CHES Foundation
CHES Foundation is a 501(c)(3) non-profit founded in 2009 that delivers education, peer support, and advocacy programs to people affected by rare bleeding disorders in the United States, focusing on inhibitor, ultra-rare, and women's communities through conferences, camps, and digital content.
- Company typePrivate
- Founded2009
- HeadquartersNoblesville, United States
- Headcount—
- GTM typeB2C
- OfferingServices
What CHES Foundation does
CHES Foundation is a 501(c)(3) non-profit organization founded in 2009 and headquartered in Noblesville, Indiana, that delivers education, peer support, and advocacy programs to the rare bleeding disorder community in the United States. The organization concentrates on three underserved populations: individuals with inhibitors (antibodies that neutralize standard clotting factor treatment), patients with ultra-rare bleeding disorders (including Glanzmann Thrombasthenia and rare factor deficiencies), and women with bleeding disorders. Its core program portfolio includes InhibitCon (a national inhibitor conference with caregiver, adult, and teen tracks), After The Shock (a family camp), Leverage (an adventure-based adult program delivered with GutMonkey), LadyBugs (a women's conference), One Drop (an ultra-rare disorders program), and awareness campaigns SHEmophilia and Hermanas de Sangre.
The organization's technology stack is intentionally lean and community-focused: a Squarespace-hosted website at ches.education, JotForm for application processing, Zoom for virtual programs, and active social media presence across Facebook, Instagram, LinkedIn, and YouTube. CHES produces proprietary content assets including the LifeLines for Health newsletter (described as the only worldwide publication dedicated to inhibitor topics) and The Bleeding Edge podcast (a narrative series on Glanzmann Thrombasthenia). Programs are delivered through a hybrid model combining national in-person events at hotels and camps with virtual webinars, supported by an application-based screening process and travel reimbursement for participants.
Revenue is generated primarily through pharmaceutical manufacturer grants and sponsorships (with Novo Nordisk, Sanofi, Takeda, Kedrion Biopharma, HEMA Biologics, Pfizer, and CVS Health identified as financial partners), individual donations through the CHES Champions tiered program, and nominal event registration fees ($25/person with a $100 family cap). In January 2023, CHES merged with nSpiration Foundation to consolidate non-profit status. It is governed by a 7-member board of directors and operates with approximately 5 staff members, including co-founders Eric Lowe (COO) and Janet Brewer (Director Emerita).
CHES Foundation firmographics
Firmographics- Name
- CHES Foundation
- Legal name
- CHES Foundation, Inc.
- Website
- https://comphealthed.com
- Company type
- Private
- Founded year
- 2009
- Operating status
- Operating
- Short description
- CHES Foundation is a 501(c)(3) non-profit founded in 2009 that delivers education, peer support, and advocacy programs to people affected by rare bleeding disorders in the United States, focusing on inhibitor, ultra-rare, and women's communities through conferences, camps, and digital content.
- Ownership category
- akta.pro rank
CHES Foundation industry classification
Industry- Product category
- Rare Disease Patient Education and Advocacy
- NAICS
- Voluntary Health Organizations (813212)
- SIC
- Services-Misc Health & Allied Services, Nec (8090)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
- akta.pro secondary industries
- Community Health, Prevention & Health Education (BPAGACAC), Youth Mental Health, Counseling & Wellbeing (Education-Linked) Nonprofits (BPAGADAK)
Keywords
Where CHES Foundation is headquartered
LocationHeadquarters
- HQ city
- Noblesville
- HQ country
- United States
- HQ region
- North America
Offices6 records
Markets served
CHES Foundation business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Others
Revenue model
- Grant Funding: CHES Foundation competes rigorously for grants provided by pharmaceutical manufacturers to support educational programming. The organization is a 501(c)3 nonprofit that fills gaps within patient communities through education, conference scholarships, and financial assistance.
- Sponsorships: Corporate sponsorships from pharmaceutical companies including Novo Nordisk, Sanofi, Takeda, Kedrion Biopharma, HEMA Biologics, Pfizer, CVS Health, and others fund specific programs and events.
- Donations: Tax-deductible donations through CHES Champions fund help cover travel costs for community members who would be unable to attend events without financial assistance.
- Registration Fees: Event registration fees of $25/person with cap of $100 for families implemented due to reduction in funding climate. Previously offered refundable deposits.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Unit Pricing | Multi-year contract | Event Registration Fee |
| Subscription | Pay-as-you-go | Travel Reimbursement |
| Subscription | Multi-year contract | Registration Deposit |
| Subscription | Monthly | CHES Champions Donation Tiers |
Go-to-market motion2 records
Distribution channels4 records
Marketing channels11 records
CHES Foundation product offering
Product offeringCore offering
CHES Foundation provides educational programs, peer support events, and awareness campaigns for individuals and families affected by rare bleeding disorders, particularly those with inhibitors, ultra-rare factor deficiencies, and women. The organization delivers national conferences (InhibitCon, LadyBugs, One Drop), family camps (After The Shock), adventure-based programs (Leverage), awareness campaigns (SHEmophilia, Hermanas de Sangre), webinars, the LifeLines for Health newsletter, and the Glanzmann Thrombasthenia Bleeding Edge podcast.
