Rarus Health
Rarus Health SpA is a Chilean digital health startup that operates the Centro Digital de Cuidados platform (app.rarus.life), providing electronic medical records, personalized 360 care plans, and an interdisciplinary clinical team to families affected by rare or infrequent diseases across Latin America, with an emerging anonymized neuromuscular-disease data stream sold to pharmaceutical partners.
- Company typePrivate
- Founded2022
- HeadquartersNewark, United States
- Headcount1–10
- GTM typeB2B and B2C
- OfferingSoftware
What Rarus Health does
Rarus Health SpA is a privately held Chilean digital health startup founded in 2022 by Elmira Safarova (PhD in Molecular Biology and Pharmacology; IRDiRC Interdisciplinary Scientific Committee member since May 2024). Headquartered in Santiago (Av. Apoquindo 2930, Las Condes), the company operates the "Centro Digital de Cuidados" (Digital Care Center), a web/app platform at app.rarus.life that centralizes electronic personal medical records, connects families of children with rare or infrequent diseases to a dedicated Personal Care Advisor, and coordinates an interdisciplinary clinical team (psychology, nursing, speech therapy, occupational therapy, kinesiology) to deliver a personalized 360 care plan. Disease-specific digital tools — including a multilingual Pompe emergency medical card with BiPAP parameters co-built with Fundación Pompe Club Internacional and a Williams-syndrome food diary co-built with the Israeli patient community — are layered on top of the core platform, validated by the in-house medical team within 3 business days.
The business runs a freemium consumer subscription model publicly displayed in US dollars: a free-forever tier with electronic medical record storage, an Intermediate plan at US$50/month that adds a dedicated Care Advisor and 360 care plan, and a Full plan at US$160 that adds access to the interdisciplinary professional team and online consultations, with paid conversions routed through Calendly book-a-call funnels. A second revenue stream is being built around the REALES Project (launched 2025), an ongoing LATAM neuromuscular-disease research study across 10 disease categories that generates anonymized real-world data sold for a fee to pharmaceutical/industry partners and provided free to academic researchers with approval. The company is backed by Chilean state programs (Start-Up Chile by CORFO, ANID $149,000 in 2024, Ministry of Science), won the global Underdog Tech Award 2024 (1st of 294 startups, $30,000), and operates under GDPR with EU Standard Contractual Clauses plus an EEA representative in Romania. Customer reach spans LATAM primarily (Chile, Colombia, Mexico, Peru), with named community partnerships extending to Israel, Cuba, and the EU.
Rarus Health firmographics
Firmographics- Name
- Rarus Health
- Legal name
- Rarus Health SpA
- Website
- https://rarus.health
- Company type
- Private
- Founded year
- 2022
- Operating status
- Operating
- Headcount range
- 1–10 employees
- Short description
- Rarus Health SpA is a Chilean digital health startup that operates the Centro Digital de Cuidados platform (app.rarus.life), providing electronic medical records, personalized 360 care plans, and an interdisciplinary clinical team to families affected by rare or infrequent diseases across Latin America, with an emerging anonymized neuromuscular-disease data stream sold to pharmaceutical partners.
- Ownership category
- akta.pro rank
Rarus Health industry classification
Industry- Product category
- Rare Disease Digital Care Platform
- NAICS
- Services for the Elderly and Persons with Disabilities (624120), Home Health Care Services (62161), Other Individual and Family Services (624190)
- SIC
- Services-Misc Health & Allied Services, Nec (8090), Services-Home Health Care Services (8082)
- akta.pro primary industry
- Patient Intake, Digital Registration & eForms (HLACAEAF)
- akta.pro secondary industries
- Post-Acute & Transitional Care Virtual Platforms (SNF/home health coordination) (HLALABAG), Digital Rehabilitation & Physical Therapy Therapeutics (HLACANAJ), Pediatrics & Adolescent Therapeutics (Digital) (HLACANAL), DTx/SaMD Evidence, Outcomes & Real-World Data (RWE) Platforms (HLACANAM)
Keywords
Where Rarus Health is headquartered
LocationHeadquarters
- HQ city
- Newark
- HQ country
- United States
- HQ region
- North America
Offices3 records
Markets served
Rarus Health business model
Business model- GTM type
- B2B and B2C
- Offering type
- Software
- Cost components
- Personnel, Technology or R&D, Marketing or Sales, Infrastructure, Operations
Revenue model
- Free digital platform tier: Free-forever plan offering electronic personal medical record storage and the ability to share that history with doctors. Used as the top-of-funnel acquisition tier.
- Intermediate Care Manager plan (US$50/month): Subscription plan priced at US$50 per month (promotional pricing described as «for 3 months») that adds a dedicated personal Care Advisor, a personalized 360 care plan, ongoing support, social-benefits assistance, clinical-trial information and key information for doctors.
