LDLT

What LDLT does

LDLTregistry.org operates the International Living Donor Liver Transplant Registry, the largest international outcomes registry of its kind, collecting prospective data on living donor liver transplantation (LDLT) donor-recipient pairs from transplant centers worldwide. The web-based platform enables centers to form local teams (up to 3 investigators plus 1 auditor) and submit anonymized consecutive cases through an electronic Case Report Form (eCRF), with morbidity and mortality tracked through hospital discharge, 90-day postoperative follow-up, and 12-month outcomes. Supporting tooling includes a downloadable paper CRF for offline extraction, clinical conversion calculators, and a data request workflow for approved spin-off studies. The platform uses SSL/TLS encryption, GDPR-compliant storage, and is integrated into ICO and ISRCTN registries; it is accessible on desktop, tablet, or smartphone without API or third-party integrations.

The organization is a non-profit international research collaborative, incorporated in England and Wales as LDLTregistry.org LTD, with its registered office in London and academic headquarters at Klinik Hirslanden in Zurich. Governance rests with founders Dimitri Raptis, Marina Berenguer, Michael Spiro, and Mohamed Rela, supported by Chief Investigators in India, the United States, and Japan, a Country Leaders network of 47, and Scientific, Management, and Administration Committees. Revenue consists entirely of institutional grants and donations, anchored by five-year funding commitments from the iLDLT Group and the International Liver Transplantation Society (ILTS), a grant from The Transplantation Society (TTS), and Platinum/Gold sponsorship from Rela Hospital Chennai and the Valencian Medical Foundation for the Study of Liver Diseases. Participation is free, and PubMed-citable group authorship for all collaborators who submit valid cases is the principal incentive driving member recruitment. Scientific output includes an Editor's Choice article in the American Journal of Transplantation and a comparative outcomes study in Transplantation, with three further manuscripts in production.

Name

LDLT

Legal name

LDLTregistry.org LTD

Website

https://ldltregistry.org

Company type

Private

Founded year

2023

Operating status

Operating

Short description

LDLTregistry.org is a non-profit international research registry operating the largest database of living donor liver transplantation outcomes, with 635 members across 52 countries contributing anonymized donor-recipient case data via an electronic Case Report Form.

Ownership category

akta.pro rank

Product category

Clinical Research Registry

NAICS

Blood and Organ Banks (621991), Voluntary Health Organizations (813212)

SIC

Services-Medical Laboratories (8071), Services-Membership Organizations (8600)

akta.pro primary industry

Transplant Hepatology (HLAKAEAK)

akta.pro secondary industries

Hepatology & Liver Disease (HLAKAEAB), Blood, Organ & Tissue Donation Organizations (BPAGACAJ)

Keywords

• Clinical registry platform
• Transplant outcome data
• Medical research registry
• Case report forms
• Liver transplantation research

Headquarters

HQ city

Zurich

HQ country

Switzerland

HQ region

Europe

Offices2 records

Markets served

GTM type

B2B

Offering type

Software

Cost components

Personnel, Technology or R&D, Infrastructure, Operations, Marketing or Sales

Revenue model

1. Funding and Grants: LDLTregistry.org is funded through institutional grants and donations. Major funders include iLDLT Group and ILTS (five-year funding commitment), TTS (grant), and individual donors. Additional funding from Rela Hospital Chennai (Platinum), and Valencian Medical Foundation for the Study of Liver Diseases (Gold). The organization also accepts donations. No commercial revenue model exists as this is a non-profit research registry.

Go-to-market motion1 record

Distribution channels2 records

Marketing channels6 records

Core offering

LDLTregistry.org operates an international, web-based patient registry platform that collects and analyzes outcome data on living donor liver transplantation (LDLT) from transplant centers worldwide. Participating centers register teams of investigators and submit consecutive unselected donor-recipient cases through an electronic Case Report Form, capturing donor and recipient morbidity and mortality data through hospital discharge, 90-day follow-up, and 12-month outcomes, with PubMed-citable group authorship granted to contributing collaborators.

Product overview

LDLTregistry.org is a single, unified international clinical registry platform for Living Donor Liver Transplantation (LDLT). The core offering consists of the LDLTregistry.org web-based registry platform that enables international centers to submit consecutive donor-recipient case data through an electronic Case Report Form (eCRF). Supporting tools include downloadable paper CRFs for offline data collection, conversion calculators for clinical parameters, multi-language patient consent forms, and a data access program for spin-off studies. The platform captures morbidity and mortality data for both donors and recipients through hospital discharge and up to 90 days postoperatively, with additional 12-month follow-up outcomes. The registry has no API or third-party integrations but operates as a standalone, secure web platform with SSL/TLS encryption and GDPR-compliant data handling.

