eye on vision foundation corp
Eye on Vision Foundation Corp is a 501(c)(3) nonprofit founded in 2006 that raises and grants funds for Visual Snow Syndrome research, while supporting a global community of VSS patients through education, peer support groups, and specialist directories.
- Company typePrivate
- Founded2006
- HeadquartersOrlando, United States
- Headcount1–10
- GTM typeB2C
- OfferingServices
What eye on vision foundation corp does
Eye on Vision Foundation Corp (EOVF) is a 501(c)(3) nonprofit organization founded in 2006 by Jennifer Ambrose and headquartered in Orlando, Florida. The foundation is dedicated to funding scientific research, raising public awareness, and providing community support for Visual Snow Syndrome (VSS), a chronic neurological condition characterized by persistent visual static and a constellation of associated symptoms including tinnitus, brain fog, photophobia, and migraine. EOVF operates a global patient community across Facebook, Reddit, Instagram, Twitter, and LinkedIn, and maintains country-specific support groups for the U.S., Germany, Turkey, Italy, and France. It connects VSS patients with educational content, symptom resources, and a directory of specialists familiar with the condition.
The foundation's core function is grantmaking: it channels donations into research collaborations at leading academic institutions including King's College London, Inselspital (Bern University Hospital), the University of Colorado, and Monash University. Active principal investigators include Prof. Peter Goadsby, Dr. Christoph Schankin, Dr. Francesca Puledda, Dr. Victoria Pelak, and A/Prof. Joanne Fielding, whose work spans brain imaging studies, transcranial electric and magnetic stimulation trials, and clinical characterization. EOVF played the catalyst role in the first formal VSS research study published in the Brain journal in 2014, which led to NIH recognition of VSS as a rare disease.
EOVF's revenue model is entirely donation-based, with no products or services sold. Income is generated through one-time and recurring individual donations via PayPal on eyeonvision.org, peer-to-peer crowdfunding on Facebook and GoFundMe, corporate giving partnerships (Amazon Smile, Minted, Chipotle fundraising nights, Soy Latina Candles), and stock donations via Stock Donator. The foundation's stated 2024 fundraising goal is $120,000, allocated across multiple research projects; recent disclosed grants include $30,000 to Dr. Schankin in November 2023, $30,000 to Monash University in 2022, and $58,000 to VSS research in October 2021. The organization employs 1–10 staff (founder-led with volunteers), holds IRS Tax ID 20-5394501, and has been the longest-running nonprofit exclusively dedicated to VSS since its founding.
eye on vision foundation corp firmographics
Firmographics- Name
- eye on vision foundation corp
- Legal name
- Eye on Vision Foundation Corp
- Website
- https://eyeonvision.org
- Company type
- Private
- Founded year
- 2006
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Eye on Vision Foundation Corp is a 501(c)(3) nonprofit founded in 2006 that raises and grants funds for Visual Snow Syndrome research, while supporting a global community of VSS patients through education, peer support groups, and specialist directories.
- Ownership category
- akta.pro rank
eye on vision foundation corp industry classification
Industry- Product category
- Nonprofit Health Research Foundation
- NAICS
- Voluntary Health Organizations (813212), Grantmaking Foundations (813211), Grantmaking and Giving Services (81321)
- akta.pro primary industry
- Health & Medical Research Grantmaking Foundations (BPAGAKAL)
- akta.pro secondary industries
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA), Research & Science Grantmaking Foundations (BPAGAKAI)
Keywords
Where eye on vision foundation corp is headquartered
LocationHeadquarters
- HQ city
- Orlando
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
eye on vision foundation corp business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Others, Marketing or Sales, Operations
Revenue model
- Donations and Fundraising: The foundation raises funds through one-time and recurring donations from individual donors, corporate giving programs, stock donations via Stock Donator, Amazon Smile, and peer-to-peer fundraising campaigns. It also receives corporate sponsorships through events such as Chipotle fundraising nights and Soy Latina Candles product campaigns.
Go-to-market motion1 record
Distribution channels4 records
Marketing channels7 records
eye on vision foundation corp product offering
Product offeringCore offering
Eye on Vision Foundation Corp is a 501(c)(3) nonprofit organization that raises funds for Visual Snow Syndrome (VSS) research and provides information and support resources for patients. It funds scientific research collaborations worldwide through grants to researchers at leading institutions, builds an online community of VSS patients across social media platforms, and raises public and medical community awareness of the condition. The foundation's 2024 fundraising goal is $120,000 split across multiple research projects.
