Renaloo: patients organization, kidney disease, transplant, dialysis

What Renaloo: patients organization, kidney disease, transplant, dialysis does

Renaloo is a French non-profit patient association (association loi 1901) founded in 2002 by Yvanie Caillé, a former dialysis and kidney-transplant patient, to serve people living with chronic kidney disease, dialysis patients, transplant recipients, living kidney donors, and their families. Headquartered in Paris (C/O Le Gymnase, 29 bis rue Buffon, 75005) and operating exclusively in France, Renaloo is agréée by the French Ministry of Health to represent users of the healthcare system, recognized as being of general interest (enabling tax-deductible donations), and a founding member of France Assos Santé, the national federation of patient associations.

Its core products are community-led and information-driven: a multi-section patient information website; a forum with 3,526 topics and 23,276 replies; the MoiPatient participatory research platform at moipatient.fr for patient-reported data and dialysis-unit/transplant-center information; Renaloo TV, a YouTube-hosted documentary channel; recurring peer-support formats including Café Donneurs, Café Renaloo, and weekly virtual Visio Renaloo sessions; and co-published reference guides such as the June 2026 Living Donor Kidney Transplantation Guide. The underlying technology is a conventional web stack (forum software, video streaming, surveys) hosted with OVH and built/maintained with LT Consultants; there are no AI/ML, SDK, API, or mobile-app capabilities disclosed.

Revenue is composed of three streams: tax-deductible individual donations, recurring annual membership fees (Adhésion 2026), and public subsidies, which declined to 41% of resources in 2023 from 45% in 2022. Go-to-market is community-led: digital content (blog, forum, social channels on Facebook, X, LinkedIn, Instagram, YouTube), public-awareness campaigns (some pro bono with BETC Agency and outdoor media via JC Decaux), in-person and virtual events, and brochure distribution through dialysis and transplant centers across France. The organization is led by Présidente Nathalie Mesny with founder Yvanie Caillé as figurehead, and operates with a small paid staff plus a substantial volunteer and member base.

Name

Renaloo: patients organization, kidney disease, transplant, dialysis

Legal name

Association Renaloo

Website

https://renaloo.com

Company type

Private

Founded year

2002

Operating status

Operating

Headcount range

1–10 employees

Short description

Renaloo is a French non-profit patient association founded in 2002 that supports people affected by chronic kidney disease, dialysis, kidney transplantation, and living kidney donation through information, peer-support forums and events, advocacy, and the MoiPatient participatory research platform.

Ownership category

akta.pro rank

Product category

Patient Advocacy & Health Community Support

NAICS

Other Individual and Family Services (624190)

SIC

Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Dialysis Services (Hemodialysis & Peritoneal Dialysis) (HLAKAHAC)

akta.pro secondary industry

Renal Nutrition & Kidney Dietetics Services (HLAKAHAL)

Keywords

• Patient advocacy association
• Kidney disease support
• Dialysis patient community
• Kidney transplant information
• Participatory health research

Headquarters

HQ city

Paris

HQ country

France

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure

Revenue model

1. Donations: Tax-deductible donations from individuals, with 66% of donation amount deductible from income tax up to 20% of taxable income. Donors receive a fiscal receipt.
2. Membership Fees: Annual membership fees (Adhésion 2026) providing members access to forum, real-time association news, and member benefits.
3. Public Subsidies: Public funding represents a significant portion of resources (41% in 2023, down from 45% in 2022).

Pricing tiers

Go-to-market motion1 record

Distribution channels6 records

Marketing channels10 records

Core offering

Renaloo is a French patient association that provides information, peer support, and advocacy services for people affected by chronic kidney disease, dialysis, and kidney transplantation. It operates an online forum community, the MoiPatient participatory research platform, Renaloo.tv video content, and organizes in-person and virtual meetups (Café Donneurs, Visio Renaloo) for patient education and peer support. It also publishes reference guides (e.g., Living Donor Kidney Transplant Guide) and conducts public advocacy on patient rights, healthcare quality, and living kidney donation.

Differentiator

Problem solved

Functional benefit

Brands

• MoiPatient: Participatory research platform enabling patients to contribute to healthcare system evaluation and access information about dialysis units and kidney transplant services.
• Renaloo TV

