Pulse Center for Patient Safety Education & Advocacy

What Pulse Center for Patient Safety Education & Advocacy does

Pulse Center for Patient Safety Education & Advocacy (Pulse CPSEA) is a 501(c)(3) nonprofit founded in 1996 by Ilene Corina on Long Island, New York, following the death of her young son from a preventable medical error in 1990. The organization delivers patient safety education, advocacy, and support to patients, families, caregivers, and aspiring professional patient advocates, with additional outreach to vulnerable populations through the Healthcare Equality Project and ASK for Your Life Campaign. Its core offerings include the Family-Centered Patient Advocacy (FCPA) Training (a two-day certification program), the Pulse Online Academy (paid online courses for up to one week post-purchase), the TakeCHARGE Campaign (a public-awareness framework of five steps to safer healthcare launched in 2020), and three monthly virtual community programs (PACC, PPS, ACES). Pulse also compiles patient-safety statistics through its One is a Number resource platform, drawing from Johns Hopkins, WHO, and NIH research.

The business model is donation-driven and grant-funded, with limited fee-based revenue. Direct income comes from individual symposium tickets ($169.13 including fees, with Buy Three Get One Free and membership discounts), membership fees, Online Academy course fees, Death Cafe add-ons ($65/$85), small CE-credit processing fees (13 Regular plus 3 J.E.D.I. BCPA credits), and expert speaker engagements. Most advocacy services are provided free of charge. The organization operates with 1-10 staff, distributed across Long Island headquarters and Westbury, NY event venues (Viana Hotel and Spa), with growing reach into Massachusetts. Distribution relies on the company website (pulsecenterforpatientsafety.org), social channels (Facebook, LinkedIn, Instagram, X), an email newsletter via Constant Contact, and an extensive partnership network including The Joint Commission, Northwell Health, Mothers Against Medical Error, St. John's University College of Pharmacy, public libraries, and disease-focused advocacy organizations. Recent institutional validation includes a 2025 World Health Organization grant for a World Patient Safety Day initiative.

Name

Pulse Center for Patient Safety Education & Advocacy

Legal name

Pulse Center for Patient Safety, Education & Advocacy

Website

https://pulsecenterforpatientsafety.org

Company type

Private

Founded year

1996

Operating status

Operating

Headcount range

1–10 employees

Short description

Pulse CPSEA is a Long Island-based 501(c)(3) nonprofit founded in 1996 that delivers patient safety education, advocacy training, and support to patients, families, caregivers, and aspiring professional patient advocates across the Northeast.

Ownership category

akta.pro rank

Product category

Patient Safety Advocacy & Education

NAICS

Other Individual and Family Services (624190), Social Advocacy Organizations (8133), Human Rights Organizations (813311)

SIC

Services-Health Services (8000), Services-Educational Services (8200)

akta.pro primary industry

Patient Advocacy, Navigation & Access to Care (BPAGACAH)

akta.pro secondary industry

Public Health Communications, Risk Communication & Community Engagement (HLAJAMAH)

Keywords

• Patient safety education
• Patient advocacy training
• Healthcare safety awareness
• Family-centered advocacy
• Community health education

Headquarters

HQ city

Long Island City

HQ country

United States

HQ region

North America

Offices3 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Donations: Tax-deductible charitable donations from individuals, community members, and supporters. The organization states that community financial support is the lifeblood of the nonprofit. Small donations are encouraged; 500 $20 donations would fund free monthly programs for a year.
2. Membership Fees: Annual membership providing access to exclusive groups, members of the month features, and 5% discount on symposium tickets. Members receive communications and are part of the organization's supporter base.
3. Symposium and Training Registration: Revenue from annual two-day symposium and Family-Centered Patient Advocacy Training. Individual tickets $169.13 including fees. Group discounts available (Buy Three Get One Free). 5% discount for members.
4. Continuing Education Credits: Small processing fees for Board Certified Patient Advocates seeking continuing education (CE) credits. Symposium approved for 13 Regular and three J.E.D.I. BCPA continuing education credits.
5. Online Course Fees: Revenue from Pulse Patient Advocate Academy online courses. Courses available for up to one week following purchase.
6. Event Additional Fees: Optional paid events adjunct to symposium including Death Cafe dinner ($65 for symposium attendees, $85 for public).
7. Expert Speaker Services: Professional speakers available for medical organizations and community/civic groups. Pulse seeks sponsoring venues to host training programs.

Pricing tiers

Go-to-market motion2 records

Distribution channels6 records

Marketing channels9 records

Core offering

Pulse Center for Patient Safety Education & Advocacy is a nonprofit 501(c)(3) organization that delivers patient safety education and advocacy training through programs such as the Family-Centered Patient Advocacy Training (FCPA), Pulse Online Academy courses, the TakeCHARGE public awareness campaign, and monthly virtual community conversations. The organization also provides free advocacy services and resources to patients, families, and vulnerable populations to navigate healthcare safely.

