Patient Voice Initiative Incorporated
Australian nonprofit that helps patients, carers, and patient advocacy groups understand and participate in PBAC, MSAC, PBS, and MBS health technology assessment processes through free online guides, workshops, a podcast, and an HTA glossary.
- Company typePrivate
- Founded2015
- HeadquartersWoolooware, Australia
- Headcount1–10
- GTM typeB2C
- OfferingServices
What Patient Voice Initiative Incorporated does
Patient Voice Initiative Incorporated (PVI) is an Australian nonprofit organization, registered as an incorporated association in New South Wales (PO Box 2214, Woolooware NSW 2230), that helps patients, carers, and patient advocacy groups understand and participate in Australian healthcare reimbursement and health technology assessment (HTA) processes — specifically the Pharmaceutical Benefits Scheme (PBS), Medicare Benefits Schedule (MBS), Pharmaceutical Benefits Advisory Committee (PBAC), and Medical Services Advisory Committee (MSAC). It is not a technology company in the conventional sense; its underlying platform is a content-and-community operation built around a main website, a dedicated Patient Voice Hub (patientvoicehub.org), a podcast distributed on Spotify, Apple Podcasts, and Google Podcasts, an email newsletter, and active Facebook and LinkedIn presences. Core offerings include a Resource Library of downloadable tip sheets and guides, an A-to-Z glossary of 165+ HTA terms, PBAC and MSAC-specific consumer comment resources, the open-access 'Patient Involvement in Health Technology Assessment' eBook (second edition, 120+ authors), and bespoke research reports such as the 2018 'Recommendations to Improve the Patient Voice in HTA' report and the 2023 'Enhancing Patient Engagement' report co-produced with CaPPRe.
PVI's business model is nonprofit sponsorship- and grant-funded, with the organization acknowledging healthcare-sector sponsors on its website and conducting paid or sponsored workshops and training sessions for patient groups. All consumer-facing resources — guides, tip sheets, glossary, podcast episodes, and hub tools — are provided free of charge, making the GTM motion community-led and content-driven rather than transactional. Primary user segments are individual patients/health consumers (primary), patient advocacy organizations and disease-specific groups (primary), and carers and family members (secondary); workshops have been delivered to organizations including Crohn's & Colitis Australia, and PVI supports Australian Genomics' 'Involve Australia' community-led genomics initiative.
The operating model is lightweight: no headcount is disclosed, no app exists, no API or SDK is offered, and there are no patents, certifications, or funding rounds on record. Strategic positioning centers on being the only dedicated Australian resource focused specifically on patient participation in PBAC/MSAC processes, with adjacent expansion into genomic research community involvement via the Australian Genomics partnership. Active copyright extends to 2026, and the organization continues to publish new content and research outputs.
Patient Voice Initiative Incorporated firmographics
Firmographics- Name
- Patient Voice Initiative Incorporated
- Legal name
- Patient Voice Initiative Incorporated
- Website
- https://patientvoiceinitiative.org
- Company type
- Private
- Founded year
- 2015
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Australian nonprofit that helps patients, carers, and patient advocacy groups understand and participate in PBAC, MSAC, PBS, and MBS health technology assessment processes through free online guides, workshops, a podcast, and an HTA glossary.
- Ownership category
- akta.pro rank
Patient Voice Initiative Incorporated industry classification
Industry- Product category
- Patient Advocacy Services
- NAICS
- Other Individual and Family Services (624190)
- SIC
- Services-Health Services (8000)
- akta.pro primary industry
- Patient Education, Content & Personalized Journey Orchestration (HLACAEAE)
- akta.pro secondary industry
- Patient Feedback, Surveys, Reputation & Experience Measurement (VoC) (HLACAEAH)
Keywords
Where Patient Voice Initiative Incorporated is headquartered
LocationHeadquarters
- HQ city
- Woolooware
- HQ country
- Australia
- HQ region
- Oceania
Offices1 record
Markets served
Patient Voice Initiative Incorporated business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D, Others
Revenue model
- Sponsorships and Grants: The organization operates with sponsors and receives support to fund its educational initiatives and advocacy work. Sponsors are acknowledged on the organization's website.
- Workshop and Training Services: The organization conducts workshops and training sessions for patient groups, carers, and healthcare consumers on how to participate effectively in PBAC and MSAC consultations.
Go-to-market motion1 record
Distribution channels3 records
Marketing channels6 records
Patient Voice Initiative Incorporated product offering
Product offeringCore offering
Patient Voice Initiative provides free educational resources, guides, tip sheets, a glossary of health technology assessment terms, a podcast, and workshops that help Australian patients, carers, and patient groups understand and participate in PBAC and MSAC consultation processes for medicines and treatments reimbursement decisions. The organization also publishes research reports and an open-access eBook to strengthen patient involvement in health technology assessment.
Product overview
Patient Voice Initiative Incorporated operates a primarily educational and informational platform focused on patient advocacy and healthcare decision-making participation in Australia. The core offering consists of the Patient Voice Hub portal, The Patient Voice Podcast, and a comprehensive Resource Library containing tip sheets, guides, and educational materials. These resources are designed to help patients, carers, and patient groups understand and participate in processes for PBS (Pharmaceutical Benefits Scheme) and Medicare listing decisions through the Pharmaceutical Benefits Advisory Committee (PBAC) and Medical Services Advisory Committee (MSAC). The organization also publishes research reports including the Patient Involvement in Health Technology eBook and periodic research reports on patient engagement. The products work together to provide a comprehensive suite of educational resources, practical guides, and community-building tools for patient advocacy.
