National Bleeding Disorders Foundation
The National Bleeding Disorders Foundation (NBDF) is a US nonprofit founded in 1948 that serves individuals and families affected by inheritable bleeding disorders through a 50+ chapter network, clinical fellowships, research grants, MASAC clinical guidelines, and a peer-reviewed journal, funded by donations, pharmaceutical sponsorships, and a CDC cooperative agreement.
- Company typePrivate
- Founded1948
- HeadquartersNew York, United States
- Headcount101–250
- GTM typeB2C
- OfferingServices
What National Bleeding Disorders Foundation does
The National Bleeding Disorders Foundation (NBDF), formerly the National Hemophilia Foundation, is a US 501(c)(3) nonprofit founded in 1948 and headquartered in New York. The organization serves individuals and families affected by inheritable blood and bleeding disorders, including hemophilia A, hemophilia B, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders, with a particular programmatic focus in 2026 on addressing underdiagnosis in women and girls. NBDF operates a distributed service delivery model: a national office in New York coordinates 50+ state and regional chapters, partnerships with the CDC-recognized Hemophilia Treatment Center (HTC) network, and a cooperative education consortium with the Indiana Hemophilia & Thrombosis Center, Hemophilia Foundation of Michigan, Hemophilia Alliance, and the American Thrombosis & Hemostasis Network. Its product surface spans clinical fellowship programs (NBDF-Takeda Clinical Fellowship, Nursing, Physical Therapy, and Social Work Excellence Fellowships), research grants (Judith Graham Pool Postdoctoral Research Fellowship, NBDF-Sanofi Career Development Award), the peer-reviewed Bleeding Disorders Care & Practice journal, the PartnersPRN online education platform, the coreHem Mental Health Tool, the Community Voices in Research (CVR) platform hosted by IQVIA, and the Pathway to Cures venture philanthropy fund. The foundation's revenue model is multi-stream: individual donations (including planned giving, donor-advised funds, securities, and cryptocurrency), corporate sponsorships from major pharmaceutical partners (Sanofi, Kedrion BioPharma, Genentech, Pfizer, Takeda), and grants including a CDC Cooperative Agreement (NU01DD000006); all programmatic services are delivered free of charge to patients and families. NBDF's go-to-market is community-led, relying on the chapter network, HTCs, annual Bleeding Disorders Conference, Washington Days advocacy events, and multi-channel awareness campaigns (notably the 2026 'Educate to Elevate' campaign and Bleeding.org LIVE! livestream) to reach patients, healthcare providers, and policymakers.
National Bleeding Disorders Foundation firmographics
Firmographics- Name
- National Bleeding Disorders Foundation
- Legal name
- National Bleeding Disorders Foundation
- Website
- https://bleeding.org
- Company type
- Private
- Founded year
- 1948
- Operating status
- Operating
- Headcount range
- 101–250 employees
- Short description
- The National Bleeding Disorders Foundation (NBDF) is a US nonprofit founded in 1948 that serves individuals and families affected by inheritable bleeding disorders through a 50+ chapter network, clinical fellowships, research grants, MASAC clinical guidelines, and a peer-reviewed journal, funded by donations, pharmaceutical sponsorships, and a CDC cooperative agreement.
- Ownership category
- akta.pro rank
National Bleeding Disorders Foundation industry classification
Industry- Product category
- Nonprofit Patient Advocacy and Health Foundation
- NAICS
- Voluntary Health Organizations (813212), Grantmaking and Giving Services (81321)
- SIC
- Services-Health Services (8000)
- akta.pro primary industry
- Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)
- akta.pro secondary industry
- Health & Medical Research Grantmaking Foundations (BPAGAKAL)
Keywords
Where National Bleeding Disorders Foundation is headquartered
LocationHeadquarters
- HQ city
- New York
- HQ country
- United States
- HQ region
- North America
Offices1 record
Markets served
National Bleeding Disorders Foundation business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Others, Marketing or Sales, Technology or R&D
Revenue model
- Donations and Fundraising: The foundation raises funds through individual donations, planned giving, donor advised funds, and monthly giving programs. They also receive donations of securities and cryptocurrency.
- Corporate Partnerships: Corporate sponsors including Sanofi, Kedrion BioPharma, Genentech, Pfizer, and Takeda provide financial support for campaigns, educational programs, and clinical fellowships.
- Grants: The foundation receives grant funding including CDC Cooperative Agreement (NU01DD000006) for education and public health initiatives.
Go-to-market motion1 record
Distribution channels6 records
Marketing channels9 records
National Bleeding Disorders Foundation product offering
Product offeringCore offering
NBDF is a 501(c)(3) nonprofit foundation that provides education, advocacy, research funding, and community support services for individuals and families affected by inheritable bleeding disorders such as hemophilia A, hemophilia B, von Willebrand disease, and rare factor deficiencies. It operates a nationwide network of 50+ state chapters and partners with the CDC-recognized Hemophilia Treatment Center system to deliver patient education, clinical fellowships (NBDF-Takeda, Nursing, PT, SW Excellence), postdoctoral research grants, peer-reviewed publications, MASAC clinical guidelines, and the Pathway to Cures venture philanthropy fund.
