ALS United Connecticut

What ALS United Connecticut does

ALS United Connecticut is a 501(c)(3) nonprofit organization headquartered in Stratford, Connecticut, that provides free care services, equipment, transportation, and advocacy for people living with ALS and their families in Connecticut. Founded in 1988 (firmographics) / 1991 (company history), the organization operates with a small full-time staff of approximately eight, including Executive Director Jacky Rose, Director of Programs Amy Chickles, Events Manager Anne Lynch, three licensed-clinical-social-worker Care Managers (Jewell Auguste, Michelle Gaski, Jessica Poruban-Ortiz), Manager of Operations Kim Buda, and Marketing & Communications Manager Paul Silverfarb, and is governed by a 12-person volunteer board chaired by Maura Tancredi. The organization is a member of ALS United, a national network of 15+ independent ALS nonprofits, and is also formally branded as ALS United CT.

The organization's core programs are services rather than technology products. The Care Services Program delivers needs assessment, care planning, and resource coordination through on-staff licensed social workers. The Equipment Loan Program partners with Connecticut vendors to deliver durable medical equipment (power wheelchairs, hoyer lifts, ramps, shower chairs, hospital beds, communication devices); in 2025 it delivered 583 items to client homes. The Transportation Program, delivered through Coordinated Transportation Solutions, provided 796 free rides and van rentals for medical appointments and quality-of-life trips. Support Groups are run virtually for patients, caregivers, slow progressors, veterans, and the bereaved; 97 groups with 785 attendees were held in 2025. Bereavement, caregiver, and veteran-specific resources round out the care side. Research is funded globally through the ALS Research Innovation Program, the Accelerating Medicines Partnership (AMP) ALS, NEALS, and direct biotech investments such as second-year funding for AUTTX in 2025. Advocacy mobilizes federal and state policymakers around ALS research appropriations, the ACT for ALS Act, and the Justice for ALS Veterans Act. The organization does not operate a proprietary software or technology platform.

The revenue model is entirely donation- and event-driven. There are no fees charged to clients for any service. Revenue streams include individual donations, event fundraising (Walk ALS in Hartford, New Haven, and Westport; ALS Fest: United Thru Music; Birdies for Charity via the Travelers Championship; Lou Gehrig Day; cornhole tournaments), corporate and foundation grants and sponsorships, workplace giving, planned giving and estate gifts, and gifts of stocks, bonds, and vehicles. Clinical service delivery is anchored by partnerships with Hospital for Special Care (New Britain), the VA Connecticut Interdisciplinary ALS Clinic (West Haven), and the Yale Medicine ALS Program (New Haven, North Haven, Greenwich). The organization has earned a Four-Star Charity Navigator rating for at least eight consecutive years and a Candid Platinum transparency seal, and operates under EIN 04-3417472.

Name

ALS United Connecticut

Legal name

ALS United Connecticut Inc.

Website

https://alsunitedct.org

Company type

Private

Founded year

1991

Operating status

Operating

Headcount range

1–10 employees

Short description

ALS United Connecticut is a nonprofit that delivers free care management, durable medical equipment loans, transportation, and support groups to people living with ALS and their families in Connecticut, while funding research and advocacy as part of the ALS United national network.

Ownership category

akta.pro rank

Product category

ALS Patient Care Services

NAICS

Services for the Elderly and Persons with Disabilities (62412)

SIC

Services-Health Services (8000)

akta.pro primary industry

Disease-Specific Research & Support (e.g., Cancer, Diabetes, ALS) (BPAGACAA)

akta.pro secondary industry

Care Navigation & Service Coordination (Medical, Social, Community) (HSABAIAB)

Keywords

• ALS care services
• Nonprofit healthcare
• Patient advocacy
• Medical equipment loans
• ALS research funding

Headquarters

HQ city

Milford

HQ country

United States

HQ region

North America

Offices2 records

Markets served

GTM type

B2C

Offering type

Services

Cost components

Personnel, Operations, Supply Chain, Marketing or Sales, Others

Revenue model

1. Individual Donations: One-time and recurring donations from individual supporters, processed through the organization's website and direct mail campaigns. Donations fund all free services provided to ALS patients and families.
2. Event Fundraising: Revenue generated from Walk ALS events (Hartford, New Haven, Westport), ALS Fest: United Thru Music, Birdies for Charity (Travelers Championship), athletic fundraising, and community events.
3. Corporate and Foundation Grants/Sponsorships: Sponsorships from corporations for Walk ALS events and other fundraising activities, as well as foundation grants supporting research programs.
4. Planned Giving and Estate Gifts: Bequests and planned giving arrangements that provide long-term support for the organization's mission.
5. Workplace Giving: Corporate workplace giving programs and employer matching gift programs.
6. Gifts of Stocks, Bonds, and Vehicles: Tax-effective donations of appreciated securities, stocks, bonds, and vehicle donations.

