Hersenletsel
Hersenletsel.nl is a Dutch non-profit patient association (ANBI) serving people with non-congenital brain injury (NAH) and their relatives through peer-support regional chapters, an aphasia mobile app, caregiver decision tools, advocacy, and educational content across the Netherlands.
- Company typePrivate
- Founded2014
- HeadquartersVelp, Netherlands
- Headcount1–10
- GTM typeB2C
- OfferingServices
What Hersenletsel does
Patiëntenvereniging Hersenletsel.nl is a Dutch non-profit patient association (ANBI status, KvK 61051632) founded in 2014 and headquartered at Den Heuvel 62, Velp, Netherlands. The organization supports people with non-congenital brain injury (niet-aangeboren hersenletsel, NAH) — including stroke, traumatic brain injury, and brain tumor survivors — and their relatives across the Netherlands. Its functional remit covers three pillars: peer support (lotgenotencontact) via regional chapters, brain cafés, aphasia cafés, youth weekends, and an online forum; information provision through the NAH Bibliotheek, podcasts, the quarterly Hersenletsel Magazine, blogs, and scientific content; and advocacy (belangenbehartiging) at the national policy level, including representation in networks such as EENnacoma and Vereniging Doelgroepnetwerk LBS alongside Radboudumc, Vilans, and the Hersenstichting.
The association's product surface includes a mobile application called 'On-line' (iOS and Android) targeting people with aphasia — an online writing program offered with free and paid subscription tiers — along with the Mantelzorg Keuzehulp, a structured caregiver decision-support tool. Distribution is multi-channel: a Dutch-language website (hersenletsel.nl), webshop selling identification cards and information materials, an app-store footprint, social media (Facebook, LinkedIn), newsletters, and hundreds of in-person regional activities annually. The organization also recruits members for Delphi studies, embedding patient-reported outcomes into Dutch clinical research.
Revenue is small-scale and diversified across member-paid annual subscriptions (€32.50/calendar year, inclusive of four magazine issues), donations routed through Geef.nl (one-time and recurring, tax-deductible under ANBI), and webshop merchandise sales. With 1-10 employees and a volunteer-driven regional chapter network, the organization operates as a typical small-Dutch patiëntenvereniging without disclosed financials, and is led by Director Monique Lindhout and policy worker Michiel Lindhout. The addressable population is substantial — approximately 42,000 stroke patients and 50,000 head trauma patients per year in the Netherlands — but the association shows no clear evidence of material share-gain or scaling beyond a steady-state operational posture.
Hersenletsel firmographics
Firmographics- Name
- Hersenletsel
- Legal name
- Patiëntenvereniging Hersenletsel.nl
- Website
- https://hersenletsel.nl
- Company type
- Private
- Founded year
- 2014
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Hersenletsel.nl is a Dutch non-profit patient association (ANBI) serving people with non-congenital brain injury (NAH) and their relatives through peer-support regional chapters, an aphasia mobile app, caregiver decision tools, advocacy, and educational content across the Netherlands.
- Ownership category
- akta.pro rank
Hersenletsel industry classification
Industry- Product category
- Patient Advocacy and Support Services
- NAICS
- Other Individual and Family Services (624190)
- SIC
- Services-Membership Organizations (8600)
- akta.pro primary industry
- Condition-specific Digital Therapeutics (DTx) (HLACANAA)
- akta.pro secondary industry
- DTx/SaMD Evidence, Outcomes & Real-World Data (RWE) Platforms (HLACANAM)
Keywords
Where Hersenletsel is headquartered
LocationHeadquarters
- HQ city
- Velp
- HQ country
- Netherlands
- HQ region
- Europe
Offices1 record
Markets served
Hersenletsel business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Technology or R&D, Others
Revenue model
- Membership subscriptions: Members pay an annual fee of €32.50 per calendar year, receiving the Hersenletsel Magazine (4x per year), newsletter, member discounts in the webshop, and access to regional activities.
- Donations and gifts: The association accepts one-time and recurring donations through Geef.nl. As an ANBI (charitable institution), donations are tax-deductible.
- Webshop sales: The webshop sells information materials, aids, and identification cards (hersenletselkaartjes / afasiekaartjes). Members receive discounts.
