Eesti Vähihaigete Laste Vanemate Liit MTÜ

What Eesti Vähihaigete Laste Vanemate Liit MTÜ does

Eesti Vähihaigete Laste Vanemate Liit MTÜ (EVLVL) is an Estonian non-profit association (mittetulundusühing) founded in 1992 that supports children with cancer and their families through psychosocial services, direct financial aid, and peer community. The organization is the only parent-led association of its kind in Estonia, coordinating services through a Support Centre (Tugikeskus), delivering in-hospital programs at the Tallinn Children's Hospital and Tartu University Clinic oncology departments (including creative therapy and a partially funded wellbeing specialist), and running therapeutic programs such as Vaprusekastid (Courage Boxes), annual summer seminars, and young-adult and autumn therapeutic camps. Its sub-brands include the annual Pardiralli duck race (since 2014), Pardigolf charity golf tournament, and Kuldse lindi päev (Golden Ribbon Day, February 15), which collectively function as both fundraising engines and awareness campaigns. Pardiralli 2024 drew a record 20,000 ducks and raised approximately €420,000, while cumulative Pardigolf proceeds surpassed €100,000 by mid-2026.

The organization has no proprietary technology platform; operations run on a volunteer basis with two main phone contacts and an email inbox, plus a hosted donation portal at toeta.vahilapsed.ee and SMS donation lines (€5/€10/€25). Its revenue model is donation-driven: individual and corporate contributions fund medication support (€175,433 of €217,433 disbursed in 2024), psychological support, transport and accommodation for treatment abroad, and event programming, with an explicit policy that donations do not cover organizational overhead. Major institutional partnerships include Childhood Cancer International (full member since October 2020), the Tartu University Clinic Children's Fund (co-funder of a €350,000 CliniMACS Prodigy stem-cell transplantation system in 2022), the Estonian Cancer Union, Eesti Puuetega Inimeste Koda, and MTÜ Golf Aitab. The organization is led by Board Chair Kaili Semm and Board Member/Coordinator Luive Merilai, operates exclusively in Estonia, and participates as a patient-organization representative in Estonia's National Cancer Control Plan 2021–2030.

Name

Eesti Vähihaigete Laste Vanemate Liit MTÜ

Legal name

Eesti Vähihaigete Laste Vanemate Liit MTÜ

Website

https://vahilapsed.ee

Company type

Private

Founded year

1992

Operating status

Operating

Short description

Estonian non-profit founded in 1992 that supports children with cancer and their families through psychosocial services, medication funding, therapeutic camps, and peer community, operating from a Support Centre and partnering with the country's two main pediatric oncology hospitals.

Ownership category

akta.pro rank

Product category

Pediatric Cancer Family Support Services

NAICS

Individual and Family Services (6241), Other Individual and Family Services (624190), Child and Youth Services (62411)

SIC

Services-Social Services (8300)

akta.pro primary industry

Domestic Violence & Abuse Support Services (BPAGAEAD)

Keywords

• Pediatric cancer support
• Charitable family services
• Childhood cancer nonprofit
• Donation fundraising events
• Psychosocial oncology support

GTM type

B2C

Offering type

Services

Cost components

Others, Operations, Marketing or Sales

Revenue model

1. Donations from individuals and businesses: The organization's primary income comes from donations. Donations fund support center services, Christmas parties, summer seminars, entertainment for children in hospitals (e.g., magicians, creative activities), and direct financial support to families. Donations are not used to cover organizational overhead costs.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels8 records

Core offering

EVLVL is a parent-led Estonian non-profit association that delivers psychosocial, financial, and peer-support services to families of children with cancer. Its offerings include a Support Centre for advice and benefits navigation, Courage Boxes (Vaprusekastid) for children undergoing treatment, annual charity events (Pardiralli, Pardigolf), and therapeutic summer seminars, all funded by individual and corporate donations.