Pricing tiers

Go-to-market motion1 record

Distribution channels4 records

Marketing channels12 records

Core offering

ALS United Connecticut is a 501(c)(3) nonprofit organization that provides free, comprehensive support services to people living with ALS and their families in Connecticut. Its core offerings include care management by licensed clinical social workers, a durable medical equipment loan program, free transportation to medical appointments, virtual support groups, bereavement services, veteran-specific resources, and advocacy for ALS research funding.

Product overview

ALS United Connecticut is a nonprofit health organization providing a comprehensive suite of services for people living with ALS and their families in Connecticut. The organization operates through interconnected programs including Care Services (on-staff social workers providing needs assessment and resource coordination), an Equipment Loan Program (distributing durable medical equipment like wheelchairs and ramps), a Transportation Program (providing rides to medical appointments through CTS), Support Groups (virtual meetings for patients, caregivers, and families), and Bereavement Services. The Research Program funds global ALS research through the ALS Research Innovation Program and partnerships with NEALS. The Advocacy Program works on federal and state policy for ALS funding and care. Community engagement includes Walk ALS events, ALS Fest, and other fundraising activities. All programs are provided free of charge to clients, funded through donations and fundraising.

Differentiator

Problem solved

Functional benefit

Products and services

• Care Services Program On-staff Care Services Managers (licensed social workers) provide individual support, needs assessment, equipment suggestions, local resource connections, and family planning assistance for people living with ALS and their families at no cost.
• Equipment Loan Program Partners with vendors across Connecticut to provide durable medical equipment loans including power wheelchairs, hoyer lifts, shower chairs, ramps, hospital beds, and communication devices for people registered with the organization.
• Transportation Program Provides curb-to-curb livery service through Coordinated Transportation Solutions (CTS) and van rentals for people living with ALS in Connecticut to access medical appointments and quality of life events free of charge.
• Support Groups Facilitated virtual support groups for people living with ALS, caregivers, family members, and friends, including groups for slow progressors, veterans, caregivers only, and grief support.
• Research Program Funds ALS research globally through collaborations with academia, industry, government, and nonprofit organizations, including the ALS Research Innovation Program, Accelerating Medicines Partnership (AMP) ALS Initiative, and sponsorship of NEALS.
• Advocacy Program State and federal advocacy efforts for research funding, health and long-term care policies, and caregiver support, including education and mobilization of Congress on ALS-related legislation.
• Walk ALS Events Annual fundraising walks held in Hartford, New Haven, and Westport, Connecticut, serving as the organization's largest community events to raise awareness and funds for ALS care, advocacy, and research.
• Clinical Trial Access Partnership with the Northeast ALS Consortium (NEALS) providing access to clinical trial search and enrollment support for ALS patients and families in Connecticut.
• Bereavement Services Monthly Grief Connections Group and resources for family members and friends who have lost a loved one to ALS, including referrals to professional counseling.
• Resources for Military Veterans Support services specifically for veterans with ALS, including assistance with VA health care registration, service-connected disability benefits, and coordination with VA Connecticut Interdisciplinary ALS Clinic.
• Donor Portal and Fundraising Tools Online donation platform, tribute page creation, Facebook fundraisers, and workplace giving programs enabling supporters to donate and fundraise for ALS programs.

Quantifiable outcome

• 370+ people living with ALS served in 2025
• +6 more outcomes

Named customers4 records

Segments5 records

Ideal customer profiles3 records

Technology focussed No

API detail

Has API

No

API docs

API detail

Core technology

AI maturity

App detail

Partnerships

16 partnerships are on record, tiered core, supporting and minor.

