VeDA

What VeDA does

VeDA (Vestibular Disorders Association) is a 501(c)(3) tax-exempt nonprofit organization headquartered in Portland, Oregon, that provides support, education, and community resources for individuals affected by vestibular (inner-ear and brain balance) disorders. The organization's core offering is the vestibular.org website, which has been accessed over 18 million times since 2012 and serves as the primary delivery channel for medically-reviewed patient education, symptom information, and treatment resources. VeDA's product suite includes the VeDA Helpline (1-800-837-8428) for one-on-one patient support, a searchable Healthcare Provider Directory, the Vesties' Village online forum, multiple support groups, two recurring newsletters (V-News and On the Level), and educational toolkits, all provided free to patients.

The organization is built on a WordPress CMS hosted by Kinsta with no proprietary technology or AI/ML components. Community engagement is anchored by an 80+ person global Ambassador Program, the Patient Spotlight storytelling initiative, and an Advocacy Program targeting legislative outreach. Annual demand-generation and fundraising events include Balance Awareness Week (which has received congressional resolutions), a virtual fundraising gala (Evening for a Life Rebalanced), and a virtual conference (Living Life Rebalanced). Healthcare professionals are served through a paid membership tier that includes provider directory listings.

VeDA's revenue model is diversified across individual tax-deductible donations, branded merchandise sales, affiliate commissions from partner products (Avulux, Urban Poling, BalanceBelt, Amazon Storefront), professional membership subscriptions, and event-based fundraising. A small paid staff of 1-10 is supplemented by a large volunteer network, with the organization explicitly described as having a small budget relative to its operational goals. There are no disclosed funding rounds, institutional investors, M&A activity, patents, or proprietary technology assets.

Name

VeDA

Legal name

Vestibular Disorders Association

Website

https://vestibular.org

Company type

Private

Founded year

1989

Operating status

Operating

Headcount range

1–10 employees

Short description

VeDA (Vestibular Disorders Association) is a 501(c)(3) nonprofit that provides free patient education, helpline support, provider directories, and online community programs for individuals affected by vestibular (inner-ear and brain balance) disorders.

Ownership category

akta.pro rank

Headquarters

HQ city

Portland

HQ country

United States

HQ region

North America

Offices1 record

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Marketing or Sales, Technology or R&D, Infrastructure

Revenue model

1. Donations and Contributions: Tax-deductible charitable donations from individuals supporting vestibular patient education and awareness. VeDA is a 501(c)(3) tax-exempt nonprofit organization (Tax ID 93-0914340).
2. Merchandise and Product Sales: Online store selling VeDA-branded merchandise (Life Rebalanced Chronicles, 'Dizzy-Not-Drunk', 'Brain Fog', Fiona Flamingo designs) and curated products from partner companies through Amazon storefront.
3. Affiliate Partnerships: Portions of purchases from partner companies (Avulux lenses, Urban Poling Activator poles, BalanceBelt, Amazon products) are donated to VeDA. Also earns commissions through Amazon Storefront.
4. Professional Membership: Healthcare professionals can join as VeDA members, receiving directory listings in the Provider Directory and other professional benefits.
5. Fundraising Events: Virtual gala (Ice Cream Social, Evening for a Life Rebalanced) serves as annual fundraising event. Balance Awareness Week includes fundraising campaign activities.

Go-to-market motion3 records

Distribution channels5 records

Marketing channels8 records

Core offering

VeDA is a 501(c)(3) nonprofit organization that provides free patient education, peer support, and healthcare provider connections for people affected by vestibular (inner-ear and brain balance) disorders. Its core offerings include the vestibular.org educational website, a helpline, a clinician directory, online support groups, an annual virtual conference, and Balance Awareness Week. The organization also runs a merchandise/affiliate online store and a professional membership program that funds its mission through donations and grants.

Product overview

VeDA operates a comprehensive patient education and support ecosystem centered around vestibular disorders (inner-ear and brain balance conditions). The core offering is the vestibular.org website providing educational content, complemented by direct support services including a helpline, healthcare provider directory, and online support groups. Community engagement programs include the Ambassador Board, Volunteer Program, and Patient Spotlight storytelling initiative. Annual awareness efforts are anchored by Balance Awareness Week, while the quarterly and monthly newsletters (On the Level and V-News) deliver ongoing content. VeDA also provides advocacy tools for legislative engagement, an archived forum for peer discussion, a secure member portal for fundraising and volunteer management, and an online store featuring merchandise and affiliate health products for vestibular patients.