Differentiator

Problem solved

Functional benefit

Products and services

• LDLTregistry.org Platform A web-based international clinical registry platform for collecting and analyzing outcomes of living donor liver transplantation (LDLT). Transplant centers register multi-disciplinary teams, submit consecutive unselected donor-recipient cases through an electronic Case Report Form, and receive PubMed-citable group authorship in resulting peer-reviewed publications. Captures donor and recipient morbidity and mortality through hospital discharge, 90-day follow-up, and 12-month outcome data.
• Spin-off Studies Data Access A formal secondary-analysis access program that grants approved investigators anonymized raw registry data for peer-reviewed spin-off studies in living donor liver transplantation. Submissions are made through the Data Request Form by registered members and reviewed by the Data Management Committee under defined governance procedures.

Quantifiable outcome

• First publication in American Journal of Transplantation with cohort of 1,575 donor-recipient pairs providing insights into global variation in LDLT practices
• +2 more outcomes

Named customers3 records

Segments1 record

Ideal customer profiles2 records

Technology focussed Yes

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature3 records

Partnerships

Three partnerships are on record, tiered core and supporting.

• Klinik HirslandencoreOthersHost institution for the academic headquarters of LDLTregistry.org in Zurich, Switzerland. Endorsed by Hirslanden as a supporting organization.
• IHPBA (International Hepato-Pancreato-Biliary Association)supportingOthersEndorsed by IHPBA as a supporting organization.
• University College London (UCL)supportingOthersAcademic partner of LDLTregistry.org.

Scale indicators5 records

Recent moves6 records

Expansion highlights6 records

Regional players

• Korean Organ Transplantation Registry (KOTRY): Korean national transplant outcomes registry covering liver, kidney, heart and other organs. Comparable as a structured transplant outcomes data platform with multi-center participation, but limited to Korea and broader in organ coverage.
• NHS Blood and Transplant (NHSBT) UK Transplant Registry: UK national transplant data registry covering solid organ transplantation including liver. Comparable as a transplant outcomes data source for one of LDLTregistry.org's largest contributing markets (UK), though with mandatory national reporting rather than voluntary submission.
• Australia and New Zealand Liver Transplant Registry (ANZLTR): Regional liver transplant outcomes registry for Australia and New Zealand. Comparable in registry design and clinical focus but geographically limited, with several of LDLTregistry.org's country leaders (e.g., Auckland) participating in both initiatives.

Others

• The Transplantation Society (TTS): Global professional society for transplantation and a grant funder of LDLTregistry.org. Comparable in mission alignment (advancing transplantation science globally) and in constituency (transplant clinicians worldwide), but is an umbrella professional body rather than a clinical registry.
• International Living Donor Liver Transplantation Group (iLDLT Group): Professional group dedicated to advancing living donor liver transplantation and the lead five-year funder of LDLTregistry.org. Closely aligned mission and overlapping membership, but focused on education and clinical practice rather than operating a registry platform.
• International Liver Transplantation Society (ILTS): Professional society and a core funder of LDLTregistry.org with a five-year commitment. Comparable in stakeholder base (transplant clinicians and researchers worldwide) and as a convening body for LDLT science, but operates as a membership society rather than a data registry.

Broad incumbents

• United Network for Organ Sharing (UNOS): US non-profit that manages the Organ Procurement and Transplantation Network (OPTN) and operates transplant data systems. Comparable in its role as a transplant data steward serving US centers, but operating under federal contract and with much broader scope than LDLTregistry.org.
• Scientific Registry of Transplant Recipients (SRTR): US national transplant outcomes registry operated under HRSA contract, covering all organ types including liver. Comparable as a transplant outcomes data platform serving transplant centers, but mandated rather than voluntary, and much broader in scope than LDLTregistry.org's living-donor focus.

Direct peers

• European Liver Transplant Registry (ELTR): The longest-running international liver transplant outcomes registry, run under ELITA and supported by ESOT. Directly comparable to LDLTregistry.org in mission (collecting liver transplant outcome data) and customer base (transplant centers), though historically focused on Europe and predominantly deceased-donor cases.

Emerging players

• Center for International Blood and Marrow Transplant Research (CIBMTR): Collaborative research database for hematopoietic cell transplantation outcomes. Comparable as a multi-center, international outcomes registry that provides research access and group authorship to contributing centers — a similar operating model to LDLTregistry.org but in a different therapeutic area.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xtwitter.com/LDLT_registry
• Facebookfacebook.com/people/LDLTregistryorg/100085156434496
• Instagraminstagram.com/ldltregistry

Compliance5 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles12 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about LDLT