National Organization for Albinism and Hypopigmentation - NOAH

What National Organization for Albinism and Hypopigmentation - NOAH does

The National Organization for Albinism and Hypopigmentation (NOAH) is a 501(c)(3) nonprofit organization incorporated in Pennsylvania, with its mailing address at PO Box 959, East Hampstead, New Hampshire. NOAH's stated mission is to act as a conduit for accurate and authoritative information about all aspects of living with albinism and to provide a place where people with albinism and their families, in the United States and Canada, can find acceptance, support, and fellowship. The organization operates as a free-membership, donation-funded advocacy and support body rather than a commercial enterprise.

NOAH's product and program portfolio spans publications, community programs, support services, educational resources, scholarships, and events. The core offerings include the Albinism InSight magazine (available in print and PDF), the NOAH Connections online community platform with virtual workshops and the PWA Book Club, the New Parent Program with intake forms for recently diagnosed and recently adopted families, a Mentorship Program, Parent Connections, Grandparent Connections, and a NOAH Research Program that connects researchers with the community. Educational resources include NOAH Ed U (a supplement to Albinism InSight for educators), the NOAH SchoolKit, the NOAH Video Library, and a Resource Library segmented for individuals, parents, educators, adults, and medical professionals. The organization also administers three named scholarship programs (McGowan Leadership, Niedre M. Heckman Growth and Empowerment, Space Camp) and runs an iPad & Technology Assistance Program.

Revenue mechanics are donation-driven: NOAH offers one-time, recurring, memorial, and research-designated gifts via a DonorView-integrated donation portal, plus fundraising events, planned giving, a "Double Your Impact" matching-gift program, and a merchandise "Shop for NOAH" channel. Distribution is direct-to-consumer through the albinism.org website, an email newsletter (NOAH E-News), an SMS opt-in, and active social media profiles on Twitter, Facebook, Instagram, LinkedIn, YouTube, and Vimeo. In-person touchpoints include the annual NOAHCon conference, Family Camp, Adult Weekend, and International Albinism Awareness Day. The organization is governed by a volunteer Board of Directors (chaired by Sonja Harris, with Donté A. Mickens as Treasurer and Karen Bly as Executive Director) and serves primary customer segments of people with albinism, parents and grandparents, educators, and medical professionals.

Name

National Organization for Albinism and Hypopigmentation - NOAH

Legal name

National Organization for Albinism and Hypopigmentation

Website

https://albinism.org

Company type

Private

Founded year

1982

Operating status

Operating

Headcount range

1–10 employees

Short description

NOAH is a 501(c)(3) nonprofit that provides information, support programs, scholarships, and community resources to people with albinism and their families across the United States and Canada.

Ownership category

akta.pro rank

Product category

Patient Advocacy and Nonprofit Health Support Services

NAICS

Religious, Grantmaking, Civic, Professional, and Similar Organizations (813)

akta.pro primary industry

Disability Employment & Vocational Rehabilitation (VR) Programs (EDAAAOAI)

Keywords

• Albinism support services
• Patient advocacy organization
• Community health programs
• Disability education resources
• Nonprofit health association

Headquarters

HQ city

East Hampstead

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Distribution channels1 record

Marketing channels6 records

Core offering

NOAH is a 501(c)(3) nonprofit organization that provides support, accurate information, and community to people with albinism and their families across the United States and Canada. Its core offerings include free membership, the Albinism InSight magazine, an online community platform (NOAH Connections), a New Parent Program, Mentorship Program, scholarship programs, assistive technology assistance (iPads), educational resources for educators and medical professionals, and recurring community events such as the NOAHCon annual conference, Family Camp, and Adult Weekend.

Product overview

NOAH (National Organization for Albinism and Hypopigmentation) is a nonprofit organization offering a portfolio of support programs, publications, and resources for people with albinism and their families. The core offerings include the Albinism InSight magazine (available in print and PDF), the NOAH Connections community platform with virtual workshops, the New Parent Program with intake support, mentorship and peer connection programs, NOAH Ed U educational resources for educators, and the iPad & Technology Assistance Program. The organization also conducts an annual NOAHCon conference, Family Camp, and Adult Weekend events. Additional resources include the NOAH Research Program, scholarship opportunities (McGowan Leadership, Niedre M. Heckman Growth and Empowerment, Space Camp), the NOAH SchoolKit for educators, Video Library, and Resource Library covering information for individuals, parents, grandparents, adults, educators, and medical professionals.

