Hemophilia of Georgia

What Hemophilia of Georgia does

Hemophilia of Georgia is a 501(c)(3) nonprofit organization founded in 1973 and headquartered in Sandy Springs, Georgia. It exists to enable individuals affected by inherited bleeding disorders, including hemophilia, von Willebrand Disease, and platelet disorders, to live as normally and productively as possible. The organization serves patients primarily in Georgia through a vertically integrated service model that spans a URAC- and ACHC-accredited specialty pharmacy, insurance and billing navigation, hemophilia treatment center (HTC) clinical coordination, outreach nursing with in-home infusion training, social work support, advocacy, and a portfolio of community programs including Camp Wannaklot, Generation of Heroes youth leadership, and the John W. Youtsey Memorial Scholarship Program.

The core products and technology of Hemophilia of Georgia include the HoG Pharmacy (a specialty pharmacy dispensing clotting factor and related medications with home delivery and direct insurance billing, backed by proprietary dispensing software that maintains assay accuracy within 2%), the My HoG online patient portal (supporting pharmacy ordering, profile management, and newsletter subscriptions), a hybrid outreach telehealth clinic for remote patient consultations, and the Comprehensive Hemophilia, von Willebrand Disease & Platelet Disorders Handbook (originally published in 1988, most recently updated in 2024 and recognized internationally). A wholly-owned subsidiary, Beacon Pharmacy, serves Medicaid fee-for-service patients, and the HoG Pharmacy holds active licenses in 10 states.

Hemophilia of Georgia operates a hybrid revenue model combining pharmacy services billed to commercial insurers, Marketplace plans, all three Georgia CMOs, and Medicare, with charitable revenue from individual donations, corporate sponsorships, planned/legacy giving, and annual fundraising events such as the Tee Off for Bleeding Disorders Golf Tournament, Trot to Clot 5K Walk/Run, and Hops for Hemophilia. Direct-to-patient sales flow through home delivery and the My HoG portal, while the donor funnel is driven by community events, email newsletters (Horizons in Hemophilia), the hog.org website, and active social media presence across Facebook, Instagram, X/Twitter, Vimeo, and LinkedIn.

Name

Hemophilia of Georgia

Legal name

Hemophilia of Georgia, Inc.

Website

https://hog.org

Company type

Private

Founded year

1973

Operating status

Operating

Headcount range

11–50 employees

Short description

Hemophilia of Georgia is a 501(c)(3) nonprofit founded in 1973 that delivers specialized pharmacy services, clinical coordination, and community programs to individuals with inherited bleeding disorders, primarily across Georgia and 10 licensed states.

Ownership category

akta.pro rank

Product category

Specialty Pharmacy Services for Bleeding Disorders

NAICS

Ambulatory Health Care Services (621), Pharmacy Benefit Management and Other Third Party Administration of Insurance and Pension Funds (524292)

SIC

Services-Home Health Care Services (8082), Services-Misc Health & Allied Services, Nec (8090)

akta.pro primary industry

Infusion & Home Infusion Pharmacy Services (HLAFALAG)

akta.pro secondary industries

Injectables & Specialty Medication Support (e.g., insulin, biologics) (HSABALAG), In-Home Infusion Pharmacy Support & Coordination (HSABALAH), Home Infusion Therapy Providers (HLAFAEAE)

Keywords

• Specialty pharmacy services
• Bleeding disorder care
• Home factor delivery
• Patient advocacy programs
• Outreach nursing services

Headquarters

HQ city

Atlanta

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure

Revenue model

1. Pharmacy Services: Hemophilia of Georgia operates a specialized pharmacy providing clotting factor and medical supplies to patients with bleeding disorders. The pharmacy bills insurance companies directly and serves patients across multiple states.
2. Donations and Fundraising: The organization relies on charitable donations from individuals, corporate sponsorships, and fundraising events including golf tournaments, 5K walks, brewery events, and Topgolf events.
3. Planned Giving and Legacy Gifts: Legacy giving through wills, charitable trusts, beneficiary designations on retirement plans and insurance policies, and major gifts from donors.