• AUTTXcoreStrategic or Co-development Partner · 4 June 2025ALS United Connecticut, in partnership with the ALS Network, provided second-year research funding to biotech company AUTTX for the development of new molecules to restore normal RNA processing in people with ALS. The research is led by co-founders Isabelle Draper, PhD (Tufts Medical Center) and Alan S. Kopin, MD (Tufts University School of Medicine). This follow-on investment reflects the organization's commitment to advancing bold translational science with potential for meaningful new therapies.
• ALS United (National Organization)coreStrategic or Co-development PartnerALS United Connecticut is a member of ALS United, a national community of 15+ independent ALS nonprofits united in providing local care services, advancing research initiatives, and advocating for policies benefiting people with ALS. Through this membership, ALS United CT participates in collaborative research funding, the ALS Research Innovation Initiative, Accelerating Medicines Partnership (AMP) ALS, and shared advocacy campaigns.
• ALS NetworkcoreStrategic or Co-development PartnerThe ALS Network facilitates the ALS Research Innovation Initiative in collaboration with ALS United and member organizations including ALS United Connecticut. The partnership reduces infrastructure costs, eliminates duplication, and increases direct funding to researchers. ALS Network coordinates the scientific review process through a Scientific Advisory Committee of world-renowned researchers.
• Hospital for Special CarecoreStrategic or Co-development PartnerLocated in New Britain, CT, the Hospital for Special Care provides a multidisciplinary approach to ALS care and is an ALS Certified Treatment Center of Excellence. ALS United Connecticut works closely with this center to coordinate care for patients and families. The center's Medical Director is Kevin Felice, DO.
• VA Connecticut Interdisciplinary ALS CliniccoreStrategic or Co-development PartnerLocated in West Haven, CT, the VA Connecticut ALS Clinic provides multidisciplinary care to veterans with ALS and is an ALS Certified Center of Excellence. ALS United Connecticut collaborates with the clinic to ensure veterans and their families receive comprehensive care. Medical Director is Huned Patwa, MD.
• Yale Medicine ALS ProgramcoreStrategic or Co-development PartnerThe Yale Medicine ALS Program provides medical treatment and care to those living with ALS in Connecticut. ALS United Connecticut collaborates with Yale neurologists Dr. Uzma Usman (New Haven/North Haven locations) and Dr. Kunal Desai (Greenwich location) to coordinate patient care.
• Coordinated Transportation Solutions (CTS)coreChannel Partner/ Reseller/ DistributorCoordinated Transportation Solutions (CTS) provides curb-to-curb livery transportation for people living with ALS in Connecticut for medical appointments and quality-of-life trips. Van rentals are also available through CTS. This program is free of charge to registered ALS patients.
• Northeast ALS Consortium (NEALS)coreStrategic or Co-development PartnerNEALS is a worldwide consortium of ALS clinical research centers. ALS United Connecticut sponsors the NEALS Annual Meeting (with funds restricted to research) and refers patients to the NEALS clinical trial database for enrollment in interventional and observational ALS trials.
• Accelerating Medicines Partnership (AMP) ALScoreStrategic or Co-development PartnerALS United, along with its member organizations including ALS United Connecticut, collectively supports the AMP ALS initiative managed by the Foundation for the National Institutes of Health (FNIH). The initiative brings together NINDS/NIH, FDA, Critical Path Institute, and stakeholders from academia, life science companies, foundations, and patient groups to expedite development of effective ALS treatments.
• Hope Loves CompanysupportingStrategic or Co-development PartnerHope Loves Company is a nonprofit providing emotional and educational support to children and young adults who have or had a loved one battling ALS. ALS United Connecticut partners with HLC to provide virtual support groups for children, camps in MA and NJ, and the Beyond the Bunk monthly virtual hangout program for children and teens ages 6–17.
• Massachusetts General Hospital Sean M. Healey & AMG Center for ALS (PACT Program)supportingStrategic or Co-development PartnerThe ALS Parenting at a Challenging Time (PACT) Program through MGH provides guidance to parents and grandparents addressing ALS-related challenges faced by their children and adolescents. ALS United Connecticut refers families to this resource.
• Veterans Affairs (National VA System)coreStrategic or Co-development PartnerALS is recognized as a service-related disease for any military veteran. The VA system provides 100% service-connected disability benefits to veterans with ALS, including monthly compensation, durable medical equipment, home care supports, caregiver/spousal supports, and assistance with home modifications. ALS United Connecticut coordinates closely with VA Connecticut to serve veteran patients.
• Hartford Yard GoatssupportingGTM or Marketing PartnerThe Hartford Yard Goats minor league baseball team hosts Lou Gehrig Day events at Dunkin' Park to raise ALS awareness. The partnership includes ticket sales and community engagement during May ALS Awareness Month.
• Stop & ShopsupportingGTM or Marketing PartnerThrough the Stop & Shop Community Bag Program, $1 is donated to ALS United Connecticut for every $2.50 reusable Community Bag purchased at selected Stop & Shop locations in Connecticut (Wilton, Milford, Litchfield).
• Fairfield Theatre CompanysupportingGTM or Marketing PartnerALS Fest: United Thru Music is hosted at the Fairfield Theatre Company venue, bringing the community together for an evening of live music to raise awareness and funds for ALS United Connecticut.
• Luke Pepper CreativeminorOthersLuke Pepper Creative produced an organizational video showcasing ALS patients and caregivers and highlighting the services provided by ALS United Connecticut.

