GARROD ASSOCIATION
The Garrod Association is a Canadian nonprofit professional association, founded in 1982, that coordinates care, clinical guidelines, research, and advocacy across 16 academic medical centres managing hereditary metabolic diseases, serving clinicians, scientists, trainees, and patient advocates.
- Company typePrivate
- Founded1982
- HeadquartersKingston, Canada
- Headcount—
- GTM typeB2B
- OfferingServices
What GARROD ASSOCIATION does
The Garrod Association is a Canadian nonprofit professional association founded in 1982 and incorporated in 2020, coordinating the management of hereditary (inborn errors of) metabolic diseases across the country. It serves as the convening body for 16 academic medical centres spanning British Columbia, Alberta, Saskatchewan, Manitoba, Ontario, Quebec, Nova Scotia, and Newfoundland, with each centre represented by specialist physicians, laboratory scientists, and trainees. The association's core activities include developing and endorsing clinical practice guidelines (using AGREE II methodology), operating the National Registry of Inherited Metabolic Diseases and contributing to the National PKU Collaborative Study, running an annual symposium, administering trainee and Pioneer awards, advocating with provincial drug plans on orphan-drug coverage, and maintaining international leadership presence on the boards of SSIEM and SIMD.
The association's product surface is non-technological: it consists of membership tiers, awards and travel bursaries, downloadable clinical guidelines, a website and social media presence, and the annual symposium. It does not develop or sell software, and there is no proprietary technology platform. Its business model is membership-subscription based, with annual individual dues of $40 (Other Healthcare/Trainee Full Members) or $60 (MD/PhD Full Members, Associate Members from patient advocacy and industry), supplemented by separate symposium registration fees (decoupled from membership renewal in 2026) and likely modest industry sponsorship. The go-to-market is community-led, relying on professional networks, the website, the annual symposium, and direct email to recruit and retain members. Customer segments are four narrow personas: metabolic medicine clinicians/scientists (primary), trainees, patient advocacy organizations, and industry partners.
GARROD ASSOCIATION firmographics
Firmographics- Name
- GARROD ASSOCIATION
- Legal name
- Garrod Association
- Website
- https://garrod.ca
- Company type
- Private
- Founded year
- 1982
- Operating status
- Operating
- Short description
- The Garrod Association is a Canadian nonprofit professional association, founded in 1982, that coordinates care, clinical guidelines, research, and advocacy across 16 academic medical centres managing hereditary metabolic diseases, serving clinicians, scientists, trainees, and patient advocates.
- Ownership category
- akta.pro rank
Where GARROD ASSOCIATION is headquartered
LocationHeadquarters
- HQ city
- Kingston
- HQ country
- Canada
- HQ region
- North America
Offices1 record
Markets served
GARROD ASSOCIATION business model
Business model- GTM type
- B2B
- Offering type
- Services
- Cost components
- Operations, Marketing or Sales, Personnel, Others
Revenue model
- Membership Dues: The association generates revenue through annual membership fees categorized by member type: Full Members (MD/PhD) pay $60 annually, Full Members (Other Healthcare/Trainee) pay $40, and Associate Members (Patient Advocacy/Industry) pay $60. This is a recurring annual revenue stream based on membership tenure.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Subscription | Annual | Full Member (MD, PhD) - $60/year |
| Subscription | Annual | Full Member (Other Healthcare/Trainee) - $40/year |
| Subscription | Annual | Associate Member (Patient Advocacy) - $60/year |
| Subscription | Annual | Associate Member (Industry) - $60/year |
Go-to-market motion1 record
Distribution channels3 records
Marketing channels7 records
GARROD ASSOCIATION product offering
Product offeringCore offering
The Garrod Association is a Canadian nonprofit professional association that coordinates care, research, education, and advocacy for hereditary metabolic diseases. It provides clinical practice guidelines developed using AGREE II methodology, manages a network of 16 academic medical centres across Canada, administers recognition awards and trainee travel bursaries, and convenes an annual symposium and joint conferences to support professional development and collaboration among clinicians, scientists, and trainees.
Product overview
The Garrod Association is a Canadian professional association for centers managing hereditary metabolic diseases, not a software product company. It offers a membership-based service providing professional development awards (Trainee Research Award, Trainee Educational Award), recognition programs (Pioneer Award), travel bursaries, clinical guidelines resources, annual conferences, job postings, and networking for healthcare professionals, researchers, and trainees in the metabolic genetics field.