Product overview
CHES Foundation operates as a non-profit organization offering educational programs and awareness campaigns for the rare bleeding disorder community. The core program portfolio includes InhibitCon (comprehensive inhibitor conference with Caregiver, Adult Men, and Teen tracks), After The Shock (family camp for inhibitor families), Leverage (adventure-based program for adults with inhibitors), LadyBugs (women's conference), One Drop (ultra-rare bleeding disorders program), and awareness campaigns SHEmophilia and Hermanas de Sangre. Supporting offerings include the LifeLines for Health newsletter and Bleeding Disorder News newsletter, along with the Glanzmann Thrombasthenia Bleeding Edge podcast series. Legacy programs Momentum, MUM, and Inhibitor Family Camp have been archived and integrated into current offerings. The organization competes for manufacturer grants to fund programming and is unaffiliated with any single product provider.
Differentiator
Problem solved
Functional benefit
Products and services
- InhibitCon A comprehensive national conference for the inhibitor community featuring three distinct tracks (Caregiver, Adult Men, and Tweens/Teens), including camp-like activities and the Leverage program for adults 18+ with inhibitors. Designed for individuals with hemophilia A or B with inhibitors and their families.
- After The Shock An inhibitor family camp experience welcoming all children ages 0-18 with an inhibitor, including infants and toddlers. Created in 2018 to replace the Inhibitor Family Camp with improved accommodations, providing a full family experience for inhibitor families.
- Leverage An adventure-based program for adults 18+ with inhibitors, delivering experiential education activities in 24-hour or 5-day formats. Partners with GutMonkey for adventure activities designed for people with mobility, joint, muscle, and bleeding challenges.
- LadyBugs A national women's conference for women with bleeding disorders, caregivers, and carriers. Features educational sessions, peer support, and collaboration with state bleeding disorders foundations. 2026 venue: Colonial Williamsburg, VA.
- One Drop A program for individuals and families living with ultra-rare factor deficiencies (FI, FII, FV, FVII, FX, FXI, FXIII) and ultra-rare platelet deficiencies including Glanzmann's Thrombasthenia and Platelet Disorders. 2026 event: Tampa, FL Nov 13-15, 2026.
- SHEmophilia Campaign A women with bleeding disorders awareness campaign featuring a documentary film series, podcast appearances, publications, and advocacy efforts including a Change.org petition to address healthcare inequities for women with bleeding disorders.
- Hermanas de Sangre Campaign A Hispanic and Latina awareness campaign focusing on bleeding disorders education and advocacy for the Latino community through Spanish-language resources and culturally competent outreach.
- LifeLines for Health Newsletter A groundbreaking newsletter publication designed for topics relevant to those with inhibitors, serving as the only worldwide publication of its kind for the inhibitor community. Eric Lowe serves as editor, publisher, and designer.
- The Bleeding Edge Podcast The first podcast series dedicated to exploring Glanzmann Thrombasthenia through voices of patients, caregivers, and clinicians across narrative-driven episodes.
Quantifiable outcome
- Developed 6 unique inhibitor-specific programs since 2010
- +3 more outcomes
Companies that use CHES Foundation
Customer profileNamed customers4 records
Segments4 records
Ideal customer profiles4 records
CHES Foundation technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration1 record
Feature2 records
CHES Foundation partnerships and signals
Strategic signalPartnerships
Seven partnerships are on record, tiered core, major and minor.
- Serious Fun Network (The Painted Turtle and Victory Junction)corePartnership with The Painted Turtle and Victory Junction (part of Paul Newman's Serious Fun Network) to host Inhibitor Family Camp since 2010, fostering life-long relationships and empowering families to advocate for themselves.
- GutMonkeycorePartnership with GutMonkey for Leverage program - adventure-based experiential education for adults with inhibitors. Brings nearly two decades of experience in bleeding disorder camping and adventure education.
- Virginia Bleeding Disorders FoundationcorePartnership with Virginia Bleeding Disorders Foundation (formerly Virginia Hemophilia Foundation) for LadyBugs National Women's Conference 2026 in Colonial Williamsburg.
- Girls Bleed ToomajorPartnership with Girls Bleed Too for VWD webinar programming and women's health initiatives.
- ATHN (American Thrombosis and Hemostasis Network)coreDr. Joanna Davis is member of ATHN. CHES collaborates with ATHN for research opportunities including ATHN Testing at One Drop event.