- Full Interdisciplinary Care plan (US$160): Higher-tier package priced at US$160 that includes everything in the intermediate plan plus access to an interdisciplinary professional team, ongoing evaluation and online consultations.
- Anonymized data access for industry/pharma: Per the REALES Project FAQ, academic researchers can access anonymized REALES data for free with prior approval, while industry and pharmaceutical partners pay a fee for access, representing a data-monetization revenue stream.
- Discounted Care Manager sessions (REALES participant benefit): 50%-discount individual online Care Manager sessions offered as a benefit to participants who complete the REALES Project, providing a discounted professional-services upsell channel.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Freemium | Annual | Plan Gratuito / Free Plan — US$0 forever |
| Subscription | Monthly | Plan Intermedio / Intermediate Plan — US$50/month |
| Subscription | Pay-as-you-go | Plan Completo / Full Plan — US$160 |
| Other | Pay-as-you-go | REALES participant benefit — 50% off Care Manager session |
Go-to-market motion4 records
Distribution channels4 records
Marketing channels8 records
Rarus Health product offering
Product offeringCore offering
Rarus Health operates a Digital Care Center (Centro Digital de Cuidados) platform at app.rarus.life that helps families of children with rare or infrequent diseases in Latin America shorten the diagnostic odyssey and coordinate ongoing care. The platform centralizes electronic medical records, pairs each family with a Personal Care Advisor who designs a 360 personalized care plan, and provides access to an interdisciplinary clinical team (psychology, nursing, speech therapy, occupational therapy, kinesiology). Layered products include the REALES Project for collecting anonymized real-world data on LATAM neuromuscular diseases, condition-specific digital emergency medical cards, and an educational academy of webinars.
Product overview
Rarus Health operates a unified digital health platform (the "Centro Digital de Cuidados" / Digital Care Center at app.rarus.life) for rare-disease patients, families, and clinical teams in Latin America. The core platform bundles the Electronic Medical History and the Personal Care Manager (Asesor Personal) service, which together drive a 360 personalized care plan coordinated by a multidisciplinary team. Layered on top are dedicated modules and programs: the REALES Project (a Latin-American neuromuscular-disease research program) with its partner-discount marketplace, the Emergency Medical Card digital tool (first deployed for the Pompe community with Fundación Pompe Club Internacional), the Rarus Health Academy (curated educational webinars), the Community Registry Service for patient-organization leaders, and the Clinical-Team Workspace (Equipos Clínicos) for nurses and physicians. The platform is offered in Free, Intermediate (US$50/month for 3 months), and Complete (US$160) subscription tiers, and is supported by FECHER (partner), the Chilean government agencies ANID and MinCiencia, and integrates communication via WhatsApp, scheduling via Calendly, and webinars via Zoom.
Differentiator
Problem solved
Functional benefit
Brands
- REALES: Proyecto REALES — a scientific research project by Rarus Health that seeks to make visible the reality of families affected by neuromuscular diseases in Latin America, collecting data on adult patients or caregivers.
- Centro Digital de Cuidados
Products and services
- Rarus Health Digital Care Center (Centro Digital de Cuidados) Core web/app platform (app.rarus.life) that centralizes electronic medical history, connects patients/families with multidisciplinary clinical teams, and hosts the Digital Care Center for rare-disease management in Latin America. Offered in Free, Intermediate (US$50/month) and Complete (US$160) tiers.
- REALES Project (Proyecto REALES) Free scientific research project that studies the reality of families affected by neuromuscular diseases in Latin America. Generates anonymized datasets that drive new treatments and educational tools. Industry/pharma partners pay for data access; academic researchers access data free with prior approval.
- Emergency Medical Card (Tarjeta Médica de Emergencia Digital) Digital emergency medical card co-developed with patient communities, initially deployed for Pompe (Glycogenosis Type II). Includes ventilation parameters, clinical alerts, multilingual support, and is validated by Rarus Health's medical team within 3 business days.
- Rarus Health Academy Educational webinar program delivering curated content based on international clinical guidelines, prepared with scientists and medical professionals. Covers genetic testing, clinical trial advances, interdisciplinary care, and caregiver self-care for the LATAM rare-disease community.
- Patient Community Registry Service B2B service for patient-organization leaders to create evidence-based disease registries, collect structured data, generate real-world statistics for advocacy and public-policy development, and connect communities with multidisciplinary specialist teams.
- Specialist / Clinical-Team Workspace (Equipos Clínicos) Digital workspace for clinical teams (doctors, nurses) that aggregates anamnesis from electronic medical records, enables sharing of complex clinical cases, and integrates the user into a biopsychosocial multidisciplinary team.
