Parkinson’s Europe

What Parkinson’s Europe does

Parkinson's Europe is a non-profit umbrella organization founded in 1992 and registered as a charity in England and Wales (Charity Number 1163211) and in Brussels, Belgium (association number 8727/2000). It operates as the only Europe-wide Parkinson's umbrella organization, serving the estimated 1.2 million people with Parkinson's across Europe, along with their carers, families, healthcare professionals, and researchers. Its core mission is providing trusted information, raising awareness, advocating for improved treatment and care, and facilitating research collaboration across the European Parkinson's community.

The organization's product surface is primarily informational and community-based rather than technology-based. Its main assets include Parkinson's Life (an online magazine launched in 2015 with articles, news, advice, and stories), the Parkinson's Passport (a free downloadable multilingual medical-information document for travelers), an Interactive Parkinson's Map of European resources, the Parkinson's Engagement Network (a membership communication platform), and the Parkinson's Manifesto for Europe (an advocacy document containing 30 community wishes). The digital infrastructure is standard: a website (parkinsonseurope.org), downloadable resources, social media channels, and email newsletters. There is no proprietary technology, no app, and no API or SDK.

The revenue model is donations and charitable funding: individual donations, membership fees, and grants/donations from funding organizations. Resources are provided free of charge. The go-to-market is community-led, relying on the Parkinson's Engagement Network, member organizations, awareness campaigns such as World Parkinson's Day, and pharma sponsorships (most prominently a flagship partnership with Bial for 'Dialogues with Parkinson's' in 2026, plus co-sponsorships with UCB, Novartis, and Global Kinetics). The organization is governed by a small UK-based team (11-50 employees) and publishes a Business Plan 2024+ and a 2025-2028 strategy organized around three pillars: Data and innovation, Empowerment, and Awareness and visibility.

Name

Parkinson’s Europe

Legal name

Parkinson's Europe

Website

https://parkinsonseurope.org

Company type

Private

Founded year

1992

Operating status

Operating

Headcount range

11–50 employees

Short description

Parkinson's Europe is a UK-registered non-profit umbrella organization founded in 1992 that serves the 1.2 million people with Parkinson's across Europe, along with carers, via information, advocacy, awareness campaigns, research collaboration, and community resources including the Parkinson's Life magazine and Engagement Network.

Ownership category

akta.pro rank

Product category

Patient Advocacy Services

NAICS

Social Advocacy Organizations (8133)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

Movement Disorders (Parkinson’s, Tremor, Dystonia) (HLAKAIAC)

Keywords

• Patient advocacy services
• Nonprofit health support
• Disease awareness resources
• Patient information resources
• Community engagement networks

Headquarters

HQ city

Orpington

HQ country

United Kingdom

HQ region

Europe

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and charitable funding: Parkinson's Europe is a charitable organization funded by donations and grants. The website explicitly states 'Your kind donations will make a big difference' and acknowledges funders who contributed to website funding. Revenue comes from individual donations, membership fees, and grants from funding organizations.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels6 records

Core offering

Parkinson's Europe is a nonprofit umbrella organization that advocates for and provides information and support to people affected by Parkinson's across Europe. It produces free multilingual resources including the Parkinson's Life online magazine, the downloadable Parkinson's Passport, an interactive map of European Parkinson's services, the Engagement Network for community connection, and the Parkinson's Manifesto for Europe as a policy and advocacy tool.

Product overview

Parkinson's Europe is a charitable umbrella organisation (not a commercial product company) that provides information, advocacy, and support services for people with Parkinson's across Europe. Its offerings include: Parkinson's Life (an online magazine with articles, news, advice, and recipes), the Parkinson's Passport (a free downloadable medical information document for travelers), an Interactive Map of European Parkinson's resources, the Parkinson's Engagement Network (a community communication platform), and the Parkinson's Manifesto for Europe (an advocacy document). These are informational and support resources, not commercial software products.

Differentiator

Problem solved

Functional benefit

Brands

• Parkinson's Life: Online magazine publishing articles, news, advice, recipes, and stories related to Parkinson's disease for the European community.
• Parkinson's Engagement Network
• Parkinson's Manifesto for Europe
• Parkinson's Passport

Products and services

• Parkinson's Life An online magazine produced by Parkinson's Europe that delivers news, research updates, lived-experience stories, and expert-reviewed articles for people with Parkinson's, their carers, and the wider Parkinson's community across Europe.
• Parkinson's Passport A multilingual, downloadable resource developed by Parkinson's Europe that allows people with Parkinson's to record and share key medical, treatment, and personal information when interacting with healthcare providers, particularly when traveling across European countries.
• Interactive Parkinson's Resources Map An interactive map hosted by Parkinson's Europe that helps users locate Parkinson's-related services, healthcare resources, and national associations across European countries.
• Engagement Network A community network run by Parkinson's Europe that connects people affected by Parkinson's and national Parkinson's associations across Europe, enabling peer support, advocacy collaboration, and information sharing.
• Parkinson's Manifesto for Europe A policy and advocacy document published by Parkinson's Europe that sets out the organization's priorities for improving research, treatment, care, and quality of life for people with Parkinson's across Europe, used in engagement with European institutions and member associations.