- Magazine sales (non-members): Non-members can purchase individual issues of the Hersenletsel Magazine through the webshop.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Subscription | Annual | Annual membership for patients and relatives |
Go-to-market motion1 record
Distribution channels4 records
Marketing channels8 records
Hersenletsel product offering
Product offeringCore offering
Hersenletsel is a Dutch patient association (patiëntenvereniging) that supports people with non-congenital brain injury (NAH - niet-aangeboren hersenletsel) and their relatives through peer contact (lotgenotencontact), information provision, and advocacy (belangenbehartiging). It sells an annual membership (€32.50/year) that includes a quarterly Hersenletsel Magazine, newsletter, regional peer support activities, and member discounts in the webshop. It also developed the On-line mobile app for people with aphasia, available on iOS and Android.
Product overview
Hersenletsel.nl is a Dutch patient association for people with non-congenital brain injury (NAH) and their relatives. The organization offers a comprehensive suite of support services including the On-line mobile app for aphasia patients, an NAH Library with articles and podcasts, the Hersenletsel Magazine quarterly publication, a webshop for merchandise and information cards, a forum for peer connections, and the Mantelzorg Keuzehulp (caregiver decision support tool). The association also organizes lotgenotencontact (peer contact) activities through regional groups across the Netherlands, including brain cafés, discussion groups, and creative meetings.
Differentiator
Problem solved
Functional benefit
Brands
- On-line: An online writing program for people with aphasia, available on Android and iOS.
- Hersenletsel Magazine
- Hersentumor Vereniging
Products and services
- Annual Membership Annual membership subscription priced at €32.50 per calendar year, providing members with the quarterly Hersenletsel Magazine (4 issues per year), newsletter, member discounts on webshop products, and access to regional peer support activities. Targeted at NAH patients and their relatives in the Netherlands.
- On-line mobile app
Quantifiable outcome
- 42,000 new stroke patients per year in the Netherlands, of which Hersenletsel.nl serves as the primary patient advocacy and support organization.
Companies that use Hersenletsel
Customer profileNamed customers1 record
Segments2 records
Ideal customer profiles2 records
Hersenletsel technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Feature1 record
Hersenletsel partnerships and signals
Strategic signalPartnerships
Nine partnerships are on record, tiered core and minor.
- Vereniging Doelgroepnetwerk LBScoreHersenletsel.nl is represented in the board of this association, which brings together specialized care centers for prolonged disorders of consciousness (LBS) in Dutch long-term care.
- EENnacoma (Expertisenetwerk Ernstig Niet-aangeboren hersenletsel na coma)coreA collaboration network of specialized nursing homes and a rehabilitation center focused on severe acquired brain injury and prolonged disorders of consciousness (LBS). Hersenletsel.nl participates in this network, contributing patient perspective to knowledge development and care improvement.
- Patiëntenfederatie NederlandcoreHersenletsel.nl is listed as a key partner on its website alongside Patiëntenfederatie Nederland, indicating a close collaborative relationship in patient advocacy and representation at the national level.
- Hersenletsel-uitleg.nlminorA partner website providing supplementary information about brain injury. Listed as an important partner on Hersenletsel.nl.
- Radboudumc (EENnacoma partnership)coreRadboudumc's department of Primary Care leads the EENnacoma network. Jan Lavrijsen, senior researcher at Radboudumc, collaborates closely with Hersenletsel.nl on knowledge development for severe brain injury and LBS.
- VilansminorVilans collaborated with EENnacoma on the 'Ketenontwikkeling voor mensen met LBS' project, which included developing the LBS Wegwijzer (guide). Hersenletsel.nl participated in this project.
- Flow ReizenminorFlow Reizen organizes adapted group holidays for people with non-congenital brain injury, epilepsy, autism, or mild intellectual disabilities, with trained guides. Hersenletsel.nl recommends this partner to its members.
- Vakantiehuis SandraminorAn adapted vacation home with specialized equipment (adjustable bed, care toilet, shower stretcher) recommended for NAH patients. Hersenletsel.nl refers members to this accommodation partner.
- Geef.nlcoreGeef.nl is the donation platform through which individuals can make one-time or recurring donations to Hersenletsel.nl. Donations via this platform are processed with options for iDEAL, SEPA, credit card, PayPal, and debit card.
Scale indicators2 records
Recent moves6 records
Expansion highlights5 records
Hersenletsel competitors and assessment
Company assessmentDirect peers
- Epilepsie Vereniging Nederland: Dutch patient association for epilepsy and their relatives, offering peer support, information, advocacy, and regional activities. Strong structural parallel to Hersenletsel.nl as a condition-specific membership organization for a neurological condition.