Differentiator

Problem solved

Functional benefit

Brands

• Albinism InSight: NOAH's official magazine available in print or electronically (PDF), discussing many aspects of living with albinism.
• NOAH Connections
• NOAH Ed U
• McGowan Leadership Scholarship
• Niedre M. Heckman Growth and Empowerment Scholarship
• NOAH iPad & Technology Assistance Program
• Space Camp Scholarship

Products and services

• Albinism InSight Magazine NOAH's official magazine, available in print or electronically (PDF), covering personal accounts, technology updates, NOAH news, scholarship spotlights, and event reflections for people with albinism and their families.
• NOAH Connections Community Program Online community platform including workshops, the PWA Book Club, and virtual connections designed to help people with albinism and their families find fellowship and support.
• New Parent Program Support program with intake forms for recently diagnosed and recently adopted situations, providing parents of children with albinism with resources and guidance after a new diagnosis.
• Mentorship Program Program connecting individuals with albinism to mentors who provide guidance and support based on shared lived experiences.
• Scholarship Programs Financial aid programs including the McGowan Leadership Scholarship, Niedre M. Heckman Growth and Empowerment Scholarship, and Space Camp Scholarship for people with albinism.
• iPad & Technology Assistance Program Program providing iPads and technology assistance to help people with albinism access educational and informational resources.
• NOAHCon Annual Conference Annual national conference bringing together people with albinism, their families, and professionals for education, networking, and fellowship.
• Family Camp Camp program for families affected by albinism to connect, learn, and build community in a supportive environment.
• Adult Weekend Weekend event specifically designed for adults with albinism to connect, share experiences, and build lasting friendships.
• NOAH Ed U A complimentary supplement to Albinism InSight specifically designed for educators, providing resources about albinism in classroom settings.
• NOAH SchoolKit Resource kit designed to help educators understand and support students with albinism in the classroom.
• NOAH Research Program Program supporting and disseminating research about albinism, connecting researchers with the NOAH community and making research opportunities available to members.

Segments4 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Recent moves6 records

Expansion highlights6 records

Direct peers

• National Organization for Rare Disorders (NORD): Umbrella patient-advocacy organization for rare diseases including albinism, with member services, research programs, and conferences — closely comparable nonprofit rare-disease advocacy and support model.
• Vitiligo Support International: Patient-support nonprofit for vitiligo, a rare visible pigment condition analogous to albinism. Operates peer support, conferences, and educational resources with a very similar community-advocacy structure.
• Foundation Fighting Blindness: Nonprofit driving research and community support for inherited retinal diseases, with patient programs and educational resources. Comparable in marrying condition-specific advocacy with research funding.
• Positive Exposure: Nonprofit founded by photographer Rick Guidotti focused on albinism and other genetic conditions, using photography and storytelling to build community — directly comparable condition-specific advocacy mission to NOAH.
• National Association for Parents of Children with Visual Impairages (NAPVI / FamilyConnect): Parent-led nonprofit supporting families of children with visual impairments, with peer networks and educational resources. Closely mirrors NOAH's parent-segment support mission (e.g., New Parent Program).
• American Council of the Blind (ACB): US national consumer advocacy organization for blind and visually impaired Americans, with affiliate chapters, conventions, and scholarships — directly comparable community-advocacy and program structure.
• Lighthouse Guild: Nonprofit providing vision rehabilitation, telehealth support, and educational services for people with vision loss. NOAH already cross-links to Lighthouse Guild Tele-Support, confirming overlapping mission and audience.
• National Alopecia Areata Foundation (NAAF): Patient-support nonprofit for alopecia areata, a rare visible autoimmune condition. Comparable in delivering peer support, annual conferences, research funding, and educational resources for a low-incidence visible condition.

Broad incumbents

• National Federation of the Blind (NFB): Large established advocacy organization for blind and visually impaired individuals in the US, offering scholarships, conventions, and programs. Broader visual-impairment scope than NOAH but serves an overlapping population.
• Prevent Blindness: National nonprofit focused on eye health, screening, and vision-safety education. Comparable educational-resource mission and 501(c)(3) advocacy model, though broader than albinism-specific support.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat4 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xtwitter.com/NOAHAlbinism
• YouTubeyoutube.com/user/NOAHAlbinism
• Facebookfacebook.com/NOAH.Albinism
• LinkedInlinkedin.com/company/national-organization-for-albinism-and-hypopigmentation---noah
• Instagraminstagram.com/NOAHAlbinism

Revenue estimate

Valuation estimate

Number of profiles

Profiles12 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about National Organization for Albinism and Hypopigmentation - NOAH