The Renal Medullary Carcinoma Research Foundation

What The Renal Medullary Carcinoma Research Foundation does

The Renal Medullary Carcinoma Research Foundation (RMCRF) is a 501(c)(3) nonprofit organization (EIN 85-1036225) founded in 2020 and headquartered in Redondo Beach, California. It is dedicated to raising awareness of Renal Medullary Carcinoma (RMC) — a rare, aggressive kidney cancer linked to Sickle Cell Trait — and Sickle Cell Disease (SCD), and to funding research into treatments and clinical trials for these conditions. The foundation's work is organized around three stakeholder audiences: patients and families seeking information and support, medical professionals seeking research and treatment resources, and the broader research community that may apply for foundation grants.

The foundation's underlying technology footprint is a digital platform centered on its Wix-hosted website (thermcresearchfoundation.org), which serves as the hub for educational content, clinical trial links, grant proposal submissions, and donation collection via Donorbox. It maintains an organic social media presence on Instagram (@thermcrf) and Twitter (@thermcrf) for awareness campaigns and community engagement. There is no proprietary software, mobile application, or API product; technology functions as a communications and donation infrastructure rather than a product offering.

RMCRF's business model is donation-based and non-commercial. Revenue consists of voluntary charitable contributions from individual donors, supporters, and potentially institutional funders, with grants disbursed to researchers as the primary outbound use of funds. The go-to-market motion is community-led, relying on awareness campaigns, volunteer mobilization, and partnerships with RMC Alliance (a related advocacy organization) and RyseUp (a local community organization). The foundation does not sell products or services, has no disclosed pricing model, and publishes no revenue or financial figures publicly.

Name

The Renal Medullary Carcinoma Research Foundation

Legal name

The Renal Medullary Carcinoma Research Foundation

Website

https://rmcresearchfoundation.org

Company type

Private

Founded year

2020

Operating status

Operating

Headcount range

1–10 employees

Short description

The Renal Medullary Carcinoma Research Foundation (RMCRF) is a 501(c)(3) nonprofit that raises awareness, provides patient and medical-professional resources, and funds research grants for Renal Medullary Carcinoma and Sickle Cell Disease, relying on donations via its website and partnerships with RMC Alliance and RyseUp.

Ownership category

akta.pro rank

Product category

Rare Disease Research Nonprofit

NAICS

Voluntary Health Organizations (813212)

akta.pro primary industry

Health & Medical Research Grantmaking Foundations (BPAGAKAL)

Keywords

• Rare disease research
• Cancer research funding
• Sickle cell disease
• Patient advocacy services
• Medical research grants

Headquarters

HQ city

Redondo Beach

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Technology or R&D, Marketing or Sales, Others

Revenue model

1. Donations and Charitable Contributions: The foundation receives donations from individual donors, supporters, and potentially institutional funders. It operates as a 501(c)(3) nonprofit organization (EIN: 85-1036225) relying on charitable contributions to fund research grants, awareness programs, and operational activities.

Go-to-market motion1 record

Distribution channels2 records

Marketing channels5 records

Core offering

The Renal Medullary Carcinoma Research Foundation (RMCRF) is a 501(c)(3) nonprofit that funds research grants, raises awareness, and provides educational resources for Renal Medullary Carcinoma (RMC) and Sickle Cell Disease (SCD). It offers patient and family support resources, medical professional information, and research grant programs, and connects patients with clinical trials and treatment options.

Product overview

The Renal Medullary Carcinoma Research Foundation is a 501(c)(3) nonprofit organization dedicated to bringing awareness to the latest research and treatments for Renal Medullary Carcinoma (RMC) and Sickle Cell Disease. The foundation offers programs and services including patient and family resources, medical professional resources, research and grant programs, volunteer opportunities, and donation capabilities. The organization operates related initiatives such as RyseUp (a local organization for involvement) and partners with RMC Alliance. Rather than a technology product company, this entity functions as a research advocacy and support organization providing information, community resources, and funding for medical research.

