Cholangio-Hepatocellular Carcinoma Canada

What Cholangio-Hepatocellular Carcinoma Canada does

Cholangio-Hepatocellular Carcinoma Canada (CHCC) is a registered Canadian charity (Charitable Registration Number 709631014 RR 0001) founded in 2021 by the Holmes/Clayton family following Rebecca Holmes' death from cholangiocarcinoma. The organization provides free patient support, education, and advocacy services for Canadian patients affected by cholangiocarcinoma (CCA) and hepatocellular carcinoma (HCC), along with their caregivers and families. Its service portfolio includes multilingual educational booklets in 12 languages, monthly support groups (English, French, and bereavement), a mentorship program launched in April 2025, patient care kits, quarterly newsletters, clinical trials navigation, genomic testing information, and palliative care resources. Program delivery occurs through Zoom webinars, the mychcc.ca website, social media channels (Instagram, YouTube), and annual awareness campaigns aligned to World CCA Day, World Liver Day, Global Fatty Liver Day, and World Hepatitis Day.

CHCC does not develop or sell technology products and operates as a service-based nonprofit. Underlying infrastructure consists of a static informational website, virtual meeting platforms, and a referral network connecting patients to partner organizations including OncoHelix (precision oncology testing), Hope Air (medical travel assistance), Wellspring Alberta (cancer support programs), and BiomarkerHelp. Clinical authority is provided by a Board of Medical Advisors comprising five named oncologists (Drs. Howard Lim, Vincent Tam, Brandon Meyers, Jennifer Knox, and Ravi Ramjeesingh). The Board of Directors is volunteer-led and family-anchored, with Brenda Clayton serving as President, Donald Holmes as Treasurer, Sheila Holmes as Secretary, and Ambuj Srivastava as Vice Chair.

The organization's business model is donation- and sponsorship-funded. Revenue streams comprise small-dollar donations via CanadaHelps and Interac e-Transfer, corporate sponsorships (AstraZeneca Canada, Incyte Biosciences Canada, Servier, plus dental sponsors and previous support from Merck Canada), and event-based fundraising (notably the 2026 Servus Calgary Marathon Charity Challenge, which raised over $9,000 against a $20,000 goal). All services are provided free of charge; no pricing model applies. Strategic partnerships span Canadian coalitions (Canadian Cholangiocarcinoma Collaborative, CanCertainty, Liver Canada, CCSN, CCRAN, Medicines Access Coalition BC) and global advocacy bodies (AMMF, Cholangiocarcinoma Foundation, Global Cholangiocarcinoma Alliance, International Liver Cancer Movement). CHCC is headquartered at B102-5212 48 St, Suite #252, Red Deer, Alberta, and operates exclusively within Canada.

Name

Cholangio-Hepatocellular Carcinoma Canada

Legal name

Cholangio-Hepatocellular Carcinoma Canada

Website

https://mychcc.ca

Company type

Private

Founded year

2021

Operating status

Operating

Short description

CHCC is a volunteer-led Canadian charity that provides free multilingual education, support groups, and mentorship to cholangiocarcinoma and hepatocellular carcinoma patients, caregivers, and families across Canada.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Nonprofit Healthcare Services

NAICS

Social Advocacy Organizations (8133)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industry

Hepatology & Liver Disease (HLAKAEAB)

Keywords

• Patient advocacy services
• Cancer education resources
• Support group programs
• Rare disease awareness
• Nonprofit health charity

Headquarters

HQ city

Red Deer

HQ country

Canada

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Operations, Personnel, Marketing or Sales, Others, Technology or R&D

Revenue model

1. Donations: CHCC accepts donations through CanadaHelps online platform and Interac e-Transfer. Donations are used to fund patient support programs and educational resources. The organization is a registered Canadian charity (Charitable Registration Number 709631014 RR 0001).

