 medical staffing (Camp I-Vy for ages 7-15 and I-Vy Jr. Family Camp for ages 0-10), a teen/young adult transition program (I-Vy Leaders, ages 14-26), direct financial and material patient assistance (groceries, school supplies, shoes, medical IDs, winter goods, travel), insurance navigation, and chronic conditions advocacy.

Product overview

The Bleeding Disorder Foundation of Washington (BDFW) is a non-profit advocacy and support organization serving approximately 70,000 bleeding disorder patients in Washington State. Rather than a traditional product company, BDFW offers an integrated suite of community support programs spanning the full lifecycle: I-Vy Jr. (ages 0-10) and Camp I-Vy (ages 7-15) provide youth development and recreation; I-Vy Leaders (ages 14-26) offers transition support and scholarships; Patient Assistance provides financial aid; the Shoe Program, Medical I.D. Program, Back to School Program, Insurance Navigation, and Advocacy Program address specific practical needs. The organization was established in 1999 and operates from Shoreline, WA.

Differentiator

Problem solved

Functional benefit

Quantifiable outcome

• Serves 70,000 bleeding disorder patients in Washington State
• +4 more outcomes

Named customers1 record

Segments4 records

Ideal customer profiles5 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Five partnerships are on record, tiered core and minor.

• Washington Center for Bleeding DisorderscoreStrategic or Co-development PartnerCo-sponsor of the Medical ID program and Bloody Fun Run fundraiser. The Washington Center for Bleeding Disorders is a key healthcare partner providing 24-hour phone support (206-614-1200) and medical expertise for the bleeding disorder community.
• Seattle Children's HospitalcoreStrategic or Co-development PartnerMajor healthcare partner providing specialized hemophilia and bleeding disorder care. The hospital serves as a referral source for BDFW programs and is listed as a key resource on the BDFW website with 24-hour phone support.
• Mary Bridge HospitalcoreStrategic or Co-development PartnerHealthcare partner providing hemophilia clinic services. Mary Bridge Hospital is referenced on the BDFW website as a key partner for the bleeding disorder community with 24-hour phone support (253-594-9578).
• Sacred Heart HospitalcoreStrategic or Co-development PartnerHealthcare partner listed on BDFW website providing bleeding disorder care. Located in Washington State with 24-hour phone support (1-800-541-0843).
• Camp HustonminorOthersCamp venue hosting Camp I-Vy program for children ages 7-15 with bleeding disorders. Located in Gold Bar, WA. BDFW hosts its annual summer camp at this facility.

Scale indicators2 records

Recent moves6 records

Expansion highlights4 records

Broad incumbents

• National Organization for Rare Disorders (NORD): A broad rare-disease umbrella organization that includes bleeding disorders among its 1,300+ member conditions. Operates adjacent to BDFW's mission of supporting patients with rare chronic conditions through advocacy, education, and patient assistance programs.
• American Cancer Society (Washington Chapter): A major disease-focused nonprofit running patient assistance, camp, advocacy, and education programs. While focused on oncology rather than bleeding disorders, it is a useful broad peer for benchmarking program design, donor-development tactics, and lifecycle-stage engagement strategies.
• National Hemophilia Foundation (NHF): The national umbrella advocacy organization for bleeding disorders in the US, serving the same hemophilia and rare bleeding disorder population. BDFW is effectively a state chapter operating under a similar patient-advocacy and education model, making NHF the closest broad-incumbent peer.

Emerging players

• Sickle Cell Disease Association of America: National advocacy organization for sickle cell disease, a related rare blood disorder that BDFW already partially serves through its shoe program. Useful peer for understanding adjacent rare blood-disorder advocacy and patient-support models.

Direct peers

• Hemophilia Federation of America: A national bleeding-disorder patient organization providing education, advocacy, and community programming. It overlaps directly with BDFW in mission and target audience (people with hemophilia and inherited bleeding disorders), but operates nationally rather than regionally.
• Hemophilia Foundation of Michigan: A state-level bleeding-disorder foundation offering patient assistance, summer camps, education, and advocacy programs to Michigan residents. Its program portfolio and operating model closely mirror BDFW's, making it the most structurally comparable regional peer.
• Bleeding Disorders Association of America (BDAN): A patient-focused nonprofit supporting individuals and families affected by bleeding disorders through education, advocacy, and community programs. Comparable to BDFW in its disease-specific patient-support mission and program structure.

Regional players

• Hemophilia Association of the Capital Area: A regional bleeding-disorder organization serving the Washington DC / Capital area with patient assistance, education, and advocacy services. Operates the same model as BDFW but in a different geography with overlapping sponsor sets.
• Lone Star Bleeding Disorders Foundation: A Texas-based bleeding-disorder nonprofit providing camp, education, advocacy, and financial-assistance programs. It is comparable to BDFW as a regional/state chapter serving the same patient population with the same programming mix in a different geography.
• Cascade Hemophilia Consortium: A Midwest-based bleeding-disorder consortium that provides education, advocacy, and family support programs. Directly comparable to BDFW in mission and structure, with a comparable geographic scope in a different region.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xx.com/bdfwa
• Facebookfacebook.com/bdfwa
• LinkedInlinkedin.com/company/bleeding-disorder-foundation-of-washington

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Bleeding Disorder Foundation of Washington