Differentiator

Problem solved

Functional benefit

Products and services

• Patient and Family Resources Educational content, disease information, and support resources about Renal Medullary Carcinoma and Sickle Cell Disease, offered to patients, families, and caregivers.
• Medical Professional Resources Research updates, clinical trial information, treatment protocols, and research links curated for healthcare providers, clinicians, and researchers in oncology and related fields.
• Research and Grant Program Grant proposal submissions and research funding opportunities for researchers and academic institutions conducting studies on Renal Medullary Carcinoma and Sickle Cell Disease.
• Charitable Donation Program Voluntary charitable contributions accepted from individual donors, supporters, and institutional funders via the foundation's donation page, supporting RMC and SCD research, awareness, and operations.
• Volunteer Opportunities Volunteer engagement program enabling community members to support foundation activities, including involvement with local partner organization RyseUp.

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Two partnerships are on record, tiered core.

• RMC AlliancecoreOthersRMC Alliance is a related organization focused on Renal Medullary Carcinoma awareness and support. The foundation maintains a link to RMC Alliance on its website, indicating a collaborative relationship in serving the RMC community.
• RyseUpcoreOthersRyseUp is a partner organization mentioned in the foundation's local organization outreach efforts. The foundation encourages involvement in RyseUp as part of its community engagement strategy, suggesting a collaborative partnership in awareness and support activities.

Recent moves4 records

Expansion highlights4 records

Broad incumbents

• American Kidney Fund: The American Kidney Fund is an established national nonprofit supporting kidney disease patients and research. It competes for donor attention in the kidney-disease category overlapping with RMCRF.
• Cancer Research Institute: The Cancer Research Institute is a long-standing nonprofit funding immunology and cancer research. It is comparable as a cancer-focused research grantmaker, though much larger and broader in scope.
• National Kidney Foundation: The National Kidney Foundation is a large established nonprofit addressing kidney disease broadly, including research funding and patient education. It covers the broader kidney-disease category in which RMC sits.
• National Organization for Rare Disorders (NORD): NORD is a large umbrella advocacy organization for rare diseases. While not focused on RMC specifically, it serves overlapping patient communities and operates comparable research-grant and awareness programs.
• V Foundation for Cancer Research: The V Foundation is a large, well-known cancer research grantmaking nonprofit. It represents a comparable grantmaking and awareness model, though at much greater scale and across all cancer types.

Direct peers

• RMC Alliance: RMC Alliance is a directly comparable advocacy organization focused on Renal Medullary Carcinoma awareness and support. It is explicitly listed as a core partner of RMCRF and serves the same patient and family population.
• Sickle Cell Disease Foundation of America (SCDAA): SCDAA is a national nonprofit dedicated to sickle cell disease education, advocacy, and research support. It overlaps with RMCRF on the Sickle Cell Trait / SCD side of the foundation's mission and serves a related patient population.
• Rare Cancer Research Foundation: The Rare Cancer Research Foundation focuses on advancing research and treatment options for rare cancers. It is highly comparable to RMCRF given RMC's status as a rare kidney cancer.

Others

• RyseUp: RyseUp is a community organization referenced as a core partner of RMCRF in local outreach. It is adjacent rather than competitive, serving as a community engagement channel rather than a research grantmaker.

Regional players

• Sickle Cell Foundation of Georgia: A regional nonprofit serving the sickle cell community in Georgia. It is comparable on the SCD mission side but operates in a different geography from RMCRF's California base.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat3 records

Key risks5 records

Key highlights5 records

Customer concentration

• Xx.com/thermcrf
• Instagraminstagram.com/thermcrf
• LinkedInlinkedin.com/company/thermcrf

Compliance1 record

Revenue estimate

Valuation estimate

Number of profiles

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about The Renal Medullary Carcinoma Research Foundation