NICU Parent Network

What NICU Parent Network does

NICU Parent Network (NPN), founded in 2012 and formerly known as Preemie Parent Alliance, is a U.S. nonprofit professional association that serves as the only dedicated membership body for NICU Parent Leaders in the United States. The organization aggregates approximately 45 NICU support organizations, individual parent advocates, and professional affiliates across 28 states and three countries, with operations supported by a staff of 1-10 based at a Georgetown, Indiana mailing address. Its mission is to represent the collective voice of NICU families in advocacy, clinical research, healthcare policy, and family-centered care quality improvement, working alongside external bodies such as the FCC Taskforce and the NIDCAP Federation International.

NPN's core offerings are content, advocacy, and convening rather than technology products. Its asset portfolio includes the NICU Baby's Bill of Rights (adopted as H. Res 236), two published position papers on peer-to-peer support and family presence in the NICU, the weekly NICUnity Podcast, the NPN Speakers Bureau (NICU parent speakers booked via JotForm), and the annual Hill Day advocacy event in Washington D.C. plus the Leadership Summit & Retreat. Membership is structured in tiers — Support Organization Member, NICU Parent Leader, Professional Affiliate Circle, Individual Professional Affiliate, NICU Parent Insider, and the Industry Collective corporate program — enrolled through a NeonCRM portal with multi-seat organizational accounts and annual billing. Industry Collective members include Prolacta Bioscience, AngelEye Health, and UPrinting; Professional Affiliate Circle members include NANT, NIDCAP Federation International, HMBANA, and Caring Essentials Collaborative.

Revenue is generated through a combination of membership dues (annual recurring), Industry Collective corporate sponsorships, event registration fees, and donations processed via NeonCRM. The organization is governed by a Board of Directors led by Founder & Executive Director Keira Sorrells, with Jennifer Degl assuming the presidency effective January 1, 2025, and Tieast Leverett serving as Vice President. No funding rounds, acquisitions, or equity ownership structures apply, and no financial figures are publicly disclosed.

Name

NICU Parent Network

Legal name

NICU Parent Network

Website

https://nicuparentnetwork.org

Company type

Private

Founded year

2012

Operating status

Operating

Headcount range

1–10 employees

Short description

NICU Parent Network is a U.S. nonprofit professional association and the only dedicated membership body for NICU Parent Leaders, aggregating roughly 45 support organizations across 28 states and three countries to deliver advocacy, peer support, and family-centered care resources.

Ownership category

akta.pro rank

Product category

Nonprofit Professional Association - Maternal-Infant Health Advocacy

NAICS

Other Individual and Family Services (624190), Voluntary Health Organizations (813212), Child and Youth Services (62411)

SIC

Services-Social Services (8300), Services-Membership Organizations (8600)

akta.pro primary industry

Maternal, Child & Family Health Organizations (BPAGACAF)

akta.pro secondary industries

Neonatal Intensive Care & Special Care Nurseries (NICU/SCN) (HLAFAJAE), Parent Support Groups & Peer Networks (EDACALAG)

Keywords

• NICU parent advocacy
• Neonatal family support
• Professional membership association
• Peer-to-peer support services
• Maternal-infant health

Headquarters

HQ city

Louisville

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2B

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Others

Revenue model

1. Membership Dues: NPN generates revenue through various membership tiers including NICU Support Organization Member, NICU Parent Leader, Professional Affiliate Circle, Individual Professional Affiliate, NICU Parent Insider, and Industry Collective corporate memberships.
2. Donations: The organization accepts donations through its website at nicuparentnetwork.app.neoncrm.com/forms/donate
3. Industry Collective Sponsorships: Corporate members in the Industry Collective (including Prolacta Bioscience, AngelEye Health) pay for marketing and engagement opportunities with NPN's network of NICU parent leaders and healthcare professionals.

Pricing tiers

Go-to-market motion1 record

Distribution channels4 records

Marketing channels7 records

Core offering

NICU Parent Network is a nonprofit professional association that provides membership programs, advocacy resources, and educational content for NICU parent leaders. Its core offerings include tiered membership programs (organizational, professional, and individual), advocacy resources such as the NICU Baby's Bill of Rights and position papers, the NICUnity Podcast, a Speakers Bureau, and annual events including the Hill Day advocacy day and Leadership Summit & Retreat. The organization also operates an Industry Collective for corporate partners and a Professional Affiliate Circle for healthcare organizations in maternal-infant health.