Product overview
The National Bleeding Disorders Foundation (NBDF) offers a comprehensive portfolio of education, research, and advocacy programs for individuals with bleeding disorders. The foundation provides clinical fellowship programs (NBDF-Takeda Clinical Fellowship, Nursing Excellence Fellowship, Physical Therapy Excellence Fellowship, Social Work Excellence Fellowship), research funding through the Judith Graham Pool Postdoctoral Research Fellowship and NBDF-Sanofi Career Development Award, and venture philanthropy via Pathway to Cures. Education offerings include the Partners in Bleeding Disorders Education program, Online Education for Providers platform, NBDF's Collaborative Learning Exchange, and the Wednesday Webinar Series. The foundation publishes the peer-reviewed Bleeding Disorders Care & Practice journal and maintains the Community Voices in Research (CVR) platform and coreHem Mental Health Tool. The Educate to Elevate multi-year awareness campaign features celebrity advocates, while MASAC Documents provide clinical guidelines. Annual events include the Bleeding Disorders Conference and Washington Days advocacy event.
Differentiator
Problem solved
Functional benefit
Quantifiable outcome
- Only 4% of 10,527 females with bleeding disorders had been screened for iron deficiency, while 72% met criteria for iron deficiency - addressed by new MASAC screening recommendations
- +2 more outcomes
Companies that use National Bleeding Disorders Foundation
Customer profileNamed customers4 records
Segments4 records
Ideal customer profiles3 records
National Bleeding Disorders Foundation technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
National Bleeding Disorders Foundation partnerships and signals
Strategic signalPartnerships
15 partnerships are on record, tiered portfolio company, major, research collaborator and core.
- Spark Biomedicalportfolio companySpark Biomedical is a portfolio company of Pathway to Cures (NBDF's venture philanthropy fund). They are conducting the LUNA Trial for transcutaneous auricular neurostimulation treatment for heavy menstrual bleeding.
- SanofimajorCorporate partner providing financial support for the Educate to Elevate campaign and other foundation initiatives. Sanofi supports awareness and education efforts for bleeding disorders.
- Kedrion BioPharmamajorCorporate partner supporting NBDF awareness campaigns and educational programming for the bleeding disorders community.
- GenentechmajorCorporate partner providing support for the Educate to Elevate campaign and other foundation initiatives.
- PfizermajorCorporate sponsor for Bleeding.org LIVE! event, supporting the first celebrity-driven national event for the bleeding disorders community.
- Oregon Health & Science Universityresearch collaboratorCollaborating institution for the LUNA Trial, conducting Phase II clinical study on transcutaneous auricular neurostimulation.
- University of Michiganresearch collaboratorCollaborating institution for the LUNA Trial, contributing to the decentralized clinical study evaluation.
- Yale Universityresearch collaboratorCollaborating institution for the LUNA Trial, participating in the multi-site clinical study.
- Pathway to CurescoreNBDF's venture philanthropy fund that invests in companies developing treatments for bleeding disorders. Parent organization relationship.
- CDC Cooperative AgreementcoreCDC Coop Agreement (NU01DD000006) supporting NBDF's education and public health initiatives for bleeding disorders.
- Indiana Hemophilia & Thrombosis CentermajorCooperative partner in the Partners in Bleeding Disorders Education program, providing multidisciplinary education for HTC network staff since 1996.
- Hemophilia Foundation of MichiganmajorCooperative partner in the Partners in Bleeding Disorders Education program supporting HTC network education.
- Hemophilia AlliancemajorCooperative partner in the Partners in Bleeding Disorders Education program.
- American Thrombosis & Hemostasis NetworkmajorCooperative partner in the Partners in Bleeding Disorders Education program.
- Talk About ItmajorEntertainment industry partner collaborating with NBDF to produce Bleeding.org LIVE!, the first celebrity-driven national event for the bleeding disorders community.
Scale indicators4 records
Recent moves7 records
Expansion highlights6 records
National Bleeding Disorders Foundation competitors and assessment
Company assessmentBroad incumbents
- Cystic Fibrosis Foundation: The Cystic Fibrosis Foundation is a voluntary health organization with a similar structure to NBDF: disease-specific patient support, a research grantmaking arm, a venture philanthropy model (e.g., founding stake in Vertex therapies), clinical guidelines, and an HTC-like care center network. Highly comparable in mission, revenue model, and programmatic mix.
- Leukemia & Lymphoma Society: LLS is a large voluntary health nonprofit with comparable programmatic pillars (research funding, patient education, advocacy, healthcare professional engagement) and a track record of sustained pharma sponsorship. Comparable in scale and diversification of funding streams beyond hemophilia/bleeding disorders.
- American Cancer Society: ACS operates the same broad disease-specific nonprofit blueprint — research grants, patient services, advocacy, survivor support — at much larger scale. Useful as a broad incumbent comparable even though its mission area (cancer) is broader than bleeding disorders.