Quantifiable outcome
- REALES Project data collection runs from 2025 with no fixed end date and covers 10 categories of neuromuscular diseases (DMD, Becker, congenital muscular dystrophies, SMA types 1-4, congenital myopathies, motor-neuron diseases, hereditary neuropathies, myasthenia, metabolic/mitochondrial, periodic paralyses, inflammatory)
- +4 more outcomes
Companies that use Rarus Health
Customer profileNamed customers5 records
Segments4 records
Ideal customer profiles4 records
Rarus Health technology and API
TechnologyTechnology focussed Yes
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration6 records
AI capability6 records
Feature5 records
Rarus Health partnerships and signals
Strategic signalPartnerships
13 partnerships are on record, tiered core, flagship and minor.
- Fundación Pompe Club InternacionalcoreCo-hosted the «Domina tus Herramientas Digitales» webinar on January 29, 2026 with leaders Brayhan González and Fernando Rodríguez, rolling out a free multilingual digital emergency medical card (with BiPAP parameters and clinical «do-not-do» alerts) and the Guía Integral de Cuidados (LATAM edition) for the Pompe (Glycogenosis Type II) community.
- BLACKSWAN Foundation (RE(ACT) Congress) and ERDERAcoreCo-branded the RE(ACT) Congress and IRDiRC Conference 2025 in Brussels (#RAREVOLUTION); Elmira Safarova presented Rarus Health's advances and pursued global partnerships in rare diseases.
- Americas Health Foundation (AHF) / Rare Disease Congress for LATAM & CaribbeancoreParticipated as a panelist/attendee in the 2nd edition of the Rare Disease Congress for Latin America and the Caribbean in Bogotá (October 16-17, 2024, Universidad Javeriana); co-hosted by AHF, ERCAL, Universidad Javeriana and FecoeR.
- Red Internacional de Enfermería en salud infantil (ENSI nurse network)coreCo-organized the «Rare Diseases or Orphan in the Daily Work of Nurses» educational course (5 webinars + assessment + certification) for LATAM nurses, registered through the Rarus Health digital platform.
- IRDiRC (International Rare Diseases Research Consortium) — Interdisciplinary Scientific CommitteeflagshipCEO Elmira Safarova joined the IRDiRC ISC in May 2024, contributing to global rare-disease research priorities on data sharing, ontologies, natural history, biobanks and registries, in close collaboration with IRDiRC's Diagnostics and Therapies Scientific Committees.
- FECHER (Federación Chilena de Enfermedades Raras)flagshipSigned an MOU on 2023-06-16 to raise awareness of rare genetic diseases among patients and clinicians in Chile and Latin America, organize joint education programs, leverage Rarus Health's digital tools, and involve patients/caregivers in patient-centric drug development. FECHER is also Rarus Health's named «Our partner» on the homepage and co-organizes webinars and the REALES Project.
- amma pregnancy tracker (amma family)coreCooperation agreement announced 2023-05-26 to bring evidence-based rare-disease knowledge to amma's global community of pregnant women and families; rationale is that early signs of genetic diseases often appear during pregnancy and early childhood.
- Duchenne ChilecorePresident Nicolás Schongut publicly endorses the REALES Project and invites the LATAM neuromuscular community to participate; amplifies Rarus Health's message about combining scientific rigor with human sensitivity in patient data collection.
- Bilbi (inclusive adaptive fashion)minorOffers REALES-project participants a 12% discount on Bilbi's inclusive and adaptive clothing for people with reduced mobility; products designed for ease of dressing, comfort and local Chilean manufacturing.
- Saluta.orgminorOffers REALES participants a 10% discount on Saluta's digital mental-health and neurology telemedicine app, including access to psychologists experienced with rare diseases.
- Somospuravida.cl / Pura VidaminorOffers REALES participants a 15% discount on the «Full Life» certified ergonomic sexual facilitator chair for adults with reduced mobility, supporting autonomy and sexual wellbeing.
- InterSystemscoreListed among organizations supporting Rarus Health on the company homepage; InterSystems is a health-data platform vendor commonly used for electronic medical records and interoperability, suggesting a technology/data-infrastructure relationship.
- NF patient community (Chile)minorCo-organized with FECHER and Rarus Health the «Gestión de la NF-1 para pacientes» webinar on April 30, 2024, in honor of Neurofibromatosis Awareness Month.
Scale indicators8 records
Recent moves6 records
Expansion highlights6 records
Rarus Health competitors and assessment
Company assessmentDirect peers
- RDMD: RDMD (now part of the broader rare-disease evidence-generation landscape) builds patient-consented rare-disease datasets and partners with pharma and researchers. Like Rarus Health's REALES Project, it sits at the intersection of caregiver engagement and pharma data monetization.
- Ciitizen: Ciitizen enables patients to compile and share their medical records digitally and uses the data to power rare-disease research and clinical-trial matching. Comparable to Rarus Health's consumer-led electronic-medical-history workflow and data-access program for pharma.