Product overview

Pulse Center for Patient Safety Education & Advocacy is a nonprofit 501(c)(3) organization offering a comprehensive suite of patient safety education and advocacy programs. The core offerings include the Family-Centered Patient Advocacy Training (FCPA), an intensive two-day certification program, and the Pulse Online Academy for professional development. The TakeCHARGE Campaign provides a public awareness framework teaching five essential steps for safer healthcare. Monthly virtual programs (PACC, PPS, ACES) provide ongoing community education, while the Healthcare Equality Project addresses patient safety for vulnerable populations. The organization also provides educational videos, the One is a Number resource platform, and hosts an annual symposium in Westbury, NY.

Differentiator

Problem solved

Functional benefit

Brands

• Healthcare Equality Project: An independent, community-driven initiative dedicated to enhancing the quality and safety of medical care for vulnerable populations, focusing on ethnic and racial minorities and marginalized communities. Formerly known as The Long Island Patient Safety Advisory Council.
• TakeCHARGE Campaign
• Pulse Online Academy
• Family-Centered Patient Advocacy Training (FCPA)

Products and services

• Family-Centered Patient Advocacy Training (FCPA) Intensive two-day training boot camp that imparts basic skills and knowledge needed to be a successful patient safety advocate. Includes certification of completion and directory listing for graduates. Intended for family caregivers and individuals pursuing patient advocacy.
• Pulse Online Academy Professional development platform offering online courses for healthcare practitioners, family caregivers, and individuals committed to improving healthcare experiences. Provides advocacy skills training and essential knowledge for navigating medical challenges. Courses available for up to one week following purchase.
• TakeCHARGE Campaign: 5 Steps to Safer Health Care Annual public awareness campaign teaching five essential steps patients can take to improve the safety of their healthcare, including understanding medications, tracking medical history, preparing for visits, maintaining health records, and choosing an advocate.
• Annual Patient Safety Symposium Two-day annual symposium featuring expert speakers on patient safety and Pulse's signature advocacy training, held in Westbury, NY. Individual tickets $169.13 including fees with group discounts and member pricing available. Approved for 13 Regular and three J.E.D.I. BCPA continuing education credits.
• PACC (Patient Activation through Community Conversations) Virtual monthly program held on the first Wednesday of each month at 7:00 PM EST, providing community conversation and support for patient advocacy. Free to attend.
• PPS (People For Patient Safety) Virtual monthly program held on the second Monday of each month at 7:00 PM EST, connecting patient advocates for education and support. Free to attend.
• ACES (Advocates Collaborative Educational Series) Virtual monthly educational series held on the last Monday of each month at 7:00 PM EST, providing collaborative learning opportunities for patient advocates. Free to attend.
• Healthcare Equality Project Community-driven initiative dedicated to enhancing quality and safety of medical care for vulnerable populations, including ethnic and racial minorities, those with specific diseases, and marginalized communities such as Hispanic communities, Alzheimer's caregivers, lupus patients, and transgender individuals.
• Death Cafe Group-directed discussion about death held in a respectful, safe environment exploring end-of-life topics from a perspective of living fully by acknowledging mortality. Available as an optional paid dinner event adjacent to the symposium.
• TakeCHARGE Kit Resource kit for the TakeCHARGE Campaign providing materials to help patients implement the five steps to safer healthcare.
• ASK for Your Life Health literacy and patient empowerment program for the Black community promoting racial equality in healthcare through education about patient rights and advocacy.
• One is a Number Patient safety facts platform compiling easily accessible statistics about medical errors and patient safety, sourced from Johns Hopkins, NIH, and WHO research.
• Educational Videos Growing collection of educational videos designed to enhance understanding of patient advocacy in personal and professional settings.
• Free Advocacy Services No-cost advocacy support and guidance provided to patients and families via phone, email, and program attendance. Organization guides patients toward self-advocacy and does not offer long-term advocacy.
• Professional Speaker Services Expert speakers available for booking by medical organizations and community/civic groups to deliver patient safety and healthcare advocacy presentations. Pulse also seeks sponsoring venues to host training programs.

Quantifiable outcome

• Over 200 patients served through medication review program
• +2 more outcomes

Named customers8 records

Segments6 records

Ideal customer profiles6 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature6 records

Partnerships

18 partnerships are on record, tiered minor and core.

