Your ALS Guide
Your ALS Guide is a Boulder, Colorado-based web platform that provides free, expert-reviewed educational content — guides, videos, and resources — on the full ALS patient journey to people with ALS, families, caregivers, and veterans, and monetizes a Content Licensing Program for ALS nonprofit organizations.
- Company typePrivate
- Founded2017
- HeadquartersBoulder, United States
- Headcount1–10
- GTM typeB2B and B2C
- OfferingDigital Commerce or Content
What Your ALS Guide does
Your ALS Guide LLC is a privately held, family-founded educational platform headquartered at 1165 Bear Mountain Drive, Boulder, Colorado. The company was established by the Stroth family after the death of Myna Stroth from ALS (amyotrophic lateral sclerosis, also known as Lou Gehrig's disease), with the explicit purpose of creating the type of practical, consolidated resource the family wished had existed during their own experience. The product is a single web-based platform — youralsguide.com — comprising hundreds of webpages and videos covering the full ALS journey: diagnosis, home and daily living, equipment, respiratory care, power wheelchairs, communication, mental health, caregiver support, genetic testing, clinical trials, and end-of-life planning. Content is developed and reviewed with leading ALS medical experts, including Dr. Terry Heiman-Patterson (Temple University MDA/ALS Center of Hope), Dr. Richard Bedlack (Duke ALS Clinic), Dr. Jeremy Shefner, and genetic counselor Laynie Dratch, with additional review by the full ALS Hope Foundation clinical team.
The platform serves four distinct customer segments: people with ALS and their families (the primary audience, accessing content free of charge), U.S. military veterans with ALS (a population eligible for VA service-connected benefits), ALS and healthcare professionals (who receive free educational handouts for patient education), and ALS nonprofit organizations (the only paying customer segment, via the Content Licensing Program). The company operates a dual GTM motion: a direct-to-consumer free resource model for individuals and families, layered with a B2B content licensing program that enables ALS organizations to co-brand educational handouts and embed Your ALS Guide digital content — including videos — into their own websites under multi-year contracts. Distribution is reinforced by strategic partnerships, most notably the co-developed ALS Clinic Locator tool built with GeoALS, the ALS Association, the Veterans Health Administration, and the International Alliance of ALS/MND Associations, which embeds the platform in clinical-discovery workflows. Additional partnerships with I AM ALS, ALS Untangled, and ALS Trial Navigator extend the platform into advocacy, alternative-treatment evaluation, and clinical trial recruitment respectively, and the company surfaces NIH-funded ALL ALS Consortium research to its audience.
The business is operated with a small team — Kim Hughes serves as Content Director and Steve Schapiro as Director of Partnerships — and there is no evidence of venture capital, private equity, or institutional investment. Revenue is generated primarily through the Content Licensing Program, supplemented by sponsorships and advertising handled through the partnerships function; no revenue figure is publicly disclosed. The platform does not operate a mobile app, does not expose a public API, and has no disclosed AI or machine learning capabilities — its value is concentrated in the depth, expert validation, and breadth of its curated content library and the institutional referral ecosystem that funnels high-intent patients and families to the site.
Your ALS Guide firmographics
Firmographics- Name
- Your ALS Guide
- Legal name
- Your ALS Guide LLC
- Website
- https://youralsguide.com
- Company type
- Private
- Founded year
- 2017
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Your ALS Guide is a Boulder, Colorado-based web platform that provides free, expert-reviewed educational content — guides, videos, and resources — on the full ALS patient journey to people with ALS, families, caregivers, and veterans, and monetizes a Content Licensing Program for ALS nonprofit organizations.
- Ownership category
- akta.pro rank
Your ALS Guide industry classification
Industry- Product category
- Healthcare Education and Patient Resources
- NAICS
- Services for the Elderly and Persons with Disabilities (624120), Other Individual and Family Services (624190)
- SIC
- Services-Misc Health & Allied Services, Nec (8090), Services-Educational Services (8200)
- akta.pro primary industry
- Family Caregiver Training & Dementia Coaching (HSABAEAI)
- akta.pro secondary industries
- Dementia Care Coordination & Care Planning (HSABAEAJ), Memory Care Care Management & Navigation (Dementia Care Coordination) (HLADACAJ)
Keywords
Where Your ALS Guide is headquartered
LocationHeadquarters
- HQ city
- Boulder
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
Your ALS Guide business model
Business model- GTM type
- B2B and B2C
- Offering type
- Digital Commerce or Content
- Cost components
- Personnel, Technology or R&D, Marketing or Sales, Operations
Revenue model
- Content Licensing Program: Your ALS Guide offers a paid content licensing program that enables ALS organizations to co-brand educational handouts (digital and print) and integrate Your ALS Guide digital content, including videos, into their own websites. This B2B revenue stream supports the organization's sustainability while expanding reach of ALS education.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Freemium | Annual | Free access to all website content |
| Subscription | Multi-year contract | Content licensing for ALS organizations |
Go-to-market motion1 record
Distribution channels3 records
Marketing channels6 records
Your ALS Guide product offering
Product offeringCore offering
Your ALS Guide is a comprehensive web-based educational platform that provides free trusted information, practical tips, educational videos, expert advice, and downloadable handouts for families affected by ALS (also known as Lou Gehrig's disease). Its content spans diagnosis, care options, equipment, mental health, respiratory support, communication, and research participation, complemented by an integrated ALS Clinic Locator and a paid Content Licensing Program for ALS organizations.
