JoshProvides Epilepsy Assistance Foundation

What JoshProvides Epilepsy Assistance Foundation does

JoshProvides Epilepsy Assistance Foundation, Inc. is a 501(c)(3) nonprofit corporation headquartered at 5428 Sundew Drive, Sarasota, Florida, founded in 2008 in memory of Joshua David Chapnick by Sandi Chapnick, the late Bruce P. Chapnick, and Nicole Chapnick. The organization's mission is to improve the quality of life for individuals and families living with epilepsy or other seizure disorders. It delivers a portfolio of grants and support services rather than a software product: a twice-monthly virtual Epilepsy Support Group (Zoom, first and third Tuesdays at 6:30 PM ET), Medical Services and Transportation/Travel Grants limited to one application per twelve-month period, Seizure Alert and Detection Device Grants covering Empatica's EpiMonitor, the Emfit Movement Monitor via EpiUSA, SAMi, and the EpiWatch Apple Watch app, and Seizure Response Dog Training Grants administered in partnership with Domesti-PUPS. Complementary education programs include the EAA Seizure Alert Training for school personnel and a speaker program delivered to schools, churches, and community organizations.

The technology footprint is intentionally lean: a WordPress site (joshprovides.org), Mailchimp newsletter (eepurl.com/glMx6P), social channels on Facebook, Twitter/X, Instagram, and YouTube, and Zoom for support group delivery. Distribution is direct-to-beneficiary — grants are paid straight to physicians, facilities, or vendors on behalf of approved applicants — supplemented by healthcare-provider referral pipelines (Sarasota Memorial Hospital, Tampa General Hospital, neurologists, epileptologists). No AI/ML, software product, or proprietary data assets are developed in-house; seizure detection intelligence sits with device vendors.

The revenue model is donation-driven: individual and corporate contributions, memorial and tribute gifts, recurring giving, signature fundraising events (including the Chase Away Epilepsy Walk), and foundation grants (e.g., Bishop Parker Foundation, $15,000, Jan 2025). One hundred percent of contributions are reported as received by the foundation per its Florida registration disclosure. Governance rests with an active board of directors (Edward Scharf as Chair, Dan Vigne as Past Chair, Tom Curatolo as Treasurer, Sandi Chapnick as Secretary, Freya Robbins as At-Large, plus additional directors). Monica Caldwell became Executive Director in September 2025, succeeding Andria Bilan who retired after eight years as CEO. Headcount is in the 1–10 employee range, consistent with a regionally focused community nonprofit.

Name

JoshProvides Epilepsy Assistance Foundation

Legal name

Josh Provides Epilepsy Assistance Foundation, Inc.

Website

https://joshprovides.org

Company type

Private

Founded year

2008

Operating status

Operating

Headcount range

1–10 employees

Short description

JoshProvides is a 501(c)(3) nonprofit in Sarasota, Florida that provides financial grants, seizure detection devices, service dog training assistance, and support groups to individuals and families living with epilepsy or other seizure disorders.

Ownership category

akta.pro rank

Headquarters

HQ city

Sarasota

HQ country

United States

HQ region

North America

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations and Charitable Contributions: As a registered 501(c)(3) nonprofit corporation, JoshProvides operates primarily through individual and corporate donations. The organization receives contributions from donors, memorial gifts, tribute cards, and general charitable giving. Donations directly benefit children, families, and individuals who suffer from epilepsy or other seizure disorders.
2. Fundraising Events: The organization hosts signature special events and community fundraising activities including the Chase Away Epilepsy Walk. Funds raised at special events go directly to help people and families affected by epilepsy.
3. Corporate Partnerships: Corporate partners support the programs and services of JoshProvides through sponsorships and collaborative giving programs.

Distribution channels4 records

Marketing channels6 records

Core offering

JoshProvides Epilepsy Assistance Foundation is a 501(c)(3) non-profit that provides free grants and support services to individuals and families affected by epilepsy or other seizure disorders. Its core offerings include direct financial grants for medical services, transportation, seizure detection devices (EpiMonitor, Emfit, SAMi, EpiWatch), and seizure response dog training, as well as a virtual Epilepsy Support Group, community speaker presentations, and EAA Seizure First Aid Training for school personnel. All programs are delivered at no cost to qualifying applicants and funded entirely through donations, fundraising events, and corporate partnerships.

Product overview

JoshProvides Epilepsy Assistance Foundation is a 501(c)(3) non-profit organization that provides a portfolio of grants and support services for individuals and families affected by epilepsy. The core offerings include: an Epilepsy Support Group (virtual Zoom meetings); Medical Services and Transportation and Travel Grants; Seizure Alert & Detection Devices Grants (covering EpiMonitor, Emfit, EpiWatch, and SAMi devices); Seizure Response Dog Grants; EAA Seizure Alert Training for school personnel; and a Speaker Program. The organization does not develop or sell a software product but rather provides financial assistance and community support to help people manage epilepsy.

Differentiator

Problem solved

Functional benefit

Quantifiable outcome

• More than 400,000 individuals with epilepsy served in Florida alone
• +2 more outcomes

Named customers10 records

Segments4 records

Ideal customer profiles2 records

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Nine partnerships are on record, tiered core and minor.

