MND Scotland
MND Scotland is the only Scottish charity dedicated to Motor Neurone Disease, providing free support services (counselling, grants, accessible holidays, benefits advice) to people with MND and their carers, and funding MND research (£8.6 million committed since 1998).
- Company typePrivate
- Founded1981
- HeadquartersGlasgow, United Kingdom
- Headcount11–50
- GTM typeB2C
- OfferingServices
What MND Scotland does
MND Scotland is a registered Scottish charity (Charity Number SC002662) and company limited by guarantee (SC217735), headquartered at 6th Floor, Merchant Exchange, 20 Bell Street, Glasgow. Founded in 1981 by police officer John Macleod as the Scottish MND Association following his own diagnosis, the organisation was renamed MND Scotland in 2009. It is the only charity in Scotland dedicated to both direct support for people affected by Motor Neurone Disease (MND) and investment in research into the condition. It employs between 11 and 50 staff.
The organisation delivers a portfolio of free support services to people living with MND, their carers, and bereaved families in Scotland. These include wellbeing support, practical support with equipment and daily living, communication and technology assistance, accessible holiday homes, financial grants, benefits advice, free one-to-one counselling (up to 8–12 sessions), bereavement support, and wills/Power of Attorney guidance. The research programme has committed £8.6 million to MND research since 1998, including a £1.5 million investment in the MND-SMART clinical trial (2020) and a £4.25 million grant in 2022 to launch a UK-wide research effort.
MND Scotland's revenue is generated through individual one-off and recurring monthly donations, legacy gifts, event-based fundraising (running events, firewalks, comedy nights, the William Wallace Running Festival), merchandise sales via an online shop, corporate partnerships (Universal Language, Blue Diamond Garden Centres, Scurry Events, William Wallace Running Festival), and research grants (including NIHR funding for the Ignite Early Career Researcher competition). Distribution is primarily domestic to Scotland via the website (mndscotland.org.uk), direct service delivery, events, and corporate channels. The organisation launched the LEARN (Lived Experience and Researcher Network) in 2024 and is celebrating its 45th anniversary in 2026.
MND Scotland firmographics
Firmographics- Name
- MND Scotland
- Legal name
- MND Scotland
- Website
- https://mndscotland.org.uk
- Company type
- Private
- Founded year
- 1981
- Operating status
- Operating
- Headcount range
- 11–50 employees
- Short description
- MND Scotland is the only Scottish charity dedicated to Motor Neurone Disease, providing free support services (counselling, grants, accessible holidays, benefits advice) to people with MND and their carers, and funding MND research (£8.6 million committed since 1998).
- Ownership category
- akta.pro rank
MND Scotland industry classification
Industry- Product category
- Charitable Disease Support Services
- NAICS
- Services for the Elderly and Persons with Disabilities (62412), Voluntary Health Organizations (813212), Other Grantmaking and Giving Services (813219)
- SIC
- Services-Social Services (8300), Services-Health Services (8000)
- akta.pro primary industry
- Disability Services & Independent Living Support (BPAGACAG)
- akta.pro secondary industries
- Non-Communicable Diseases (NCDs) & Mental Health Programs (BPADAIAK), Domestic Violence & Abuse Support Services (BPAGAEAD)
Keywords
Where MND Scotland is headquartered
LocationHeadquarters
- HQ city
- Glasgow
- HQ country
- United Kingdom
- HQ region
- Europe
Offices1 record
Markets served
MND Scotland business model
Business model- GTM type
- B2C
- Offering type
- Services
- Cost components
- Personnel, Operations, Marketing or Sales, Others, Infrastructure
Revenue model
- Donations and Fundraising: Individual donations (one-off and recurring monthly), event fundraising, workplace fundraising, payroll giving, and legacy gifts/bequests. Major campaign appeals such as the 45th Anniversary Appeal.
- Merchandise Sales: Online shop selling branded merchandise including t-shirts, running vests, cycle jerseys, accessories, wedding favors, and commemorative items. Proceeds support MND Scotland's work.
- Corporate Partnerships: Partnerships with businesses for fundraising support, cause marketing (e.g., 4.5% of sales donations), and charity of the year designations.
- Research Grants: MND Scotland receives grants from organizations like the National Institute for Health and Care Research (NIHR) to fund early career researcher competitions and specific research projects.
Pricing tiers
| Model | Billing | Price |
|---|---|---|
| Other | Monthly | Donation options |
| One time/ perpetual license | Pay-as-you-go | Charity places for events |
| Unit Pricing | Pay-as-you-go | Wedding Favor - Card |
| Unit Pricing | Pay-as-you-go | Wedding Favor - Folding Table Card |
| Unit Pricing | Pay-as-you-go | Clothing and merchandise |
Go-to-market motion2 records
Distribution channels4 records
Marketing channels7 records
MND Scotland product offering
Product offeringCore offering
MND Scotland is the leading charity in Scotland dedicated to supporting people affected by Motor Neurone Disease (MND). It delivers a portfolio of direct support services including counselling, wellbeing support, grants, equipment loans, accessible holidays, benefits advice, bereavement support, and wills/Power of Attorney guidance. It also funds MND research and operates a merchandise shop to raise funds.