Pricing tiers

Go-to-market motion1 record

Distribution channels4 records

Marketing channels5 records

Core offering

Hemophilia of Georgia operates a URAC and ACHC accredited specialty pharmacy (HoG Pharmacy and subsidiary Beacon Pharmacy) that dispenses clotting factor and bleeding disorder medications with home delivery, online ordering, and direct insurance billing to patients in Georgia and across 10 licensed states. The organization complements pharmacy services with clinical coordination via Hemophilia Treatment Centers, outreach nursing with home infusion training, telehealth clinic services, social work support, advocacy, youth programs, scholarships, and a comprehensive educational handbook maintained since 1988.

Product overview

Hemophilia of Georgia operates as a nonprofit organization providing a comprehensive suite of services for individuals with bleeding disorders. The core offerings include a specialized pharmacy (HoG Pharmacy) dispensing factor concentrates and related medications with home delivery and insurance billing, the My HoG patient portal for online ordering and account management, and The Hemophilia, von Willebrand Disease & Platelet Disorders Handbook as a comprehensive educational resource. Supporting programs encompass youth services (Camp Wannaklot, Generation of Heroes), financial assistance (John W. Youtsey Memorial Scholarship), advocacy services, social support, outreach nursing, clinical coordination, insurance education, telehealth services, volunteer opportunities, and fundraising events. The organization is not engaged in the practice of medicine and does not endorse or support any particular factor concentrate or treatment protocol.

Differentiator

Problem solved

Functional benefit

Brands

• Beacon Pharmacy: Subsidiary specialty pharmacy that serves patients enrolled in traditional Medicaid fee for service.
• John W. Youtsey Memorial Scholarship
• Generation of Heroes (GoH)
• Camp Wannaklot
• Horizons in Hemophilia

Products and services

• HoG Pharmacy (Hemophilia of Georgia Pharmacy) URAC and ACHC accredited specialty pharmacy providing home delivery of clotting factor concentrates, bleeding disorder medications, and medical supplies to patients with hemophilia, von Willebrand Disease, and platelet disorders across Georgia and nine additional licensed states. Bills commercial, Marketplace, Georgia CMO, and Medicare insurance plans directly on behalf of patients.
• My HoG Patient Portal Online account system enabling patients to manage profiles, subscribe to newsletters, place pharmacy orders, and access medication therapy management resources.
• The Hemophilia, von Willebrand Disease & Platelet Disorders Handbook Comprehensive online educational handbook covering hemophilia, von Willebrand Disease, and platelet disorders, including treatment options, complications, financial planning, and self-care guidance. Originally published in 1988 and recognized as a global patient education resource.
• Camp Wannaklot Weeklong summer camp for youth ages 7-17 living with bleeding disorders, providing recreational activities and infusion training with volunteer counselor opportunities.
• Generation of Heroes Youth Leadership Program Youth leadership development program for individuals with bleeding disorders, including the Leaders in Training (LIT) track for ages 15+ and participation in national bleeding disorder conferences.
• John W. Youtsey Memorial Scholarship Financial scholarship program for Georgia-resident HoG clients with bleeding disorders enrolled in accredited educational programs, requiring community service participation. Has awarded over 500 scholarships totaling over $2,000,000 since inception.
• Advocacy Services Multi-level advocacy support including personal patient advocacy, professional representation with insurers and schools, and societal advocacy for bleeding disorder legislation and healthcare access.
• Social Support Services Social worker services providing counseling, financial assistance, community referrals, emergency funds, and insurance education for patients and families affected by bleeding disorders.
• Outreach Nursing Home-visit nursing support offering infusion training, bleeding disorder education, genetics education, and school/daycare presentations across Georgia.
• Clinical Coordination Services Clinical coordinator liaison services between Hemophilia Treatment Centers, HoG pharmacy, outreach nurses, and social workers for coordinated patient care.
• Insurance and Billing Services Payer relations team handling insurance contract negotiation, claims filing, coverage verification, prior authorizations, and healthcare plan comparison worksheets for patients.
• Telehealth Clinic Services Hybrid outreach telehealth clinic services providing remote clinical consultations for bleeding disorder patients across Georgia.
• Treatment Calendar Printable PDF and Microsoft Word tracking tool for documenting bleeds, infusions, medication details, pain levels, and treatment outcomes.

Named customers2 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Feature2 records

Partnerships

Five partnerships are on record, tiered core and minor.

