tick-borne conditions united

What tick-borne conditions united does

Tick-Borne Conditions United (TBC United) is a nonprofit 501(c)(3) organization founded in 2018 and based in Pittsboro, North Carolina, that delivers education, research, and advocacy focused on lesser-known tick-borne conditions — primarily Alpha-gal Syndrome, Rocky Mountain Spotted Fever, Anaplasmosis, and Ehrlichiosis. The organization was co-founded by Beth Carrison (Director of Advocacy) and Dr. Jennifer Platt (Director of Programs), both of whom bring firsthand patient experience with tick-borne illnesses and complementary backgrounds in business development and public health (DrPH, UNC Gillings). Carrison additionally sits on the federal 2020 Alpha-gal Syndrome Subcommittee, and Dr. Platt was appointed to the federal Tick-Borne Disease Working Group under HHS in August 2021 — positions that have helped secure the inclusion of Alpha-gal Syndrome in the 2018 Report to Congress.

TBC United's service portfolio is built around three fee-bearing professional services — Medical Staff Training, Employee Training, and Professional Consultations — supplemented by free digital educational content (brochures, webinars, symposia including the Alpha-gal Syndrome Symposium with CME credits), an email newsletter, and an active Alpha-gal Syndrome Patient Experience Survey hosted on SurveyMonkey that has engaged over 2,000 participants. The organization also operates as a connective node in a multi-stakeholder advocacy ecosystem, partnering with UNC Gillings School of Public Health, FARE (Food Allergy Research & Education), Center for Lyme Action, Virginia Tech, Blue Cross North Carolina, and Revivicor (producer of gal-safe pork), alongside earned media in outlets such as the New York Times and Washingtonian.

The revenue model is donation- and grant-driven as a 501(c)(3), with printed brochures available for a small fee and scheduled training/consultation engagements sold directly to healthcare providers, employers, government agencies, and public utilities. The only disclosed funding figure is approximately $40,000 raised in the first full operating year (2020), including a $25,000 grant. Operating geography is the United States; headcount is 1-10 employees; there are no subsidiaries, institutional investors, or parent entities, and ownership remains with the two co-founders.

Name

tick-borne conditions united

Legal name

Tick-Borne Conditions United

Website

https://tbcunited.org

Company type

Private

Founded year

2018

Operating status

Operating

Headcount range

1–10 employees

Short description

Tick-Borne Conditions United is a nonprofit founded in 2018 that provides education, research, and advocacy on lesser-known tick-borne diseases for patients, healthcare providers, employers, and government agencies, anchored by federal committee representation and multi-stakeholder partnerships.

Ownership category

akta.pro rank

Product category

Public Health Education and Advocacy

NAICS

Health Care and Social Assistance (62), Professional Organizations (81392)

SIC

Services-Misc Health & Allied Services, Nec (8090), Services-Health Services (8000)

akta.pro primary industry

Tick-Borne & Vector-Borne Diseases (HLAKAGAL)

akta.pro secondary industries

Non-Communicable Disease Prevention & Chronic Disease Programs (BPAIAJAI), Health Systems Strengthening & Universal Health Coverage (UHC) Partnerships (HLAJAOAL)

Keywords

• Tick-borne disease education
• Public health advocacy
• Medical staff training
• Alpha-gal syndrome awareness
• Nonprofit health research

Headquarters

HQ city

Pittsboro

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Marketing or Sales, Operations, Others

Revenue model

1. Charitable Donations: TBC United operates as a 501(c)(3) nonprofit organization that relies on tax-deductible charitable contributions from donors. Donations fund education programs, research initiatives, and advocacy efforts for lesser-known tick-borne diseases.

Pricing tiers

Go-to-market motion2 records

Distribution channels3 records

Marketing channels7 records

Core offering

Tick-Borne Conditions United (TBC United) is a 501(c)(3) nonprofit organization that delivers education, training, research, and federal advocacy focused on lesser-known tick-borne diseases such as Alpha-gal Syndrome, Rocky Mountain Spotted Fever, Anaplasmosis, and Ehrlichiosis. It sells paid training and consultation services to healthcare providers, employers, and government agencies, while offering free patient-facing educational resources, brochures, newsletters, webinars, and a patient experience survey.

Product overview

Tick-Borne Conditions United operates as a nonprofit 501(c)(3) organization founded in 2018, offering a portfolio of education, research, and advocacy services rather than a traditional software product. The organization's service offerings include Medical Staff Training, Employee Training, and Professional Consultations designed for healthcare providers, businesses, government agencies, and public utilities. Core research activities center on the Alpha-Gal Syndrome Patient Experience Survey, which has collected data from over 2,000 patients. Educational resources include free downloadable brochures, webinars, symposia (including the International Alpha-gal Symposium with CME credits), and media content such as podcasts. The organization also provides a newsletter subscription service to disseminate timely updates on tick-borne disease research and advocacy efforts.