Product overview

Eesti Vähihaigete Laste Vanemate Liit MTÜ is a non-profit organization established in 1992 that provides support services to children with cancer and their families. The organization's offerings include the Support Centre (Tugikeskus) for coordinating assistance, Vaprusekastid (Courage Boxes) with toys for children undergoing treatment, the annual Pardiralli charity duck race event, the Kuldse lindi päev (Golden Ribbon Day) awareness campaign, and therapeutic summer seminars. The organization primarily relies on donations and operates on a voluntary basis.

Differentiator

Problem solved

Functional benefit

Brands

• Pardiralli: Charity rubber duck swimming competition initiated by EVLVL in 2014 to raise awareness and funds for children with cancer.
• Pardigolf
• Kuldse lindi päev (Golden Ribbon Day)
• Vaprusekastid (Bravery Boxes)

Products and services

• Tugikeskus (Support Centre) Coordination centre providing support services, advice, benefits-application assistance, and ongoing aid navigation for families of children with cancer in Estonia.
• Vaprusekastid (Courage Boxes) Boxes filled with toys and small gifts that children can choose from after undergoing medical procedures at Tallinn and Tartu hospital oncology departments to help alleviate distress during treatment.
• Pardiralli (Duck Rally) Annual charity duck race event broadcast on ETV, in which participants buy duck numbers to fundraise; it is the organization's flagship fundraising event.
• Kuldse lindi päev (Golden Ribbon Day) Annual awareness campaign marking International Childhood Cancer Day on February 15, involving golden ribbons, illuminated buildings, and nationwide visibility events.
• Suveseminar (Summer Seminar) Annual therapeutic summer camp for families of children with cancer, featuring educational lectures, creative activities, and peer support.

Quantifiable outcome

• In 2024, €217,433 in total support was paid, including €175,433 for medications.
• +2 more outcomes

Named customers1 record

Segments2 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

14 partnerships are on record, tiered core and minor.

• Tartu Ülikooli Kliinikumi Lastefond (Tartu University Clinic Children's Fund)coreStrategic or Co-development Partner · 1 February 2022Co-funded the purchase of CliniMACS Prodigy® equipment (€350,000) for hematopoiesis stem cell transplantation at Tartu University Clinic. Partnership enables children with cancer to receive advanced treatment in Estonia.
• Childhood Cancer International (CCI)coreStrategic or Co-development Partner · 15 October 2020Full member since October 15, 2020. CCI is a global network of 176 organizations across 93 countries dedicated to ensuring children with cancer receive the best treatment and care. The partnership provides international support and validates the organization's mission.
• Minu Unistuste PäevminorGTM or Marketing PartnerListed as a partner on the organization's website. Minu Unistuste Päev organizes dream fulfillment experiences for seriously ill children.
• Laste fond (Children's Fund)coreStrategic or Co-development PartnerListed as a partner. SA Tartu Ülikooli Kliinikumi Lastefond provides financial support for children's medical care and has co-funded equipment purchases with the organization.
• Eesti VähiliitcoreStrategic or Co-development PartnerListed as a partner. The Estonian Cancer Union (Elujõu Liit) collaborates on summer seminars and awareness campaigns for children's cancer support.
• Eesti Puuetega Inimeste Koda (EPIK)coreStrategic or Co-development PartnerPartnership with Eesti Puuetega Inimeste Koda. In 2020, €30,000 from Pardiralli was directed through EPIK to support families of children with high care needs. EPIK represents people with disabilities in Estonia.
• Ma armastan aidataminorGTM or Marketing PartnerListed as a partner. 'Ma armastan aidata' (I Love to Help) is a charity platform that hosts fundraising campaigns for the organization, including during Good Deeds Day (Heade Tegude Päev).
• Super SkyparkminorGTM or Marketing PartnerListed as a partner. Super Skypark provides support for children's cancer events and initiatives.
• Golf Aitab (MTÜ Golf Aitab)coreGTM or Marketing PartnerOrganizes annual Pardigolf charity golf tournament, raising funds for the association. As of July 2026, cumulative Pardigolf donations exceed €100,000.
• Estonian Golf & Country Club (EGCC)minorGTM or Marketing PartnerVenue partner for annual Pardigolf charity golf tournament. EGCC provides the golf course and organizational support for the event.
• PuhastusEst OÜminorOthersSmall family cleaning company that invited the organization's 'duck children' to design custom hand sanitizer stations. 10% of sales from each child-designed unit is donated to the organization.
• SokisahtelminorGTM or Marketing PartnerListed as a partner. Sokisahtel sells golden ribbons for the February 15 International Childhood Cancer Day awareness campaign and supports fundraising efforts.
• Lions Klubi Tallinn/VIAminorGTM or Marketing PartnerLions Club Tallinn/VIA donated 7 tablet computers (one for each patient room) to the Tallinn Children's Hospital oncology department, valued at approximately €2,000+.
• Childhood Cancer International – Europe (CCI Europe)coreStrategic or Co-development PartnerCCI Europe coordinated the Ukraine childhood cancer emergency fund. The organization, as a CCI member, participated in supporting Ukrainian children with cancer and their families during the war.

