The Epilepsy Alliance Ohio

What The Epilepsy Alliance Ohio does

The Epilepsy Alliance Ohio is a 501(c)(3) nonprofit organization founded in 1953 and headquartered in Cincinnati, Ohio, that provides a comprehensive portfolio of direct services for individuals and families affected by epilepsy across Ohio, Kentucky, and Indiana. Its service footprint spans 64 Ohio counties, 10 Kentucky counties, and 2 Indiana counties, covering an estimated 11.69 million people, with operational offices in Cincinnati (895 Central Avenue, Suite 550) and Columbus (3857 N. High St., Suite 206). The organization is led by Executive Director Kathy Schrag and governed by a board including President Jack Freyvogel, Vice President Alyssa Whitt, Treasurer John Wood, and Secretary Dale Dean.

The organization's program portfolio covers the full epilepsy care continuum: free counseling by licensed social workers, individual and family support, monthly in-person and Zoom support groups, advocacy on ADA, workplace, and IEP matters, and an Emergency Assistance Fund providing financial help with medications and travel. It also operates Camp Flame Catcher (a therapeutic youth camp held at Camp Kern), the S.M.A.R.T. self-management program (an 8-week virtual course), Studio E art therapy, CEU training seminars for healthcare professionals, school-personnel training, the Kids on the Block puppet program, and four residential group homes (Arborview, Benton Center, Cedar Creek, Sycamore Vista) serving 32 adults with epilepsy and developmental disabilities, plus a connected Vocational Day Activity Program.

Revenue is generated through a diversified mix of foundation grants (13+ named funders), individual donations, corporate sponsorships (Kroger Community Rewards, Jazz Pharmaceuticals, SK Life Science, Neurelis), and fundraising events including the Taylor Huth Memorial Golf Tournament, Seize Hope Gala, Sand Volleyball Tournament, Emerald Miles 5K Run/Walk, and Stroll for Epilepsy. The organization is a founding member of Epilepsy Alliance America, a national network providing shared training and advocacy infrastructure. Most core services are delivered free of charge; fees apply to camps ($200-$400), conference attendance ($10-$30), and event participation.

Name

The Epilepsy Alliance Ohio

Legal name

Epilepsy Alliance Ohio

Website

https://epilepsy-ohio.org

Company type

Private

Founded year

1953

Operating status

Operating

Short description

Epilepsy Alliance Ohio is a 501(c)(3) nonprofit founded in 1953 that provides counseling, support groups, advocacy, residential group homes, camps, emergency financial assistance, and epilepsy education to people with epilepsy and families across 76 Ohio, Kentucky, and Indiana counties.

Ownership category

akta.pro rank

Product category

Epilepsy Support Services

NAICS

Other Individual and Family Services (624190), Residential Intellectual and Developmental Disability Facilities (62321), Services for the Elderly and Persons with Disabilities (62412)

SIC

Services-Social Services (8300), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Mental Health & Crisis Support Services (BPAGACAD)

akta.pro secondary industries

Epilepsy & Seizure Disorders (HLAKAIAB), Mental Health & Crisis Support Services (BPAGAEAH)

Keywords

• Epilepsy support services
• Nonprofit health services
• Disability advocacy services
• Residential care services
• Community health education

Headquarters

HQ city

Cincinnati

HQ country

United States

HQ region

North America

Offices2 records

Markets served

GTM type

B2B and B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Foundation Grants: The organization receives grants from various foundations including Anonymous ($20,000), The Columbus Foundation ($10,000), Millstone ($40,000), Harry C. Moores ($10,000), Jack J. Smith Charitable Trust ($5,000), Unnewehr Foundation ($15,000), Epilepsy Wellness Advocates ($50,000 for Emergency Assistance Fund), Wohlegmuth Herschede ($5,000), Meijer ($500), Edelweiss Foundation ($15,000), Charles Dater Foundation ($20,000), Cincinnati Children's Hospital ($1,500), and The Spaulding Foundation ($25,000).
2. Individual Donations: The organization accepts individual donations through its website and various donation programs including the Kroger Community Rewards program where shoppers can designate the Alliance to receive a portion of their purchases.
3. Event Fundraising: The organization hosts multiple fundraising events including the Taylor Huth Memorial Golf Tournament, Seize Hope Gala, Sand Volleyball Tournament, Emerald Miles 5K Run/Walk, and Stroll for Epilepsy.
4. Conference and Training Fees: Fees charged for events such as the Living with Epilepsy Conference ($10 for conference only, $30 with CEUs) and CEU Training Seminars for professionals.

