SCANJ

Name

SCANJ

Legal name

The Sickle Cell Association of New Jersey, Inc.

Website

https://sicklecellnewjersey.org

Company type

Private

Founded year

2009

Operating status

Operating

Headcount range

1–10 employees

Ownership category

akta.pro rank

Product category

Nonprofit Health Advocacy Services

NAICS

Other Individual and Family Services (624190), Social Assistance (624)

SIC

Services-Social Services (8300)

akta.pro primary industry

Rare Disease & Special Needs Support Organizations (BPAGACAM)

Keywords

• Sickle cell advocacy
• Nonprofit health services
• Community health education
• Patient support programs
• Chronic disease support

Headquarters

HQ city

Newark

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Others

Revenue model

1. Individual Donations: Tax-deductible donations from individuals at various levels ($25-$2500) supporting SCANJ programs and services for families affected by sickle cell disease. Donation tiers are tied to specific program impacts.
2. Event Fundraising: Revenue generated through event registrations, sponsorships, and donations associated with the annual 24/Seven Line-Dance Marathon and other special events.
3. Grants and Sponsorships: Funding from grants (NYMAC, HRSA mentioned) and corporate/event sponsorships to support organizational programs and operations.

Pricing tiers

Go-to-market motion3 records

Distribution channels4 records

Marketing channels8 records

Core offering

SCANJ is a 501c3 nonprofit community-based organization that provides non-medical support, education, advocacy, and direct service programs for individuals and families affected by sickle cell disease in New Jersey. Its offerings include support groups, transition assistance for adolescents moving from pediatric to adult care, educational presentations at churches, schools and community venues, blood drives, scholarships, an annual 24/Seven Line-Dance Marathon fundraiser, chronic disease self-management workshops, and legislative advocacy. The organization operates as the New Jersey member chapter of the Sickle Cell Disease Association of America (SCDAA).

Product overview

SCANJ (Sickle Cell Association of New Jersey) is a 501c3 nonprofit community-based organization established on September 1, 2009, providing a comprehensive suite of programs and services for individuals and families affected by sickle cell disease. The organization operates as a single unified nonprofit entity rather than a platform-plus-modules architecture. Its core offerings include the Say It Loud! monthly newsletter, Chronic Disease Self Management Program (CDSMP) workshops, Child and Teen Ambassador Program, 24/Seven Line-Dance Marathon, Sickle Cell Sabbath, Sickle Cell Day at the Capitol advocacy, Dr. Charles Drew Blood Drives, Adult Support Groups, Sickle Cellabration events, Thanks for Giving Concert, Transition Program, Dr. Charles F. Whitten Awards, Health Care Provider Referral Services, Francis Thompson Walton Scholarship Program, and SCANJ Road Trips to conferences. These programs collectively address non-medical needs including education, advocacy, emotional support, community awareness, and access to research for the sickle cell community in New Jersey.

Differentiator

Problem solved

Functional benefit

Products and services

• Say It Loud! Newsletter Monthly newsletter providing sickle cell disease awareness content, educational materials, news, and announcements to subscribers via email and Callingpost voice mail. Distributed to families and individuals affected by sickle cell disease in New Jersey.
• Chronic Disease Self Management Program (CDSMP) Workshops Six-week series of free workshops teaching individuals affected by chronic diseases, including sickle cell disease, how to better self-manage their health and lead others to healthier choices, based on the Stanford University Chronic Disease Self Management Program.
• Child and Teen Ambassador Program Program designating child spokespersons (ages 7-12) and teen spokespersons (ages 13-19) to aid in educating the public on sickle cell disease and empowering individuals living with the disease.
• 24/Seven Line-Dance Marathon Annual 24-hour fundraising event featuring line dancing, community service, health fairs, and educational activities to raise awareness and funds for sickle cell disease programs. Hosted at New Jersey City University with registration via Eventbrite.
• Sickle Cell Sabbath Church-based educational program to raise awareness about sickle cell disease within faith communities across New Jersey.
• Sickle Cell Day at the Capitol Advocacy Program Advocacy initiative involving meetings with legislators to advocate for increased funding for sickle cell treatment programs and other sickle cell-related policies.
• Dr. Charles Drew Blood Drives Blood drive initiative supporting sickle cell patients who require regular blood transfusions, conducted in partnership with blood donation organizations including the American Red Cross Penn-Jersey Region.
• Adult Support Groups Peer support groups providing emotional support, practical assistance, and treatment information for adults affected by sickle cell disease.
• Thanks for Giving Concert Inspirational musical event supporting families affected by sickle cell disease.
• Transition Program Program helping adolescents and young adults with sickle cell disease transition from pediatric to adult healthcare services.
• Health Care Provider Referral Services Referral services connecting individuals with sickle cell disease to appropriate healthcare providers and medical resources in New Jersey.
• Francis Thompson Walton Scholarship Program Scholarship program supporting students affected by sickle cell disease in their educational pursuits.
• SCANJ Road Trips Travel assistance program enabling families affected by sickle cell disease to attend symposiums, conventions, and scientific conferences including the James B. Herrick Symposium on Sickle Cell Disease at NIH and SCDAA Conventions.

Named customers4 records

Segments4 records

Ideal customer profiles4 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

Eleven partnerships are on record, tiered core and minor.