Differentiator
Problem solved
Functional benefit
Products and services
- Patient Voice Hub Online portal that provides quick guidance on how to give input for PBS and Medicare listing decisions, designed to help patients and health consumers participate in healthcare decision-making processes.
- The Patient Voice Podcast Podcast series exploring real experiences of health and healthcare through the people who most depend on it, aiming to help build better care for all Australians.
- Resource Library Downloadable collection of tip sheets, guides, and educational materials organized for patients, carers, and patient groups to help them understand and participate in healthcare decision-making.
- A to Z Glossary of HTA Terms Comprehensive glossary of health technology assessment terms and healthcare jargon from A to Z, helping patients and carers understand the language used in healthcare decision-making processes.
- PBAC Consumer Comment Resources Guides, tip sheets, and dos-and-don'ts for submitting consumer comments to the Pharmaceutical Benefits Advisory Committee, including guidance on how to make a difference in PBS listing decisions.
- MSAC Input Resources Resources and guides to help patients provide input about what is funded on the Medicare Benefits Schedule, including information about the Medical Services Advisory Committee process.
- Patient Involvement in Health Technology eBook Open access book with 120+ authors covering concepts, methods, and examples of how patient participation and research improves processes for healthcare funding decisions, including coverage of HTA, patient preferences research, and international perspectives.
- PVI-CaPPRe Enhancing Patient Engagement Report 2023 Research report conducted in partnership with CaPPRe (Community and Patient Preference Research) to understand the needs and preferences of patient communities when interacting with biopharmaceutical companies.
- Recommendations to Improve the Patient Voice in HTA Report (2018) Report containing recommendations for PBAC, MSAC and PLAC based on needs expressed at PVI workshops in 2016, including examples of how other HTA bodies meet these needs.
- Workshops and Training Sessions for Patient Groups In-person and virtual workshops and training sessions delivered to patient groups and healthcare organizations on how to engage with PBAC and MSAC processes.
Quantifiable outcome
- Provides resources and guidance that helps patient groups like Crohn's & Colitis Australia improve how they collect patient feedback for PBAC submissions
- +1 more outcomes
Companies that use Patient Voice Initiative Incorporated
Customer profileSegments3 records
Ideal customer profiles3 records
Patient Voice Initiative Incorporated technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Patient Voice Initiative Incorporated partnerships and signals
Strategic signalPartnerships
Four partnerships are on record, tiered core and minor.
- Australian GenomicscorePVI supports Involve Australia, a community-led project coordinated by Australian Genomics. This initiative aims to give the public a stronger voice in genomic research and standardize community involvement practices in genomic research across Australia. PVI provides a platform to share guidelines and resources for community involvement.
- CaPPRe (Community and Patient Preference Research)corePVI partnered with CaPPRe to conduct the 'Enhancing Patient Engagement in Australia Report 2023'. This research partnership studied the needs and preferences of patient organizations and patient advocates when interacting with biopharmaceutical companies. The collaboration aims to improve patient engagement practices across the healthcare industry.
- HTAi (Health Technology Assessment international)minorPVI provides links to and resources from HTAi's Patient and Citizen Involvement Interest Group (PCIG), an international group that advocates for patient involvement in HTA and provides tools to help patients and carers get involved. PVI also shares HTAi's glossary and guidance documents for patient groups.
- Crohn's & Colitis AustraliaminorCrohn's & Colitis Australia has participated in PVI workshops and provided feedback on the value of PVI's training for patient advocacy. Workshop participants from the organization reported that the training helped them understand how to better advocate for medication access.
Scale indicators2 records
Recent moves6 records
Expansion highlights6 records
Patient Voice Initiative Incorporated competitors and assessment
Company assessmentMarket position
Competitive moat4 records
Key highlights5 records
Customer concentration
Patient Voice Initiative Incorporated social profiles
Digital presencePatient Voice Initiative Incorporated financial estimates
Financial estimateRevenue estimate
Valuation estimate
Patient Voice Initiative Incorporated leadership team
Management profileNumber of profiles
Patient Voice Initiative Incorporated funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Patient Voice Initiative Incorporated M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Patient Voice Initiative Incorporated
What does Patient Voice Initiative Incorporated do?
Patient Voice Initiative provides free educational resources, guides, tip sheets, a glossary of health technology assessment terms, a podcast, and workshops that help Australian patients, carers, and patient groups understand and participate in PBAC and MSAC consultation processes for medicines and treatments reimbursement decisions. The organization also publishes research reports and an open-access eBook to strengthen patient involvement in health technology assessment.
Is Patient Voice Initiative Incorporated a public or private company?
Patient Voice Initiative Incorporated is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Patient Voice Initiative Incorporated founded?
Patient Voice Initiative Incorporated was founded in 2015. It employs 1 to 10 people.
Where is Patient Voice Initiative Incorporated based?
Patient Voice Initiative Incorporated is headquartered in Woolooware, Australia, in the Oceania region.
How does Patient Voice Initiative Incorporated make money?
Two revenue lines are on record. Sponsorships and Grants are the primary driver. The others are workshop and Training Services.
Does Patient Voice Initiative Incorporated have an API?
No public API is recorded for Patient Voice Initiative Incorporated.
What industry is Patient Voice Initiative Incorporated in?
Patient Voice Initiative Incorporated's product category is Patient Advocacy Services. Its primary akta.pro industry code is HLACAEAE, Patient Education, Content & Personalized Journey Orchestration, with a secondary code of HLACAEAH, Patient Feedback, Surveys, Reputation & Experience Measurement (VoC). Its NAICS code is 624190 and its SIC code is 8000.