dysautonomia support network
Dysautonomia Support Network (DSN) is a 501(c)(3) nonprofit providing education, peer support communities, and resources for patients affected by dysautonomia, serving over 50,000 members worldwide through free handbooks, a provider directory, and community groups across four U.S. regions and special interest segments.
- Company typePrivate
- Founded-
- HeadquartersProvidence, United States
- Headcount—
- GTM typeB2C
- OfferingServices
What dysautonomia support network does
Dysautonomia Support Network (DSN) is a 501(c)(3) nonprofit organization headquartered in Providence, Rhode Island, that provides education, peer support, and advocacy resources for individuals affected by dysautonomia — a category of autonomic nervous system disorders that includes POTS, orthostatic hypotension, vasovagal syncope, and long COVID-related autonomic dysfunction. Founded as a patient-run organization, DSN serves an addressable population estimated at 70 million individuals globally and reports over 50,000 members across its online communities, organized into global, four U.S. regional, and multiple special interest groups (Caregivers, College Connections, Creatives Club, LGBTQ+, Military Families).
The organization's core product portfolio comprises a free resource library of downloadable handbooks (Thriving in School, Thriving in College, Thriving at Work, assistive technology, research evaluation) and condition-specific handouts, a Dyscovery Education video series, and a Healthcare Provider Directory compiled from patient recommendations. Its first monetized product, The Dysautonomia Workbook: A Guide to Empowered Living, priced at $36.99 and authored by occupational therapists with both clinical expertise and lived dysautonomia experience, launched as a December 2025 homepage feature. The underlying technology stack is modest: a WordPress-based website supplemented by Facebook groups and the Inspire patient social network for community delivery, with Google Analytics, Piwik/Matomo, and Clicky for web analytics.
DSN's business model is donation-driven. As a 501(c)(3), it is 100% funded through individual donations (one-time and monthly), supplemented by product sales and a diversified set of fundraising mechanisms including the iGive shopping portal (2,095 participating stores), Facebook and Meta fundraisers, GroupRaise restaurant fundraisers, and Charity Choice gift card donations. Pricing is bimodal: resources and community access are free, while the workbook is sold as a one-time purchase. Distribution is primarily direct-to-consumer through the website and community platforms. The organization holds a GuideStar Transparency Seal and a GreatNonprofits 2023 Top-Rated designation, and is a member of the Ehlers-Danlos Society Global Alliance and the Global Genes Advocacy Alliance.
dysautonomia support network firmographics
Firmographics- Name
- dysautonomia support network
- Legal name
- Dysautonomia Support Network
- Website
- https://dysautonomiasupport.org
- Company type
- Private
- Operating status
- Operating
- Short description
- Dysautonomia Support Network (DSN) is a 501(c)(3) nonprofit providing education, peer support communities, and resources for patients affected by dysautonomia, serving over 50,000 members worldwide through free handbooks, a provider directory, and community groups across four U.S. regions and special interest segments.
- Ownership category
- akta.pro rank
dysautonomia support network industry classification
Industry- Product category
- Patient Advocacy and Health Education
- NAICS
- Other Individual and Family Services (624190), Educational Support Services (611710)
- SIC
- Services-Social Services (8300)
- akta.pro primary industry
- Disability Services & Independent Living Support (BPAGACAG)
Keywords
Where dysautonomia support network is headquartered
LocationHeadquarters
- HQ city
- Providence
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
dysautonomia support network business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Marketing or Sales, Technology or R&D, Operations, Others
Revenue model
- Donations: DSN is a 501(c)(3) nonprofit that relies 100% on donations from supporters. Donations fund community programs, educational content, support groups, and awareness efforts.
- Product Sales: Sale of educational products including The Dysautonomia Workbook: A Guide to Empowered Living priced at $36.99, as well as handbooks and educational materials.
- Fundraising: Multiple fundraising mechanisms including iGive shopping portal (2095 stores), Facebook fundraisers, Meta fundraisers, local restaurant fundraisers via GroupRaise, and unused gift card donations via Charity Choice.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| One time/ perpetual license | Pay-as-you-go | The Dysautonomia Workbook: A Guide to Empowered Living |
Go-to-market motion1 record
Distribution channels4 records
Marketing channels7 records
dysautonomia support network product offering
Product offeringCore offering
Dysautonomia Support Network is a 501(c)(3) nonprofit that provides free educational resources, peer support communities, and advocacy tools for individuals affected by dysautonomia. Its offerings center on a flagship paid guidebook (The Dysautonomia Workbook), supplemented by free downloadable handbooks, condition-specific handouts, an educational video series, a healthcare provider directory, and online peer-support communities hosted on Facebook and Inspire.