Product overview
MND Scotland is a Scottish charity providing comprehensive support services for people affected by motor neuron disease (MND), alongside funding vital MND research. The organization offers a portfolio of support services including wellbeing support, practical support with equipment and daily living, free counselling services (up to 8-12 sessions), accessible holiday homes, financial grants, benefits advice, bereavement support, and wills/Power of Attorney guidance. Research activities include funding clinical trials, hosting the LEARN (Lived Experience and Researcher Network) events connecting patients with researchers, and the Ignite Early Career Researcher Competition. The organization also operates a merchandise shop selling branded fundraising items including clothing (t-shirts, running vests, cycle jerseys), accessories (hats, snoods, patches, badges), and special occasion items (wedding favours). Fundraising events include running events (William Wallace Running Festival, 5K Your Way, Great Scottish Run, London Marathon), comedy nights, firewalks, and community events.
Differentiator
Problem solved
Functional benefit
Products and services
- Counselling Service Free one-to-one counselling sessions with qualified therapists, available to people with MND and their carers (up to 8-12 sessions). Provided under COSCA regulatory oversight.
- Accessible Holidays Specialist accessible holiday homes in Scottish locations, fully equipped to meet the needs of people with MND and their families.
- Grants Program Financial grants to help people with MND and their carers ease money worries and live better lives.
- Benefits Advice Service Free confidential service helping people with MND and their carers claim the financial support and benefits they are entitled to.
- Bereavement Support Specialist counselling and support for families after someone dies from MND.
- Wills and Power of Attorney Service Guidance and support to help people with MND and their families create wills and establish power of attorney.
- MND Research Funding Investment in cutting-edge MND research including clinical trials such as MND-SMART (launched 2020) and TRUST, with £8.6 million committed to research since 1998.
- LEARN (Lived Experience and Researcher Network) Network connecting people affected by MND with researchers through local events for shared learning and discussion.
- Ignite Early Career Researcher Competition Competition supporting early career researchers to lead their own focused MND research projects with funding prizes.
- MND Scotland Shop Online shop selling branded merchandise including clothing, accessories, and fundraising items, with proceeds supporting MND Scotland's work.
- Wedding Favours Custom wedding favour cards and folding table cards sold with proceeds supporting MND Scotland.
- William Wallace Running Festival Fundraising running event for which MND Scotland is the official charity partner, offering ultra marathons (70km, 50km), 10k, and the accessible Wallace Warriors challenge.
- 5K Your Way Annual family fun run held in Glasgow's Kelvingrove Park, part of MND Scotland's 45th anniversary celebrations.
- MND Scotland Comedy Night Annual comedy event at The Glee Club Glasgow featuring Scottish comedians to raise funds for MND Scotland.
- MND Scotland Firewalk Adrenaline challenge fundraising event of walking barefoot across burning coals, held at various Scottish venues.
Quantifiable outcome
- £8.6 million committed to MND research since 1998
- +3 more outcomes
Companies that use MND Scotland
Customer profileNamed customers3 records
Segments4 records
Ideal customer profiles4 records
MND Scotland technology and API
TechnologyTechnology focussed No
API detail
- Has API
- No
- API docs
- API detail
Core technology
AI maturity
App detail
Integration4 records
MND Scotland partnerships and signals
Strategic signalPartnerships
Eleven partnerships are on record, tiered minor and core.
- Caesar and HowieminorSponsors for the 5K your way event in Glasgow for another year. Local sponsorship support for community fundraising events.
- William Wallace Running FestivalcoreOfficial charity partner for the William Wallace Running Festival. MND Scotland receives fundraising support from participants and is highlighted as the beneficiary charity.
- Scurry EventscoreEvent director and owner of the William Wallace Running Festival. Partners with MND Scotland as the official charity partner.
- You Can SportcoreFamily-operated endurance sports coaching business based in Stirling. Partner for the William Wallace Running Festival with MND Scotland.
- Queen of the South FCminorPartnership to host LEARN (Lived Experience and Researcher Network) event at Palmerston Park stadium in Dumfries.
- Aberdeen FCminorPartnership to host LEARN event at Pittodrie Stadium. Also hosts firewalk event in stadium car park.
- Universal LanguagecoreUniversal Language selected MND Scotland as its Charity Partner of the Year for 2025. Releases exclusive Marius Zaliukas embroidered t-shirt with £5 donation from every sale going to MND Scotland.
- Blue Diamond Garden CentresminorSelling Sunset Isle Rose in aid of MND Scotland. 10% of retail sales from every rose donated to MND Scotland. Rose named in memory of Richard, brother of Gill Crawford.
- BiogencoreDeveloped tofersen, a new drug for SOD1 motor neuron disease. MND Scotland collaborated with MND Association and My Name'5 Doddie Foundation to welcome MHRA approval. Biogen provides Early Access Programme for eligible patients.
