Hemophilia Foundation of Michigan

What Hemophilia Foundation of Michigan does

The Hemophilia Foundation of Michigan (HFM) is a non-profit patient advocacy and service organization founded in 1956 and headquartered in Ypsilanti, Michigan. It is the only hemophilia chapter in the state of Michigan and serves individuals and families affected by hemophilia, von Willebrand disease, and other bleeding disorders through a portfolio of free programs including residential and day camps (Eagle Journeys / Camp Bold Eagle), support groups (Blood Buds, Men's Support Group, Ruby Connection), youth leadership (LAUNCH, Teen Retreat), community education dinners, advocacy training, and emergency financial assistance. Programs are delivered in person across Michigan and through virtual platforms including Zoom and the organization's website (hfmich.org).

HFM operates the Regional Hemophilia Network in partnership with hemophilia treatment centers (HTCs) across Michigan, which functions as the primary referral pathway connecting clinical care to community programming. The foundation does not develop or sell technology products; its digital footprint consists of a WordPress website, JotForm registration, email newsletter, and standard social media channels. It maintains national affiliations with the National Hemophilia Foundation (NHF) and the Hemophilia Federation of America (HFA) and is a member of advocacy coalitions including MICAP and BD SUMHAC.

Revenue is generated entirely through charitable donations from individuals and families, corporate sponsorships from five major hemophilia-treating pharmaceutical companies (Pfizer, Novo Nordisk, Genentech, Takeda, Sanofi), and member contributions; the organization reports that 88 cents of every dollar raised supports programs and services. All programs are provided free of charge to participants.

Name

Hemophilia Foundation of Michigan

Legal name

Hemophilia Foundation of Michigan

Website

https://hfmich.org

Company type

Private

Founded year

1956

Operating status

Operating

Headcount range

11–50 employees

Short description

The Hemophilia Foundation of Michigan is a non-profit founded in 1956 that serves as the only hemophilia chapter in Michigan, providing free camps, support groups, advocacy, and education to individuals and families affected by bleeding disorders, funded by donations and pharmaceutical sponsorships.

Ownership category

akta.pro rank

Product category

Bleeding Disorders Patient Advocacy and Community Services

NAICS

Voluntary Health Organizations (813212), Individual and Family Services (6241), Other Individual and Family Services (624190), Child and Youth Services (624110)

SIC

Services-Social Services (8300), Services-Membership Organizations (8600)

akta.pro industry

PRIMARYBPAGACAM

Rare Disease & Special Needs Support Organizations

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

SECONDARYBPAGACAF

Maternal, Child & Family Health Organizations

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

SECONDARYBPAGACAD

Mental Health & Crisis Support Services

Business & Public Services/Nonprofit, NGO & Social Services/Health & Medical Nonprofits

SECONDARYBPAGADAK

Youth Mental Health, Counseling & Wellbeing (Education-Linked) Nonprofits

Business & Public Services/Nonprofit, NGO & Social Services/Education & Youth Development Nonprofits

Keywords

• Bleeding disorders support
• Patient advocacy services
• Community health programs
• Nonprofit patient services
• Hemophilia community outreach

Headquarters

HQ city

Ypsilanti

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and Contributions: HFM relies heavily on charitable donations from individuals, families, and community members. The foundation reports that 88 cents of every dollar raised supports programs and services delivered to families living with bleeding disorders.
2. Corporate Sponsorships: Pharmaceutical companies including Pfizer, Novo Nordisk, Genentech, Takeda, and Sanofi sponsor educational dinner talks and programs. These corporate partnerships provide funding and support for educational programming while pharmaceutical companies gain access to the patient community.

Pricing tiers

Go-to-market motion2 records

Distribution channels3 records

Marketing channels8 records

Core offering

The Hemophilia Foundation of Michigan is a non-profit patient advocacy and service organization that provides free educational, recreational, social, and advocacy programs to individuals and families affected by bleeding disorders (hemophilia, von Willebrand disease, and other coagulation disorders) in Michigan. Its core offerings include community support groups, specialized camping programs for children and teens, youth leadership development, advocacy for healthcare policy, health education events, and emergency financial support — all delivered at no cost to participants and funded through donations and corporate sponsorships.