Named customers4 records

Segments4 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eight partnerships are on record, tiered flagship, minor and core.

• BialflagshipStrategic or Co-development Partner · 10 April 2026Bial, a Portuguese pharmaceutical company focused on neurosciences, partnered with Parkinson's Europe to launch 'Dialogues with Parkinson's,' a year-long awareness and education campaign for World Parkinson's Day 2026. The campaign addresses early-onset Parkinson's (10-20% of cases occur before age 50), misconceptions that Parkinson's is exclusively a disease of old age, and OFF episodes. The campaign aims to improve communication between patients, carers, and healthcare professionals.
• UCBminorStrategic or Co-development PartnerUCB sponsored a Parkinson's project aiming to fill knowledge gaps about disease-modifying therapies, as mentioned in Parkinson's Life news section.
• NovartisminorStrategic or Co-development PartnerNovartis co-sponsored a Parkinson's project aiming to fill knowledge gaps about disease-modifying therapies, as mentioned in Parkinson's Life news section.
• Global Kinetics CorporationminorStrategic or Co-development PartnerSponsored content about the Parkinson's KinetiGraph (PKG), a wearable technology for tracking Parkinson's symptoms. Global Kinetics is an Australian health technology company.
• ITTF FoundationminorStrategic or Co-development PartnerParkinson's Europe partners with the ITTF Foundation for table tennis events and training camps for people with Parkinson's, including Ping Pong Parkinson events.
• European Parkinson's Disease Association (EPDA)coreOthersParkinson's Europe is the only European Parkinson's umbrella organization, working with member organizations across Europe for advocacy, awareness, and research collaboration.
• PD AvengersminorStrategic or Co-development PartnerGlobal alliance of people with Parkinson's working together to end Parkinson's. Larry Gifford serves as President of PD Avengers and contributed travel advice content.
• BialflagshipStrategic or Co-development PartnerBial launched 'Dialogues with Parkinson's' campaign in partnership with Parkinson's Europe, coinciding with World Parkinson's Day 2026, aimed at boosting early symptom recognition and addressing misconceptions about Parkinson's being exclusively a disease of old age.

Scale indicators4 records

Recent moves5 records

Expansion highlights5 records

Direct peers

• Davis Phinney Foundation: A US-based Parkinson's foundation focused on helping people with Parkinson's live well today through education, programs, and research. Comparable as a Parkinson's-focused nonprofit with patient empowerment and quality-of-life programming.
• Cure Parkinson's: A UK-based charity focused on funding research to slow, stop, or reverse Parkinson's progression. Closely comparable as a Parkinson's-specific nonprofit operating in a similar UK/European ecosystem, though Cure Parkinson's focuses more narrowly on research.

Regional players

• Parkinson's UK: The UK's leading Parkinson's charity providing information, support, and research funding. Operates a similar disease-specific nonprofit model with information, advocacy, and research activities, but serves the UK national scope while Parkinson's Europe focuses on pan-European advocacy.
• American Parkinson Disease Association: A US nationwide Parkinson's organization providing information, support, and research funding. Shares the disease-specific advocacy and patient support mission with Parkinson's Europe, though serving the US market.

Broad incumbents

• Multiple Sclerosis International Federation: Global umbrella organization linking MS associations worldwide. Comparable as a disease-specific umbrella serving an international patient community with information, advocacy, and research collaboration activities.
• Michael J. Fox Foundation for Parkinson's Research: The largest nonprofit funder of Parkinson's research globally, also funding advocacy and patient education. A much larger and better-resourced player with overlapping mission to accelerate research and support the Parkinson's community, though operating primarily in the US.
• European Cancer Patient Coalition: European umbrella organization representing cancer patient associations. Comparable as a pan-European patient advocacy umbrella with similar structure, mission, and member-organization model.
• European Patients' Forum: An umbrella organization of European patient groups across disease areas. Comparable as a pan-European patient advocacy umbrella facilitating collective advocacy, though Parkinson's Europe is a disease-specific member rather than the umbrella itself.
• Alzheimer's Europe: Umbrella organization representing national Alzheimer's associations across Europe. Highly comparable as a pan-European disease advocacy umbrella structure, though focused on dementia rather than Parkinson's.

Emerging players

• PD Avengers: A global alliance of people with Parkinson's working together to end Parkinson's. Currently a partner of Parkinson's Europe but operates as an emerging patient-led movement that could evolve into a competing advocacy voice in the same disease community.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks4 records

Key highlights5 records

Customer concentration

• Xx.com/ParkinsonsEU
• YouTubeyoutube.com/c/ParkinsonsEurope
• Facebookfacebook.com/ParkinsonsEurope
• LinkedInlinkedin.com/company/parkinsons-europe
• Instagraminstagram.com/parkinsonseurope

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Parkinson’s Europe