Epilepsy Alliance America

Name

Epilepsy Alliance America

Legal name

Epilepsy Alliance America

Website

https://epilepsyallianceamerica.org

Company type

Private

Founded year

2018

Operating status

Operating

Headcount range

1–10 employees

Short description

Epilepsy Alliance America is a national 501(c)(3) nonprofit federation of 200+ member organizations delivering epilepsy support, advocacy, training, and direct services to patients, families, caregivers, schools, and law enforcement across the United States.

Ownership category

akta.pro rank

Product category

Epilepsy Patient Advocacy and Support Services

NAICS

Social Advocacy Organizations (8133), Educational Support Services (611710), Child and Youth Services (62411)

SIC

Services-Social Services (8300), Services-Membership Organizations (8600), Services-Educational Services (8200)

akta.pro primary industry

Epilepsy & Seizure Disorders (HLAKAIAB)

akta.pro secondary industry

Disability Rights & Accessibility Advocacy (BPAGAFAF)

Keywords

• Epilepsy support services
• Patient advocacy organizations
• Seizure first aid training
• Nonprofit health services
• Caregiver support programs

Headquarters

HQ city

Baton Rouge

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure, Others

Revenue model

1. Donations and Contributions: The organization relies on donations from individuals, corporations, and foundations to fund operations and programs.
2. Membership Fees: Member organizations pay dues to be part of the Epilepsy Alliance America network, contributing to operational costs.

Go-to-market motion1 record

Distribution channels4 records

Marketing channels6 records

Core offering

Epilepsy Alliance America is a national nonprofit that provides free services, training, resources, and advocacy to people with epilepsy, their families, caregivers, schools, and communities. Its core offerings include on-demand seizure first aid training, the Seizure ID Program, support groups, camp programs, scholarships, medication cost assistance, and management of the Seizure Action Plan Coalition.

Product overview

Epilepsy Alliance America operates as a national nonprofit organization providing a comprehensive suite of epilepsy support services rather than a traditional technology product. The organization offers multiple interconnected programs including on-demand seizure first aid training (for school personnel, general audiences, and law enforcement), the Seizure ID Program, Seizure Alert and Detection Devices information, and rescue medication resources. Support services include various support groups (adult, young adult, gender-specific, parents, Spanish-language), camp programs like Camp Flame Catcher, the HOBSCOTCH self-management program, medication cost assistance, special education advocacy, and scholarship programs. Additional resources include a webinar library, podcasts, the Seizure Prepared U campus program, and an online member portal for affiliated organizations. The organization also manages the Seizure Action Plan Coalition (SAPC) as a key initiative.

Differentiator

Problem solved

Functional benefit

Products and services

• On-Demand Seizure First Aid Training for School Personnel Comprehensive online training program available 24/7 that teaches school personnel how to recognize seizures and respond appropriately with first aid techniques.
• On-Demand Seizure First Aid Training for Any Audience General seizure first aid training available on-demand for any audience, covering seizure recognition and response techniques for the general public.
• On-Demand Seizure Recognition and Response Training for Law Enforcement Officers Specialized training program designed for law enforcement officers to recognize seizures and respond appropriately during encounters with individuals who have epilepsy.
• Seizure Action Plan Coalition (SAPC) Coalition managed by Epilepsy Alliance America that provides resources and advocacy for seizure action plans, helping individuals with epilepsy create personalized safety plans.
• Seizure ID Program Program that provides seizure identification wristbands and products, offering a $35 GetMyID coupon for a seizure ID wristband or other product of choice.
• Support Groups Various virtual and in-person support groups including adult support groups, young adult peer support groups, women's groups, men's groups, parents groups, and Spanish-language groups serving different demographics.
• Camp Programs Specialized camp programs for children with epilepsy such as Camp Flame Catcher, providing typical camping experiences with trained epilepsy specialists, including spring, summer residential, and fall camp sessions.
• HOBSCOTCH Self-Management Program Self-management program within the Managing Epilepsy Well Network (MEW) designed to help individuals manage their epilepsy effectively.
• Medication Cost Assistance Resources and assistance programs to help individuals with epilepsy afford their medications.
• Special Education Advocacy Advocacy services to help families navigate special education systems and ensure appropriate accommodations for students with epilepsy.
• Scholarships for Students with Epilepsy Scholarship programs supporting students with epilepsy in their educational pursuits.
• Lorna Myers PNES Scholarship Fund Scholarship fund specifically for individuals affected by Psychogenic Non-Epileptic Seizures (PNES).
• Seizure Prepared U Program designed to prepare college campuses for seizure safety and awareness, providing resources and training for higher education settings.
• Find an Epilepsy Center Directory Resource to help individuals locate epilepsy centers and specialized healthcare providers in their area.
• Rescue Medications and Therapies Information Information and resources about rescue medications and therapies for seizure emergencies.
• Member Portal Online portal for member organizations of Epilepsy Alliance America to access exclusive resources, training materials, and member communications.
• Webinar Library Archive of educational webinars covering various epilepsy-related topics for patients, families, and healthcare providers.

Quantifiable outcome

• Free online Seizure First Aid Training available 24/7 for school personnel
• +1 more outcomes

Named customers7 records

Segments6 records

Ideal customer profiles5 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Integration7 records

Partnerships

Eleven partnerships are on record, tiered core and major.