Differentiator
Problem solved
Functional benefit
Products and services
- Garrod Association Membership Annual membership program for health professionals, scientists, trainees, patient advocates, and industry representatives with interest in hereditary metabolic diseases. Tiered dues: Full Members (MD/PhD) $60/year, Full Members (Other Healthcare/Trainee) $40/year, Associate Members (Patient Advocacy/Industry) $60/year. Members receive access to association benefits including guidelines, awards, and networking.
- Garrod Trainee Research Award Research award supporting research conducted by trainees in the field of hereditary metabolic diseases, with application guidelines and forms available for download.
- Garrod Trainee Educational Award Educational award for trainees in the field of hereditary metabolic diseases, with accompanying guidelines and fillable application forms.
- Pioneer Award Annual recognition award honoring individuals who have made significant contributions to the field of hereditary metabolic diseases. Recipients include Andreas Schulze (2026), Grant Mitchell (2025), Tony Rupar (2024), Claude Laberge (2023), David Rosenblatt and Floyd Snyder (2022), Cheryl Greenberg (2021), William Hanley (2019), Fiona Bamforth (2018), Charles Scriver (2017), Brian Robinson (2016), Derek Applegarth (2015), Joe Clarke (2013), and James Haworth (2012).
- Allied Health and Trainee Travel Bursary Travel bursary for Allied Health Professionals and Trainees to attend the Garrod Symposium. Amounts up to $750 for Quebec/Ontario and up to $1,500 for the rest of Canada. 2026 application deadline: March 15, 2026.
- Annual Garrod Symposium Annual symposium serving as the association's flagship engagement and professional development event for members and the broader metabolic disease community in Canada.
- Clinical Practice Guidelines Clinical practice guidelines developed and endorsed by the Garrod Association for hereditary metabolic diseases, using AGREE II methodology. Distributed as downloadable PDFs on the association's website.
Quantifiable outcome
- Coordinated care framework across 16 Canadian metabolic disease centers
- +1 more outcomes
Companies that use GARROD ASSOCIATION
Customer profileNamed customers16 records
Segments4 records
Ideal customer profiles4 records
GARROD ASSOCIATION technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
GARROD ASSOCIATION partnerships and signals
Strategic signalPartnerships
Ten partnerships are on record, tiered core, major and foundational.
- Canadian College of Medical Geneticists (CCMG)coreFormal collaborative relationship with CCMG. In 2026, the two organizations are holding an inaugural joint conference (CCMG & Garrod 2026 Joint Conference) in Bromont, Quebec, June 7-10, 2026, titled 'Where Metabolics and Genetics Meet'. The partnership combines expertise in medical genetics and metabolic disease management.
- Western Group of Investigators of Inborn Errors of MetabolismcoreLong-standing collaborative partner in the field of inborn errors of metabolism, working on shared objectives related to clinical care and research coordination.
- Canadian Paediatric SocietymajorCollaborative relationship supporting pediatric metabolic care standards and practices across Canada.
- Canadian Dietetic AssociationmajorPartnership recognizing the critical role of nutritional management in hereditary metabolic diseases. Reflects the multidisciplinary nature of metabolic care including clinical, scientific, and nutritional expertise.
- Canadian Society for Metabolic DiseasescoreNational organization collaborating on metabolic disease research, clinical practice, and professional education.
- Canadian Organization for Rare Disorders (CORD)majorPartnership supporting the rare disease community, advocating for patients with hereditary metabolic diseases, and working on access to treatments and care.
- Society for Inherited Metabolic Disorders (SIMD)coreInternational organization where Garrod Association members serve on the board. Active participation in guideline development, neonatal screening evaluation, and national initiatives.
- Society for the Study of Inborn Errors of Metabolism (SSIEM)coreInternational organization where Garrod Association members maintain active leadership presence, contributing to clinical practice guidelines and international standards development.
- Health and Welfare CanadafoundationalFederal government department represented at the founding meeting in September 1982 through Philip Banister. The federal sponsorship initiated the establishment of a permanent national body to coordinate metabolic disorder management.
- Canadian Dietetic AssociationmajorRepresented by Marcia Sharpe (Executive Director) at the founding meeting in 1982, reflecting the multidisciplinary nature of metabolic care requiring nutritional expertise alongside clinical and scientific knowledge.
Scale indicators3 records
Recent moves7 records
Expansion highlights5 records
GARROD ASSOCIATION competitors and assessment
Company assessmentEmerging players
- National PKU Alliance: US-based patient advocacy organization for phenylketonuria. Engages with the same clinician community and patient population served by Garrod's National PKU Collaborative Study, positioning it as a peer focused on a specific metabolic condition.