• National Bleeding Disorders FoundationcoreStrategic or Co-development PartnerHemophilia of Georgia works in partnership with the National Bleeding Disorders Foundation (formerly National Hemophilia Foundation) as a Chapter of Excellence. The organization participates in shared initiatives including Washington Days advocacy events and collaborative educational programs.
• Foundation for Women & Girls with Blood DisorderscoreStrategic or Co-development PartnerCollaboration on educational resources for women and girls with bleeding disorders, including gynecological health materials and resources created in partnership with this foundation.
• World Federation of HemophiliacoreStrategic or Co-development PartnerInternational agency that promotes education and research in hemophilia. Hemophilia of Georgia refers patients internationally and collaborates on bleeding disorder awareness.
• Georgia Hemophilia Treatment CenterscoreStrategic or Co-development PartnerHemophilia of Georgia provides clinical coordination services as a liaison between HTCs and its pharmacy/outreach nurses to efficiently communicate and collaborate for best patient care.
• Cover Georgia CoalitionminorStrategic or Co-development PartnerA group of organizations working together to make healthcare available and affordable for all Georgians, of which Hemophilia of Georgia is a leading participant.

Scale indicators6 records

Recent moves6 records

Expansion highlights6 records

Direct peers

• BioMatrix Specialty Pharmacy: BioMatrix is a national specialty pharmacy focused on hemophilia, bleeding disorders, and other chronic rare diseases, providing home delivery of clotting factor and clinical support — directly comparable to HoG's specialty pharmacy business model and patient population.
• Soleo Health: Soleo Health is a national specialty pharmacy and home infusion provider with significant bleeding disorder and immunoglobulin therapy programs, directly competing with HoG on home delivery of factor and clinical support services for chronic rare disease patients.
• Nufactor Specialty Pharmacy: Nufactor is a specialty pharmacy dedicated to hemophilia, immune deficiencies, and related conditions, dispensing factor and other infused therapies for home administration. It is one of the most direct specialty-pharmacy peers to HoG in terms of patient population and delivery model.
• BioRx: BioRx is a national specialty pharmacy and infusion services provider focused on hemophilia and other rare bleeding disorders, with home delivery and clinical support services directly comparable to HoG Pharmacy's core offering.
• Hemophilia Federation of America: Hemophilia Federation of America is a national nonprofit serving the bleeding disorders community through education, advocacy, and member chapters. It mirrors HoG's community organization and program model at the national level.

Broad incumbents

• Accredo (Express Scripts): Accredo is one of the largest specialty pharmacies in the U.S. and a major dispenser of hemophilia therapies, including clotting factor and emicizumab. It overlaps with HoG on specialty dispensing for bleeding disorders but operates at vastly greater scale and as part of a PBM-owned portfolio.
• Option Care Health: Option Care Health is the largest independent provider of home and alternate-site infusion services in the U.S., including hemophilia and bleeding disorder therapies. It competes with HoG Pharmacy's home infusion and specialty dispensing model at a national scale.
• Coram CVS Specialty Infusion Services: Coram, part of CVS Health, is a major home infusion and specialty pharmacy provider that dispenses hemophilia and other specialty therapies. It competes with HoG Pharmacy in home-based dispensing and is a broad incumbent in the broader specialty/home infusion space.

Others

• National Bleeding Disorders Foundation: The National Bleeding Disorders Foundation (formerly NHF) is the national umbrella organization and awarding body for HoG's six-star Chapter of Excellence designation. It is a strategic partner and ecosystem enabler rather than a competitor.

Emerging players

• CSI Pharmacy: CSI Pharmacy is a specialty pharmacy focused on hemophilia, IVIG, and other chronic disease therapies, providing home infusion and clinical monitoring. It is a more recent entrant in the bleeding disorder space with meaningful overlap in patient population and dispensing model.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights7 records

Customer concentration

• Xx.com/HemophiliaofGA
• YouTubevimeo.com/hemophiliaofgeorgia
• Facebookfacebook.com/HemophiliaofGeorgia
• LinkedInlinkedin.com/company/hemophilia-of-georgia/about
• Instagraminstagram.com/hemophilia_of_georgia

Compliance3 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles4 records

Subsidiaries1 record

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about Hemophilia of Georgia