ALS Network

Nonprofit ALS patient services and researchalsnetwork.org

ALS Network is a 501(c)(3) nonprofit (formerly ALS Golden West) that provides free care management, equipment loans, support groups, research funding, and advocacy to nearly 2,500 people with ALS and their families across California and Hawaii, with growing national reach.

Company typePrivate
Founded-
HeadquartersWoodland Hills, United States
Headcount11–50
GTM typeB2C
OfferingServices

What ALS Network does

ALS Network is a 501(c)(3) nonprofit organization (Tax ID 95-4163338), formerly known as ALS Golden West, that delivers a comprehensive suite of free services to people living with amyotrophic lateral sclerosis (ALS) and their families across California and Hawaii, with virtual services available nationwide. Its core offerings include professional Care Management Services (free expert advice and assistance), an Equipment Loan Program covering durable medical equipment and Augmentative and Alternative Communication (AAC) speech-generating devices, facilitated Connection Groups (including caregiver, veteran, trach/vent, LGBTQIA+, Spanish-language, and bereavement cohorts), the ALStogether Slack-based online support community, ASK ME educational webinars, and the newly launched ALS Transfer Video Series developed with Your ALS Guide. The organization also operates a Research Funding Program that has invested over $21M cumulatively, including $2.4M in 2025 grants to more than 40 researchers, and an Advocacy Program supporting federal and state policy initiatives such as the ACT for ALS Act reauthorization.

The underlying technology is modest and non-proprietary: ALS Network does not develop software products. It leverages standard digital platforms — Slack for the ALStogether community, video and webinar infrastructure for educational content, web-based resource libraries, and ESRI-developed resource maps for California and Hawaii showing clinics and connection groups. Operational distribution is anchored by three physical offices (Woodland Hills, Berkeley, Honolulu) staffed by Care Managers, supplemented by virtual service delivery and a national footprint being expanded through two 2026 strategic integrations: ALStogether (digital community, announced 2026-02-24) and ALS ONE (Massachusetts-based research and care nonprofit merger, announced 2026-02-11, pending regulatory approval).

The business model is donation-funded rather than revenue-generating. All services to patients and families are provided free of charge, regardless of insurance or immigration status. Funding sources include individual donations (one-time and monthly), tribute and memorial gifts (e.g., the Big Smoke Tribute Fund honoring Steve Ellis), community fundraising events (Walk to Defeat ALS, Ride to Defeat ALS, Champions for Cures and Care gala, Lou Gehrig Day MLB partnerships), corporate/foundation grants (including a $50,000 Stupski Foundation grant in August 2025), and collaborative research funding administered through the ALS United national affiliation. Revenue is not publicly disclosed; the organization reports financials via Form 990 and audited statements. Customer/beneficiary segments are diversified across patients, caregivers and families, veterans and military families, and researchers/clinicians, with a 4-Star Charity Navigator rating maintained every year since 2013 and Platinum Transparency status from Candid/GuideStar.

ALS Network firmographics

Firmographics

Name: ALS Network
Legal name: ALS Network
Website: https://alsnetwork.org
Company type: Private
Operating status: Operating
Headcount range: 11–50 employees
Short description: ALS Network is a 501(c)(3) nonprofit (formerly ALS Golden West) that provides free care management, equipment loans, support groups, research funding, and advocacy to nearly 2,500 people with ALS and their families across California and Hawaii, with growing national reach.
Ownership category
akta.pro rank

ALS Network industry classification

Industry

Product category: Nonprofit ALS patient services and research
NAICS: Voluntary Health Organizations (813212), Other Individual and Family Services (624190)
SIC: Services-Social Services (8300), Services-Misc Health & Allied Services, Nec (8090)
akta.pro primary industry: Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

Keywords

ALS patient services
Nonprofit care management
ALS research funding
Community advocacy
Durable medical equipment loans

Where ALS Network is headquartered

Location

Headquarters

HQ city: Woodland Hills
HQ country: United States
HQ region: North America

Offices3 records

Markets served

ALS Network business model

Business model

GTM type: B2C
Offering type: Services
Cost components: Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

Individual Donations: The organization relies on donations from individuals, with one-time and monthly donation options available through its website.
Fundraising Events: Revenue generated through events including Walk to Defeat ALS, Ride to Defeat ALS, and other community fundraising activities.
Tribute Gifts and Memorial Donations: Donations made in honor or memory of individuals, including tribute funds like the Big Smoke Tribute Fund honoring Steve Ellis.

