Les Maisons Ensemble vers demain

What Les Maisons Ensemble vers demain does

Ensemble Vers Demain (legal name "Ensemble Vers Demain - Association pour le SRT," operating under French Law 1901) is a Vendée-based nonprofit association founded in 2012 by the family and friends of Élie, a child with Rubinstein-Taybi Syndrome (SRT). Its mission is to raise public awareness of SRT and rare diseases and to fundraise in support of AFSRT L'Olivier, the national SRT association that operates the clinical linkage with CHU de Bordeaux. EVD does not provide direct medical or family-support services; its role is awareness, community engagement, and funds generation for national-level activities.

The association's "products" are community events rather than software: a flagship biennial variety spectacle (Easter weekend, scaled from 500 attendees in 2014 to 1,243 in 2026 across six editions), randonnées pédestres (with accessible joëlette routes added from 2025), concerts, sporting manifestations, and school-based sensibilisation interventions across Vendée. There is no proprietary technology platform; operations rely on standard nonprofit tooling plus the HelloAsso platform for membership subscription, donation collection, and ticket sales via QR-coded posters. The GTM is event-driven plus community/word-of-mouth, with organic social channels (Instagram, Facebook) as top-of-funnel assets.

The revenue model mixes recurring (annual family membership fees) and transactional (spectacle ticket sales, event-sourced donations, organizer-donated portions of concert/sporting proceeds) streams. Funds raised in excess of event costs are reversed to AFSRT L'Olivier for national-scale SRT family reunions and accompaniment. Specific member counts, fee levels, and financial KPIs are not publicly disclosed; the contact footprint (a single French phone number and a generic email) and the volunteer-driven structure indicate a small, regionally focused organization without enterprise customers, external investors, or commercialization ambitions.

Name

Les Maisons Ensemble vers demain

Legal name

Ensemble Vers Demain - Association pour le SRT

Website

https://ensemble-vers-demain.fr

Company type

Private

Founded year

2012

Operating status

Operating

Short description

Ensemble Vers Demain (EVD) is a Vendée-based French nonprofit (Loi 1901), founded in 2012, that raises awareness of Rubinstein-Taybi Syndrome and funds the national AFSRT L'Olivier association through biennial variety shows, accessible hikes, concerts, sporting events, and school outreach in France.

Ownership category

akta.pro rank

Product category

Rare Disease Advocacy and Community Nonprofit Services

NAICS

Voluntary Health Organizations (813212)

SIC

Services-Membership Organizations (8600)

akta.pro primary industry

Rare Disease & Special Needs Support Organizations (BPAGACAM)

Keywords

• Rare disease awareness
• Nonprofit fundraising events
• Community solidarity association
• Disability inclusion outreach
• Rubinstein-Taybi syndrome support

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Membership Fees (Adhésions): Annual membership fees collected through HelloAsso platform. Membership renews yearly and includes family membership options where all generations can participate. Members join to support the association's mission and gain access to community events.
2. Donations: One-time donations collected via HelloAsso platform. Donations support the association's operations, event organization, and awareness activities. Note: donations made to Ensemble Vers Demain directly are not tax-deductible; only donations to AFSRT L'Olivier carry that benefit.
3. Spectacle Ticket Sales: Proceeds from biennial variety show tickets sold via HelloAsso and at the door. After covering event costs, remaining funds are donated to AFSRT L'Olivier for national SRT support activities and family meetings.
4. Event Fundraising: Funds raised during concerts, sporting events, and other manifestations. Organizers sometimes donate a portion of proceeds to EVD, supporting ongoing awareness activities.

Pricing tiers

Go-to-market motion2 records

Distribution channels3 records

Marketing channels5 records

Core offering

Ensemble Vers Demain is a Vendée-based non-profit association (Loi 1901) that organizes awareness events and solidarity initiatives around Rubinstein-Taybi Syndrome (SRT) and rare diseases. Its core offerings are biennial variety shows, accessible hiking events, concerts, sporting manifestations, and educational school interventions, paired with family memberships and donations collected via the HelloAsso platform, with surplus proceeds passed to AFSRT L'Olivier for national SRT support.

Product overview

Ensemble Vers Demain is a non-profit association (Loi 1901) operating as a single unified program focused on raising awareness about Rubinstein-Taybi Syndrome (SRT) in Vendée, France. Founded in 2012 around Élie, a child with SRT, the organization offers a portfolio of community-based activities including biennial variety shows, hiking events, concerts, sports events, and educational school interventions. These programs serve to unite families, volunteers, and the public while fundraising for the national AFSRT L'Olivier association. The organization operates on a membership model with family-oriented annual subscriptions.