Product overview
Your ALS Guide is a comprehensive educational website serving as a practical guide for families impacted by ALS. The platform functions as a single unified web resource combining multiple content sections and tools. The core offering is the main Your ALS Guide website, which houses specialized sub-guides including the ALS Research Guide, ALS Equipment Guide, ALS Home & Daily Living Guide, Newly Diagnosed Guide, and Communication Section. Additional products include the ALS Mental Health Resources, Caregivers Support section, Clinics Directory (integrated with GeoALS), Genetic Testing information, and Clinical Trials resources. The site also offers a free newsletter, educational handouts for healthcare professionals, fliers, and a paid Content Licensing Program for ALS organizations. The ALL ALS observational study enrollment support represents a research-oriented offering. The platform does not have a mobile app or standalone software product—it is entirely web-based.
Differentiator
Problem solved
Functional benefit
Products and services
- Your ALS Guide Website Comprehensive educational website providing trusted information, practical tips, videos, expert advice, and resources for families impacted by ALS (amyotrophic lateral sclerosis), also known as Lou Gehrig's disease. Covers diagnosis, care options, equipment, mental health, communication, respiratory care, power wheelchairs, research participation, and caregiver support, including an integrated ALS Clinic Locator.
- Content Licensing Program Paid B2B licensing program that enables ALS nonprofit organizations to co-brand Your ALS Guide educational handouts (digital and print) and integrate Your ALS Guide digital content, including videos, into their own websites. Supports the organization's sustainability while expanding reach of ALS education through institutional partners.
- Educational Handouts for Professionals Free downloadable educational handouts and fliers covering ALS topics such as activities of daily living, medical decisions, care options, planning, and equipment. Designed for ALS and healthcare professionals to download, email, print, and share with families.
Companies that use Your ALS Guide
Customer profileNamed customers2 records
Segments4 records
Ideal customer profiles3 records
Your ALS Guide technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Your ALS Guide partnerships and signals
Strategic signalPartnerships
Eleven partnerships are on record, tiered core, major and supporting.
- GeoALScoreGeoALS is a nonprofit organization providing a geospatial platform to increase access to care, accelerate research, and advocate for the ALS community. In partnership with Your ALS Guide, GeoALS developed the ALS Clinic Locator integrated into the Your ALS Guide website.
- ALS AssociationcoreALS Association is a nonprofit organization serving the ALS community. Partnered with Your ALS Guide and others to develop the ALS Clinic Locator tool for finding ALS clinics in the U.S. and around the world.
- Veterans Health AdministrationcoreVeterans Health Administration partnered with Your ALS Guide, ALS Association, and others to develop the ALS Clinic Locator, helping veterans with ALS find appropriate care facilities.
- International Alliance of ALS/MND AssociationscoreInternational Alliance of ALS/MND Associations partnered with Your ALS Guide and others to develop the ALS Clinic Locator for global ALS clinic discovery.
- ALS Hope FoundationcoreALS Hope Foundation team at the MDA/ALS Center of Hope at Temple University, with over 15 years of experience working with ALS patients, collaborated with Your ALS Guide to film videos and review all guide content for accuracy. Executive Director Jamey Piggott provided endorsement and collaboration.
- Joel and Karen GoldhirshmajorJoel and Karen Goldhirsh, after their experience with ALS, partnered with Your ALS Guide to develop a comprehensive caregiver training guide. They hosted filming in their Denver home and helped raise funds to support creation and promotion of the guide.
- ALS UnitedmajorALS United (formerly ALS Association Greater New York Chapter) refers patients, caregivers, and families to Your ALS Guide as a trusted resource. President and CEO Jerry Dawson provided testimonial endorsement.
- ALS UntangledsupportingALS Untangled is a trusted website led by Duke ALS Clinic neurologist Dr. Richard Bedlack that reviews alternative treatments. Your ALS Guide references and links to ALS Untangled resources to help families make informed decisions about alternative treatments.
- ALS Trial NavigatorsupportingALS Trial Navigator is an online tool that helps patients find and enroll in clinical trials. Your ALS Guide references and links to the ALS Trial Navigator to help families find experimental treatment options.
- I AM ALSsupportingI AM ALS is an advocacy organization that provides support and education to people impacted by ALS. Your ALS Guide references their resources and connects patients to their programs.