Direct peers
- Muscular Dystrophy Association: MDA is a voluntary health nonprofit that similarly funds research fellowships, runs a clinic/care-center network (MDA Care Centers), publishes clinical guidance, advocates federally, and accepts pharma corporate sponsorships. Directly comparable in patient-services-plus-research-plus-advocacy model.
- National Multiple Sclerosis Society: The National MS Society operates a comparable model with disease-specific patient support, research grants, a professional fellowship pipeline, federal advocacy, and a regional chapter structure. Analogous in scope, donor model, and chronic-disease focus.
- ALS Association: The ALS Association is a voluntary health nonprofit combining research funding, clinical care network (ALS Certified Centers), advocacy, and pharma/corporate partnerships. Comparable in rare/chronic disease programming, federal advocacy focus, and disease-modifying treatment pipelines.
- JDRF (formerly Juvenile Diabetes Research Foundation): JDRF is a disease-specific voluntary health organization funding research, providing patient support, running advocacy campaigns, and operating a chapter network — directly comparable to NBDF's structure, and notably a pioneer in venture philanthropy for type 1 diabetes that Pathway to Cures emulates.
- Sickle Cell Disease Association of America: SCDAA is a comparable disease-specific voluntary health nonprofit addressing a hematologic condition with strong racial/gender health-equity dimensions, federal advocacy, and pharma partnerships. Structurally and operationally a near-twin to NBDF in scope, though addressing a different hematologic disease.
Emerging players
- National Organization for Rare Disorders (NORD): NORD is an umbrella rare-disease nonprofit providing patient support, federal advocacy (including the Orphan Drug Act), and research grants across many diseases. Comparable as a cross-disease advocacy and policy peer, though NBDF operates disease-specifically rather than cross-cutting.
Others
- American Thrombosis & Hemostasis Network (ATHN): ATHN is a non-profit coordinating data infrastructure across Hemophilia Treatment Centers and partners with NBDF in the Partners in Bleeding Disorders Education program. Comparable as a mission-adjacent organization operating in the same clinical and research ecosystem.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks7 records
Key highlights7 records
Customer concentration
National Bleeding Disorders Foundation social profiles
Digital presenceNational Bleeding Disorders Foundation financial estimates
Financial estimateRevenue estimate
Valuation estimate
National Bleeding Disorders Foundation leadership team
Management profileNumber of profiles
Profiles5 records
National Bleeding Disorders Foundation subsidiaries and ownership
Company hierarchySubsidiaries3 records
National Bleeding Disorders Foundation funding detail
Funding detailFunding overview
Funding rounds
Investors
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National Bleeding Disorders Foundation M&A and investment
M&A and investmentM&A
Investments
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Frequently asked questions about National Bleeding Disorders Foundation
What does National Bleeding Disorders Foundation do?
NBDF is a 501(c)(3) nonprofit foundation that provides education, advocacy, research funding, and community support services for individuals and families affected by inheritable bleeding disorders such as hemophilia A, hemophilia B, von Willebrand disease, and rare factor deficiencies. It operates a nationwide network of 50+ state chapters and partners with the CDC-recognized Hemophilia Treatment Center system to deliver patient education, clinical fellowships (NBDF-Takeda, Nursing, PT, SW Excellence), postdoctoral research grants, peer-reviewed publications, MASAC clinical guidelines, and the Pathway to Cures venture philanthropy fund.
Is National Bleeding Disorders Foundation a public or private company?
National Bleeding Disorders Foundation is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was National Bleeding Disorders Foundation founded?
National Bleeding Disorders Foundation was founded in 1948. It employs 101 to 250 people.
Where is National Bleeding Disorders Foundation based?
National Bleeding Disorders Foundation is headquartered in New York, United States, in the North America region.
How does National Bleeding Disorders Foundation make money?
Three revenue lines are on record. Donations and Fundraising is the primary driver. The others are corporate Partnerships and grants.
Who are National Bleeding Disorders Foundation's main competitors?
Broad incumbents on record are Cystic Fibrosis Foundation, Leukemia & Lymphoma Society and American Cancer Society. Direct peers are Muscular Dystrophy Association, National Multiple Sclerosis Society, ALS Association, JDRF (formerly Juvenile Diabetes Research Foundation) and Sickle Cell Disease Association of America. National Organization for Rare Disorders (NORD) is listed as an emerging player. American Thrombosis & Hemostasis Network (ATHN) is listed as an others.
Does National Bleeding Disorders Foundation have an API?
No public API is recorded for National Bleeding Disorders Foundation.
What industry is National Bleeding Disorders Foundation in?
National Bleeding Disorders Foundation's product category is Nonprofit Patient Advocacy and Health Foundation. Its primary akta.pro industry code is BPAGACAA, Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS), with a secondary code of BPAGAKAL, Health & Medical Research Grantmaking Foundations. Its NAICS code is 813212 and its SIC code is 8000.