• Shiloh Baptist Church (Newark)coreStrategic or Co-development Partner · 27 September 2009Host location for SCANJ's special dedication ceremony on September 27, 2009. SCANJ founder Mary Bentley LaMar is an active member, serving as Superintendent of the Sunday School.
• Sickle Cell Disease Association of America (SCDAA)coreStrategic or Co-development PartnerSCANJ is the New Jersey member chapter of the Sickle Cell Disease Association of America. Works in concordance with SCDAA's mission to advocate for and enhance ability to improve quality of health, life and services for individuals, families and communities affected by sickle cell disease while promoting the search for a cure.
• Hospitals and Medical Providers in New JerseycoreStrategic or Co-development PartnerSCANJ has partnerships with area hospitals and medical providers to assist the sickle cell community. Collaborates on patient referrals, medical advisory boards, and coordinated care.
• Beth Israel Hospital Adult Comprehensive Sickle Cell CentercoreStrategic or Co-development PartnerSCANJ serves on the Central-Northern New Jersey Sickle Cell Medical Advisory Board for Newark's Beth Israel Hospital Adult Comprehensive Sickle Cell Center and provides the chair for its Public Awareness and Advocacy Committee.
• American Red Cross Penn-Jersey RegionminorStrategic or Co-development PartnerSCANJ serves on the American Red Cross Penn-Jersey Region Sickle Cell Donor Advisory Board, supporting blood drive initiatives.
• New Jersey City UniversitycoreStrategic or Co-development PartnerHost sponsor for the annual 24/Seven Line-Dance Marathon event. Provides venue for the 24-hour line dancing event.
• Embrace Kids FoundationminorStrategic or Co-development PartnerPartner organization supporting sickle cell services in New Jersey. SCANJ supports and partners with Embrace Kids Foundation programs.
• New York Mid Atlantic Consortium (NYMAC)minorStrategic or Co-development PartnerFunding partner for website development and operations. NYMAC contributed to making the website possible.
• Health Resources Services Administration (HRSA)minorStrategic or Co-development PartnerFunding partner providing support for website and organizational operations.
• PCORI (Patient-Centered Outcomes Research Institute)minorStrategic or Co-development PartnerSCANJ participates in PCORI initiatives and programs related to patient-centered outcomes research in sickle cell disease.
• Centers For Disease Control and Prevention (CDC) Division of Blood DisordersminorStrategic or Co-development PartnerSCANJ shares invitations for CDC's Public Health Webinar Series on Hemoglobinopathies, hosted on the 4th Thursday of every month. Goal is to introduce collaborative learning platform for providers, consumers, educators, and scientists.

Scale indicators4 records

Recent moves7 records

Expansion highlights4 records

Broad incumbents

• National Organization for Rare Disorders (NORD): National umbrella organization representing the rare disease community, including sickle cell disease. Broader scope than SCANJ but overlapping advocacy and patient-support mission.
• American Red Cross: National blood services and emergency response organization. SCANJ partners with the Penn-Jersey Region Sickle Cell Donor Advisory Board, making it an adjacent ecosystem player supporting SCANJ's blood drive programs.

Direct peers

• Sickle Cell Disease Foundation of California: California SCDAA member chapter delivering community-based support, education, and patient services. Direct peer operating the same affiliate model as SCANJ in a different state.
• Cayenne Wellness Center: California-based sickle cell advocacy and support organization focused on education, community connection, and life-transition support. Comparable mission and program design to SCANJ.
• American Sickle Cell Anemia Association (ASCAA): Ohio-based community sickle cell organization providing patient support, education, and advocacy. Comparable service model and program mix to SCANJ, though serving a different region.
• Sickle Cell Community Consortium: National network of community-based sickle cell organizations. SCANJ is part of the broader SCD community-organizing ecosystem that the Consortium represents.
• Sickle Cell Disease Association of America (SCDAA): The national umbrella organization for sickle cell disease advocacy and member chapters. SCANJ is the New Jersey member chapter, sharing mission, programs, and brand alignment with SCDAA.
• Sickle Cell Foundation of Georgia: State-level sickle cell disease nonprofit providing community-based support, education, and advocacy in Georgia. Closely comparable in scope, mission, and program mix to SCANJ.
• Embrace Kids Foundation: New Jersey-based nonprofit supporting children and families impacted by chronic illness, including sickle cell disease. Listed as a direct partner of SCANJ with overlapping mission and NJ geography.

Regional players

• Sickle Cell Awareness Foundation of Greater New York: Sickle cell advocacy and support organization serving the greater New York region. Operates a similar model in an adjacent geography, relevant for regional benchmarking.

Market position

Strengths4 records

Weaknesses5 records

Competitive moat4 records

Key risks6 records

Key highlights6 records

Customer concentration

• Xx.com/sicklecellanj
• YouTubeyoutube.com/channel/UC1Ls4dKO3UNIbGrxmw6Bm7w
• Facebookfacebook.com/sicklecellnewjersey
• Instagraminstagram.com/scanj_
• LinkedInlinkedin.com/company/the-sickle-cell-association-of-new-jersey

Revenue estimate

Valuation estimate

Number of profiles

Profiles10 records

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about SCANJ