Differentiator

Problem solved

Functional benefit

Products and services

• Spectacle de variété (Biennial Variety Show) Biennial variety show bringing together performers, families, volunteers, and audiences to raise awareness about Rubinstein-Taybi Syndrome and fundraise for AFSRT L'Olivier. Features humor, dance, singing, and emotional performances; held during Easter weekend in Vendée.
• Randonnées pédestres (Accessible Hiking Events) Biannual hiking events in Vendée open to all participants, designed to sensitize the public about SRT and foster community connection. Since 2025, accessible routes using joëlettes are available for people with reduced mobility.
• Concerts Participation in concerts and festive events throughout Vendée to promote the association, raise awareness about SRT, and sometimes generate donations through organizer generosity.
• Interventions de sensibilisation (School Awareness Interventions) Educational outreach in schools, colleges, high schools, rural family homes, and recreation centers featuring testimonials, discussions, and activities to promote understanding of disability and inclusion.
• Manifestations sportives (Sporting Events) Presence at local sports events including races, tournaments, and sporting hikes to engage the public, raise awareness about SRT, and build community connections.
• Adhésion familiale (Annual Family Membership) Annual family memberships allowing all generations to participate, share, and contribute to the association's mission, with reduced rates for multi-person households. Managed through the HelloAsso platform.

Quantifiable outcome

• 1,243 people reached at 2026 spectacle (largest event to date)
• +1 more outcomes

Segments2 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Three partnerships are on record, tiered minor and core.

• Alliance Maladies RaresminorStrategic or Co-development Partner · 24 February 2000Alliance Maladies Rares (Alliance for Rare Diseases) is a Loi 1901 association founded on February 24, 2000, that gathers 202 disease associations representing nearly 2 million patients and approximately 2,000 rare diseases. AFSRT L'Olivier is a member of this alliance. The alliance is present across France through 18 regional antennas and is part of the Plateforme Maladies Rares, a unique structure in the world bringing together six rare disease actors. Ensemble Vers Demain's connection is indirect through AFSRT L'Olivier membership.
• AFSRT L'Olivier (Association Française du Syndrome de Rubinstein-Taybi)coreStrategic or Co-development PartnerEnsemble Vers Demain operates in complementary partnership with AFSRT L'Olivier, the national association dedicated to Rubinstein-Taybi Syndrome. EVD raises funds through events and donates remaining proceeds to AFSRT to support their national family meetings, research support, and family accompaniment activities. AFSRT was founded in December 2000 by Marie France and Claude Rousset (parents of Pascale) and Bruno and Marie-Claire Rieupeyroux (parents of Mélanie). AFSRT maintains a unique partnership between families and healthcare professionals, working closely with the reference center at CHU de Bordeaux. EVD specifically supports AFSRT's biennial family reunion events.
• CHU de Bordeaux (Centre de Référence SRT)coreStrategic or Co-development PartnerThe CHU de Bordeaux serves as the reference center for Rubinstein-Taybi Syndrome in France. AFSRT L'Olivier maintains a unique partnership between families and healthcare professionals in coordination with this center. Ensemble Vers Demain supports families who benefit from this medical partnership through their fundraising activities.

Scale indicators8 records

Recent moves5 records

Expansion highlights5 records

Direct peers

• AFSRT L'Olivier: The national French association for Rubinstein-Taybi Syndrome, also founded by affected families. EVD's surplus funds flow directly to AFSRT, and the two operate in tight coordination with the CHU de Bordeaux reference center — making AFSRT the closest peer in mission and beneficiary base.

Broad incumbents

• France Alzheimer: National association for Alzheimer's disease and related disorders in France, operating with regional chapters, membership, donations, and caregiver support. Comparable as a disease-specific membership nonprofit with awareness events and family-support orientation.
• Alliance Maladies Rares: National coalition of 202 rare disease associations representing nearly 2 million patients. While much larger in scope, AFSRT L'Olivier is a member, placing EVD's fundraising activities within an incumbent umbrella organization pursuing the same rare-disease awareness mission.
• AFM-Téléthon: France's flagship rare disease nonprofit, running the annual Téléthon telethon. Comparable as a Loi 1901 association that raises large-scale awareness and research funds for rare/neuromuscular diseases through high-profile events, though at vastly larger scale.
• Vaincre la Mucoviscidose: Major French cystic fibrosis nonprofit combining family support, research funding, and high-visibility awareness campaigns. Comparable business model (membership, donations, events) and similar rare-disease mission profile.
• ARSEP (Fondation pour la Sclérose en Plaques): French nonprofit funding multiple sclerosis research and supporting affected families. Comparable member-and-donation-driven model focused on a specific disease, with awareness events and a national footprint.
• Unapei: French federation of associations representing people with intellectual disabilities and their families. Comparable as a mission-aligned disability-advocacy nonprofit with awareness events, family memberships, and inclusive-program orientation.

Others

• Orphanet: Reference portal for rare diseases and orphan drugs, maintained by a French-led consortium. Comparable as an enabling/thematic peer in the rare-disease ecosystem that EVD benefits from indirectly through Alliance Maladies Rares.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat2 records

Key risks6 records

Key highlights5 records

Customer concentration

• Facebookfacebook.com/profile.php
• Instagraminstagram.com/ensemble.vers.demain

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Les Maisons Ensemble vers demain