ACOUSTIC NEUROMA ASSOCIATION OF CANADA

What ACOUSTIC NEUROMA ASSOCIATION OF CANADA does

Acoustic Neuroma Association of Canada (ANAC) is a peer-led registered Canadian charity founded in 1983 in Edmonton by three patients — Virginia Garossinio, Velma Campbell, and Linda Gray — to address the absence of formal support for people affected by acoustic neuroma. Operating from a Toronto mailing address under CRA Charity Registration 118777168RR0001, ANAC provides education, peer support, and patient navigation services to acoustic neuroma patients, caregivers, and family members across Canada, and serves as a referral and continuing-education partner for the medical specialists who treat the condition.

ANAC's core products and services center on a membership-based service model: a public website, an exclusive Members Portal housing a Journey Guide and Knowledge Hub, personalized Patient Navigation Services, Multidisciplinary Assessment (MDA) referral coordination led by Dr. Farshad Nassiri, searchable Medical Directories of specialists, a curated Patient Stories platform organized by clinical topic, and event-based programming including the biennial World of Acoustic Neuroma Symposium (next: Toronto, May 9, 2026, co-presented with UHN Krembil Brain Institute) and the Annual Virtual Walk held during International Brain Tumour Awareness Week. The technology stack is conventional web infrastructure — Givecloud-powered donation processing, social-login-enabled account portal, and standard CMS publishing — with no proprietary software, APIs, or integrations disclosed.

ANAC's business and revenue model is a diversified charity funding stack: recurring annual membership fees (pricing undisclosed), individual one-time/monthly/annual donations, tribute and legacy planned giving, workplace payroll giving, corporate sponsorships, and transaction-based event registration fees ($95-$270 per symposium ticket, non-tax-receiptable). The organization is governed by a 7-member Board of Directors (President Rebecca Raghubeer, Past/Vice-President Judy Haust, Treasurer Adam Rochacewich, plus four directors) with operational leadership comprising National Operations Director Michelle Gillespie, Executive Director Carole Humphries, and Secretary Samantha Song. ANAC markets itself through its website, email newsletter, Instagram and Facebook channels, patient storytelling content, local support group chapters, and medical professional referrals via its Medical Advisory Committee.

Name

ACOUSTIC NEUROMA ASSOCIATION OF CANADA

Legal name

Acoustic Neuroma Association of Canada

Website

https://anac.ca

Company type

Private

Founded year

1983

Operating status

Operating

Headcount range

1–10 employees

Short description

Acoustic Neuroma Association of Canada is a peer-led registered charity, founded in 1983, that provides education, patient navigation, peer support, and medical referrals for acoustic neuroma patients, caregivers, and clinicians across Canada through a membership model, annual symposium, and Virtual Walk fundraising.

Ownership category

akta.pro rank

Headquarters

HQ city

Toronto

HQ country

Canada

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Membership Fees: Annual membership providing access to exclusive resources, patient navigation services, and members portal including Journey Guide and Knowledge Hub.
2. Donations and Fundraising: One-time, monthly, and annual donations. Personal fundraising pages for community campaigns. Workplace payroll giving programs. Legacy/planned giving through wills and estate plans.
3. Event Registration: Symposium registration fees: Single Member $95, Member + Guest Bundle $215, Single Non-Member $150, Two Non-Member Bundle $270. Tickets are not tax-receiptable as they cover event costs.
4. Sponsorships: Corporate sponsorships for events and programs. Sponsorship packages available for symposium.

Pricing tiers

Go-to-market motion2 records

Distribution channels5 records

Marketing channels7 records

Core offering

ANAC is a peer-led registered charity that provides education, peer support, and member services for people affected by acoustic neuroma in Canada. Its core offerings include an annual membership with access to a Members Portal (Journey Guide and Knowledge Hub), Patient Navigation Services, Multidisciplinary Assessment referral coordination, Medical Directories, the annual World of Acoustic Neuroma Symposium, and the Annual Virtual Walk.

Product overview

ANAC is a peer-led charitable organization (not a technology company) that provides support, information, and community for individuals affected by acoustic neuroma in Canada. The organization operates a membership-based service model offering exclusive access to a Members Portal with Journey Guide and Knowledge Hub, Patient Navigation Services, and Multi-disciplinary Assessment referral coordination. Core programs include the annual World of Acoustic Neuroma Symposium, Annual Virtual Walk events, a searchable Patient Stories platform, Medical Directories connecting patients with specialists, and an online Donation & Fundraising platform. The organization does not offer software products, APIs, or technology integrations.