Pricing tiers

Model	Billing	Price
Other	Other	Free care services for people with ALS

Go-to-market motion2 records

Distribution channels3 records

Marketing channels6 records

ALS Network product offering

Product offering

Core offering

ALS Network is a 501(c)(3) nonprofit that provides free care services, connection groups, equipment loans, educational webinars, and emotional support to people with ALS and their families across California and Hawaii. It also funds ALS research grants and operates public policy advocacy programs. All services are delivered at no cost to patients regardless of insurance or immigration status.

Product overview

The ALS Network is a nonprofit organization (formerly ALS Golden West) that provides a comprehensive suite of services for people living with ALS and their families across California and Hawaii. The organization offers free professional Care Management Services, the ALStogether Slack-based online support community, Equipment Loan Programs (including AAC communication devices), Connection Groups, ASK ME Educational Webinars, the ALS Transfer Video Series, Bereavement Support, Emotional Support Services, Research Funding, and Advocacy Programs. These services work together to provide holistic support encompassing care navigation, peer connection, equipment assistance, education, research advancement, and policy advocacy for the ALS community.

Differentiator

Problem solved

Functional benefit

Products and services

Care Management Services Professional Care Managers provide expert advice and assistance for people living with ALS free of charge, offering personalized support for maximizing health, independence, mobility, safety, and communication.
ALStogether Online Community An online Slack-based community supporting ALS patients and caregivers, providing digital peer support, access to care resources, advocacy engagement, and research participation opportunities.
Equipment Loan Programs Partnership with Numotion, Superior Mobility, and Hawaii partners offering loans of durable medical equipment including communication devices to aid in daily living activities.
Augmentative and Alternative Communication (AAC) Equipment Loan Program Program implementing timely strategies to enable people with ALS to maintain optimal communication through loaner speech-generating devices and communication tools.
Connection Groups Facilitated support groups for people living with ALS, family members, and caregivers, including topic-specific groups such as Caregiver/Loved Ones, Veterans, Trach and Vent, LGBTQIA+, Español, and Bereavement.
ASK ME Educational Webinars Educational webinar series providing opportunities for people living with ALS and their families to learn about important topics, accessible via live broadcasts and on-demand through social media channels.
ALS Transfer Video Series Instructional video series helping people living with ALS and caregivers safely navigate everyday movements and transitions, covering bed, tub/shower, toilet, patient lift, and vehicle transfers.
Bereavement Support Program Support services for family members and friends who have lost a loved one to ALS.
Emotional Support Services Short-term financial assistance for counseling, referrals to therapists specializing in ALS, and partnerships for mindfulness resources including free Waking Up app subscriptions and UCLA guided meditations.
Research Funding Program Funding for ALS research through Innovation Grants, Collaborative Research Innovation Grants, and support for clinical trials, having invested over $21M in research to date.
Advocacy Program

Quantifiable outcome

Nearly 2,500 people with ALS served annually
+3 more outcomes

Companies that use ALS Network

Customer profile

Segments4 records

Ideal customer profiles4 records

ALS Network technology and API

Technology

Technology focussed No

API detail

Has API: No
API docs
API detail

Core technology

AI maturity

App detail

ALS Network partnerships and signals

Strategic signal

Partnerships

Nine partnerships are on record, tiered core, flagship and minor.

Your ALS GuidecoreStrategic or Co-development Partner · 21 April 2026Collaboration to launch the 'ALS Transfer Video Series,' instructional videos designed to help people living with ALS and their caregivers safely navigate everyday movements and transitions. The series covers six key transfer categories including bed, tub and shower, toilet, patient lift, and vehicle transfers.
ALStogethercoreStrategic or Co-development Partner · 24 February 2026ALStogether, an online Slack community for people living with ALS and their caregivers founded by Brooke Eby, integrated into the ALS Network to expand digital peer support, care resources, advocacy engagement, and research participation opportunities. Brooke Eby remains actively involved as the community enters this new phase.
ALS ONEcoreStrategic or Co-development Partner · 11 February 2026Strategic integration combining ALS ONE's Massachusetts-based research strength and care partnerships with the ALS Network's national operational scale to accelerate research funding and expand technology-driven patient outcomes. The merger, expected to close in 2026 pending regulatory approvals, will place ALS ONE board members on the ALS Network's governing board.
Major League BaseballflagshipGTM or Marketing PartnerOngoing partnership for Lou Gehrig Day awareness events with MLB teams including Oakland Athletics, LA Dodgers, and San Francisco Giants to raise ALS awareness and support.
Waking Up (Meditation App)minorOthersPartnership to offer a free six-month subscription to the Waking Up meditation/mindfulness app for those living with ALS and their caregivers and loved ones to help manage stress and improve well-being.
ALS Multidisciplinary Treatment CenterscoreStrategic or Co-development PartnerPartnership with over 30 ALS clinic partners including Certified Treatment Centers of Excellence and Recognized Treatment Centers to provide quality multidisciplinary care throughout California and Hawaii.
ALS United (and member organizations)coreStrategic or Co-development PartnerCollaborative research program through ALS United, facilitating infrastructure streamlining and directing resources toward high-potential ALS research across the national network. Includes partnerships with ALS Northwest, ALS United Connecticut, ALS United Greater New York, and others.
ALS News TodayminorGTM or Marketing PartnerContent partnership featuring ALS News Today articles on the ALS Network website, providing the ALS community with recent news and first-hand community perspectives.
Numotion and Superior MobilityminorOthersEquipment partners for the Equipment Loan Program providing durable medical equipment including communication devices for people with ALS.