Differentiator

Problem solved

Functional benefit

Products and services

• Vestibular.org Educational Website A comprehensive patient education website providing medically reviewed articles, glossary, symptom information, diagnoses, treatment resources, and article collections about vestibular disorders. Free to access for vestibular patients and the general public.
• VeDA Helpline Free one-on-one support service connecting vestibular patients with resource coordinators via phone (1-800-837-8428) and email who provide articles, healthcare provider connections, and emotional and coping resources.
• Healthcare Provider Directory A searchable directory of vestibular healthcare specialists trained in the diagnosis, testing, and treatment of inner-ear and brain balance disorders, also allowing nominations of providers for VeDA membership.
• Annual Virtual Conference (Living Life Rebalanced) An annual virtual conference bringing together vestibular patients and healthcare professionals for educational sessions, expert presentations, and community building.
• Balance Awareness Week An annual awareness campaign held the third week of September to make vestibular disorders widely understood, rapidly diagnosed, and effectively treated, with community activities, ambassador campaigns, and fundraising components.
• Online Support Groups Virtual support group meetings for vestibular patients and their loved ones, including specialized groups such as the Wobbly, Dizzy & Deaf group for patients with hearing loss and the Dizzy Moms Club.
• Online Store (Merchandise and Affiliate Products) An e-commerce section featuring VeDA-branded merchandise and affiliate products including Amazon storefront items, Avulux light sensitivity lenses, Urban Poling Activator poles, and BalanceBelt haptic feedback device information.
• Professional Membership Program A membership program for vestibular healthcare professionals that includes directory listings in the Provider Directory, access to the secure member portal, professional benefits, and continuing education through VeDA's professional programs.
• Annual Virtual Fundraising Gala (Evening for a Life Rebalanced) An annual virtual fundraising gala (Evening for a Life Rebalanced) that brings the community together and drives donations to support VeDA's mission.

Quantifiable outcome

• Website accessed over 18 million times since 2012
• +1 more outcomes

Named customers2 records

Segments3 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

One partnership is on record.

• AmazonminorChannel Partner/ Reseller/ DistributorVeDA has an Amazon Storefront featuring products for vestibular patients including noise-reducing headphones, balance aids, and comfort items. A portion of purchases helps fund VeDA's mission at no extra cost to buyers.

Scale indicators3 records

Recent moves6 records

Expansion highlights6 records

Direct peers

• Vestibular Disorders Association: Reference placeholder omitted; VeDA is the subject company. (Listed for completeness only — see other peers.)
• Hearing Loss Association of America: National nonprofit advocating for people with hearing loss, often coexisting with vestibular conditions. Similar in mission scope, chapter/ambassador structure, and grassroots advocacy approach.
• American Tinnitus Association: A 501(c)(3) patient advocacy nonprofit dedicated to tinnitus, an adjacent inner-ear condition with significant symptom overlap with vestibular disorders. Most structurally similar peer — same nonprofit model, patient education focus, small staff, donation-dependent funding, and clinician directory.

Broad incumbents

• American Academy of Otolaryngology–Head and Neck Surgery: Professional society for ENTs, the physician specialty most often diagnosing vestibular disorders. Competes for clinician mindshare and continuing education content, with vastly larger institutional resources.
• National Institute on Deafness and Other Communication Disorders (NIDCD): Federal research institute within NIH covering hearing, balance, taste, smell, voice, speech, and language. Competes as the authoritative source for vestibular research, though as a government body rather than a patient-facing nonprofit.
• American Speech-Language-Hearing Association (ASHA): Large professional association representing audiologists, SLPs, and hearing/balance scientists. Overlaps with VeDA on audiologist membership, vestibular education, and professional directory functions, but at significantly greater scale and resources.

Emerging players

• Brain Injury Association of America: National nonprofit supporting patients with traumatic brain injury, a common cause of secondary vestibular dysfunction. Comparable advocacy, education, and helpline model.
• Vestibular Migraine Society: Smaller, condition-specific nonprofit focused on vestibular migraine — one of the disorders VeDA covers broadly. Competes for the same patient community within a narrower disease subset.
• Migraine Research Foundation: Patient-advocacy and research-funding nonprofit for migraine, a neurological condition with substantial comorbidity and symptom overlap with vestibular disorders. Analogous nonprofit operating model and donor base.

Regional players

• Meniere's Disease Society: UK-based nonprofit supporting patients with Meniere's disease, one of the specific vestibular disorders covered by VeDA. Comparable patient-education and peer-support mission, but with UK-centric geographic focus.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights6 records

Customer concentration

• Xx.com/vestibularveda
• YouTubeyoutube.com/channel/UCn-Qx6uwbpZLmggujp9hHfw
• Facebookfacebook.com/vestibulardisorders
• LinkedInlinkedin.com/company/vestibular-disorders-association
• Instagraminstagram.com/vestibularveda
• Pinterestpinterest.com/vestibularveda

Revenue estimate

Valuation estimate

Number of profiles

Profiles1 record

Funding overview

Funding rounds

Investors

Funding detail is available on the Subscription and Enterprise plan.Contact sales →

M&A

Investments

M&A and investment is available on the Subscription and Enterprise plan.Contact sales →

Frequently asked questions about VeDA