Differentiator

Problem solved

Functional benefit

Products and services

• ANAC Membership Annual peer-led membership program offering access to the Members Portal, Journey Guide, Knowledge Hub, and Patient Navigation Services for individuals affected by acoustic neuroma in Canada.
• Members Portal Secure online members-only portal providing access to the Journey Guide, Knowledge Hub, and exclusive resources to help members navigate acoustic neuroma diagnosis, treatment, and recovery.
• Patient Navigation Services
• Multidisciplinary Assessment (MDA) Referral Coordination
• Medical Directories
• World of Acoustic Neuroma Symposium Patient-centred symposium co-presented with UHN Krembil Brain Institute featuring medical experts, lived-experience sharing, and educational sessions on diagnosis, treatment options, symptom management, and emerging research.
• Annual Virtual Walk Virtual fundraising event raising awareness and funds for the acoustic neuroma community, held during International Brain Tumour Awareness Week.
• Patient Stories Platform Searchable online collection of personal narratives from acoustic neuroma patients covering topics including diagnosis, surgical resection, radiation treatment, hearing loss, balance issues, facial paralysis, and watch-and-wait experiences.
• Educational Resources and Navigation Guides
• Donation and Fundraising Platform

Quantifiable outcome

• Raised $29,851 from 5th Annual Virtual Walk in 2024, a record amount.
• +1 more outcomes

Named customers3 records

Segments3 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Three partnerships are on record, tiered flagship and core.

• UHN Krembil Brain InstituteflagshipStrategic or Co-development Partner · 9 May 2026Co-presenting the 2026 World of Acoustic Neuroma Symposium. This is a flagship partnership bringing together patients and leading medical experts from University Health Network. Dr. Farshad Nassiri, Chair of ANAC's Medical Advisory Committee, coordinates multidisciplinary assessments through this partnership.
• Dr. Farshad NassiricoreStrategic or Co-development PartnerChair of ANAC's Medical Advisory Committee who coordinates Multidisciplinary Assessments (MDA) for patients. Requires doctor referral and helps patients access comprehensive evaluation through coordinated care.
• Medical Advisory CommitteecoreStrategic or Co-development PartnerProfessional medical committee providing guidance and credibility. Includes Dr. John Rutka (Professor of Otolaryngology-Head and Neck Surgery at University of Toronto) and other specialists.

Scale indicators4 records

Recent moves5 records

Expansion highlights4 records

Regional players

• British Acoustic Neuroma Association (BANA): UK-based peer-led charity serving acoustic neuroma patients with support groups and information resources. Highly comparable mission and operating model to ANAC, distinguished primarily by UK geography.
• Hearing Loss Association of America: U.S. advocacy organization for people with hearing loss, many of whom experience hearing loss as a result of acoustic neuroma or its treatment. Comparable peer-support and education model for an adjacent patient population.
• Canadian Hard of Hearing Association: Canadian consumer advocacy organization for hard-of-hearing individuals. Operates in the same Canadian market as ANAC and overlaps significantly on the hearing-loss patient community that includes acoustic neuroma patients.

Emerging players

• Facial Paralysis & Bell's Palsy Foundation: U.S. nonprofit addressing facial paralysis, a common sequela of acoustic neuroma surgery. Comparable peer-support charity model with overlapping patient population and content focus.

Broad incumbents

• Brain Tumour Foundation of Canada: Canada's national brain tumor charity supporting patients across all tumor types, including acoustic neuroma. Comparable as a Canadian patient-support nonprofit with peer support, information resources, and fundraising events, though with broader scope.
• National Brain Tumor Society: U.S.-based larger patient advocacy and research funding organization for brain tumors. Comparable peer-support and advocacy model, broader in disease scope and scale than ANAC.

Direct peers

• Acoustic Neuroma Association (ANA, USA): The U.S. counterpart organization dedicated to acoustic neuroma education, support, and research. Most directly comparable peer — same disease focus, same peer-led membership/support model, same patient-navigation value proposition, just operating in a different national market.
• Vestibular Disorders Association (VeDA): U.S. patient advocacy nonprofit focused on vestibular disorders including acoustic neuroma's balance-related symptoms. Comparable as a condition-specific, peer-support-driven charity with educational content and provider directories.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• Facebookfacebook.com/AcousticNeuromaCanada
• Instagraminstagram.com/acousticneuromacanada
• LinkedInlinkedin.com/company/acoustic-neuroma-association-of-canada-anac

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Profiles10 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about ACOUSTIC NEUROMA ASSOCIATION OF CANADA