Scale indicators7 records

Recent moves9 records

Expansion highlights6 records

ALS Network competitors and assessment

Company assessment

Direct peers

ALS ONE: Massachusetts-based ALS nonprofit focused on research and care partnerships. Now integrating into ALS Network — highly comparable mission, with a complementary regional research orientation.
Les Turner ALS Foundation: Chicago-based ALS nonprofit providing care services, research funding, and advocacy. Directly comparable regional model with multidisciplinary clinic partnerships and patient support services.
The ALS Association: The largest U.S. nonprofit dedicated to ALS research, care services, and advocacy. Directly comparable mission and service mix (care management, research grants, public policy), operating at national scale.
ALS Therapy Development Institute: ALS-focused biotech and research nonprofit. Comparable disease-specific mission, but heavier orientation toward drug discovery and translational research rather than direct patient services.
ALS Northwest: Regional ALS United affiliate serving Oregon and southwest Washington. Provides the same suite of care services, research funding, and advocacy as ALS Network in a different geography.

Emerging players

Project ALS: ALS-focused research nonprofit funding translational science at leading institutions. Overlaps with ALS Network's research grant program but lacks direct care-service delivery.
Answer ALS: Research consortium and patient data program focused on ALS biomarkers and personalized treatment. Relevant peer for ALS Network's research funding and clinical trial navigation services.
Target ALS: ALS-focused nonprofit funding collaborative research and drug discovery consortia. Relevant peer in the research-funding category, with comparable scientific advisory and grant-making functions.

Broad incumbents

ALS United: National umbrella organization of which ALS Network is a member. Coordinates collective advocacy and research funding across regional affiliates; serves as the structural counterpart and convener for ALS Network's collaborative programs.
Muscular Dystrophy Association: Large nonprofit covering ALS within a broader neuromuscular disease portfolio. Comparable in care-service delivery and research funding model, but competes for the same donor dollars across a wider disease remit.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat5 records

Key risks5 records

Key highlights6 records

Customer concentration

ALS Network compliance and trust

Trust signal

Compliance4 records

ALS Network financial estimates

Financial estimate

Revenue estimate

Valuation estimate

ALS Network leadership team

Management profile

Number of profiles

Profiles13 records

ALS Network subsidiaries and ownership

Company hierarchy

Subsidiaries1 record

ALS Network funding detail

Funding detail

Funding overview

Funding rounds1 record

Investors1 record

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

ALS Network M&A and investment

M&A and investment

M&A2 records

Investments1 record

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about ALS Network

What does ALS Network do?

Is ALS Network a public or private company?

ALS Network is a private company. It is classified as nonprofit foundation owned and is currently operating.

When was ALS Network founded?

ALS Network was founded in -1. It employs 11 to 50 people.

Where is ALS Network based?

ALS Network is headquartered in Woodland Hills, United States, in the North America region.

How does ALS Network make money?

Three revenue lines are on record. Individual Donations are the primary driver. The others are fundraising Events and tribute Gifts and Memorial Donations.

Who are ALS Network's main competitors?

Direct peers on record are ALS ONE, Les Turner ALS Foundation, The ALS Association, ALS Therapy Development Institute and ALS Northwest. Emerging players are Project ALS, Answer ALS and Target ALS. Broad incumbents are ALS United and Muscular Dystrophy Association.

Does ALS Network have an API?

No public API is recorded for ALS Network.

What industry is ALS Network in?

ALS Network's product category is Nonprofit ALS patient services and research. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS). Its NAICS code is 813212 and its SIC code is 8300.