- MS Vereniging Nederland: Dutch patient association for people with multiple sclerosis, providing peer contact, information, advocacy, and regional activities. Highly comparable organizational model to Hersenletsel.nl serving another chronic neurological condition population.
- Stichting Breinlijn: Helpline and information service for people with non-congenital brain injury (NAH) and their relatives in the Netherlands. Direct overlap with Hersenletsel.nl's information provision and caregiver support mission for the same patient population.
Others
- Hersentumor Vereniging: Dutch association for brain tumor patients managed under Hersenletsel.nl. Directly related sub-brand, offering the closest possible comparability on patient population subset and service delivery model.
Broad incumbents
- Hersenstichting: Dutch Brain Foundation funding neuroscience research, prevention, and patient support. Comparable as a major Dutch brain-focused non-profit operating in the same neurological space and serving as a funder/partner to Hersenletsel.nl.
- Alzheimer Nederland: Largest Dutch patient organization for dementia and Alzheimer's, offering peer support, helpline, advocacy, and fundraising. Comparable as a neurological/cognitive condition patient association with similar membership, regional chapters, and advocacy functions.
- Patiëntenfederatie Nederland: Umbrella organization representing 200+ Dutch patient associations and coordinating collective advocacy. Listed as a core partner of Hersenletsel.nl, comparable as a member-supported patient advocacy body operating in the same regulatory and funding environment.
Emerging players
- Stroke Association UK: UK charity supporting stroke survivors with peer support, information, and research funding. Closest international peer in a different geography, addressing the largest single cause of acquired brain injury also served by Hersenletsel.nl.
- Headway UK: UK brain injury association providing information, support services, and advocacy for people with acquired brain injury. Direct functional peer in another national market, comparable services and organizational structure though regional player from a Dutch perspective.
- Brain Injury Association of America: US national brain injury advocacy organization providing information, referrals, and policy advocacy. Comparable mission and member services for the same condition population in a different national context.
Market position
Strengths4 records
Weaknesses4 records
Competitive moat4 records
Key risks6 records
Key highlights6 records
Customer concentration
Hersenletsel social profiles
Digital presenceHersenletsel compliance and trust
Trust signalCompliance2 records
Hersenletsel financial estimates
Financial estimateRevenue estimate
Valuation estimate
Hersenletsel leadership team
Management profileNumber of profiles
Profiles2 records
Hersenletsel funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Hersenletsel M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Hersenletsel
What does Hersenletsel do?
Hersenletsel is a Dutch patient association (patiëntenvereniging) that supports people with non-congenital brain injury (NAH - niet-aangeboren hersenletsel) and their relatives through peer contact (lotgenotencontact), information provision, and advocacy (belangenbehartiging). It sells an annual membership (€32.50/year) that includes a quarterly Hersenletsel Magazine, newsletter, regional peer support activities, and member discounts in the webshop. It also developed the On-line mobile app for people with aphasia, available on iOS and Android.
Is Hersenletsel a public or private company?
Hersenletsel is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was Hersenletsel founded?
Hersenletsel was founded in 2014. It employs 1 to 10 people.
Where is Hersenletsel based?
Hersenletsel is headquartered in Velp, Netherlands, in the Europe region.
How does Hersenletsel make money?
Four revenue lines are on record. Membership subscriptions are the primary driver. The others are donations and gifts, webshop sales and magazine sales (non-members).
Who are Hersenletsel's main competitors?
Direct peers on record are Epilepsie Vereniging Nederland, MS Vereniging Nederland and Stichting Breinlijn. Hersentumor Vereniging is listed as an others. Broad incumbents are Hersenstichting, Alzheimer Nederland and Patiëntenfederatie Nederland. Emerging players are Stroke Association UK, Headway UK and Brain Injury Association of America.
Does Hersenletsel have an API?
No public API is recorded for Hersenletsel.
What industry is Hersenletsel in?
Hersenletsel's product category is Patient Advocacy and Support Services. Its primary akta.pro industry code is HLACANAA, Condition-specific Digital Therapeutics (DTx), with a secondary code of HLACANAM, DTx/SaMD Evidence, Outcomes & Real-World Data (RWE) Platforms. Its NAICS code is 624190 and its SIC code is 8600.