Product overview
Eye on Vision Foundation Corp is a 501(c)(3) non-profit organization founded in 2006, dedicated to accelerating a cure for Visual Snow Syndrome (VSS). The foundation operates as a research funding organization that supports scientists and clinicians worldwide through grants, while also providing patient community support, educational resources, and fundraising tools. The core offering consists of funding research collaborations, connecting patients with specialists, and raising awareness through various community engagement programs.
Differentiator
Problem solved
Functional benefit
Products and services
- Visual Snow Syndrome Research Funding Funding and supporting scientific research to accelerate a cure for Visual Snow Syndrome and its related symptoms through grants to researchers at leading institutions worldwide including King's College London, Monash University, Inselspital Bern, and the University of Colorado.
- VSS Patient Community Support Connecting a global community of Visual Snow Syndrome patients through online stories, support resources, and peer support groups across multiple social media platforms and country-specific groups.
- Doctor and Specialist Resources Providing directories of healthcare providers and specialists familiar with Visual Snow Syndrome to help patients locate appropriate medical care for the condition.
- Donation Processing Facilitating one-time and recurring monetary donations as well as stock donations to support VSS research efforts through the foundation's website and Stock Donator partnership.
- Fundraising Tools Peer-to-peer fundraising platform enabling supporters to create personal fundraising campaigns and host events to raise money for VSS research.
- Educational Content and Awareness Providing educational materials about Visual Snow Syndrome symptoms, diagnosis, and management to patients and healthcare providers to raise awareness of the condition.
Quantifiable outcome
- Founded in 2006, the foundation has funded research that led to VSS being formally recognized as a rare disease by the NIH in 2014.
- +1 more outcomes
Companies that use eye on vision foundation corp
Customer profileSegments1 record
Ideal customer profiles2 records
eye on vision foundation corp technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
eye on vision foundation corp partnerships and signals
Strategic signalPartnerships
Twelve partnerships are on record, tiered core and minor.
- Dr. Christoph Schankin (Inselspital, Bern University Hospital)coreDr. Schankin leads VSS research at Inselspital and is a key collaborator since 2010. He collaborated with Prof. Peter Goadsby on the landmark 2014 study that established VSS as a distinct disorder. EOVF donated $30,000 to his latest research project in November 2023.
- Dr. Peter Goadsby (UCSF Headache Center / King's College London)coreProf. Peter Goadsby co-authored the first-ever VSS research study published in Brain journal in 2014 with EOVF founder Jen Ambrose. He continues to supervise research at King's College London with Dr. Francesca Puledda. His work led to NIH rare disease recognition for VSS.
- Dr. Francesca Puledda (King's College London)coreDr. Puledda received a Prize Fellowship from King's College to continue VSS studies. She leads research using novel brain scanning techniques to identify brain chemistry differences in VSS patients, part-funded by NIHR Maudsley BRC and supported by EOVF.
- Dr. Antonia Klein (Inselspital, Bern University Hospital)coreDr. Klein, a Neurology Resident, is collaborating with Dr. Schankin on a pioneering treatment study using transcranial electric stimulation (tACS) for VSS symptoms, partially funded by EOVF.
- Dr. Victoria Pelak (University of Colorado School of Medicine)coreDr. Pelak oversees a Colorado rTMS (repetitive transcranial magnetic stimulation) feasibility study for VSS treatment at the University of Colorado Anschutz Medical Campus. EOVF has sent funding to support this trial.
- Joanne Fielding (Monash University)coreAssociate Professor Joanne Fielding leads VSS research at Monash University Department of Neuroscience. EOVF has partnered with Monash for research funding and planning meetings. Funds were raised globally to support her research.
- Visual Snow InitiativeminorCo-funder of the King's College London brain scan study that discovered possible biological basis of visual snow syndrome (glutamate and serotonin network differences).
- Visual Snow Syndrome GermanyminorNon-profit organization collaborating with EOVF to recruit patients for a German VSS study at Bergmannsheil-Klinikum, Bochum.
- Stock DonatorminorStock Donator provides a quick, secure, and easy web-enabled service allowing donors to donate public stock directly to Eye on Vision Foundation.
- MintedminorMinted.com runs a promotional campaign where 15% of customer orders are donated to Eye on Vision Foundation during designated holiday shopping periods.