- Novo Nordisk Consumer CouncilminorJanet Brewer served a two-year term on Novo Nordisk Consumer Council providing patient perspective.
- ATHN Testing InitiativemajorOne Drop 2025 offered ATHN Testing Available for participants, providing genetic testing and research opportunities.
Scale indicators6 records
Recent moves7 records
Expansion highlights6 records
CHES Foundation competitors and assessment
Company assessmentBroad incumbents
- National Hemophilia Foundation: The largest U.S. national nonprofit for bleeding disorders, providing education, advocacy, and research funding across hemophilia, von Willebrand disease, and other bleeding disorders. While not focused on CHES's specific inhibitor/ultra-rare/women niches, NHF is the dominant incumbent serving the same patient population.
- Hemophilia Federation of America: National nonprofit providing advocacy, education, and community programs across the bleeding disorders community. Former employer of CHES's Executive Director Heather Case; comparable mission and overlapping constituency but broader scope than CHES's inhibitor/ultra-rare/women focus.
- World Federation of Hemophilia: International nonprofit focused on improving care for people with inherited bleeding disorders. Overlaps with CHES's mission at a global level, including the populations CHES serves (inhibitors, ultra-rare, and women's bleeding disorders).
Direct peers
- Hemophilia Alliance Foundation: Foundation supporting HTCs and bleeding disorder community programs through grants and innovation funding — including the 2023 Innovation Award given to CHES's SHEmophilia campaign. Directly comparable grantmaking peer within the same ecosystem.
- Coalition for Hemophilia B: National nonprofit dedicated to hemophilia B education, advocacy, and support. Smaller, disease-specific nonprofit similar in size and mission focus to CHES, with comparable dependence on pharmaceutical sponsorships.
- Save One Life: Nonprofit providing direct financial assistance and program support to people with bleeding disorders in developing countries. Comparable nonprofit model with similar patient-education and direct-aid mission, although with international geographic focus.
Emerging players
- LA Kelley Communications: Independent publishing and patient education organization producing books, newsletters, and educational materials on hemophilia. Comparable focus on patient education content production within the bleeding disorders community.
Peers
- Girls Bleed Too:
Others
- American Thrombosis and Hemostasis Network (ATHN): Research and data network supporting hemophilia treatment centers and patient outcomes research. Strategic partner with CHES for research opportunities at events like One Drop; functions as ecosystem infrastructure rather than direct competitor.
Regional players
- Virginia Bleeding Disorders Foundation: State-level bleeding disorders nonprofit and direct programmatic partner for CHES's LadyBugs 2026 conference. Regional peer with comparable patient-advocacy mission but geographically limited scope.
Market position
Weaknesses1 record
Competitive moat5 records
Key risks5 records
Key highlights7 records
Customer concentration
CHES Foundation social profiles
Digital presenceCHES Foundation compliance and trust
Trust signalCompliance3 records
CHES Foundation financial estimates
Financial estimateRevenue estimate
Valuation estimate
CHES Foundation leadership team
Management profileNumber of profiles
Profiles12 records
CHES Foundation funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
CHES Foundation M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about CHES Foundation
What does CHES Foundation do?
CHES Foundation provides educational programs, peer support events, and awareness campaigns for individuals and families affected by rare bleeding disorders, particularly those with inhibitors, ultra-rare factor deficiencies, and women. The organization delivers national conferences (InhibitCon, LadyBugs, One Drop), family camps (After The Shock), adventure-based programs (Leverage), awareness campaigns (SHEmophilia, Hermanas de Sangre), webinars, the LifeLines for Health newsletter, and the Glanzmann Thrombasthenia Bleeding Edge podcast.
Is CHES Foundation a public or private company?
CHES Foundation is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was CHES Foundation founded?
CHES Foundation was founded in 2009.
Where is CHES Foundation based?
CHES Foundation is headquartered in Noblesville, United States, in the North America region.
How does CHES Foundation make money?
Four revenue lines are on record. Grant Funding is the primary driver. The others are sponsorships, donations and registration Fees.
Who are CHES Foundation's main competitors?
Broad incumbents on record are National Hemophilia Foundation, Hemophilia Federation of America and World Federation of Hemophilia. Direct peers are Hemophilia Alliance Foundation, Coalition for Hemophilia B and Save One Life. LA Kelley Communications is listed as an emerging player. Girls Bleed Too is listed as a peer. American Thrombosis and Hemostasis Network (ATHN) is listed as an others. Virginia Bleeding Disorders Foundation is listed as a regional player.
Does CHES Foundation have an API?
No public API is recorded for CHES Foundation.
What industry is CHES Foundation in?
CHES Foundation's product category is Rare Disease Patient Education and Advocacy. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS), with a secondary code of BPAGACAC, Community Health, Prevention & Health Education. Its NAICS code is 813212 and its SIC code is 8090.