Tourette Syndrome (uk) Association Trading As Tourettes Action
Tourettes Action is the UK's only nationwide charity dedicated to supporting people with Tourette syndrome and their families, delivering helpdesk services, peer support groups, professional training, community events, research funding, and awareness campaigns funded entirely by voluntary donations.
- Company typePrivate
- Founded-
- HeadquartersFarnborough, United Kingdom
- Headcount1–10
- GTM typeB2C
- OfferingServices
What Tourette Syndrome (uk) Association Trading As Tourettes Action does
Tourettes Action (legal name: Tourette Syndrome (UK) Association, registered charity no. 1003317, company no. 2613993) is the only UK-wide charity dedicated solely to supporting individuals with Tourette syndrome (TS) and their families. Headquartered in Farnborough, Hampshire, the organisation delivers a comprehensive service portfolio: a helpdesk (live chat and email, Monday–Friday 10am–3pm), online support groups via Zoom, a national network of volunteer-led face-to-face support groups, residential community events (TICfest, TEENfest, Adult Weekends), eLearning courses, grants of up to £500, TA ID cards, the TS Passport documentation tool, and the TS Friendly Scheme accreditation programme for inclusive organisations. In 2024–2025 it reported supporting 4,600 individual enquiries and reaching over 2 million people through awareness campaigns, against a UK addressable population of more than 300,000 children and adults with tic disorders (approximately 1 in 100 school-aged children).
The underlying technology is service-led rather than product-led: a bespoke CMS website built with Storm12 supports eCommerce for donations, merchandise, and event ticketing; donation processing runs through PayPal and KindLink; online support groups are hosted on Zoom; and an event registration system (events.tourettes-action.org.uk) handles webinar bookings. Research capacity is delivered through a network of academic and clinical partnerships including the University of Nottingham (INTEND study on tic services, ORBIT digital therapy programme), University of Southampton, University of Birmingham, King's College London, University of Hertfordshire, University of Sussex, University of Minnesota (Tic Clips), Great Ormond Street Hospital, and funding from NIHR. Leadership comprises CEO Emma McNally, Chair of Trustees Marc Lewis (trustee since 2020), and Patron Daniel Katz MBE.
The business model is a donation-funded charity with no government support. Revenue streams include voluntary one-off and recurring donations, a £1/week lottery with a £25,000 top prize, professional training sessions priced £200–£300 (workplace, health and social care, education, lunch-and-learn formats), £5 webinar tickets, merchandise sales, and sponsored fundraising challenges (London Marathon, Great North Run, Move for Tourette's, Tea for Tourette's). Distribution is hybrid: digital self-service for donations, ecommerce, and webinars, paired with in-person support groups, residential events, and field-delivered training. The charity is registered with the Fundraising Regulator and offers CPD-certified training, with operational geographies limited to the United Kingdom.
Tourette Syndrome (uk) Association Trading As Tourettes Action firmographics
Firmographics- Name
- Tourette Syndrome (uk) Association Trading As Tourettes Action
- Legal name
- Tourette Syndrome (UK) Association
- Website
- https://tourettes-action.org.uk
- Company type
- Private
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Tourettes Action is the UK's only nationwide charity dedicated to supporting people with Tourette syndrome and their families, delivering helpdesk services, peer support groups, professional training, community events, research funding, and awareness campaigns funded entirely by voluntary donations.
- Ownership category
- akta.pro rank
Where Tourette Syndrome (uk) Association Trading As Tourettes Action is headquartered
LocationHeadquarters
- HQ city
- Farnborough
- HQ country
- United Kingdom
- HQ region
- Europe
Offices1 record
Markets served
Tourette Syndrome (uk) Association Trading As Tourettes Action business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D, Others
Revenue model
- Donations: Voluntary donations from individuals, families, and supporters. The charity receives no government funding and relies entirely on voluntary contributions.
- Lottery: Weekly lottery with tickets costing £1 per week, guaranteed weekly winner, top prize of £25,000.
- Professional Training Services: Training sessions for employers, health professionals, and education professionals, priced at £200-300 per session.
- Merchandise Sales: Sale of TA merchandise including awareness items, with orders sent Monday to Friday.
- Event Tickets: Ticket sales for webinars (£5) and other events.
- Fundraising Events: Sponsored challenges including London Marathon, Great North Run, Move for Tourette's, Tea for Tourette's, and general fundraising activities.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Other | Pay-as-you-go | Workplace Training: Supporting Neurodiversity - 1.5-2 hour virtual session for employers |
| Other | Pay-as-you-go | Business Awareness Session: Understanding TS - 45 min to 1 hour virtual session |
| Other | Pay-as-you-go | Lunch and Learn Session: Understanding TS |
| Other | Pay-as-you-go | Health and Social Care Training - 1-1.5 hour virtual training |
| Other | Pay-as-you-go | Teaching and Support Staff Training - 1-1.5 hour interactive webinar |
| Other | Pay-as-you-go | Parent/Carer Webinar: Supporting Young People with Tics and TS |
| Other | Pay-as-you-go | FND Webinar Tickets |
| Unit Pricing | Monthly | Tourettes Action Lottery |
Go-to-market motion1 record
Distribution channels6 records
Marketing channels11 records
Tourette Syndrome (uk) Association Trading As Tourettes Action product offering
Product offeringCore offering
Tourettes Action is a UK-wide charity that delivers direct support, information, education, and training services to people with Tourette syndrome, their families, and the professionals who work with them. Its offerings include a helpdesk, online and face-to-face support groups, eLearning courses, CPD-certified professional training for employers and health/education professionals, community events (TICfest, TEENfest, Adult Weekends), TA ID cards and TS Passport documents, equipment grants up to £500, webinars, research support services, awareness merchandise, and a weekly lottery.