Products and services

• Renaloo Website Platform Main patient information and support website providing comprehensive resources on chronic kidney disease, dialysis, kidney transplantation, and organ donation, with sections on patient rights, insurance, employment, travel, and daily life management.
• MoiPatient Participatory research platform enabling patients to contribute to healthcare evaluation and share their experiences with illness, alongside a service to find and learn about dialysis units and kidney transplantation services.
• Renaloo Forum Community discussion forum for patients with kidney disease, dialysis, and transplant topics, containing over 3,500 topics and 23,000+ replies for peer support and information exchange.
• Renaloo TV (YouTube Channel) Video information channel featuring documentary series created by and for patients, hosted on YouTube with 1,000+ subscribers, covering kidney disease, dialysis, and transplantation topics.
• Renaloo Reference Guide - Living Donor Kidney Transplant Reference guide on kidney transplantation from living donors, published in partnership with Société francophone de transplantation and Association française d'Urologie.
• Café Donneurs Informal meetup events dedicated to living donor kidney transplantation, bringing together donors and recipients to share experiences and information.
• Visio Renaloo Online video meetings for patients to discuss kidney disease topics, held at least weekly since the COVID-19 pandemic began.
• Legal and Social Support Service Support service for patients on legal and administrative questions related to kidney disease, accessible via a ticket system.
• La Ville du Rein First web platform for shared medical decision-making in kidney diseases, developed in partnership with Club des jeunes néphrologues, enabling patients to make informed treatment choices.
• Annual Membership (Adhésion 2026) Annual membership program providing full access to forum participation, real-time association news, newsletter, and member advantages.

Quantifiable outcome

• Published Reference Guide on Living Donor Kidney Transplantation (June 2026) in partnership with Société francophone de transplantation and Association française d'Urologie
• +2 more outcomes

Named customers4 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Seven partnerships are on record, tiered core and minor.

• Société francophone de transplantationcoreStrategic or Co-development Partner · 18 June 2026Partnership for publishing the Reference Guide on Living Donor Kidney Transplantation (Guide de référence Renaloo), released June 18, 2026 for National Organ Donation Day. Medical and scientific collaboration for patient education materials.
• Association française d'UrologiecoreStrategic or Co-development Partner · 18 June 2026Co-publishing partner for the Reference Guide on Living Donor Kidney Transplantation. Medical professional association collaboration for patient information.
• Club des jeunes néphrologuescoreStrategic or Co-development Partner · 24 March 2017Launched 'La Ville du Rein' (1st web platform for shared medical decision-making in kidney disease) in March 2017. Collaborative medical education and patient decision-support initiative.
• France Assos SantécoreOthersFounding member of the national federation of patient associations in France. Represents kidney disease patients in national health policy discussions.
• France GénérositésminorOthersMember organization for charitable giving associations in France, supporting fundraising and donor engagement for health nonprofits.
• BETC AgencyminorGTM or Marketing PartnerPro bono creative agency partner for public awareness campaigns including the 60th anniversary of first kidney transplant (2012), living donor campaigns (2011-2013), and TV spots featuring Guillaume Gallienne.
• L'Agence de la biomédecineminorOthersFrench public agency providing COVID-19 data for dialysis patients and coordinating organ donation/transplantation systems. Information sharing partner.

Scale indicators4 records

Recent moves6 records

Expansion highlights4 records

Direct peers

• Kidney Care UK: UK kidney patient charity offering information, support, grants, and advocacy. It mirrors Renaloo's combination of patient education, peer community, and policy engagement, and is a useful benchmark for peer-funded kidney advocacy in a comparable healthcare system.
• European Kidney Patients' Federation (EKPF): Pan-European federation representing national kidney patient associations including those in France. Comparable as a coordinating body for kidney patient advocacy at a regional level and a potential partner or competitor for cross-border initiatives Renaloo might pursue.
• National Kidney Foundation: Large US kidney patient organization combining patient education, advocacy, research funding, and community engagement. It is comparable to Renaloo in mission and operating model, though at substantially greater scale and with a more developed fundraising apparatus.
• American Kidney Fund: US nonprofit providing financial assistance, education, and advocacy for kidney patients. Comparable to Renaloo in its reliance on donations, patient education focus, and advocacy orientation, though with a unique direct-financial-assistance program.
• France Rein: France's other major kidney patient association, with a broadly similar mandate of supporting dialysis and transplant patients through information, advocacy, and peer support. It is the most directly comparable French peer in terms of mission, audience, and advocacy positioning.

Emerging players

• Polykystose France: Smaller French patient association focused specifically on polycystic kidney disease (PKD). Comparable in its patient-association operating model and French footprint, but narrower in disease focus, making it a partial-overlap peer.
• Greffe de Vie: French association promoting organ donation and supporting transplant recipients. Comparable in mission overlap on transplant advocacy and patient support, though narrower in scope than Renaloo, which also covers dialysis and broader kidney disease.

Broad incumbents

• Société Francophone de Néphrologie, Dialyse et Transplantation (SFNDT): French-speaking professional society of nephrologists and transplant specialists. Comparable as a stakeholder in kidney care policy and education, and an existing Renaloo partner; relevant as a broader incumbent in the same clinical domain.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xtwitter.com/renalooo
• YouTubeyoutube.com/channel/UCbSKWMjt4cVO0Q6dk8lYsBg
• Facebookfacebook.com/renaloo.fr
• LinkedInlinkedin.com/company/renaloo
• Instagraminstagram.com/asso.renaloo

Compliance3 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles2 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Renaloo: patients organization, kidney disease, transplant, dialysis