Product overview

NICU Parent Network operates as a professional membership organization rather than a technology product company. Its core offerings include advocacy resources (NICU Baby's Bill of Rights, position papers on peer-to-peer support and family presence), content platforms (NICUnity Podcast), professional services (Speakers Bureau with NICU parent speakers), and membership programs at multiple tiers. The organization hosts annual events including Hill Day advocacy days and the Leadership Summit & Retreat. The Industry Collective and Professional Affiliate Circle represent corporate and professional membership programs respectively. These offerings function as a unified ecosystem serving NICU parent leaders, with membership providing access to resources, networking, advocacy opportunities, and professional development, rather than a traditional software product or platform.

Differentiator

Problem solved

Functional benefit

Products and services

• NICU Baby's Bill of Rights A position paper and advocacy resource that informs and empowers clinicians to encourage and facilitate bonding between NICU parents and their babies. Originally developed as the NICU Parent's Bill of Rights in 2013 and later updated.
• NICUnity Podcast A weekly podcast hosted by Keira Sorrells featuring real stories, practical tools, and expert advice for NICU parent leaders and bereaved families, organized into Season 1 and Season 2 episodes available on Apple Podcasts.
• Speakers Bureau A speakers bureau comprised solely of NICU parents offering first-hand knowledge and experience for providers, educators, and healthcare workers, covering topics from pregnancy through life after NICU. Speakers are booked for a fee plus travel and A/V expenses.
• Position Paper: NICU Parent-Led Peer-To-Peer Support Services A position paper advocating that peer-to-peer support services should be offered to each parent once their baby is admitted to the NICU, available for download as a PDF.
• Position Paper: Continuous and Uninterrupted Family Presence in the NICU A position paper advocating for all NICUs to consider parents as primary caregivers and essential members of the care team, with accompanying social media toolkit and campaign materials.
• Hill Day Advocacy Event An annual advocacy event bringing NICU and bereaved parent leaders to Capitol Hill to speak directly with congressional offices on behalf of NICU families, advocating for parental presence, mental health resources, donor milk access, paid leave, and stillbirth research.
• Annual Leadership Summit & Retreat An annual two-day premier event dedicated exclusively to empowering, educating, and uniting NICU Parent Leaders who support NICU families through advocacy, family support, research, clinical guidelines, healthcare policy, and education.
• Membership Programs Multiple annual membership tiers including NICU Support Organization Member, NICU Parent Leader, Professional Affiliate Circle, Individual Professional Affiliate, NICU Parent Insider, and Industry Collective corporate membership. Group organizational memberships allow up to six team members per account.
• Industry Collective A corporate membership program offering one year of marketing and engagement with NICU Parent Network, connecting companies with professional NICU parent leaders and demonstrating commitment to family-integrated care in maternal-infant health.
• Professional Affiliate Circle A professional membership category for those actively involved in maternal-infant health with a focus on NICU care, aligned with NPN's family-integrated mission. Members include organizations like NANT, Caring Essentials Collaborative, NIDCAP, and others.

Quantifiable outcome

• NPN contributed to research published in Journal of Pediatrics and Journal of Perinatology on neonatal fellow training and research communication culture
• +1 more outcomes

Named customers14 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

15 partnerships are on record, tiered core, major, minor and notable.