Product overview
Tourettes Action is a support and research charity offering a comprehensive suite of services for people with Tourette syndrome and their families. The organization provides informational and educational resources (including eLearning courses and comic-book guides), peer support through online and face-to-face support groups hosted on Zoom, professional training programs for employers and healthcare/education professionals, community events (TICfest, TEENfest, Adult Weekends), TA ID cards and TS Passport documentation, grants for equipment, research support services, webinars, and a lottery. The portfolio centers on awareness, support, education, and advocacy rather than a technology product.
Differentiator
Problem solved
Functional benefit
Products and services
- Helpdesk Support Service Live chat and email support service available Monday to Friday 10am-3pm, providing direct assistance to people with Tourette syndrome and their families.
- Online Support Groups Video-based peer support groups hosted on Zoom, connecting the TS community across various segments including family, adults with TS, and specific age groups.
- In-Person Support Groups National network of face-to-face support groups facilitated by trained volunteers throughout the UK, with a minimum of two group leaders per group.
- Professional Training Programs Specialized CPD-certified training sessions including Workplace Training for Neurodiversity (£250), Business Awareness Sessions (£250), Lunch and Learn (£200), Health and Social Care Training (£300), Teaching and Support Staff Training, and Parent/Carer Webinars, delivered virtually to employers, health and education professionals.
- eLearning Courses Online learning modules including a general Understanding Tourette Syndrome course for anyone wanting to learn more about the condition, plus specialised training modules for professionals.
- Events and Community Programs Range of community events including TICfest family weekends, TEENfest for young people, Adult Weekends, Move for Tourette's fundraising challenges, Tea for Tourette's events, and awareness campaigns.
- TA ID Cards and TS Passport
Quantifiable outcome
- Reached over 2 million people through awareness campaigns
- +2 more outcomes
Companies that use Tourette Syndrome (uk) Association Trading As Tourettes Action
Customer profileNamed customers4 records
Segments6 records
Ideal customer profiles3 records
Tourette Syndrome (uk) Association Trading As Tourettes Action technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration4 records
Feature3 records
Tourette Syndrome (uk) Association Trading As Tourettes Action partnerships and signals
Strategic signalPartnerships
16 partnerships are on record, tiered minor, flagship and core.
- FND HopeminorPartner organization for FND awareness webinar. Carolyn Sullins from FND Hope served as guest speaker for webinar on Functional Neurological Disorder.
- ITVflagshipTourettes Action has teamed up with ITV and award-winning production company 72 Films to develop a new documentary series focusing on young people living with Tourette syndrome. Freddie Flintoff is set to front 'Freddie Flintoff: Understanding Tourette's', inspired by BAFTA-winning film I Swear. The series will follow individuals and families across the UK, offering insight into life with Tourette's.
- 72 FilmsflagshipAward-winning production company partnered with Tourettes Action and ITV for the documentary series on Tourette syndrome. Responsible for production of Freddie Flintoff: Understanding Tourette's.
- Storm12coreHampshire-based web design agency that redesigned and developed the Tourettes Action website. Provided custom CMS, ecommerce functionality, and dynamic navigation tailored to the charity's brand and functional needs.
- University of NottinghamcoreResearch partner leading the INTEND study on tic services improvement. Also working on ORBIT digital therapy programme, online learning resources co-designed with GPs, and various other TS research projects. Led by Professor Maddie Groom.
- University of SouthamptonminorResearch partner conducting study on the impact of interoception on tics, anxiety and quality of life in young people with TS and functional tic-like behaviours. Led by Dr Valerie Brandt.
- University of BirminghamminorResearch partner with multiple studies including brain imaging research with Clare Eddy and Andrea Cavanna, and coloured overlays research with Dr Amanda Ludlow and Professor Arnold Wilkins.
- Kings College LondonminorResearch partner conducting sleep studies and research examining anxiety and low mood in children and young people with Tourette syndrome or Chronic Tic Disorders.
- University of HertfordshireminorResearch partner conducting studies on eating and dietary behaviours in children and adults with TS.
- University of SussexminorResearch partner for brain scanning studies examining brain activity in adults with and without TS.
- University of MinnesotaminorResearch partner for Tic Clips project studying tics through video recordings to develop digital tic detection tools. Led by Dr Christine Conelea.