Differentiator

Problem solved

Functional benefit

Products and services

• Medical Staff Training Training programs designed to educate healthcare providers (doctors, nurses, and medical staff) about tick-borne disease diagnosis, treatment protocols, and patient management, including CME-accredited sessions.
• Employee Training Educational programs for outdoor workers covering tick-borne disease prevention, recognition, and protection measures, delivered to commercial businesses, government agencies, and public utilities.
• Professional Consultations Expert consultations for businesses and organizations seeking to protect employees from tick-borne illnesses and ensure workplace safety against tick-borne risks.
• Educational Webinars and Symposia

Named customers4 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Ten partnerships are on record, tiered core, major and minor.

• University of North Carolina (UNC) Gillings School of Public HealthcoreStrategic or Co-development Partner · 1 January 2019Dr. Jennifer Platt is a graduate of UNC Gillings School of Public Health. TBC United collaborates with UNC researchers including Dr. Scott Commins on Alpha-gal Syndrome research. The organization has been recognized by UNC School of Public Health for educational efforts around Alpha-gal Syndrome and COVID-19.
• TickWarriorscoreStrategic or Co-development PartnerFounded by Dr. Jennifer Platt, TickWarriors provides eco-friendly tick protection for people, pets, and property. The organizations share founders and mission alignment around tick-borne disease education and prevention.
• Center for Lyme ActionmajorGTM or Marketing PartnerTBC United works with Center for Lyme Action to advocate for funding of the historic Kay Hagan Tick Act and other tick-borne disease research. Joint advocacy efforts include Congressional fly-ins and coordinated policy initiatives.
• FARE (Food Allergy Research & Education)majorStrategic or Co-development PartnerTBC United co-founders partnered with FARE to provide Alpha-gal Syndrome webinar training on diagnosis, ingredient detective skills, and patient management. Joint educational content development for the food allergy community.
• RevivicorminorStrategic or Co-development PartnerRevivicor produces Alpha-gal safe pork products (gal-safe pork). Mentioned in TBC United content as part of the solution ecosystem for Alpha-gal patients.
• Virginia TechminorStrategic or Co-development PartnerLisa Martin, Senior Program Manager at Virginia Tech Reynolds Homestead, has provided testimonials about TBC United's educational presentations and outreach to university communities.
• Blue Cross North CarolinaminorGTM or Marketing PartnerLynn Frost from Blue Cross North Carolina has provided testimonials endorsing TBC United's educational outreach and community impact.
• Chatham MarketplaceminorGTM or Marketing PartnerChatham Marketplace served as a supporting sponsor for the International Alpha-gal Symposium 2018.
• Amaroo Hills Emu FarmminorGTM or Marketing PartnerServed as a sponsor for the International Alpha-gal Symposium 2018 event.
• Institute for Integrative NutritionminorGTM or Marketing PartnerServed as a sponsor for the International Alpha-gal Symposium 2018 event.

Scale indicators5 records

Recent moves7 records

Expansion highlights6 records

Direct peers

• Global Lyme Alliance: Global Lyme Alliance is a leading nonprofit funding research, education, and awareness for tick-borne diseases. Directly comparable to TBC United in mission, donor-supported nonprofit model, and provider/patient training focus, though it concentrates on Lyme rather than lesser-known tick-borne conditions.
• Project Lyme: Project Lyme is a nonprofit dedicated to Lyme and tick-borne disease awareness, prevention, and education. Directly comparable to TBC United as a patient-education and awareness nonprofit operating in the same disease space with similar community-led GTM.
• FARE (Food Allergy Research & Education): FARE is the leading nonprofit focused on food allergy research, education, and advocacy, with a comparable donor-supported model and CME-accredited provider training. TBC United already partners with FARE on Alpha-gal Syndrome webinars, indicating direct overlap in patient-education and provider-training operations.
• Bay Area Lyme Foundation: Bay Area Lyme Foundation is a nonprofit dedicated to funding research and education on Lyme and other tick-borne diseases. Comparable as a tick-borne disease nonprofit combining research grants, provider education, and patient/community outreach, with greater funding scale than TBC United.
• Center for Lyme Action: Center for Lyme Action is a nonprofit advocacy organization advancing federal policy and research funding for tick-borne diseases, including the Kay Hagan Tick Act. Directly comparable as a federal advocacy-focused tick-borne nonprofit that TBC United already partners with on congressional fly-ins.
• Lyme Disease Association: Lyme Disease Association is a national nonprofit focused on Lyme and tick-borne disease education, research funding, and patient advocacy. Directly comparable to TBC United in mission, donor-funded model, and federal/state policy engagement on tick-borne diseases.
• American Lyme Disease Foundation: American Lyme Disease Foundation is a nonprofit providing education and prevention resources on Lyme and tick-borne diseases. Comparable to TBC United in offering free educational content, training materials, and awareness campaigns targeting patients, providers, and the public.

Others

• National Patient Advocate Foundation: National Patient Advocate Foundation is a nonprofit advocacy organization advancing patient-centered policy at the federal and state level. Comparable to TBC United in its federal advocacy operating model and patient-driven policy engagement, though focused on broader chronic and serious illness populations.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xtwitter.com/tbcu2018
• Facebookfacebook.com/TBCUnited
• LinkedInlinkedin.com/company/tbcunited

Revenue estimate

Valuation estimate

Number of profiles

Profiles5 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about tick-borne conditions united