Acoustic Neuroma Association

What Acoustic Neuroma Association does

The Acoustic Neuroma Association (ANA) is a 501(c)(3) nonprofit organization (Tax ID 23-2170836) headquartered at 2555 Northwinds Parkway, Alpharetta, Georgia, dedicated to informing, educating, and supporting individuals affected by acoustic neuroma (vestibular schwannoma). Founded by Virginia Fickel Ehr, ANA operates a patient education and community support ecosystem rather than a technology product: it runs a nationwide network of in-person and virtual support groups across multiple specialty categories (Newly Diagnosed, Young Adult, Caregivers, Facial, Oscillopsia, Musicians), a peer mentor program (ANetwork), public webinars with clinicians from leading medical institutions, a discussion forum, and a Patient Registry enabling research participation. Its core informational product is a library of seven clinically vetted patient booklets (Eye Care, Facial Nerve, Headache, Hearing Loss, Balance, Emotional/Cognitive Changes, Newly Diagnosed Handbook) sold through an online shop powered by Hikashop, with donations processed through DonorPerfect.

The organization serves three primary constituencies: (1) acoustic neuroma patients (newly diagnosed and post-treatment), who represent the primary persona; (2) caregivers and family members; and (3) healthcare providers — neurotologists, neurosurgeons, audiologists, and physical therapists — who sponsor ANA, distribute its materials to patients, and host education events. ANA's revenue model is diversified across four streams: donations and planned giving (Legacy Society), membership dues, merchandise and publication sales (booklets at $3, buttons at $5), and annual sponsorships from medical centers. Free patient kits are provided to newly diagnosed individuals as a freemium onboarding mechanism. The organization is governed by a Board of Directors (Ronson as President, Dave as Secretary) and is operationally lean, with Melanie Hutchins serving as Manager of Volunteer Programs.

ANA's go-to-market is community-led: it acquires members through healthcare provider referrals, medical center partnerships, organic search, social media (Facebook, Twitter/X, YouTube), email (the quarterly NOTES newsletter), and its patient registry. Distribution is primarily digital within the United States, with international access to electronic resources but physical merchandise shipping limited to US addresses. Strategic positioning centers on brand incumbency as the "premier resource" to the acoustic neuroma community and a reciprocal sponsor ecosystem with 18+ top-tier US medical institutions (Cedars-Sinai, Mayo Clinic, Johns Hopkins, Yale, NYU Langone, Duke, Mount Sinai, Vanderbilt, Northwestern, Barrow Neurological Institute, and others), supplemented by hearing technology sponsors (Med-El, Lilly/Akouos).

Name

Acoustic Neuroma Association

Legal name

Acoustic Neuroma Association

Website

https://anausa.org

Company type

Private

Operating status

Operating

Headcount range

1–10 employees

Short description

The Acoustic Neuroma Association is a 501(c)(3) nonprofit that educates and supports patients affected by acoustic neuroma (vestibular schwannoma) through a nationwide network of support groups, webinars, patient education booklets, a peer mentor program, and a patient registry, funded by donations, memberships, merchandise sales, and medical-center sponsorships.

Ownership category

akta.pro rank

Product category

Patient Advocacy Nonprofit Services

NAICS

Business Associations (813910), Educational Support Services (611710)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

Otology & Neurotology (Ear/Hearing/Balance) (HLAKAMAC)

Keywords

• Patient support services
• Health education resources
• Nonprofit healthcare support
• Patient advocacy services
• Medical peer support

Headquarters

HQ city

Alpharetta

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Donations and Contributions: The organization accepts donations from individuals, including planned giving through the Legacy Society program, and fundraisers participate on behalf of ANA.
2. Membership Dues: ANA offers membership that includes access to quarterly newsletter NOTES, patient information booklets, webinar library, and other member resources.
3. Merchandise and Publications Sales: ANA sells patient information booklets ($3.00 each), buttons and merchandise through its online shop. Products include educational booklets on topics such as eye care, facial nerve rehabilitation, hearing loss, balance improvement, headache management, and emotional/cognitive changes following acoustic neuroma treatment.
4. Sponsorships: Medical centers and healthcare providers sponsor ANA through annual sponsorship programs, providing financial support in exchange for visibility and partnership with the patient community.