- RARE-X: RARE-X is a nonprofit patient-driven rare-disease data platform federating structured records and biobank samples for research. It overlaps with Rarus Health's REALES Project and its B2B community-registry service for patient organizations.
- PicnicHealth: PicnicHealth aggregates patient-consented medical records into structured research-grade datasets for pharma and academic partners, with particular focus on rare and serious diseases. It is the closest direct competitor to Rarus Health's combined model of consumer-facing rare-disease record storage plus paid pharma data licensing.
Regional players
- Global Genes: Global Genes is a leading rare-disease patient-advocacy organization that builds educational content, community programs and RARE Conférences. Comparable to the federation-led GTM and Academy content Rarus Health runs via FECHER, Duchenne Chile and Fundación Pompe.
- Clinic Cloud / Doctoralia (Docplanner): Docplanner/Doctoralia operates one of the largest LATAM healthcare professional marketplaces, including telehealth and EMR-adjacent workflows. Comparable as a regional digital-health infrastructure peer overlapping with Rarus Health's clinical-team and EHR features, though not specialized in rare diseases.
- EveryLife Foundation for Rare Diseases: EveryLife Foundation is a US rare-disease advocacy nonprofit focused on policy, FDA engagement and patient-data initiatives. Comparable as a community- and policy-driven counterpart to Rarus Health's IRDiRC-facing agenda and Latin American federation partnerships.
Broad incumbents
- Invitae: Invitae is a major clinical genetic-testing company that surfaces rare-disease diagnoses and increasingly integrates them with research and pharma partnerships. Comparable as a broader incumbent serving the same diagnostic-odyssey problem that Rarus Health targets for LATAM caregivers.
- PatientsLikeMe: PatientsLikeMe is an established patient-community and self-reported outcomes platform that has long aggregated real-world data across thousands of conditions including rare diseases. A broader incumbent reference point for Rarus Health's combination of community, self-reported data and research partnerships.
Emerging players
- Mendel (Mendel.ai): Mendel applies clinical AI to structured medical-record data to enable cohort discovery and trial matching for life sciences. Comparable on the AI-on-consented-health-records axis, though focused on oncology and enterprise sales rather than caregiver-led rare-disease care.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat6 records
Key risks6 records
Key highlights7 records
Customer concentration
Rarus Health social profiles
Digital presenceRarus Health compliance and trust
Trust signalCompliance3 records
Rarus Health financial estimates
Financial estimateRevenue estimate
Valuation estimate
Rarus Health leadership team
Management profileNumber of profiles
Profiles5 records
Rarus Health funding detail
Funding detailFunding overview
Funding rounds1 record
Investors1 record
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
Rarus Health M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about Rarus Health
What does Rarus Health do?
Rarus Health operates a Digital Care Center (Centro Digital de Cuidados) platform at app.rarus.life that helps families of children with rare or infrequent diseases in Latin America shorten the diagnostic odyssey and coordinate ongoing care. The platform centralizes electronic medical records, pairs each family with a Personal Care Advisor who designs a 360 personalized care plan, and provides access to an interdisciplinary clinical team (psychology, nursing, speech therapy, occupational therapy, kinesiology). Layered products include the REALES Project for collecting anonymized real-world data on LATAM neuromuscular diseases, condition-specific digital emergency medical cards, and an educational academy of webinars.
Is Rarus Health a public or private company?
Rarus Health is a private company. It is classified as founder individual operated bootstrapped and is currently operating.
When was Rarus Health founded?
Rarus Health was founded in 2022. It employs 1 to 10 people.
Where is Rarus Health based?
Rarus Health is headquartered in Newark, United States, in the North America region.
How does Rarus Health make money?
Five revenue lines are on record. Free digital platform tier is the primary driver. The others are intermediate Care Manager plan (US$50/month), full Interdisciplinary Care plan (US$160), anonymized data access for industry/pharma and discounted Care Manager sessions (REALES participant benefit).
Who are Rarus Health's main competitors?
Direct peers on record are RDMD, Ciitizen, RARE-X and PicnicHealth. Regional players are Global Genes, Clinic Cloud / Doctoralia (Docplanner) and EveryLife Foundation for Rare Diseases. Broad incumbents are Invitae and PatientsLikeMe. Mendel (Mendel.ai) is listed as an emerging player.
Does Rarus Health have an API?
No public API is recorded for Rarus Health.
What industry is Rarus Health in?
Rarus Health's product category is Rare Disease Digital Care Platform. Its primary akta.pro industry code is HLACAEAF, Patient Intake, Digital Registration & eForms, with a secondary code of HLALABAG, Post-Acute & Transitional Care Virtual Platforms (SNF/home health coordination). Its NAICS code is 624120 and its SIC code is 8090.