• Seizure Action Plan Coalition (SAPC)coreStrategic or Co-development PartnerEpilepsy Alliance America is the managing organization of the Seizure Action Plan Coalition (SAPC), a coalition focused on raising awareness about seizure action plans and their importance for people with epilepsy.
• National Association of School Nurses (NASN)majorStrategic or Co-development PartnerEpilepsy Alliance America participated in the NASN 2026 Conference held at Caesars Palace in Las Vegas, Nevada, demonstrating partnership with school nurse organizations to advance seizure safety in schools.
• 200+ Healthcare Organizations (Telehealth Initiative)majorGTM or Marketing PartnerEpilepsy Alliance America stood with more than 200 healthcare organizations in the Telehealth Voters Pledge delivered to Congress, advocating to protect telehealth access.
• CDC Epilepsy ProgramcoreStrategic or Co-development PartnerPartnership with the Centers for Disease Control and Prevention's Epilepsy Program to advance public health initiatives related to epilepsy.
• Epilepsy Alliance LouisianacoreChannel Partner/ Reseller/ DistributorFounding member organization of Epilepsy Alliance America since 2018. Established in 1977, it is the only agency in Louisiana exclusively providing outreach, education and advocacy to individuals with epilepsy.
• Epilepsy Alliance FloridacoreChannel Partner/ Reseller/ DistributorFounding member organization of Epilepsy Alliance America. Provides comprehensive epilepsy services in Florida including support groups, education, and advocacy.
• Epilepsy Alliance OhiocoreChannel Partner/ Reseller/ DistributorFounding member organization of Epilepsy Alliance America. Provides services including support groups, camp programs (Camp Flame Catcher), and education in Ohio.
• Epilepsy Alliance North CarolinacoreChannel Partner/ Reseller/ DistributorFounding member organization of Epilepsy Alliance America. Provides epilepsy services in North Carolina.
• Epilepsy Alliance West Central New York (part of Empowering People's Independence)coreChannel Partner/ Reseller/ DistributorFounding member organization serving thousands of children and adults in 22 counties in the Finger Lakes, Central and Southern Tier regions of New York State for over 40 years.
• Young Adults With Epilepsy (YAWE)majorChannel Partner/ Reseller/ DistributorMember organization since 2025, focused on providing peer support groups for young adults with epilepsy, including gender-specific groups and Spanish-language support.
• Epilepsy Advocacy NetworkmajorChannel Partner/ Reseller/ DistributorMember organization since 2021 (Illinois). Provides support groups, E.P.I.C. Empowerment program for kids and teens, and advocacy services.

Scale indicators3 records

Recent moves6 records

Expansion highlights6 records

Emerging players

• Family Voices: National family-led nonprofit supporting children and youth with special healthcare needs; overlapping with EAA on family-centered navigation, special education advocacy, and youth transition-of-care programs for chronic conditions including epilepsy.

Direct peers

• Epilepsy Foundation: Largest US epilepsy advocacy and patient services nonprofit; competes head-to-head with Epilepsy Alliance America for donor dollars, member patients, and policy influence across the same epilepsy community, with a longer operating history and broader national infrastructure.
• CURE Epilepsy: Disease-specific nonprofit focused on funding epilepsy research and patient advocacy; comparable disease focus and donor base to EAA, with similar revenue scale derived from individual contributions, foundations, and corporate partnerships in pharma.
• Tuberous Sclerosis Alliance: Disease-specific nonprofit for tuberous sclerosis complex (where epilepsy is a primary comorbidity); highly comparable small-disease advocacy model with member organization support, family education, seizures-focused programming, and federal policy advocacy.
• Child Neurology Foundation: Nonprofit supporting children with neurological conditions including epilepsy, providing family education, advocacy, and transition-of-care programs; directly comparable in mission (pediatric neurology patient/family services and clinician education) and membership-driven model.

Broad incumbents

• American Academy of Neurology: Largest US professional neurology society including epilepsy specialists; overlapping with EAA on physician engagement, CME education, and clinical guidelines, but serving clinicians rather than patients/families as primary constituents.
• National Organization for Rare Disorders (NORD): Large US umbrella advocacy nonprofit serving patients with rare diseases including rare epilepsies; comparable mission (advocacy, education, patient assistance programs, member organization network) but broader disease focus than EAA's epilepsy-specific niche.
• American Epilepsy Society: Professional society of clinicians and researchers in epilepsy; broader incumbent in the same epilepsy category that overlaps with EAA on healthcare-provider engagement, CME programming, and policy advocacy, but operated primarily for clinicians rather than patients/families.
• International League Against Epilepsy: Global umbrella organization for epilepsy professionals and patient advocacy groups; structurally analogous national-umbrella role (though international in scope) and overlapping with EAA on seizure action plans, education, and standards-setting for the epilepsy community.

Others

• National Health Council: Umbrella membership organization for patient advocacy groups; EAA-relevant as a peer in the nonprofit/health-advocacy ecosystem, providing coalition resources and policy engagement infrastructure used by patient organizations like EAA.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• LinkedInlinkedin.com/company/epilepsyallianceamerica

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about Epilepsy Alliance America