Direct peers
- Canadian College of Medical Geneticists (CCMG): Canadian national specialty society for medical geneticists, formally partnering with Garrod on the inaugural 2026 joint conference in Bromont. Operates a parallel membership and guideline-development model for the broader medical genetics community in Canada.
- Society for the Study of Inborn Errors of Metabolism (SSIEM): International learned society covering inborn errors of metabolism with a parallel mandate in guidelines, education, and research coordination. Garrod members sit on SSIEM's board, positioning it as a direct peer in scope if not geography.
- Canadian Organization for Rare Disorders (CORD): Canadian national umbrella organization for the rare disease community. Garrod maintains a formal collaborative relationship with CORD on advocacy and patient access, making it a directly comparable Canadian peer focused on policy and reimbursement.
- Society for Inherited Metabolic Disorders (SIMD): US-based professional society for clinicians and researchers in inherited metabolic disease. Garrod members hold leadership positions on SIMD's board, and the two organizations collaborate on guidelines and newborn screening, making SIMD the closest international counterpart to Garrod.
Regional players
- European Reference Network for Rare Hereditary Metabolic Disorders (MetabERN): European Union-funded network coordinating care for rare inherited metabolic disease patients across European centres. Functions as a regional peer with comparable centre-coordination objectives but operates under a different payer and regulatory regime than Garrod.
Broad incumbents
- European Society for Paediatric Endocrinology (ESPE): International society for paediatric endocrinology with substantial overlap on metabolic disease. Serves as a broad incumbent peer whose guideline and education programmes reach the same clinician base Garrod addresses in metabolic medicine.
- Canadian Paediatric Society: National specialty society for paediatricians in Canada. Garrod has a formal collaborative relationship with CPS to support paediatric metabolic care standards, making CPS a broad-incumbent peer serving an overlapping clinical audience.
- American College of Medical Genetics and Genomics (ACMG): Larger US-based professional society for medical geneticists with broad scope beyond metabolic disease. Functions as a broad incumbent whose guidelines and education programmes compete for attention from the same clinician audience Garrod serves in Canada.
Others
- Garrod Research Prize (UK): Named after Sir Archibald Garrod, the same figure after whom the Garrod Association is informally named. Listed here as an adjacent name-sharing reference rather than a direct competitor; included to acknowledge the shared historical lineage with UK metabolic medicine.
Market position
Strengths4 records
Weaknesses4 records
Competitive moat4 records
Key risks6 records
Key highlights6 records
Customer concentration
GARROD ASSOCIATION social profiles
Digital presenceGARROD ASSOCIATION financial estimates
Financial estimateRevenue estimate
Valuation estimate
GARROD ASSOCIATION leadership team
Management profileNumber of profiles
Profiles6 records
GARROD ASSOCIATION funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
GARROD ASSOCIATION M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about GARROD ASSOCIATION
What does GARROD ASSOCIATION do?
The Garrod Association is a Canadian nonprofit professional association that coordinates care, research, education, and advocacy for hereditary metabolic diseases. It provides clinical practice guidelines developed using AGREE II methodology, manages a network of 16 academic medical centres across Canada, administers recognition awards and trainee travel bursaries, and convenes an annual symposium and joint conferences to support professional development and collaboration among clinicians, scientists, and trainees.
Is GARROD ASSOCIATION a public or private company?
GARROD ASSOCIATION is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was GARROD ASSOCIATION founded?
GARROD ASSOCIATION was founded in 1982.
Where is GARROD ASSOCIATION based?
GARROD ASSOCIATION is headquartered in Kingston, Canada, in the North America region.
How does GARROD ASSOCIATION make money?
One revenue line is on record: membership Dues.
Who are GARROD ASSOCIATION's main competitors?
National PKU Alliance is listed as an emerging player. Direct peers are Canadian College of Medical Geneticists (CCMG), Society for the Study of Inborn Errors of Metabolism (SSIEM), Canadian Organization for Rare Disorders (CORD) and Society for Inherited Metabolic Disorders (SIMD). European Reference Network for Rare Hereditary Metabolic Disorders (MetabERN) is listed as a regional player. Broad incumbents are European Society for Paediatric Endocrinology (ESPE), Canadian Paediatric Society and American College of Medical Genetics and Genomics (ACMG). Garrod Research Prize (UK) is listed as an others.
Does GARROD ASSOCIATION have an API?
No public API is recorded for GARROD ASSOCIATION.