Scale indicators10 records

Recent moves6 records

Expansion highlights6 records

Broad incumbents

• Muscular Dystrophy Association (MDA): A large national disease-focused nonprofit covering ALS among multiple neuromuscular conditions. Operates the MDA ALS Care Center network (including the Hospital for Special Care partnership referenced by ALS United Connecticut), and serves as both a collaborator and a broader incumbent in the space.
• ALS Therapy Development Institute (ALS TDI): The world's largest nonprofit biotech focused exclusively on ALS research. Comparable mission around ALS but emphasizes in-house drug discovery rather than the care-services-plus-advocacy model; competes for the same research-funder and donor mindshare.
• The ALS Association (national): The largest ALS-focused nonprofit in the United States with a national footprint and 39 chapters. Provides similar care services, research funding, and advocacy at far greater scale; comparable mission but operates as a separate federation rather than through the ALS United network.

Direct peers

• Les Turner ALS Foundation: A regional ALS nonprofit serving the Chicago area with a comparable mix of care services, support groups, equipment loans, and research funding. Operates the Les Turner ALS Research and Patient Care Center at Northwestern Medicine, paralleling ALS United Connecticut's clinical partnerships in CT.
• ALS United Greater New York: A sister chapter within the ALS United national network serving ALS patients and families in the greater New York region. Highly comparable as both organizations share the ALS United brand, mission framework, and Care Services/Equipment Loan/Transportation program model, differing primarily in geographic coverage.
• ALS Network: A co-founding ALS United member that runs the ALS Research Innovation Initiative. ALS United Connecticut directly partners with ALS Network on research funding (e.g., AUTTX co-investment), making it the closest operational peer in research administration and program coordination.

Emerging players

• Project ALS: A nonprofit that funds and drives preclinical and clinical ALS research at leading academic institutions. More narrowly focused on research translation than ALS United Connecticut's full care-services model, but comparable as a disease-specific research funder and awareness organization.
• Answer ALS Foundation: Convenes leading ALS research institutions to deliver the Answer ALS research program including the largest single ALS data and biorepository collection. Overlaps with ALS United Connecticut's research funding mission and is part of the broader ALS research collaborative ecosystem.
• Live Like Lou Foundation: A smaller ALS-focused nonprofit that funds ALS research through the Live Like Lou Center for ALS Research and supports ALS families. Comparable mission profile at smaller scale; relevant peer for benchmarking fundraising and grant-making in the ALS space.

Others

• Hope Loves Company: A nonprofit providing emotional and educational support to children and young adults affected by ALS. ALS United Connecticut has an active partnership with Hope Loves Company for its 'Beyond the Bunk' children's program, making it an adjacent ecosystem participant rather than a competitor.

Market position

Strengths5 records

Weaknesses5 records

Competitive moat5 records

Key risks6 records

Key highlights6 records

Customer concentration

• Xtwitter.com/alsunitedct
• YouTubeyoutube.com/@ALSUnitedCT
• Facebookfacebook.com/alsunitedct
• LinkedInlinkedin.com/company/alsunitedct
• Instagraminstagram.com/alsunitedct

Compliance2 records

Revenue estimate

Valuation estimate

Number of profiles

Profiles9 records

Funding overview

Funding rounds

Investors

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M&A

Investments

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Frequently asked questions about ALS United Connecticut