NF TEAM

What NF TEAM does

The NF Team Foundation is a US-based 501(c)(3) nonprofit organization dedicated to raising awareness of neurofibromatosis (NF), funding research toward effective treatments and a cure, and supporting NF patients and families. It addresses three genetic disorders — NF1 (affecting 1 in 3,000 people), NF2 (1 in 25,000), and schwannomatosis (1 in 40,000) — through a portfolio of interconnected programs: the NF Registry (a patient registry co-operated with the Children's Tumor Foundation that connects patients to clinical trials and educational resources), the NF Collective Provider Database (a shared, searchable directory of NF clinicians maintained jointly with six peer NF nonprofits at nfcollective.org), and the flagship NF Swine Project at the University of Wisconsin-Madison, a preclinical research program that uses swine models for NF1 that more closely mimic human cognitive, vascular, and tumor development than traditional mouse models and supplies NF tissue to US researchers at cost.

The foundation's go-to-market is event-driven and community-led. It raises funds primarily through endurance events — Run Madtown (a half marathon, 10K, and 5K in Madison, WI), the Choose Your Own Event self-organized fundraising program, and Benefit Nights such as those held at Nine Mile Brewery — supplemented by one-time and recurring monthly donations processed through a Givelively-powered donation portal on thenfteam.org. NF Awareness Month (May) and patient recruitment into the NF Registry function as always-on awareness channels. Marketing and donor acquisition are largely top-of-funnel, relying on community participation rather than paid acquisition.

The foundation operates virtually with no disclosed office address and is governed by an Executive Director (Murray McCartan, who also works full-time as a special education teacher) and a Board of Directors including a Treasurer (Christy Wheaton) and three board members (Steve Kendra, Joseph Gunn, Todd Smalley). Financial statements are referenced on a Financials page but the underlying figures from IRS filings (990N for 2022, 1120 for 2020, 990EZ for 2019) are not disclosed; no headcount is published.

Name

NF TEAM

Legal name

NF Team Foundation

Website

https://thenfteam.org

Company type

Private

Operating status

Operating

Short description

The NF Team Foundation is a US-based nonprofit that raises awareness of neurofibromatosis, funds research (notably the UW-Madison NF Swine Project), and supports NF patients and families via the NF Registry, the NF Collective provider database, and endurance-event fundraising.

Ownership category

akta.pro rank

Product category

Patient Advocacy Nonprofit Foundation

NAICS

Voluntary Health Organizations (813212), Grantmaking Foundations (813211), Grantmaking and Giving Services (81321)

SIC

Services-Social Services (8300), Services-Membership Organizations (8600), Services-Commercial Physical & Biological Research (8731)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industries

Health & Medical Research Grantmaking Foundations (BPAGAKAL), Sports Fundraising & Development Services (Foundations, NIL Collectives Support) (MPAKAKAK)

Keywords

• Neurofibromatosis awareness
• Patient advocacy foundation
• Genetic disorder research
• Clinical trial registry
• Charitable fundraising events

GTM type

B2C

Offering type

Services

Cost components

Technology or R&D, Marketing or Sales, Personnel, Operations, Others

Revenue model

1. Individual Donations: The NF Team raises funds through one-time and recurring monthly gifts made via its website donation portal (powered by Givelively). Donations support NF research, NF family support, and awareness programs.
2. Event-Based Fundraising: The organization collects registrations and fundraising contributions from participants in endurance events (Run Madtown, Choose Your Own Event, Benefit Night at Nine Mile Brewery). Proceeds support NF research at UW-Madison.

Go-to-market motion2 records

Distribution channels2 records

Marketing channels4 records

Core offering

The NF Team Foundation is a 501(c)(3) nonprofit organization that raises awareness of neurofibromatosis (NF1, NF2, and schwannomatosis), funds medical research including the NF Swine Project at the University of Wisconsin-Madison, and supports NF patients and families through the NF Registry, a provider database via the NF Collective, awareness programs, and endurance fundraising events such as Run Madtown.

Product overview

NF Team Foundation is a non-profit organization focused on raising awareness of neurofibromatosis (NF), funding medical research for treatments and a cure, and supporting the NF Family (patients, families, and supporters). The organization operates several interconnected programs: the NF Registry connects patients to clinical trials and NF experts; the NF Collective Provider Database offers a searchable directory of NF medical providers; and the flagship NF Swine Project at UW-Madison conducts preclinical research using swine models for NF1. The organization also organizes endurance events and fundraisers to support these initiatives. The portfolio centers on three genetic disorders—NF1 (affecting 1 in 3,000), NF2 (1 in 25,000), and schwannomatosis (1 in 40,000)—with the shared goal of advancing toward effective treatments and a cure.