- MND AssociationcoreMain UK MND charity partner. Collaborated on tofersen approval, shared advocacy campaigns, and research funding initiatives.
- My Name'5 Doddie FoundationcoreMain UK MND charity partner. Collaborated on tofersen approval and shared commitment to making treatments available to people with MND.
Scale indicators4 records
Recent moves7 records
Expansion highlights6 records
MND Scotland competitors and assessment
Company assessmentDirect peers
- ALS Association: The largest US non-profit dedicated to ALS (the American clinical name for MND), combining research funding with patient services and advocacy. Highly comparable in mission, dual-mandate structure, and disease-specific charity model, though at significantly larger scale.
- MND Association: The main UK-wide MND charity serving England, Wales, and Northern Ireland with the same dual mandate of patient support and research funding. Operates an overlapping research and advocacy agenda and is a direct strategic partner of MND Scotland, making it the closest comparable organization.
- International Alliance of ALS/MND Associations: Global umbrella organization linking national MND/ALS charities worldwide, of which MND Scotland is a member. Provides a useful peer benchmark for international MND-charity operating models, research collaboration, and advocacy standards.
- My Name'5 Doddie Foundation: Scotland- and UK-focused MND charity founded by rugby player Doddie Weir, focused on research funding and supporting families affected by MND. Directly competes for Scottish donors and collaborates with MND Scotland on tofersen advocacy.
Emerging players
- Project ALS: US-based non-profit focused on funding ALS research and identifying treatments, with a research-heavy mandate. Comparable as a disease-specific research-funder, though narrower than MND Scotland's combined research-and-services scope.
- Les Turner ALS Foundation: US Chicago-area ALS charity providing direct patient support, home visits, and research funding. Comparable in combining local direct-support services with research grants at a sub-national geographic scale similar to MND Scotland.
Regional players
- Capability Scotland: Scottish disability charity delivering support services, accessible housing, and advocacy for disabled people of all ages. Operates with a Scotland-only geographic mandate similar to MND Scotland, and shares a focus on disability-related independent-living support.
- ALS Society of Canada: National Canadian ALS/MND charity funding research and providing patient services across provincial chapters. Operates the same dual research-and-services model as MND Scotland in a different national market.
- ENABLE Scotland: Major Scottish disability charity providing services and advocacy for people with learning disabilities. A useful peer as another Scotland-headquartered disability-support non-profit, though addressing a different disability population than MND.
- Motor Neurone Disease Association of Australia (MND Australia): Australia's national MND peak body delivering research, advocacy, and support services across state chapters. Mirrors MND Scotland's national/regional model and disease-specific mandate in a different geography.
Market position
Strengths5 records
Weaknesses5 records
Competitive moat5 records
Key risks6 records
Key highlights7 records
Customer concentration
MND Scotland social profiles
Digital presenceMND Scotland compliance and trust
Trust signalCompliance2 records
MND Scotland financial estimates
Financial estimateRevenue estimate
Valuation estimate
MND Scotland leadership team
Management profileNumber of profiles
Profiles1 record
MND Scotland funding detail
Funding detailFunding overview
Funding rounds
Investors
Funding detail is available on the Subscription and Enterprise plan.Contact sales →
MND Scotland M&A and investment
M&A and investmentM&A
Investments
M&A and investment is available on the Subscription and Enterprise plan.Contact sales →
Frequently asked questions about MND Scotland
What does MND Scotland do?
MND Scotland is the leading charity in Scotland dedicated to supporting people affected by Motor Neurone Disease (MND). It delivers a portfolio of direct support services including counselling, wellbeing support, grants, equipment loans, accessible holidays, benefits advice, bereavement support, and wills/Power of Attorney guidance. It also funds MND research and operates a merchandise shop to raise funds.
Is MND Scotland a public or private company?
MND Scotland is a private company. It is classified as nonprofit foundation owned and is currently operating.
When was MND Scotland founded?
MND Scotland was founded in 1981. It employs 11 to 50 people.
Where is MND Scotland based?
MND Scotland is headquartered in Glasgow, United Kingdom, in the Europe region.
How does MND Scotland make money?
Four revenue lines are on record. Donations and Fundraising is the primary driver. The others are merchandise Sales, corporate Partnerships and research Grants.
Who are MND Scotland's main competitors?
Direct peers on record are ALS Association, MND Association, International Alliance of ALS/MND Associations and My Name'5 Doddie Foundation. Emerging players are Project ALS and Les Turner ALS Foundation. Regional players are Capability Scotland, ALS Society of Canada, ENABLE Scotland and Motor Neurone Disease Association of Australia (MND Australia).
Does MND Scotland have an API?
No public API is recorded for MND Scotland.
What industry is MND Scotland in?
MND Scotland's product category is Charitable Disease Support Services. Its primary akta.pro industry code is BPAGACAG, Disability Services & Independent Living Support, with a secondary code of BPADAIAK, Non-Communicable Diseases (NCDs) & Mental Health Programs. Its NAICS code is 62412 and its SIC code is 8300.