Go-to-market motion2 records

Distribution channels3 records

Marketing channels7 records

Core offering

Cholangio-Hepatocellular Carcinoma Canada is a registered Canadian charity that provides free patient support, education, and advocacy services for people affected by cholangiocarcinoma (bile duct cancer) and hepatocellular carcinoma (liver cancer). Its offerings include multilingual educational booklets in 12 languages, quarterly newsletters, patient care kits, a mentorship program, monthly support groups and webinars, palliative care directories, clinical trials navigation, genomic testing information, and annual awareness campaigns (World CCA Day, World Liver Day, Global Fatty Liver Day, World Hepatitis Day). The organization also runs fundraising initiatives such as the Calgary Marathon Charity Challenge, supported by corporate sponsors including AstraZeneca, Incyte, and Servier.

Product overview

Cholangio-Hepatocellular Carcinoma Canada (CHCC) is a registered Canadian charity (Charitable Registration Number 709631014 RR 0001) providing patient support and educational resources for those affected by cholangiocarcinoma and hepatocellular carcinoma. The organization operates a collection of interconnected programs including: Patient Care Kits and Mentorship Program for direct patient support; Newsletters and Printable Educational Booklets (available in 12 languages) for information dissemination; Clinical Trials and Genomic Testing Information for treatment navigation; Calendar of Support Groups and Webinars for community connection; and annual Awareness Campaigns (World CCA Day, World Liver Day, Global Fatty Liver Day, World Hepatitis Day) for public education. The organization also facilitates fundraising through the Calgary Marathon Charity Challenge. CHCC is not a technology product company but a service-based patient advocacy organization.

Differentiator

Problem solved

Functional benefit

Products and services

• CHCC Newsletters Quarterly newsletters (Volume 1 and Volume 2 series) containing patient stories, event updates, research news, and Ask the Dietitian columns for HCC and CCA patients and caregivers.
• Patient Care Kits

Quantifiable outcome

• Patient care kits distributed to CCA and HCC patients
• +2 more outcomes

Named customers1 record

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

14 partnerships are on record, tiered core, moderate and minor.

• Canadian Cholangiocarcinoma Collaborative (C3)coreStrategic or Co-development Partner · 1 January 2023C3 is a partnership among patients, caregivers, oncologists and researchers formed to grow hope in patients and families affected by cholangiocarcinoma. Founded in 2023 with funding from Canadian Cancer Society (CCS) and Canadian Institutes of Health Research (CIHR) Breakthrough Team Grant. Provides patient support, Canadian-specific resources, access to molecular testing, expert opinions, and research opportunities.
• AMMF (UK and EU)moderateStrategic or Co-development Partner · 1 January 2021AMMF is a registered UK charity dedicated to cholangiocarcinoma, working throughout the UK and Europe and collaborating globally. Their website provides resources for patients and carers in multiple languages.
• Canadian Cancer Survivor Network (CCSN)moderateStrategic or Co-development PartnerCCSN connects patients, survivors, and stakeholders with decision makers to promote best standards of care, support, follow-up and quality of life for cancer patients in Canada.
• Colorectal Cancer Resource & Action Network (CCRAN)moderateGTM or Marketing PartnerCCRAN has expanded its patient-focused mandate to serve cancer patients beyond colorectal cancer through HTA patient evidence submissions, educational events, and advocacy initiatives.
• CanCertaintymoderateStrategic or Co-development PartnerCoalition of over 30 Canadian patient groups, cancer health charities, and caregiver organizations working with oncologists to improve affordability and accessibility of cancer treatment.
• Cholangiocarcinoma Foundation (CCF)moderateStrategic or Co-development PartnerUS-based foundation founded in 2006, one of the leading global resources in research, education, and public awareness for cholangiocarcinoma.
• BiomarkerHelpmoderateStrategic or Co-development PartnerHelps patients find personalized options to fight cancer for free by uploading biomarker test reports.
• Global Cholangiocarcinoma Alliance (GCA)moderateStrategic or Co-development PartnerGlobal alliance united to establish a global voice in cholangiocarcinoma through community collaborations to raise awareness and improve prevention, survival, and quality of life.
• Hope AirmoderateStrategic or Co-development PartnerNational charity providing free air travel, hotel accommodation, ground transportation and meal subsidies for patients and escorts in financial need traveling to access medical care.
• International Liver Cancer Movement (ILCM)moderateStrategic or Co-development PartnerFirst ever global movement in liver cancer, bringing together patient organizations, medical societies, policy makers, and other actors to advocate for prevention, early detection, and access to care worldwide.
• Liver CanadamoderateStrategic or Co-development PartnerPromotes liver health and reduces incidence and impact of liver disease through support for research and education.
• Medicines Access Coalition BCminorStrategic or Co-development PartnerCoalition of 30 chronic disease specific non-profit organizations working to improve patient outcomes by increasing access to evidence-based medications for British Columbians.
• OncoHelixcoreTechnology or IntegrationPerforms precision oncology using biomarkers or genomic sequencing from tissue samples to guide diagnosis and optimal treatment. Located in Calgary, Alberta. CHCC provides information about their genomic testing services on their genomic testing page.
• Wellspring AlbertamoderateStrategic or Co-development PartnerHelps people living with cancer elevate their quality of life through programs providing connection, pain management, strength building, and fatigue reduction. Offers financial, workplace, and peer support services. Programs available online and through Calgary and Edmonton centers.