Product overview

The Hemophilia Foundation of Michigan operates as a non-profit service organization rather than a technology product company. Its offerings consist of community support programs including LAUNCH (youth leadership), Blood Buds (men's monthly events), Men's Support Group (virtual meetings), Ruby Connection (women's group), Eagle Journeys Camp and Teen Retreat (camping programs for children and teens), Bleeder & a Buddy (teen peer programs), Community Nights (regional family events), National Women's Conference, and sponsored Dinner Talks. Additional services include advocacy representation, health education resources, and emergency financial support. The organization connects with pharmaceutical partners (Pfizer, Novo Nordisk, Genentech, Sanofi, Takeda) for educational content sponsorship but does not offer technology products or APIs.

Differentiator

Problem solved

Functional benefit

Brands

• Eagle Journeys Camp Programs: Camping programs for children with bleeding disorders aged 6-18+ including Bold Eagle, Eagle Quest, Eagle Expedition, Eagle Outpost, Eagles Nest Family Camp, and CIT Program.
• Blood Buds
• Ruby Connection
• LAUNCH

Products and services

• LAUNCH Program A youth leadership and empowerment program for young people affected by bleeding disorders, designed to build independence and leadership skills.
• Blood Buds Monthly event series for men 18+ with bleeding disorders to connect, share experiences, and build community through social activities.
• Men's Support Group Virtual support group meetings facilitated by social workers for men 18+ with bleeding disorders, held monthly.
• Ruby Connection Monthly women's group providing online social experiences with educational speakers and networking opportunities for adult women in the bleeding disorders community.
• Eagle Journeys Camp (Camp Bold Eagle) Residential and day camping programs for children ages 6-18 with bleeding disorders, promoting independence, leadership, and life skills in a medically-supported environment. Includes sub-programs: Bold Eagle, Eagle Quest, Eagle Expedition, Eagle Outpost, Eagles Nest Family Camp, Old Beagle, and CIT Program.
• Teen Retreat Annual retreat for teens ages 13-17 with bleeding disorders featuring team-building activities and peer connections.
• Bleeder & a Buddy Annual retreat where teens with bleeding disorders can bring non-affected friends for games, team-building, and shared learning experiences.
• Community Nights Family-oriented community events held across Michigan locations featuring education, meals, and networking for bleeding disorders families.
• National Women's Conference Annual conference for women with hemophilia A, B, or rare factor deficiencies providing education and community connection.
• Dinner Talks Educational dinner presentations sponsored by pharmaceutical companies covering treatment options, caregiving, and health topics relevant to the bleeding disorders community.
• Advocacy Services Policy advocacy services representing bleeding disorders community interests at state and federal levels, including Medicaid protection and copay accumulator reform.
• Emergency Financial Support Financial assistance program providing meal reimbursements and emergency support to eligible Michigan community members.
• Upper Peninsula Retreat Annual retreat serving Upper Peninsula Michigan families with bleeding disorders, including hotel accommodations, meals, and educational sessions.

Quantifiable outcome

• 88 cents of every dollar raised supports programs and services
• +1 more outcomes

Named customers5 records

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

13 partnerships are on record, tiered major, core and minor.