Pricing tiers

Go-to-market motion1 record

Distribution channels5 records

Marketing channels8 records

Core offering

Epilepsy Alliance Ohio is a nonprofit service organization that provides direct support programs for individuals and families affected by epilepsy, including licensed individual and family counseling, in-person and virtual support groups, residential group homes for adults, therapeutic camping programs, emergency financial assistance, advocacy for legal and workplace rights, and community education and professional training. Services are delivered primarily through offices in Cincinnati and Columbus, four residential group homes, and online channels, and reach more than 60 counties across Ohio, Kentucky, and Indiana.

Product overview

Epilepsy Alliance Ohio is a non-profit organization offering a comprehensive portfolio of direct service programs for individuals and families affected by epilepsy. The organization operates a single integrated service model consisting of multiple interconnected programs: Advocacy services provide legal rights support and discrimination assistance; Counseling Services offer individual and family support through licensed professionals; Community Education delivers training programs in schools and workplaces; and Support Groups provide peer connection. Additional programs include Residential Group Homes for adults, Camp Flame Catcher for youth, the S.M.A.R.T. Program for self-management education, Art Therapy, Vocational Day Activity Program, Emergency Assistance Fund, Taylor Huth Memorial Scholarship, and CEU Training Seminars for professionals. The organization serves 64 Ohio counties, 10 Kentucky counties, and 2 Indiana counties through offices in Cincinnati and Columbus.

Differentiator

Problem solved

Functional benefit

Brands

• Camp Flame Catcher: A therapeutic camping program designed to give children with epilepsy a typical camping experience with trained epilepsy specialists.
• S.M.A.R.T. Program
• Studio E - The Epilepsy Art Therapy Program

Products and services

• Counseling Services Individual and family counseling services provided by licensed social workers and professional counselors for persons with epilepsy, including newly diagnosed individuals and ongoing support.
• Advocacy Program Advocacy services helping individuals with epilepsy fight discrimination in employment, education, and access to benefits, including assistance with IEP meetings, workplace accommodations, and Americans with Disabilities Act protections.
• Support Groups Monthly support groups for adults with epilepsy and parents/caregivers, available in-person in Columbus and Cincinnati and virtually via Zoom.
• Community Education Educational programs delivered in schools, workplaces, and public settings to teach seizure recognition, first aid response, and epilepsy awareness, including programs for school personnel and students.
• Camp Flame Catcher Therapeutic camping program for children with epilepsy held at Camp Kern, offering typical camp activities with trained epilepsy specialists on-site.
• Residential Group Homes Four residential group homes (Arborview, Benton Center, Cedar Creek, Sycamore Vista) providing independent living training for adults with epilepsy and developmental disabilities.
• CEU Training Seminars Monthly professional seminars offering continuing education credits for nurses, counselors, social workers, developmental disability workers, and nursing home administrators on mental health topics.
• Emergency Assistance Fund Financial assistance program providing support for medication, travel expenses, housing costs, and other epilepsy-related expenses for individuals experiencing financial hardship.
• S.M.A.R.T. Program An 8-week virtual course for adults with epilepsy focusing on practical strategies for managing physical and emotional well-being, including educational and behavioral interventions for epilepsy self-management.
• Art Therapy (Studio E) Group art therapy sessions for adults with epilepsy led by licensed art therapists, offering creative expression and peer connection in a safe group setting.
• Taylor Huth Memorial Scholarship Program Annual $2,000 scholarship for students with epilepsy in Ohio or Northern Kentucky pursuing college or graduate education.
• Vocational Day Activity Program Daily educational, vocational, and recreational day program for adults with epilepsy and developmental disabilities focusing on independent living skills, vocational training, and community inclusion.
• Information and Referral Services Phone, email, and in-person information services provided by epilepsy-trained social workers and counselors addressing educational, legal, and employment inquiries.
• Seizure First Aid Training for School Personnel On-demand training program for school personnel available 24/7, covering seizure recognition, first aid response, treatment options, and rescue medication administration.
• Kids on the Block Puppet Program Internationally acclaimed puppet show program featuring a character with epilepsy to educate children in grades K-4 about epilepsy and promote acceptance.
• Take Charge of the Facts Educational training program for teenagers ages 12-19 covering epilepsy basics, seizure types, and seizure first aid response.
• School Personnel Training Program Training program for school personnel providing strategies and resources to better manage students with seizures, including seizure action plan development.