Pricing tiers

Go-to-market motion1 record

Distribution channels4 records

Marketing channels7 records

Core offering

The Acoustic Neuroma Association (ANA) is a 501(c)(3) nonprofit organization that provides patient education, peer support, and resources for individuals affected by acoustic neuroma (vestibular schwannoma). Its core offerings include a nationwide network of in-person and virtual support groups, educational webinars with medical experts, patient information booklets, a peer mentor program, a discussion forum, and a patient registry to support acoustic neuroma research.

Product overview

The Acoustic Neuroma Association (ANA) is a 501(c)(3) nonprofit organization offering a patient education and support ecosystem rather than a single technology product. The core offerings include seven patient information booklets (Eye Care, Facial Nerve, Headache, Hearing Loss, Balance, Emotional/Cognitive Changes, and Newly Diagnosed Handbook) sold through the ANA Shop for $3 each, plus merchandise items. Support services encompass virtual and in-person support group meetings across 7+ categories (Newly Diagnosed, Young Adult, Caregiver, Facial, Oscillopsia, Musicians, and general groups), public webinars with healthcare providers, a discussion forum, and a free patient kit with complimentary membership. The ANA also operates a Patient Registry for research participation. The shop and member services are powered by Hikashop e-commerce and DonorPerfect for donations, with community interactions facilitated through Zoom webinars and support groups.

Differentiator

Problem solved

Functional benefit

Products and services

• Eye Care After Acoustic Neuroma Surgery Booklet

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

20 partnerships are on record, tiered core and minor.

• Cedars-SinaicoreStrategic or Co-development PartnerCedars-Sinai's Acoustic Neuroma and Lateral Skull Base Tumor Program is a major sponsor of ANA and hosts patient education events. Co-directed by Mia Miller, MD (Neurotologist) and John S. Yu, MD (Neurosurgeon). Named to U.S. News & World Report Honor Roll for 10 consecutive years. Active in research including stem cell isolation, immunotherapy for NF2, and scorpion venom dye clinical trials.
• Mayo CliniccoreStrategic or Co-development PartnerMayo Clinic is an ANA sponsor and hosts patient education events. Mayo Clinic Florida hosted an in-person Patient Education Event on March 7, 2026 at their Jacksonville campus.
• Johns Hopkins MedicinecoreStrategic or Co-development PartnerJohns Hopkins is an ANA sponsor and hosts patient events. Known for vestibular therapy sessions and expert care in acoustic neuroma treatment.
• Yale Cancer CentercoreStrategic or Co-development PartnerYale Cancer Center is an ANA sponsor. Dr. Jennifer Moliterno and Dr. Justin Cottrell of Yale Medicine present webinars for the ANA community on patient-centered approaches to AN care.
• Ohio State University Wexner Medical CentercoreStrategic or Co-development PartnerOSU Wexner Medical Center is an ANA sponsor and hosted a Virtual Patient Education Event on February 7, 2026 featuring their acoustic neuroma treatment team.
• UC San Diego HealthcoreStrategic or Co-development PartnerUCSD Health is an ANA sponsor. Dr. Kevin T. Peng presented a public webinar for ANA on acoustic neuroma topics.
• Duke HealthcoreStrategic or Co-development PartnerDuke Health is an ANA sponsor offering acoustic neuroma care through their ear, nose and throat specialists.
• NYU LangonecoreStrategic or Co-development PartnerNYU Langone Health is an ANA sponsor specializing in acoustic neuroma treatment.
• Washington University in St. LouiscoreStrategic or Co-development PartnerWashington University Medicine is an ANA sponsor. Their physical therapist Mary M. Crumley, PT, DPT, NCS presents on vestibular therapy for AN patients at St. Louis support group meetings.
• AdventHealthcoreStrategic or Co-development PartnerAdventHealth Neuro Institute is an ANA sponsor specializing in brain tumor treatment including acoustic neuroma.
• Pacific Neuroscience InstitutecoreStrategic or Co-development PartnerPacific Neuroscience Institute is an ANA sponsor specializing in acoustic neuroma and related conditions.
• University of Utah HealthcoreStrategic or Co-development PartnerUniversity of Utah Healthcare is an ANA sponsor specializing in skull base tumors including acoustic neuroma.
• Jackie Diels (Facial Retraining)coreStrategic or Co-development PartnerJackie Diels is an ANA sponsor specializing in facial retraining therapy for patients with facial nerve paralysis or weakness following acoustic neuroma surgery.
• Barrow Neurological InstitutecoreStrategic or Co-development PartnerBarrow Neurological Institute is an ANA sponsor specializing in acoustic neuroma treatment.
• Northwestern MedicalcoreStrategic or Co-development PartnerNorthwestern Medicine is an ANA sponsor offering acoustic neuroma care through their ENT specialists.
• Mount SinaicoreStrategic or Co-development PartnerMount Sinai Health System is an ANA sponsor with a Skull Base Surgery Center specializing in acoustic neuroma.
• Keck Medicine of USCcoreStrategic or Co-development PartnerKeck Medicine of USC is an ANA sponsor treating acoustic neuroma conditions.
• Mayfield CliniccoreStrategic or Co-development PartnerMayfield Clinic is an ANA sponsor providing acoustic neuroma care in Cincinnati.
• Vanderbilt University Medical CentercoreStrategic or Co-development PartnerVanderbilt is an ANA sponsor with a Skull Base Surgery Center treating acoustic neuroma.
• Lilly (Akouos)minorStrategic or Co-development PartnerLilly (through Akouos) is an ANA sponsor focused on gene therapy for hearing loss, potentially relevant to acoustic neuroma patients.