- Soy Latina CandlesminorNon-toxic candle company that donates 50% of proceeds during designated promotional periods (e.g., February 5-7, 2022) to EOVF.
- ChipotleminorChipotle hosts fundraising events at specific restaurant locations where 33% of event sales are donated to EOVF. Fundraising events listed in Oviedo, FL.
Scale indicators4 records
Recent moves6 records
Expansion highlights4 records
eye on vision foundation corp competitors and assessment
Company assessmentEmerging players
- American Migraine Foundation: Funds migraine research and education. Highly relevant because VSS is frequently misdiagnosed as migraine and shares overlapping symptoms; researchers (e.g., Goadsby) work across both fields.
- Vestibular Disorders Association (VeDA): Nonprofit supporting patients with vestibular disorders (vertigo, dizziness), many of which overlap with VSS symptoms. Comparable patient-community-and-research model addressing a rare neurology-adjacent condition.
Broad incumbents
- Foundation Fighting Blindness: Large established nonprofit funding vision-related research across multiple retinal degenerative diseases. Comparable as a vision-research nonprofit operating model, but EOVF focuses on a single neurological condition.
- National Organization for Rare Disorders (NORD): Umbrella organization for rare disease advocacy and research funding. Comparable as a rare disease community/funder, though NORD operates broadly across 7,000+ conditions rather than a single disease.
- BrightFocus Foundation: Established nonprofit funding research into macular degeneration, glaucoma, and Alzheimer's. Similar model of small-grant research funding distributed through a disease-focused nonprofit, but much broader portfolio.
Direct peers
- Visual Snow Initiative: Another nonprofit exclusively focused on Visual Snow Syndrome research funding and awareness. Most direct peer; competes for the same donor pool and collaborates/co-funds select studies (e.g., King's College London brain scan study).
- Cluster Headache Foundation: Patient-led nonprofit funding research and providing community support for another rare, underdiagnosed neurological condition. Closely analogous operating model to EOVF—small-donor-funded research grants to academic investigators.
Regional players
- American Headache Society: Professional society for headache medicine clinicians and researchers. Comparable as the broader scientific society in which VSS clinical research is discussed and where EOVF's funded researchers (Goadsby, Schankin) publish.
Market position
Strengths4 records
Weaknesses4 records
Competitive moat4 records
Key risks6 records
Key highlights6 records
Customer concentration
eye on vision foundation corp social profiles
Digital presenceeye on vision foundation corp compliance and trust
Trust signalCompliance1 record
eye on vision foundation corp financial estimates
Financial estimateRevenue estimate
Valuation estimate
eye on vision foundation corp leadership team
Management profileNumber of profiles
Profiles1 record
eye on vision foundation corp funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
eye on vision foundation corp M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about eye on vision foundation corp
What does eye on vision foundation corp do?
Eye on Vision Foundation Corp is a 501(c)(3) nonprofit organization that raises funds for Visual Snow Syndrome (VSS) research and provides information and support resources for patients. It funds scientific research collaborations worldwide through grants to researchers at leading institutions, builds an online community of VSS patients across social media platforms, and raises public and medical community awareness of the condition. The foundation's 2024 fundraising goal is $120,000 split across multiple research projects.
Is eye on vision foundation corp a public or private company?
eye on vision foundation corp is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was eye on vision foundation corp founded?
eye on vision foundation corp was founded in 2006. It employs 1 to 10 people.
Where is eye on vision foundation corp based?
eye on vision foundation corp is headquartered in Orlando, United States, in the North America region.
How does eye on vision foundation corp make money?
One revenue line is on record: donations and Fundraising.
Who are eye on vision foundation corp's main competitors?
Emerging players on record are American Migraine Foundation and Vestibular Disorders Association (VeDA). Broad incumbents are Foundation Fighting Blindness, National Organization for Rare Disorders (NORD) and BrightFocus Foundation. Direct peers are Visual Snow Initiative and Cluster Headache Foundation. American Headache Society is listed as a regional player.
Does eye on vision foundation corp have an API?
No public API is recorded for eye on vision foundation corp.
What industry is eye on vision foundation corp in?
eye on vision foundation corp's product category is Nonprofit Health Research Foundation. Its primary akta.pro industry code is BPAGAKAL, Health & Medical Research Grantmaking Foundations, with a secondary code of BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS). Its NAICS code is 813212.