Quantifiable outcome

• Served population of 11.69 million across 76 counties
• +3 more outcomes

Named customers6 records

Segments5 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Six partnerships are on record, tiered core and minor.

• Kroger CompanycoreGTM or Marketing PartnerKroger's Community Rewards program allows shoppers to designate Epilepsy Alliance Ohio as their charity of choice. Kroger donates a portion of purchases (up to $300 per card per quarter) back to the Alliance. Agency numbers: 82140 for Cincinnati, BP197 for Columbus.
• Greenwich Biosciences (Jazz Pharmaceuticals)coreGTM or Marketing PartnerPartnership to provide 3,000 Seizure ID products to people with epilepsy through the Seizure ID Program, a one-of-a-kind campaign in the epilepsy community.
• Epilepsy Alliance AmericacoreStrategic or Co-development PartnerEAO is a proud founding member of Epilepsy Alliance America, a national network of epilepsy organizations providing shared resources, training programs, and advocacy.
• SK Life ScienceminorGTM or Marketing PartnerSK Life Science is a sponsor of Epilepsy Alliance Ohio and its programs.
• Camp KernminorOthersCamp Kern provides the venue for Camp Flame Catcher on its wooded grounds in Warren County, near Kings Island Amusement Park.
• Ohio Department of Developmental DisabilitiesminorStrategic or Co-development PartnerPartnership to create video series on seizures, medications, and management delivered by Karen Brown from Epilepsy Alliance Ohio.

Scale indicators5 records

Recent moves6 records

Expansion highlights5 records

Direct peers

• CURE Epilepsy (Citizens United for Research in Epilepsy): A national nonprofit focused on epilepsy research funding and patient education. Comparable as an epilepsy-focused nonprofit competing in the same donor market and aligned on advocacy and education programming.
• Child Neurology Foundation: A nonprofit supporting children with neurologic conditions including epilepsy. Comparable in delivering family education, support resources, and professional training closely aligned with EAO's pediatric and family programming.
• Epilepsy Alliance America: A national network of independent epilepsy organizations of which EAO is a founding member. Directly comparable in mission (epilepsy services, training, advocacy) and provides shared resources, training programs, and a national voice for affiliated state-level organizations like EAO.
• Epilepsy Foundation of America: The largest national epilepsy advocacy and services organization. Directly comparable as a nonprofit providing epilepsy-focused counseling, education, advocacy, and research support, and competes with EAO for the same donor and grant dollars.

Broad incumbents

• American Epilepsy Society: A professional medical society advancing epilepsy research and clinician education. Comparable as a broader incumbent in the epilepsy ecosystem, though focused on professionals rather than the direct-service model EAO uses.

Regional players

• Epilepsy Foundation of Michigan: A state-level epilepsy services nonprofit in Michigan delivering counseling, camp, and advocacy programs. Closely mirrors EAO's operating model and service mix but in a different state, making it a regional rather than direct competitor.
• Epilepsy Foundation Greater Chicago: An affiliate providing epilepsy services in the Greater Chicago region. Comparable in mission and service portfolio (counseling, education, advocacy) but operates outside EAO's primary Ohio service area.

Emerging players

• Danny Did Foundation: A nonprofit focused on seizure first aid education and Sudden Unexpected Death in Epilepsy (SUDEP) awareness. Comparable as a smaller, mission-aligned epilepsy nonprofit operating in overlapping awareness and education spaces.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks5 records

Key highlights7 records

Customer concentration

• Facebookfacebook.com/EpilepsyOhio
• Instagraminstagram.com/eallianceo
• LinkedInlinkedin.com/company/epilepsy-ohio

Revenue estimate

Valuation estimate

Number of profiles

Profiles10 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about The Epilepsy Alliance Ohio