Differentiator

Problem solved

Functional benefit

Products and services

• NF Registry A patient registry that connects NF patients and families to clinical trials, research studies, care updates, educational materials, and NF experts to improve patient care and advance NF research.
• NF Collective Provider Database A shared database of NF providers managed by the NF Collective, offering up-to-date listings of NF medical experts, their contact information, and types of patients they treat.
• NF Swine Project at University of Wisconsin-Madison The primary research project funded by the NF Team, using a swine model for NF1 that more closely mimics human conditions than traditional mouse models, studying cognitive effects, tumor growth, and testing drug therapies; UW-Madison provides NF tissue to researchers across the U.S. at cost.
• Run Madtown Endurance Event An official endurance fundraising event including a half marathon, 10K, and 5K held in Madison, Wisconsin, with all proceeds supporting NF research at UW-Madison.
• NF Awareness Programs Programs to raise awareness of neurofibromatosis (NF1, NF2, and schwannomatosis) and empower and support the NF Family through education and community resources, including NF Awareness Month activities in May.

Quantifiable outcome

• Swine model more closely resembles humans in cognitive, vascular, and tumor development than mice, shortening time to get successful therapies approved for human patients.
• +1 more outcomes

Named customers1 record

Segments2 records

Ideal customer profiles2 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eight partnerships are on record, tiered core and minor.

• Children's Tumor FoundationcoreStrategic or Co-development Partner · 1 May 2019Children's Tumor Foundation is a founding member of the NF Collective alongside The NF Team and five other NF nonprofits. Together they manage nfcollective.org, a shared database of NF providers. CTF also partners with The NF Team on the NF Registry project.
• Littlest Tumor FoundationminorStrategic or Co-development PartnerMember of the NF Collective. Focused on addressing various needs within the NF community. Contributes to the shared NF provider database at nfcollective.org.
• Neurofibromatosis NortheastminorStrategic or Co-development PartnerMember of the NF Collective. Focuses on NF awareness and support in the northeastern U.S. Contributes to the shared NF provider database.
• NF MidwestminorStrategic or Co-development PartnerMember of the NF Collective. Focuses on NF awareness and support in the midwestern U.S. Contributes to the shared NF provider database.
• Texas Neurofibromatosis FoundationminorStrategic or Co-development PartnerMember of the NF Collective. Focuses on NF awareness and support in Texas. Contributes to the shared NF provider database.
• Seventeen22 FoundationminorStrategic or Co-development PartnerMember of the NF Collective. Focuses on addressing needs within the NF community. Contributes to the shared NF provider database.
• University of Wisconsin-Madison (NF Swine Project)coreStrategic or Co-development PartnerThe NF Team funds the primary research project at UW-Madison — the NF Swine Project. The project uses swine models for NF1 that more closely mimic human conditions than mouse models. UW-Madison has state-of-the-art swine and surgical facilities. The university provides NF tissue to researchers across the U.S. at cost. All event proceeds and donations support this research.
• NF Registry (Children's Tumor Foundation)coreStrategic or Co-development PartnerThe NF Team partners with the Children's Tumor Foundation and other nonprofits to inform NF patients and families about the NF Registry (nfregistry.org). Patients who join get access to clinical trials, research updates, care recommendations, surveys, and educational materials.

Scale indicators2 records

Expansion highlights5 records

Direct peers

• Seventeen22 Foundation: A smaller NF-focused nonprofit and fellow NF Collective member. Comparable in mission, scale, and patient-community orientation to the NF Team.
• Children's Tumor Foundation: The largest and longest-standing U.S. nonprofit focused exclusively on neurofibromatosis. It is a co-founding member of the NF Collective alongside the NF Team, co-manages the NF Registry, and is the dominant NF fundraising and research-grantmaking brand — making it the most directly comparable peer.
• Texas Neurofibromatosis Foundation: A regional NF awareness and support nonprofit based in Texas and a fellow NF Collective member. Comparable mission and operating model with a regional focus.
• NF Midwest: A regional NF patient-support and awareness organization in the Midwest and fellow NF Collective member. Most directly overlaps with the NF Team in geography, given Madison, WI anchoring.
• Neurofibromatosis Northeast: A regional NF nonprofit covering the northeastern U.S. and a co-member of the NF Collective. Comparable mission, fundraising model, and patient-support focus; differs primarily by geography.
• Littlest Tumor Foundation: A fellow NF Collective member focused on supporting NF families, particularly children. Directly comparable in mission, scale, and patient-support orientation to the NF Team.

Broad incumbents

• Children's Oncology Group: A major cooperative pediatric cancer research network that includes NF-related tumor research. Provides a comparable institutional model of consortium-based, multi-site research infrastructure that NF Team aspires to via the NF Collective.
• National Organization for Rare Disorders (NORD): The umbrella advocacy and research-funding body for rare diseases in the U.S., including NF. Broader in scope and significantly larger than the NF Team, but operates in the same disease-research-grantmaking and patient-advocacy space.
• American Cancer Society: A large, established disease-specific research and patient-support nonprofit. Comparable in operating model — donations, events, research grants, awareness — but vastly larger and operating in oncology rather than NF.

Others

• Genetic Alliance: A coalition of disease-specific patient organizations including NF-related groups. Comparable as an enabling infrastructure player for small disease-focused nonprofits, but is a network/umbrella rather than a direct NF service provider.

Market position

Strengths4 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights6 records

Customer concentration

Revenue estimate

Valuation estimate

Number of profiles

Profiles5 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about NF TEAM