Product overview
Dysautonomia Support Network is a 501(c)(3) nonprofit organization operating a community-focused platform providing educational resources, peer support, and advocacy for individuals affected by dysautonomia. The organization's product portfolio centers on The Dysautonomia Workbook (a paid guidebook at $36.99), supplemented by free downloadable Handbooks (K-12 education, college, workplace, assistive technology, research evaluation) and Handouts covering specific dysautonomia conditions. Core services include a Healthcare Provider Directory, Dyscovery Education video series, and Online Community Groups hosted on Facebook and Inspire platforms. The organization also operates donation and fundraising infrastructure to support ongoing community programs.
Differentiator
Problem solved
Functional benefit
Quantifiable outcome
- Over 50,000 members served worldwide through online communities
- +2 more outcomes
Companies that use dysautonomia support network
Customer profileNamed customers4 records
Segments5 records
Ideal customer profiles4 records
dysautonomia support network technology and API
TechnologyAPI detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration5 records
dysautonomia support network partnerships and signals
Strategic signalPartnerships
Six partnerships are on record, tiered core and minor.
- InspirecoreDSN partners with Inspire, a patient-focused social network designed to connect patients, families, friends, and health professionals. DSN hosts a community on Inspire's platform where members can register for accounts and connect confidentially.
- Ehlers-Danlos SocietycoreDSN is a member of the Ehlers-Danlos Society's global alliance. This partnership reflects the strong connection between EDS and dysautonomia, as many EDS patients also experience autonomic dysfunction.
- Global GenescoreDSN is a member of the Global Advocacy Alliance, supporting rare disease awareness and advocacy efforts. This partnership connects DSN with broader rare disease advocacy networks.
- iGiveminoriGive is a free shopping service where purchases at over 2095 stores generate donations to DSN. Shoppers download iGive and choose DSN as their charity of choice.
- Charity ChoiceminorDSN accepts unused gift card donations through Charity Choice. Donors can donate unused store and restaurant gift cards, with proceeds going to DSN less a small processing fee.
- GroupRaiseminorGroupRaise matches local restaurants with causes for fundraising events. DSN members can organize restaurant fundraisers through this platform.
Scale indicators4 records
Recent moves12 records
Expansion highlights5 records
dysautonomia support network competitors and assessment
Company assessmentMarket position
Competitive moat5 records
Key risks5 records
Key highlights6 records
Customer concentration
dysautonomia support network social profiles
Digital presencedysautonomia support network compliance and trust
Trust signalCompliance5 records
dysautonomia support network financial estimates
Financial estimateRevenue estimate
Valuation estimate
dysautonomia support network leadership team
Management profileNumber of profiles
Profiles2 records
dysautonomia support network funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
dysautonomia support network M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about dysautonomia support network
What does dysautonomia support network do?
Dysautonomia Support Network is a 501(c)(3) nonprofit that provides free educational resources, peer support communities, and advocacy tools for individuals affected by dysautonomia. Its offerings center on a flagship paid guidebook (The Dysautonomia Workbook), supplemented by free downloadable handbooks, condition-specific handouts, an educational video series, a healthcare provider directory, and online peer-support communities hosted on Facebook and Inspire.
Is dysautonomia support network a public or private company?
dysautonomia support network is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was dysautonomia support network founded?
dysautonomia support network was founded in -1.
Where is dysautonomia support network based?
dysautonomia support network is headquartered in Providence, United States, in the North America region.
How does dysautonomia support network make money?
Three revenue lines are on record. Donations are the primary driver. The others are product Sales and fundraising.
Does dysautonomia support network have an API?
No public API is recorded for dysautonomia support network.
What industry is dysautonomia support network in?
dysautonomia support network's product category is Patient Advocacy and Health Education. Its primary akta.pro industry code is BPAGACAG, Disability Services & Independent Living Support. Its NAICS code is 624190 and its SIC code is 8300.