• Goodnow LibraryminorChannel Partner/ Reseller/ Distributor · 18 April 2026Hosted TakeCHARGE Campaign Boston Area presentation by Adam Gross BCPA, expanding campaign reach to Massachusetts communities.
• The Joint CommissioncoreStrategic or Co-development PartnerThe Joint Commission has promoted the TakeCHARGE Campaign and its president Mark Chassin has provided positive testimonials about Pulse's engagement with healthcare audiences.
• Mothers Against Medical ErrorcoreStrategic or Co-development PartnerPresident Helen Haskell provided virtual introduction at Pulse's 2026 Annual Symposium as a major supporter of the organization.
• Northwell HealthcoreStrategic or Co-development PartnerMultiple speakers from Northwell Health featured at symposium including Yosef Dlugacz, PhD (retired SVP) and Juan A. Contreras, CPXP. Northwell represents a key healthcare system partner in the region.
• St. John's University College of Pharmacy and Allied Health ProfessionsminorStrategic or Co-development PartnerCollaboration for pharmacist-led medication review and drug information service for the community. Volunteer pharmacists and faculty conducted medication reviews with pharmacy student interns participating.
• Long Island Unitarian Universalist FundminorStrategic or Co-development PartnerSupported the Healthcare Equality Project (formerly Long Island Patient Safety Advisory Council) as a founding partner.
• Nassau Suffolk Hospital CouncilminorStrategic or Co-development PartnerSupported the Healthcare Equality Project development in its early stages.
• North Shore LIJ Health SystemminorStrategic or Co-development PartnerSupported Healthcare Equality Project development and shaping of the initiative.
• Lupus Alliance of Long Island/QueensminorStrategic or Co-development PartnerPartnered with Pulse for lupus patient education, hosting focus groups with people living with lupus to discuss patient safety issues.
• CoLoKi, Inc.minorStrategic or Co-development PartnerWorked with day laborers from Nassau County through the Freeport Trailer program to address health literacy and patient safety for immigrant communities.
• CARECENminorStrategic or Co-development PartnerPartnered with Pulse for Hispanic immigrant community outreach and patient safety education initiatives.
• Wantagh Public LibraryminorStrategic or Co-development PartnerHosted pharmacist-led medication review events for community members over three years.
• Freeport Public LibraryminorStrategic or Co-development PartnerHosted pharmacist-led medication review events as part of community health outreach program.
• Trans Solidarity ProjectminorStrategic or Co-development PartnerCollaborated on transgender patient survey and education regarding hormone therapy and endocrinologist experiences.
• Alzheimer's Disease Resource Center (ADRC)minorStrategic or Co-development PartnerPartnered for patient safety education outreach to five Alzheimer's support groups in Bayshore, Long Island.
• 516adsminorOthersMember organization listed among Pulse's organizational memberships.
• National Aging in Place (NAIPC)minorOthersOrganizational member supporting aging in place and patient safety intersections.
• Long Island Health CollaborativeminorOthersOrganizational member contributing to health collaborative efforts in the region.

Scale indicators7 records

Recent moves5 records

Expansion highlights5 records

Broad incumbents

• Institute for Healthcare Improvement (IHI): The dominant U.S. patient safety and quality improvement organization, offering education, certification, and convenings across the full quality spectrum. Operates in Pulse's mission space but at vastly greater scale, with professional/health system audiences rather than family/community advocates.
• The Beryl Institute: A global community of practice focused on patient experience improvement, offering membership, certification, and resources to healthcare organizations. Comparable to Pulse in mission adjacency (patient-centered care) but oriented to providers rather than families and advocates.
• ECRI Institute: An independent nonprofit organization that researches patient safety, medical device evaluation, and healthcare quality. Operates in Pulse's mission space but with a research, evidence-based, and institutional buyer orientation rather than community/advocacy.
• World Health Organization Patient Safety Programme: The WHO's global patient safety program runs the World Patient Safety Day campaign and provides grant funding — the body that awarded Pulse its 2025 grant. Comparable in mission framing but operates at the global public policy level rather than community delivery.
• Patient Advocate Foundation: A national nonprofit providing case management, financial aid, and access-to-care services to patients with chronic and life-threatening illnesses. Comparable in patient advocacy focus but emphasizes professional service delivery (case managers) rather than Pulse's family-centered training model.

Regional players

• Connecticut Center for Patient Safety: A regional nonprofit peer organization that provides patient safety education and advocacy in Connecticut, founded by Jean Rexford. Highly comparable in mission, scope, and grassroots delivery model — and provides a testimonial relationship with Pulse indicating active peer collaboration.

Direct peers

• Patient Safety Movement Foundation: A global nonprofit working to eliminate preventable patient harm through action-oriented pledges and convenings of healthcare leaders. Comparable to Pulse as a patient safety-focused nonprofit, but with significantly more institutional resources and a national policy orientation.
• Consumers Advancing Patient Safety (CAPS): A national nonprofit founded by a patient safety advocate (Susan Sheridan) after a medical-error family experience, focused on consumer engagement in patient safety. Directly comparable to Pulse CPSEA in mission, advocacy-first model, and family/patient-led origin story.
• Mothers Against Medical Error: Founded by Helen Haskell following the loss of her son to a medical error, this advocacy organization shares Pulse's family-driven origin, patient safety mission, and grassroots structure. Pulse already partners with the organization at its annual symposium.

Others

• National Patient Safety Foundation (historical / merged into IHI): Originally an independent national nonprofit founded to advance patient safety through education and research, now operating within the Institute for Healthcare Improvement. A historical reference point for what a scaled national patient safety advocacy organization looks like, informing Pulse's potential growth path.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/pulsecpsea
• Facebookfacebook.com/groups/pulsecpsea
• LinkedInlinkedin.com/company/pulse-center-for-patient-safety-education-advocacy
• Instagraminstagram.com/pulsecenter/?hl=en

Revenue estimate

Valuation estimate

Number of profiles

Profiles3 records

Funding overview

Funding rounds1 record

Investors1 record

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M&A

Investments

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Frequently asked questions about Pulse Center for Patient Safety Education & Advocacy