• PfizermajorGTM or Marketing PartnerPfizer sponsors educational dinner talks for HFM community on topics including caregiving in hemophilia and rebalancing therapy options. Pfizer provides speaker support and program sponsorship for patient education events.
• Novo NordiskmajorGTM or Marketing PartnerNovo Nordisk sponsors dinner talks and programs for the HFM community, providing educational content about hemophilia treatments and program support.
• GenentechmajorGTM or Marketing PartnerGenentech sponsors dinner talks and educational programs for HFM community members on hemophilia treatments including Hemlibra.
• TakedamajorGTM or Marketing PartnerTakeda sponsors dinner talks for HFM community education programs on bleeding disorders treatments.
• SanofimajorGTM or Marketing PartnerSanofi sponsors dinner talks and educational programs for HFM community education.
• Georgetown University Center for Children and FamiliescoreStrategic or Co-development PartnerLeo Cuello, J.D., Research Professor at Georgetown University McCourt School of Public Policy, serves as speaker for HFM advocacy webinars on Medicaid policy topics affecting bleeding disorders patients.
• Hemophilia Treatment Centers (HTCs)coreStrategic or Co-development PartnerHFM operates a Regional Hemophilia Network in partnership with hemophilia treatment centers throughout Michigan. HTCs serve as referral pathways and collaborative partners in providing comprehensive care and community programs.
• Bleeding Disorders Substance Use and Mental Health Access Coalition (BD SUMHAC)coreStrategic or Co-development PartnerHFM works as a member of BD SUMHAC coalition to improve access to inpatient and residential mental health and substance use disorder treatment for people with bleeding disorders.
• Michigan Coalition for Affordable Prescriptions (MICAP)coreStrategic or Co-development PartnerHFM works with MICAP on policy change regarding out-of-pocket expenses for prescription medications affecting the bleeding disorders community.
• Days for GirlsminorStrategic or Co-development PartnerPartnership with Days for Girls international program to create menstrual hygiene kits supporting women and girls with bleeding disorders.
• National Hemophilia Foundation (NHF)coreStrategic or Co-development PartnerHFM receives medical advisories, advocacy resources, and program support from the National Hemophilia Foundation as part of the national bleeding disorders community.
• Hemophilia Federation of America (HFA)coreStrategic or Co-development PartnerHFM receives patient advocacy updates and medical advisories from the Hemophilia Federation of America.
• Camp Bold EaglecoreOthersSpecialized residential summer camp for children with bleeding disorders, providing safe, medically-supervised recreational and educational programs promoting independence and leadership.

Scale indicators4 records

Recent moves6 records

Expansion highlights6 records

Broad incumbents

• National Hemophilia Foundation: The national umbrella organization for bleeding disorders chapters including HFM. NHF provides medical advisories, advocacy resources, and program support to HFM as part of the national bleeding disorders community structure.
• Hemophilia Federation of America: A national patient advocacy organization that provides HFM with patient advocacy updates and medical advisories. Operates as a parallel national body alongside NHF serving the bleeding disorders community.
• American Cancer Society (state chapters): A large national health nonprofit with state-level chapters operating patient services, advocacy, and education programs. While not disease-specific to bleeding disorders, it represents a comparable nonprofit chapter structure and operational model for disease-focused community support.
• March of Dimes (state chapters): A national health nonprofit operating state and regional chapters focused on maternal and family health. Comparable nonprofit chapter structure, advocacy function, and corporate sponsorship model relevant for benchmarking health nonprofit operations.

Direct peers

• Hemophilia of Georgia: A state-level bleeding disorders chapter operating under a similar model to HFM, providing education, advocacy, and direct services to Georgia's hemophilia community. Comparable in mission, structure, and nonprofit chapter approach.
• Hemophilia Foundation of Northern California: A state/regional bleeding disorders chapter serving Northern California with education, support, and advocacy programs. Operates with a similar nonprofit chapter model, regional hemophilia network integration, and patient services focus.
• Bleeding Disorders Alliance Illinois: A Midwest bleeding disorders chapter providing patient services, education, and advocacy. Comparable in structure to HFM as a state-level chapter serving a defined geographic bleeding disorders community.
• New York City Hemophilia Chapter: A state/regional chapter providing education, support, and advocacy services to the bleeding disorders community in the New York area. Operates with a similar nonprofit chapter model and patient service focus.

Regional players

• Midwest Hemophilia Association: A regional bleeding disorders organization serving Kansas and Missouri with similar patient education, support programs, and advocacy functions. Comparable Midwest peer to HFM in mission and programming.

Emerging players

• Sickle Cell Disease Foundation of California: A rare disease patient support nonprofit serving a comparable model for a different rare blood disorder. Operates with similar patient advocacy, education, and support services structure relevant for benchmarking nonprofit health organization operations.

Market position

Strengths5 records

Weaknesses4 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xfacebook.com/Hemophilia-Foundation-of-Michigan-200098627080/?eid=ARC_93jhGf6txR9rU09AayRs0fDwj0HcRoLx8KXU-PD8irEVzk8GJFztaZ3pzou9GECfid15kLAbhAk2
• YouTubeinstagram.com/hfmich
• Facebookfacebook.com/Hemophilia-Foundation-of-Michigan-200098627080
• LinkedInlinkedin.com/company/hemopilia-foundation-of-michigan
• Instagraminstagram.com/hfmich

Revenue estimate

Valuation estimate

Number of profiles

Profiles7 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Hemophilia Foundation of Michigan