- Great Ormond Street Hospital NHS TrustcoreClinical partner with Honorary Consultant Clinical Psychologists including Tara Murphy who contributed to European clinical guidelines and ORBIT trial.
- TS Friendly Scheme OrganizationsminorOrganizations that have completed TA training and committed to supporting people with TS. Includes various UK businesses and institutions that have achieved TS Friendly status.
- Avon Tyrrell Outdoor CentreminorAdventure centre venue for Adult Weekend events in February 2026 in Christchurch, Dorset.
- YHA Grinton LodgeminorYouth Hostel venue for Adult Weekend events in Yorkshire.
- Youlbury Action and AdventureminorAdventure activity venue for TEENfest 2026 in Oxfordshire.
Scale indicators8 records
Recent moves6 records
Expansion highlights7 records
Tourette Syndrome (uk) Association Trading As Tourettes Action competitors and assessment
Company assessmentDirect peers
- Different Strokes: UK charity supporting younger stroke survivors with peer support groups, information resources, and exercise-based programmes — similar niche-condition, support-group-led operating model.
- Epilepsy Action: UK charity providing support, information, training, and research funding for a specific neurological condition, with similar helpdesk, local groups, and professional training offerings to Tourettes Action.
- Ataxia UK: UK charity for a rare neurological condition delivering support services, research funding, and information resources — comparable small-scale, specialist-condition charity profile.
- MS Society: Major UK neurological-condition charity with parallel activities — research funding, support helpline, local groups, professional training, and awareness campaigning — operating at larger scale but with the same functional model.
- Headway - the brain injury association: UK neurological-condition charity operating a national helpline, local branches, professional training, and research funding — a near-analogue operating model to Tourettes Action in a related brain/neurology category.
- Migraine Trust: UK charity focused on a specific neurological condition, providing information resources, support services, research funding, and professional education — closely comparable niche-specialist charity model.
- Motor Neurone Disease Association: UK charity dedicated to a specific neurological condition delivering support services, research grants, professional education, and advocacy; structurally similar to Tourettes Action in mission, scope, and delivery format.
- Parkinson's UK: UK-wide registered charity dedicated to a specific neurological condition, combining research funding, support services, professional training, and advocacy — directly comparable structure and operating model to Tourettes Action.
Broad incumbents
- Mencap: Major UK disability charity providing support services, professional training, family resources, and advocacy; competes for the same donor pool and overlapping employer-training buyer.
- Mind: Large UK mental health charity with overlapping audiences (individuals, families, employers, healthcare professionals) and similar service pillars (helpline, training, advocacy); much broader in scope than Tourettes Action but competitively relevant for donor share.
Market position
Strengths4 records
Weaknesses4 records
Competitive moat5 records
Key risks5 records
Key highlights6 records
Customer concentration
Tourette Syndrome (uk) Association Trading As Tourettes Action social profiles
Digital presenceTourette Syndrome (uk) Association Trading As Tourettes Action financial estimates
Financial estimateRevenue estimate
Valuation estimate
Tourette Syndrome (uk) Association Trading As Tourettes Action leadership team
Management profileNumber of profiles
Profiles3 records
Tourette Syndrome (uk) Association Trading As Tourettes Action funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Tourette Syndrome (uk) Association Trading As Tourettes Action M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Tourette Syndrome (uk) Association Trading As Tourettes Action
What does Tourette Syndrome (uk) Association Trading As Tourettes Action do?
Tourettes Action is a UK-wide charity that delivers direct support, information, education, and training services to people with Tourette syndrome, their families, and the professionals who work with them. Its offerings include a helpdesk, online and face-to-face support groups, eLearning courses, CPD-certified professional training for employers and health/education professionals, community events (TICfest, TEENfest, Adult Weekends), TA ID cards and TS Passport documents, equipment grants up to £500, webinars, research support services, awareness merchandise, and a weekly lottery.
Is Tourette Syndrome (uk) Association Trading As Tourettes Action a public or private company?
Tourette Syndrome (uk) Association Trading As Tourettes Action is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Tourette Syndrome (uk) Association Trading As Tourettes Action founded?
Tourette Syndrome (uk) Association Trading As Tourettes Action was founded in -1. It employs 1 to 10 people.
Where is Tourette Syndrome (uk) Association Trading As Tourettes Action based?
Tourette Syndrome (uk) Association Trading As Tourettes Action is headquartered in Farnborough, United Kingdom, in the Europe region.
How does Tourette Syndrome (uk) Association Trading As Tourettes Action make money?
Six revenue lines are on record. Donations are the primary driver. The others are lottery, professional Training Services, merchandise Sales, event Tickets and fundraising Events.
Who are Tourette Syndrome (uk) Association Trading As Tourettes Action's main competitors?
Direct peers on record are Different Strokes, Epilepsy Action, Ataxia UK, MS Society, Headway - the brain injury association, Migraine Trust, Motor Neurone Disease Association and Parkinson's UK. Broad incumbents are Mencap and Mind.
Does Tourette Syndrome (uk) Association Trading As Tourettes Action have an API?
No public API is recorded for Tourette Syndrome (uk) Association Trading As Tourettes Action.