- NIH (National Institutes of Health)coreNIH funds the ALL ALS Consortium, a nationwide observational study. Your ALS Guide provides information about ALL ALS and the PREVENT study to help patients participate in research and advance ALS science.
Scale indicators2 records
Recent moves6 records
Expansion highlights6 records
Your ALS Guide competitors and assessment
Company assessmentBroad incumbents
- Alzheimer's Association: The Alzheimer's Association is the largest US nonprofit for Alzheimer's and other dementia, providing caregiver education, family support, and clinical resources. It is the closest structural and mission analog to Your ALS Guide, operating at much greater scale for a far larger patient population with similar caregiver-navigation challenges.
- National Multiple Sclerosis Society: The National MS Society is the largest US nonprofit for multiple sclerosis, providing patient and caregiver education, advocacy, and research funding. It is a broad incumbent analog operating the same kind of comprehensive disease-specific education and family support model for a different chronic neurological condition.
- Parkinson's Foundation: The Parkinson's Foundation is the largest US nonprofit for Parkinson's disease, providing patient education, caregiver resources, and research support. It is a broad incumbent analog in structure and mission, serving a parallel neurodegenerative disease community rather than directly competing in ALS.
Direct peers
- Project ALS: Project ALS is a nonprofit funding research and providing patient-facing materials for the ALS community. It is a direct peer with comparable mission and target audience, focused on accelerating treatments while supporting patients.
- Muscular Dystrophy Association (MDA): MDA is a major US nonprofit supporting people with neuromuscular diseases including ALS, providing educational content, advocacy, and clinical care resources through its care center network. It is a direct peer with overlapping educational offerings for the ALS community within a broader neuromuscular disease scope.
- ALS Therapy Development Institute: ALS TDI is a nonprofit biotech focused exclusively on ALS research while also publishing educational content and resources for patients and families. It is a direct peer competing in the ALS education and information space, with deeper scientific/research content and an affiliated treatment-discovery program.
- ALS Association: The ALS Association is the largest US nonprofit serving the ALS community, providing patient education, advocacy, research funding, and clinic support. It is a direct peer because both organizations operate as primary educational resources for ALS patients and families, with overlapping content and shared target audiences.
- I AM ALS: I AM ALS is a patient-led advocacy and education organization providing support, resources, and policy advocacy for the ALS community. It is a direct peer because both organizations create educational content and connect ALS families to community resources, serving the same core audience.
- ALS Hope Foundation: The ALS Hope Foundation is a nonprofit supporting ALS patients through education, patient services, and research, run from the MDA/ALS Center of Hope at Temple University. It is a direct peer because it produces ALS educational content and has actively collaborated with Your ALS Guide on content review and video production.
- International Alliance of ALS/MND Associations: The International Alliance is the global umbrella organization for ALS/MND associations worldwide, providing educational resources, professional development, and coordination. It is a direct peer at the international level and a current co-development partner of Your ALS Guide on the ALS Clinic Locator.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat4 records
Key risks6 records
Key highlights6 records
Customer concentration
Your ALS Guide social profiles
Digital presenceYour ALS Guide financial estimates
Financial estimateRevenue estimate
Valuation estimate
Your ALS Guide leadership team
Management profileNumber of profiles
Profiles2 records
Your ALS Guide funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Your ALS Guide M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Your ALS Guide
What does Your ALS Guide do?
Your ALS Guide is a comprehensive web-based educational platform that provides free trusted information, practical tips, educational videos, expert advice, and downloadable handouts for families affected by ALS (also known as Lou Gehrig's disease). Its content spans diagnosis, care options, equipment, mental health, respiratory support, communication, and research participation, complemented by an integrated ALS Clinic Locator and a paid Content Licensing Program for ALS organizations.
Is Your ALS Guide a public or private company?
Your ALS Guide is a private company. It is classified as family owned and is currently operating.
When was Your ALS Guide founded?
Your ALS Guide was founded in 2017. It employs 1 to 10 people.
Where is Your ALS Guide based?
Your ALS Guide is headquartered in Boulder, United States, in the North America region.
How does Your ALS Guide make money?
One revenue line is on record: content Licensing Program.
Who are Your ALS Guide's main competitors?
Broad incumbents on record are Alzheimer's Association, National Multiple Sclerosis Society and Parkinson's Foundation. Direct peers are Project ALS, Muscular Dystrophy Association (MDA), ALS Therapy Development Institute, ALS Association, I AM ALS, ALS Hope Foundation and International Alliance of ALS/MND Associations.
Does Your ALS Guide have an API?
No public API is recorded for Your ALS Guide.
What industry is Your ALS Guide in?
Your ALS Guide's product category is Healthcare Education and Patient Resources. Its primary akta.pro industry code is HSABAEAI, Family Caregiver Training & Dementia Coaching, with a secondary code of HSABAEAJ, Dementia Care Coordination & Care Planning. Its NAICS code is 624120 and its SIC code is 8090.