• Epi USA / Christine RintalacoreStrategic or Co-development Partner · 1 January 2010Christine Rintala from Epi USA connected with Bruce Chapnick in 2010 to provide seizure monitors for the Sarasota community. The partnership began when Bruce was interested in learning about Emfit Movement Monitors for JoshProvides grants. The relationship has continued with Christine providing monitors and ongoing support.
• Domesti-PUPScoreStrategic or Co-development PartnerDomesti-PUPS has worked for more than 26 years to improve quality of life for people with special needs through assistance animals. JoshProvides partners with Domesti-PUPS to help families overcome financial barriers to receiving seizure response/alert dogs. Through grants, JoshProvides helps cover the cost of service dog training for epilepsy recipients.
• Empatica (EpiMonitor)coreTechnology or IntegrationEmpatica manufactures the FDA-cleared EpiMonitor watch that detects generalized tonic-clonic seizures and alerts caregivers. JoshProvides considers applications for purchase of the device through grants. The monthly activation fee is arranged through Empatica by the patient.
• EpiUSA (Emfit Movement Monitor)coreTechnology or IntegrationEpiUSA distributes the Emfit Movement Monitor, clinically proven technology for nighttime monitoring of convulsive movements. JoshProvides provides grants for the device which alerts caregivers to seizure activity. Contact: Christine Rintala at EpiUSA.
• SAMicoreTechnology or IntegrationSAMi is a wearable-free nighttime movement monitor for abnormal movement detection. JoshProvides provides grants for SAMi devices. The app is subscription-free and 256-bit encrypted. Contact: (720) 491-1241.
• EpiWatchcoreTechnology or IntegrationEpiWatch is an FDA-cleared Apple Watch app that detects, alerts, and monitors for tonic-clonic seizures. JoshProvides provides grants for the device. Requires prescription from healthcare provider.
• All Friends NetworkminorStrategic or Co-development PartnerAll Friends Network is an in-person social group for individuals with epilepsy. JoshProvides connects clients to this community resource for additional peer support and social connection beyond the JoshProvides support group.
• Epilepsy FoundationminorStrategic or Co-development PartnerReferenced as a resource partner for information about epilepsy. The Epilepsy Foundation provides a wealth of non-medical services including summer camps for children.
• Epilepsy Alliance AmericaminorStrategic or Co-development PartnerJoshProvides references Epilepsy Alliance America as a resource partner. Through this partnership, JoshProvides directs individuals to their on-demand seizure first aid training for school personnel.

Scale indicators6 records

Recent moves6 records

Expansion highlights6 records

Broad incumbents

• CURE (Citizens United for Research in Epilepsy): A leading epilepsy research nonprofit that also funds patient-directed programs. While primarily research-focused, it competes for the same donor base and awareness space as JoshProvides.
• Epilepsy Foundation: The largest national epilepsy nonprofit in the U.S., providing research funding, advocacy, and direct services. It is a broad incumbent in the same disease space, with overlapping beneficiary base and donor pool as JoshProvides.

Direct peers

• SUDEP Action: Focused on Sudden Unexpected Death in Epilepsy awareness, support, and device advocacy. Operates in the same disease space with comparable direct-service and education programs.
• Anita Kaufmann Foundation: Provides epilepsy education, seizure first aid training, and school program support. Closely comparable programmatic overlap with JoshProvides' speaker program and EAA-aligned training.
• Danny Did Foundation: Focused on SUDEP awareness and seizure detection/monitoring devices, funding device distribution to epilepsy families. Closely comparable mission area to JoshProvides' device-grant program.
• Chelsea Hutchison Foundation: Provides grants for seizure response dogs and seizure detection devices to individuals and families affected by epilepsy. One of the most directly comparable grant-funded programs to JoshProvides' service-dog and device-grant offerings.
• Charlie Foundation: Focused on ketogenic diet therapy and other epilepsy interventions, providing direct support to patients and families. Comparable nonprofit service model and beneficiary base.
• Hope for Hypothalamic Hamartomas: Provides direct support, education, and advocacy for a specific rare epilepsy population. Comparable niche-disease nonprofit model with similar grant and education programming.
• Epilepsy Alliance America: A national epilepsy nonprofit network providing direct services, support groups, and education — including the on-demand seizure first aid training that JoshProvides resurfaces to its community. Operates in the same disease vertical with similar program offerings.

Regional players

• Epilepsy Foundation of Florida: Regional Florida affiliate of the national Epilepsy Foundation providing local services, support groups, and education. Directly competes with JoshProvides for Florida-based beneficiaries and donors.

Market position

Strengths4 records

Weaknesses4 records

Competitive moat3 records

Key risks5 records

Key highlights6 records

Customer concentration

• Xtwitter.com/joshprovides
• YouTubeyoutube.com/@joshprovides9583
• Facebookfacebook.com/JoshChapnickFund
• Instagraminstagram.com/joshprovides
• LinkedInlinkedin.com/company/joshprovides-epilepsy

Revenue estimate

Valuation estimate

Number of profiles

Profiles8 records

Funding overview

Funding rounds1 record

Investors1 record

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M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about JoshProvides Epilepsy Assistance Foundation