Scale indicators1 record

Recent moves5 records

Expansion highlights5 records

Broad incumbents

• National Organization for Rare Disorders (NORD): Umbrella rare-disease patient advocacy organization operating across 7,000+ rare diseases, including acoustic neuromas/vestibular schwannomas. Larger, broader incumbent in the same nonprofit patient-advocacy category.
• American Cancer Society: Large national cancer-focused nonprofit with research, support, and education programs. Although acoustic neuroma is typically benign, AN patients sometimes cross over with cancer-related patient navigation — ANA represents the niche-focused counterpart.

Direct peers

• National Brain Tumor Society: A 501(c)(3) patient advocacy nonprofit focused on brain tumors — closely analogous mission (research, education, support groups, healthcare provider partnerships) with acoustic neuroma being a benign brain/skull-base tumor. Most direct operational peer.
• Children's Tumor Foundation: Nonprofit dedicated to neurofibromatosis (NF1, NF2, and schwannomatosis) — relevant because NF2 is a hereditary cause of bilateral acoustic neuromas. Closest peer in disease etiology and clinical-trial/research orientation.
• Vestibular Disorders Association (VeDA): Patient support and education nonprofit for vestibular disorders, including balance and dizziness issues common to acoustic neuroma patients. Direct mission overlap in otology/neurotology patient education and support group operations.
• American Tinnitus Association: Nonprofit focused on tinnitus and hyperacusis, frequently co-occurring with acoustic neuroma symptoms. Shares the otology patient-education-and-research nonprofit model with overlapping physician and audiologist communities.
• Hearing Loss Association of America (HLAA): National nonprofit serving people with hearing loss, including single-sided deafness — a hallmark symptom of acoustic neuroma. Comparable membership model, advocacy focus, and national chapter/support group structure.

Regional players

• Acoustic Neuroma Association of Canada (ANAC): Canadian counterpart organization serving acoustic neuroma patients in Canada. Same disease focus and organizational model, but distinct geography — a regional peer.

Emerging players

• Facial Paralysis & Bell's Palsy Foundation: Nonprofit supporting patients with facial nerve paralysis, a common post-surgical acoustic neuroma side effect. Niche overlap in facial nerve rehabilitation content and patient education — addressing a subset of ANA's symptom-management scope.

Others

• MedStar National Rehabilitation Network (Neurotology programs): Clinical provider of neurotology and vestibular rehabilitation services. Adjacent rather than directly comparable — represents the clinical counterpart to ANA's patient-education mission, frequently partnering with patient advocacy groups like ANA.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat3 records

Key risks7 records

Key highlights7 records

Customer concentration

• YouTubeyoutube.com/user/anassociation
• Facebookfacebook.com/anapnw
• LinkedInlinkedin.com/company/acoustic-neuroma-association

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Acoustic Neuroma Association