Scale indicators13 records

Recent moves6 records

Expansion highlights6 records

Broad incumbents

• Young Lives vs Cancer (formerly CLIC Sargent): UK charity supporting children and young people with cancer through financial grants, emotional support, and hospital-based social workers. Closely comparable operational model (family support coordination + hospital-embedded services + donations-only funding).
• American Childhood Cancer Organization (ACCO): The leading US national parent-led organization supporting children with cancer and their families through advocacy, education, and direct support services. Most comparable US analog to EVLVL's parent-association model serving families through coordinated services.
• St. Baldrick's Foundation: Large US-based charitable foundation funding pediatric oncology research and family support through signature head-shaving fundraising events. Comparable cause-marketing-driven fundraising model with hospital-embedded programs.
• Childhood Cancer Foundation of Canada: Canadian parent-led foundation providing financial assistance, advocacy, and informational support to families affected by childhood cancer. Another CCI-member peer with directly comparable mission and programs.

Direct peers

• Eesti Puuetega Inimeste Koda (EPIK): Estonian disability umbrella organization receiving direct funding from EVLVL's Pardiralli to support children with high care needs. Direct domestic peer at the intersection of family support, disability, and children.
• Eesti Vähiliit (Estonian Cancer Union): National Estonian cancer umbrella organization listed as a strategic partner of EVLVL. Collaborates on summer seminars and broader cancer awareness; comparable Estonian cancer charity footprint.
• Tartu Ülikooli Kliinikumi Lastefond (Tartu University Clinic Children's Fund): Estonian hospital-based children's charity partner of EVLVL. Co-funded the €350K CliniMACS Prodigy equipment with EVLVL and provides parallel financial support for pediatric medical care in Estonia.

Others

• Childhood Cancer International: The global umbrella network of which EVLVL became a full member in October 2020. Direct counterpart as the international coordinating body of 176 member organizations across 93 countries serving children with cancer.

Regional players

• MTÜ Eesti Laste ja Noorte Tukikeskus (Estonian Children and Youth Support Centre): Estonian non-profit delivering psychosocial support and family services to children and youth in distress. Direct regional peer with overlapping family-support and psychosocial service delivery focus.
• Associazione Italiana Genitori contro il Cancro (AIEOP parent groups): Network of Italian parent associations affiliated with pediatric oncology centers, paralleling EVLVL's hospital-embedded support structure at Tallinn Children's and Tartu University Clinic.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights8 records

Customer concentration

• YouTubeyoutube.com/@eestivahihaigetelastevanem6434
• Facebookfacebook.com/EVLVLiit/?locale=et_EE
• Instagraminstagram.com/explore/tags/eestivähihaigetelastevanemateliit/?hl=en

Revenue estimate

Valuation estimate

Number of profiles

Profiles4 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Eesti Vähihaigete Laste Vanemate Liit MTÜ