Scale indicators5 records

Recent moves6 records

Expansion highlights6 records

Broad incumbents

• Canadian Liver Foundation (Liver Canada): Canada's largest liver-disease nonprofit promoting liver health, research, and education. A CHCC partner and the broader incumbent in the liver-disease advocacy space that CHCC's HCC programming overlaps with.
• American Liver Foundation: US national liver-disease nonprofit covering the full liver-disease spectrum. Comparable to Liver Canada as a broad incumbent whose mission overlaps with CHCC's HCC awareness and education work.
• Canadian Cancer Society: Canada's largest national cancer charity, funder of the C3 collaborative. Operates broadly across all cancers rather than specializing in CCA/HCC but competes for the same donor dollars and patient attention.

Emerging players

• Canadian Cancer Survivor Network: Canadian cancer patient-advocacy nonprofit connecting survivors with policymakers. A CHCC partner focused on broader cancer advocacy including HTA submissions, with overlapping patient-advocacy model.
• Colorectal Cancer Resource & Action Network (CCRAN): Canadian cancer patient-advocacy nonprofit that has expanded beyond colorectal cancer into pan-tumour biomarker education. A CHCC partner with a closely aligned model of disease-specific educational events and HTA advocacy.

Direct peers

• Global Cholangiocarcinoma Alliance: Global alliance united around CCA awareness, prevention, survival, and quality of life. CHCC is a member partner, making it a coordinating peer in the same disease-specific advocacy ecosystem.
• Cholangiocarcinoma Foundation: US-based foundation founded in 2006 and a leading global resource in CCA research, education, and awareness. CHCC is an explicit partner and the most direct functional peer in disease-specific cholangiocarcinoma patient advocacy.
• International Liver Cancer Movement: First global movement in liver cancer bringing together patient organizations, medical societies, and policymakers. CHCC is an explicit partner, making this a direct peer across CHCC's HCC focus.
• AMMF: UK/EU registered charity dedicated to cholangiocarcinoma providing multilingual patient and carer resources. Named CHCC partner with overlapping disease-specific mandate and educational resource model.

Regional players

• Wellspring Alberta: Cancer-support organization in Calgary and Edmonton providing programs, peer support, and connection services. A CHCC partner and overlapping regional player in Alberta cancer patient support services.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights6 records

Customer concentration

• YouTubeyoutube.com/@mychcc_dot_ca
• Instagraminstagram.com/mychcc_dot_ca

Revenue estimate

Valuation estimate

Number of profiles

Profiles9 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Cholangio-Hepatocellular Carcinoma Canada