• Family-Centered Care Taskforce (FCC Taskforce)coreStrategic or Co-development PartnerNPN is an Organizational Partner of the FCC Taskforce, the first international, multicenter collaborative initiative solely dedicated to quality improvement in NICU Family-Centered Care. NPN's Founder Keira Sorrells serves as Family Partner Co-Chair of the FCC Taskforce, driving research and quality improvement initiatives.
• Prolacta BiosciencemajorGTM or Marketing PartnerIndustry Collective member dedicated to improving quality of life in the most fragile infants through human milk-based nutritional products. Prolacta is the world's leading provider of human milk-based nutritional products for hospital use, established 1999, headquartered in Duarte, California.
• AngelEye HealthmajorGTM or Marketing PartnerIndustry Collective member advancing NICU care with live-stream cameras, feeding management systems, and discharge coordination solutions. Equips care teams with workflow optimization tools while empowering families through comprehensive family-centered solutions.
• UPrintingminorGTM or Marketing PartnerUPrinting Sponsorship Program supports NPN through the UCommunity nonprofit initiative.
• National Association of Neonatal Therapists (NANT)coreStrategic or Co-development PartnerProfessional Affiliate Circle member serving neonatal occupational therapists, physical therapists, and speech-language pathologists. Aims to improve quality of life and neurodevelopmental outcomes for babies in NICU through unique contributions of neonatal therapy.
• NIDCAP Federation InternationalcoreStrategic or Co-development PartnerProfessional Affiliate improving futures for infants in hospitals and families through individualized, developmental, family-centered, research-based NIDCAP care. Over 40 years of evidence-based research supporting the Synactive Model approach.
• Human Milk Banking Association of North America (HMBANA)coreStrategic or Co-development PartnerProfessional Affiliate mobilizing healing power of donor milk by accrediting nonprofit milk banks in US and Canada and setting international guidelines for pasteurized donor human milk.
• Caring Essentials CollaborativenotableStrategic or Co-development PartnerProfessional Affiliate providing trauma-informed education, programs, and consultation grounded in Trauma-Informed Developmental Care and Caring Science. Offers TIP Certificate Program and NICU education implementation support.
• Prevent BlindnessnotableStrategic or Co-development PartnerProfessional Affiliate championing eye health and safety since 1908, educating public, advocating for equitable access to quality eyecare, promoting early detection of vision problems, and supporting patients and care partners.
• Embrace GlobalnotableStrategic or Co-development PartnerProfessional Affiliate providing life-saving warmth to premature and low-birth-weight newborns through portable, low-cost incubators designed for low-resource and crisis settings.
• Courageous Parents NetworknotableStrategic or Co-development PartnerProfessional Affiliate orienting, equipping and empowering families and others caring for a child with a serious medical condition through educational video, audio, guides, blogs, and clinician portal resources.
• Infant Massage USAnotableStrategic or Co-development PartnerProfessional Affiliate promoting nurturing touch and communication through training, education, and research on infant massage in partnership with International Association of Infant Massage.
• GE HealthcareminorGTM or Marketing PartnerSponsor of NPN Hill Day 2026 event. Healthcare technology company providing medical imaging, monitoring, biomanufacturing, and cell culture technologies.
• A Better BalancenotableStrategic or Co-development PartnerAdvocacy Partner for Hill Day, focused on leave policies for NICU families. Organization working to ensure workers have access to paid leave and flexible work arrangements.
• Project Sweet PeasminorGTM or Marketing PartnerSponsor of NPN Hill Day 2026. Member organization providing support for families with premature infants through peer support and resources.

Scale indicators4 records

Recent moves6 records

Expansion highlights5 records

Broad incumbents

• National Association of Neonatal Nurses (NANN): Established clinical professional association for neonatal nurses. Larger incumbent serving an adjacent (clinical) audience within the same NICU ecosystem that overlaps with NPN's Professional Affiliate Circle.
• National Association of Neonatal Therapists (NANT): NPN Professional Affiliate member serving neonatal OTs, PTs, and SLPs. Comparable as a clinical professional association within the NICU space with overlapping advocacy and education programs.
• March of Dimes: Large, established maternal and infant health nonprofit. Addresses maternal/infant health broadly with research, advocacy, and NICU-relevant programs; while orders of magnitude larger, NPN competes for some donor and policy attention.

Direct peers

• Hand to Hold: NPN member organization providing one-on-one peer mentor support to NICU families. Directly comparable mission (NICU family support) and overlap in beneficiary audience with NPN's parent leader community.
• Hope for HIE: NPN member organization supporting families impacted by hypoxic-ischemic encephalopathy. Comparable size, mission (NICU condition support), and reliance on a parent-led volunteer model.
• National Perinatal Association: NPN member organization providing interdisciplinary collaboration in perinatal health. Highly comparable as both a professional membership body serving the perinatal/NICU community with shared audiences, advocacy goals, and continuing-education offerings.
• Project Sweet Peas: NPN member and Hill Day sponsor providing peer support, NICU care packages, and resources for preemie families. Direct overlap in beneficiary community and similar nonprofit/membership model.
• Graham's Foundation: NPN member organization supporting parents of premature infants through care packages and peer support. Comparable in mission (NICU/preemie family support) and scale as a small national nonprofit.
• NEC Society: NPN member organization focused on necrotizing enterocolitis research and awareness. Comparable in serving the NICU ecosystem, engaging clinicians and parent advocates, and operating a small national nonprofit footprint.

Regional players

• Health Resources & Services Administration (HRSA) Maternal Child Health Bureau: Federal funding and policy authority for maternal and child health programs. Compares to NPN primarily as a steward of NICU family support policy and grant dollars influencing NPN's operating environment.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks5 records

Key highlights7 records

Customer concentration

• Xx.com/NICUParentNet
• YouTubeyoutube.com/channel/UCFfwgQdr5YuNq5Rl1LRQxUQ
• Facebookfacebook.com/NICUParentNetwork
• LinkedInlinkedin.com/company/preemie-parent-alliance
• Instagraminstagram.com/nicuparentnetwork

Revenue estimate

Valuation estimate

Number of profiles

Profiles8 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about NICU Parent Network